It’s amazing what you find when you open your eyes.
Another application for additional support. This one was a long shot. Additional funding to provide some specialist support in school for our son. Turned down.
Same line. He already has funding (the maximum available with an Education Health Care Plan) which allows him to take up his place in school. The funding goes into the general support budget which funds the school wide teaching assistant system. Plus he’s doing so well without support.
The fight goes on.
Then speaking with his Doctor. Son is now starting to become too old for many of the health programmes focusing on autism.
The fight goes on.
It feels like the agencies have signed up to support our son while he is in school or college up to the age of 25. The agencies provide virtually no support now. They will continue to provide virtually no support up to the age of 25. Then they can officially provide no support after that….
Ultimately the agencies are just following Government policy and funding decisions. The current government sees austerity and cutbacks as essential for health and education. Yet they are happy to provide funding for tax breaks for the better off and bungs to Northern Ireland Unionists to keep themselves in power.
Nothing is going to change any time soon.
So the fight goes on. But one day the government will change and hopefully we will get one which governs with eyes wide open.
Ugh. So sorry about the continued frustrations. ❤
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It’s modern day life really for many.
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Fingers crossed!
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Thank you
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So very frustrating. Their version of “he’s doing okay” is so far from what we see as parents. Hoping for something better for you and your son’s support!
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And I really wish the same for you and your kids as well.
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Keep fighting.
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We will
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Keep it up. There are many fronts on which to fight this administration. I am not too sure how much longer they can cling on, especially if B J wins. I am very worried though by the popularity of the far right Brexit party. Has the nation lost its mind?
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Sadly enough have lost their mind to get us into trouble
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We must fight or go the way of the dinosauers.(can’t spell) :))
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I quite fancy being a Triceratops. But sadly you can’t rule that out.
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Wow!!!! How disappointing it must be! 😒
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We keep going. Just have to.
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Ohhhhhh damn it all!!
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Thats the spirit
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What a magnificent photo! 🙂 Did you take that with a camera phone?? If so i am very impressed Sir – great work!
Glad you are keeping your eyes wide open – at least on your walks it’s ‘safe’ to do so. 😉
I suspect it will take a much more vigourous ‘opening of our collective eyes’ as to the lie most of us are constantly being fed by those in power, before we get the government of the people, for the people.
Lets all do what we can to wake up/take the blue pill.
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Yes. The secret is to remember its old so to just give it the time to focus and sort itself out. The days of just clicking away are beyond it now.
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The two of you seem well-matched! 😉
( Really am enjoying your choice of pics lately!) 🙂
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Thank you sir.
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God knows what we will get in the form of governments next. We might even miss the present one!
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Unbelievably it’s going to get worse. The only hope is that it’s that bad it only lasts days. But the worry is that we have no viable alternatives.
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It is going to get worse. Our only hope is when everything breaks they’ll have to put something else together, and it might be better…Please?
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Sadly I fear the numpties will still be in charge. Still sitting on their fortunes.
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More like Eyes Wide Shut
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Indeed
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I don’t understand this. Your child has funding via an EHCP which goes to the school, but the school take his money and refuse to give the support! In the school I work in EVERY child with an EHCP will get support. I think anything else is just a form of theft. I feel really shocked that this is happening to you guys.
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I our area the Education Psychologists tend only to see kids with behaviour issues. In 5 years son has been seen by one for 15 minutes in class. Seemed more interested in his scruffy hair. No one to one help in school just the Teaching Assistant who is allocated to the whole class. In his class one of the kids has behaviour issues so the TA usually keeps an eye on this boy. Son has to put his hand up to ask for help.
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I think your experience with the Ed Psych is fairly common. Both the teacher and the Senco have to be bleeding from then eyes
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Oops, pressed send when I was going for backspace. This is what I meant to write…
The Ed Psych issue doesn’t surprise me. The class teacher (in Primary) or the Form tutor /year head (in Secondary) and the Senco have to both be sweating tears of blood for an extended period to get a child on the list for the Ed Psych. It’s a shame because the Educational Psychology Service can be very helpful.
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The two missing links are the Ed Psych doing detailed reports on each child and the budget. Schools have to pay for the ED Psych Service now but they haven’t got the money to pay for that. So when they do come out it’s a very brief visit and the generic report is useless for the school.
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Well that sounds like it’s as useful as an ashtray on a motorbike! I guess different schools approach it differently.
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Sadly the schools round here are the same
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I’m sorry you have to deal with that.
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Thank you
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It’s mixed. Some are some not so.
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Interesting to hear you talk about how things are supposed to work – but don’t necessarily – in your country and compare it to how things are supposed to work – but don’t necessarily in the U.S. Wish all kids everywhere could just get the services they need.
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The kids should not have to fight for help. We should be giving them all the chance to fly.
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How old is your son? I’m asking because my teenager has recently been evaluated for autism and we get the results on Tuesday. We were told it’s important to figure out if he’s on the spectrum but from my perspective, he’s going to need the same interventions whether he is or isn’t. I really don’t know how thirteen years passed before a doctor pointed us in this direction. Is your son aging out as my son is trying to opt in?
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Need a coffee fix so still suffering from Sunday brain zombism. Started the process when he was 5 – I think. About 8 when we got the diagnosis confirmed. 10 before we got the Education Health Care Plan. Now 12. The main thing is that it helps him understand why.
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Courage, brother. Better days ahead.
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Thank you
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I hope so! Its horrible you have to fight so hard for everything!
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We just got to keep going
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GAH. It’s, like—what was that show, Undercover Boss? Like, if they actually sent an undercover official to come in and observe how this “help” is given, I have a feeling they’d see things veeeeeeeeeeeeery differently. C’mon, they’ve got to have a James Bond on hand somewhere, don’t they?
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It’s different worlds they live in. Occasionally they will give out some scraps to keep enough people happy so as to protect their world. I think those in power do have an idea of what the real world is like they just choose to ignore it.
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