At the start of the year our son agreed to try and visit at least 12 new places this year. Today was going to be one of those trips. A visit to a beach and weather worn castle. We were all set. Picnic packed. We made it to the car.
Dad I am really not happy about this. I can feel my stomach churning. Can I go on the toilet.
An hour later we called off the expedition. That’s the thing about Autism. You can’t make definite plans and stick to them. You need to be flexible. Bend with the wind. Sometimes you do turn up at an event or arrive at a destination. But you never relax. Never feel completely at ease. You see the other parents happily enjoying a drink or a chat seemingly oblivious to their children. That’s not our life. You feel apart from the others. Constantly circling the area looking for the first sign of problems. Always on edge waiting for something to happen. Car keys at the ready for that early escape.
Somedays you don’t even get out of the house or car.
After it happens son can be a bit down. Thinks he’s let me down. Trust me it’s his Dad who feels like he has let his son down.
So again we need cheering up. We need a distraction.
So we have a new game all thanks to our glorious new leader Barking Boris. This ones quick to play. Let’s see who many B words we can put in front of Boris.
Silly Billy Boris
Beetroot Head Boris
Bananas in Pyjamas Boris
Yes it worked. A couple of hours later we were playing football in the garden. When I say playing football it’s more retrieving the ball from next doors garden. Not quite a beach or castle. But it’s fun. It’s an Aspergers life. It’s our life.
Promise it will be a Boris Free zone for a while after this.