Two quotes

“I AM DIFFERENT NOT LESS” – Dr Temple Grandin

Another week we dust ourselves down and go again. Although the route is still shrouded in mist and we face countless dead ends – we must keep going. If not for me but for our son.

A session with a new health professional. Always a good sign when she does not ask me what I want, she asks our son. The health professional is going to contact school to see what work they have undertaken to help with our son’s handwriting. Assuming school has done nothing and has no plans to do so (which we believe is the position) then the health service will start a programme to help with his writing. This will be the first time in three years work that son will have had specific help with his writing. Let’s see what progress can be made, what writing aids help. If progress cannot be made then that might be the time we start to move away from pen and paper to keyboard and voice recognition.

So we start down another path.

These are the specific areas son asked for help with

  • Handwriting
  • Shoelaces and Ties
  • Holding objects like handles which require two hands.

Interestingly he sees Aspergers as who he is – his personality. Aspergers is not a label just him. However he now sees himself as not dyslexic.

The fact that I can now read some of the words and can mostly guess the rest means I’m not dyslexic. Now I’m just not very good at reading.

I think this recent view of dyslexia is down to school. Firstly school sees anyone with dyslexia as low attainment. Son hates being branded as below average. As a result Son sees dyslexia as an unwelcome label. Secondly the label dyslexic brings him no additional help from school. Whats the point of referring to yourself as dyslexic if it brings no support benefits and only results in being automatically branded below other kids in the class.

The bottom line is the school system has failed him. It has failed too many kids. That’s one of the reasons you read so many cases of great individuals who have decided to hide their dyslexia. Kenny Logan is a Scotland Rugby legend playing 70 times for his country. He choose to keep his dyslexia secret. From his team mates. Even from his wife. Only at the age of 34 did he finally seek help. On what planet can this be allowed to happen. So much wasted talent and opportunities. So much stress and suffering. This is nothing short of a disgrace.

I started with a quote and I will finish with one. One from our son

When someone has a disability your not allowed to discriminate against them. If your in a wheelchair you shouldn’t have to put your hand up for help. So why is it that when someone has an invisible disability you can be ignored and that you have to say ‘Please will you help me’ and when they ignore you it’s not discrimination.

Did it work

We were in the hunt for a distraction. Why? A grisly return to school providing a harsh reminder of how badly the system lets down kids who do not fit the expected mould. The anniversary of losing my soulmate and our sons beloved mum steaming toward us. So distraction needed.

After much searching we found the only option we could find which was affordable and which was just about in the required timeframe.

Off we went to see a Rugby Union match. England playing Italy.

Normally these internationals are played hundreds of miles away in London, are heavily oversubscribed and are far too expensive. But they decided to play this last warmup game before the World Cup in North. The game was just a few days from the anniversary. It had the added advantage that some of the tickets were heavily discounted as the seats were high up in the stadium amongst the clouds.

So it ticked a lot of boxes. Just two problems. It was a night game and our son is not too confident outside in the dark. The other problem is it was going to be a 50000 crowd – that’s a lot for a kid with Aspergers.

The night actually went quite well. The outside stadium entertainment and fan park was too much for son. Just a sea of humanity. Too many people moving in all directions. No pattern. So we quickly got to the seats. Once he was sat down and the world started to become ordered again he began to enjoy the experience. Interestingly he quickly switched allegiances to the Italian Team. He put it down to a combination of them playing in blue and “coming from York we were part of the Roman Empire”. Have to say it’s gone downhill for us since the Romans left. We did play the Monty Python game of what have the Romans ever done for us game. Lots.

The walk back to the car had to be handled carefully as a busy city at night can be so daunting. At least the walk across the bridge made him forget the anxieties.

So today our spirits have been lifted by the distraction. I think we are in a better place to face the anniversary. And I’ve got my first Christmas idea for our son – an Italian Rugby Shirt.