Posted on by bereavedandbeingasingleparent · 33 Comments

Splendid

Running is such a release for me. It was such a shock when I was advised to stop due to injury. As I’m no spring chicken I feared that was it. But luckily a period of recuperation and a completely changed exercise regime has got me pounding the trails again. Some days you think WHY…..

Drenched, cold and running into a 20mph wind. Unfortunately I’m not what you would call aerodynamic. Today I felt like a tub of lard. An unfit Tub of lard would probably have gone quicker into that wind than me. At least nobody witnessed my struggles. These winter months it feels like I have the place to myself. Splendid isolation it might be but oh for the occasional running partner.

Splendid isolation is a phrase our son likes. I think he’s decided that he would love to have a circle of friends while getting as far away as possible from everyone else. I think most of us probably feel that way these days.

As a parent you desperately want your kids to be happy. Seeing the world through my eyes I often see happiness in terms of him spending time with a range of friends. Yet in reality this doesn’t happen. Over the last 16 months he’s been invited to one birthday party and probably had no more than 5 or 6 meet-ups (if that). The friends he made at his last school have slowly drifted into new friendship circles. The way his new school has put him in a class with none of his old friends has not helped. When I spoke to the school they argued that as he was basically low attainment they didn’t have any option open to them. Read low attainment as being dyslexic and being on the spectrum. And NO school – sitting a random kid next to him in a class does not count as a friend. Last year he did start to make a couple of friends in his class but both kids were moved up into a higher class in the summer. Out of school there are no kids his age in the village. Hardly any kids at all and certainly no communal play facilities for miles. But that’s through my eyes.

Through his eyes it’s Splendid Isolation. He will find the right people to be friends with in his own time and in his own way. Until then he’s more than happy with his Old Pop and doing things on his own. It’s important that we recognise that everyone is different. And difference is a good thing. To me being so isolated is a significant cause of anxiety – but not to our son. To me running is a brilliant releases – but to our son running is monumentally boring and should be restricted to no more than the occasional 5 yard burst. He does have a point.

Posted on by bereavedandbeingasingleparent · 39 Comments

Change

That’s either a years supply of fire wood or one monumental nature hotel. I strongly suspect it’s not for nature. It’s strange how things can change. One week a pile of wood is home to nature the next its ashes in a fireplace.

Immediately after my partner died I suddenly started to experience significant isolation. Largely cut adrift from society. Your life becomes intertwined with that of your partner and your own sphere of social contacts gradually drops accordingly. Rupture that partnership and you rupture your social life. On most days my only opportunity to socialise was at the school gates. The daily school run became a source of much comfort. I could talk to other parents and son would interact with the other kids. Being a small school really helped him.

Fast forward a couple of years and the school run experience has completely changed. Bigger school. No gate anymore. The parents who do turn up stay in the car and wait for their son or daughter to find them. No one gets out of the car. Very isolating.

Then you see the kids leave school. Mainly groups of kids. Twos, threes or more. Occasionally you see one walking by themselves. Son always walks by himself. Suddenly it feels a very very dispiriting experience. It wasn’t supposed to be like this.

Posted on by bereavedandbeingasingleparent · 30 Comments

Best thing

Some days life needs lots of words and some days it just needs a few.

I was going to reflect on how difficult the school bus journey can be for so many kids. I will leave that for another day. I picked our son up from school the other day and he came up with this gem.

“Dad that’s some sky. It’s a sky show. That’s why life is the best thing”.

Posted on by bereavedandbeingasingleparent · 47 Comments

Swiss Sunday

It’s Sunday so it must be time for a bit of calming Switzerland.

Last couple of weeks have found us replaying some wonderful memories from a family trip to the pyramid mountain. The Niesen.

Week 1

Week 2

I had a couple of lovely emails saying how much they had enjoyed the views and asked if I had any more photos from that trip. Thank you and here goes with round 3 then.

As with a number of Swiss mountains you can enjoy a hot drink, fine food and maybe something a little stronger at the top. The Niesen has a wonderful sun lounge that offers stunning views of The Alps.

And someone enjoyed himself.

Posted on by bereavedandbeingasingleparent · 50 Comments

Cheap

Hard to believe that 10 minutes later it was absolutely chucking it down. Maybe we have already had our summer sun for 2020.

So the week ends with two wins

  • School has confirmed that punishments like negatives will only be issued for poor behaviour or standards. They will not be for poor test scores. Son will still sit the spelling test but most of the stress he was under has been removed. Yes he still does the test but now he doesn’t have to worry about being punished if he struggles.
  • The NHS has agreed to another block of physio to try and help with his fine motor skills. He now has a new named Physio. Hopefully she will last longer than the last two. One lasted a session the other didn’t even last long enough for a session.

We take the rare wins and continue the fight.

Unfortunately our old electric kettle gave up the fight. Yes we must live in the posh end of Yorkshire as we have electricity on tap. But the kettle has brewed its last cup. As John Cleese would say ‘it’s shuffled off its mortal coil, run down the curtain, joined the bleeding choir invisible, it’s an ex kettle’. So off I went to buy a new one. The nearest supermarket had sold out of all kettles. Clearly it’s the gift of choice this Christmas. So I ventured into the main electrical retailer for our nearest city. In the UK it’s the one that sounds like a spicy dish.

I have never seen so many kettles. You can buy virtually any colour to match your kitchen. Strangely I didn’t see the The RATHER CAT PAWED SLIGHTLY FADED MARIGOLD colour. You can get clear ones so that you can enjoy watching water boil. Ones which look like Darth Vader. Ones which play music while you wait for a hot drink. WIFI enabled ones that you can control from your living room. Voice controlled ones (bet it’s like everything else – it can recognise 300 languages yet it can’t understand the Yorkshire accent). Even a kettle that you can set the temperature of the water it produces (erm isn’t that just the boiled level – maybe it goes to nuclear temperatures – that would allow the Pot Noodle to be ready in seconds).

One problem. How much…. I am not paying the neck end of £50 to £100 for a kettle. Certainly not paying £180 for something called a Smeg…Suddenly I was pounced on by the salesman trying to sell me the latest expensive model. The look of distain on his face when I said.

Have you got the basic model in stock.

“You mean the £5 one”

That’s the one.

“It’s very basic sir”

Does it boil water

“Well yes”

Well that meets the spec then.

“Most people are upgrading their kettle options these days.”

***Why am I starting to panic. Embarrassed about not buying what everybody else is buying. Then I did a Trump and Boris. Sadly I told a fib.***

Its just for our caravan which we only use a few times a year.

***why did I just say that. I haven’t been in a caravan since well into the last century***

“Oh I understand sir, it’s perfect for that”

***and off he went to find the basic kettle safe in the knowledge that he wasn’t selling it to a cheap skate or God forbid – a poor person***

Posted on by bereavedandbeingasingleparent · 66 Comments

Boris Award.

A while back we started the Alexander Boris de Pfeffel Johnson Award for services to numpties and overall nastiness.

We haven’t awarded a Boris in a while. Almost too many candidates to consider but today’s winner just went that little extra mile. Meet Sally Anne Heart the Conservative candidate for Hastings & Rye.

Sally has some interesting views. But just one needs special attention.

Sally believes that Disabled People and People with Learning Disabilities should be paid less money because ‘they Don’t Understand Money’.

Shame on any person from the constituency who votes for this candidate. Shame on Boris Johnson for allowing these views to come from his party. And shame on the media for completely ignoring this.

Posted on by bereavedandbeingasingleparent · 45 Comments

You don’t look like

Another cold and beautiful morning. Doesn’t look like the expected wet and windy weather forecast.

Robyn on her brilliant blog was taking about someone who played Death Metal music during a gym session and yet looked so UnDeathMetally. I remember a few years back going into a HMV record store and trying to buy a Hardcore German Death Metal CD. The young guy at the counter looked at me then looked at the cd and said “this might be a bit heavy for you”. I managed to stop him before he directed me to either the Country Music or Dire Straits sections. Clearly I didn’t look like a head banger. I should have warn my Motörhead Tour T-shirt.

I remember another time at work when a particularly gruesome Salesman barged into the office and asked to speak to the Chief Accountant. When he was pointed in my direction he walked up to me and announced “you don’t look like a Chief Accountant” and laughed. In an unusually sharp response I came back with “you don’t look like a person with an appointment” and proceeded to ignore him until he sheepishly left.

But apart from these two moments ‘not looking like something’ has not been applied to me much in my life. Well apart from this year. It feels like it’s been open season on me. The following have all been said to my face over the last 12 months

– You don’t look like a vegetarian

– You don’t look like someone with depression

– You don’t look like that photo on your driving license

– You don’t look like your passport photo

– You don’t look like a boxer … the physio said this as apparently I had a muscle injury normally associated with boxing

– You don’t look like your best pleased

– You don’t look like a single dad … said to me by someone in the village

– You don’t look like someone who plays Pokemon Go

– You don’t look like an XL … No but is it a crime to like wearing baggy tops for training

It’s not just me. It’s a team issue this year

– Your Son doesn’t look like he has Autism …. said by a teacher

– You don’t look like a boy with your hood up you have girls eyelashes … this was immediately preceded by the longest and hardest Paddington Bear Stare by our son.

– Your dog doesn’t look like he’s partly Cocker Spaniel

– Your dog doesn’t look like he’s partly German Spitz

– Your dog doesn’t look like he’s calmed down

– Your cat doesn’t look like he gets much exercise

These were all said very innocently and are rather mostly amusing. Some you scratch your head and think what on earth is a single parent supposed to look like. Some are worrying – too many still assume that if someone tells a joke then they couldn’t possibly be depressed. Then there are the ones which are breathtaking. An educational professional demonstrating such staggering ignorance of Autism. It makes you realise what a long way we have to go as a society.

Posted on by bereavedandbeingasingleparent · 63 Comments

Election Fever

Feels more like Frank Herberts Dune than Yorkshire today.

We are a week away from our countries latest election. I don’t know why we bother having a vote as the media are all screaming at the public to vote for Boris Johnson. A pack of media hounds trying to rip to shreds the Opposition Leaders. Yet the hardest scrutiny Johnson has faced seems to have been how he makes a cream scone.

Strangely no mention of the lies, the alleged affairs, the islamophobia, extreme policies or his contempt for ordinary people. Yes very like a strange Frank Herbert world.

A knock at the door this afternoon. A man dressed as if he’s just been shooting pheasants (or maybe peasants).

Can I count on your support for the Conservative Party Candidate and Boris Johnson. Let’s get Brexit Done.

So exactly what does let get Brexit Done mean.

When Boris is elected PM he will get Brexit done by the end of January.

So will he sign off on the full text of a EU trade deal by January then.

Erm that’s the details. He will get Brexit done January 2020.

But the boring details are the important bits of Brexit. So will they be completed by January.

No but Boris will sort them so we can spend on the NHS, Police and make tax cuts. It’s all about getting Brexit Done.

So he’s not getting Brexit Done then. He’s just agreeing to go and we worry about all the important stuff later.

But he’s getting Brexit done. After January we won’t talk about it again and we can have more 50000 new nurses and large tax cuts.

But as an MP and London Mayor he has either voted for or agreed to budget cuts for those areas. The only thing he’s supported is tax cuts. So why the change of heart. Plus the 50000 seems to be mainly made up of existing nurses. Keep current nurses doesn’t make them new nurses.

*** shooting man now giving me that – am I talking to a traitor – look. ***

The budgets cuts are the fault of The Labour Party and the EU. When Boris gets Brexit Done .. erm … Britain will be great again.

But Labour has not been in power since 2007. How can it be there fault.

Corbyn has personally stopped Brexit. He’s a traitor to the people who voted to leave.

Are you not forgetting your own Conservative MPs and a Former Conservative PM who agreed that the Johnson deal is a disaster and really just an excuse to crash out of Europe without a deal.

*** shooting man now very red in the face ***

Clearly your a remoaner. Boris will get Brexit Done for the good British people who voted to leave.

Can I ask about why the Conservatives are in favour of bringing back fox hunting when in your terms the vast majority of the public are in favour of a complete ban. And why the Conservatives have said so little to say about climate change. Why Boris Johnson was the only party leader who refused to debate climate change on the live broadcast.

*** but shooting man was gone. Walking briskly to the next house. I didn’t have the heart to tell him that as he walked across my lawn he trod on one of Captain Chaos’s finest and freshest dog turds. I bet that doesn’t feature on any of the media’s election coverage.

Posted on by bereavedandbeingasingleparent · 66 Comments

A little bit of France

A largely sleepless night. Too much time to think. World seeming particularly cold this morning. In need of a lift. For some reason the run didn’t work today. Just a freezing slog. A slow 30 minutes and then the motivation battery completely drained. So back home even colder and still in need of a lift.

But then salvation. Old photographs. Memories. Great Memories.

Back to 2001 which finds us in the Loire.

Chateau de Chenonceau was built over the River Cher in 1576. It’s French Renaissance Architecture at at finest. The chateau has a fine collection of masterpieces, tapestries and renaissance furniture. The long Grand Gallery stretches over the bridge and across the river. It’s a stunning place. Inside and outside.

As much as the chateau brings back great memories one photograph lifted my spirits. It reminds me how truly blessed I was to spend time with this special person. Always in love. That makes me smile.

Posted on by bereavedandbeingasingleparent · 72 Comments

Try harder

I must try harder to catch a few Pokémon. During the week Son likes to see his trainer account topped up with a few catches. I’ve had a fairly shocking catch rate recently. Maybe it’s the Captain Chaos effect.

Our Son struggles with his handwriting. According to several of the teachers at his school he just needs to try harder to get to the handwriting level of some of the other kids. Its one of the reasons he has been labelled low attainment.

Well that’s very helpful, thank you. Just remind me again since you are constantly picking fault with his efforts with a pen – exactly what help do you provide to try and improve things. Yes now what’s the phrase I’m looking for here. Diddly squat.

Yes his handwriting is not what you would call neat.

It has improved a bit over the years. That improvement is down to – strangely – unrecognised hard work by our Son. But we have to recognise for all the hard work it is fundamentally down to a recognised medical condition. A medical condition which has been repeatedly documented by his health professionals and communicated to school. To quote the last health letter sent to school

His poor handwriting is specifically associated with the Developmental Disorders Aspergers, Dyslexia and Dyspraxia. Conventional teaching approaches to handwriting are unlikely to deliver any positive improvements. Focus should be on specific Dyslexia investigations, Fine Motor Skill development, trialling of writing aids and the use of technology.

In effect his handwriting difficulties come from two interrelated factors

  • Visual and Cognitive Letter Perception – he struggles to recognise letter forms. Letters can be reversed and letters can be mixed up (an ‘a’ maybe mixed up with an ‘e’, ‘y’ mixed up with a ‘g’).
  • Poor Fine Motor Skills. He struggles to hold a pen (often held with too much muscle force). He then finds it difficult to coordinate and control the required hand movements (his movements are not smooth).

As I’ve said improvements have been made. We did manage to secure some ongoing Physio Therapy to work on the motor skills. Due to Government cutbacks they are not as frequent as the health service would like them to be. But they have helped. At home repetitively bouncing various size bouncy balls has made a huge difference. From not being able to catch to becoming really adept at it. But he still struggles to write, struggles to tie knots and has to be helped to open things like screw bottle tops. At home we have tried various pen types and grips. We have trialled things like colour overlays and special rulers. But these have had little impact in our sons specific case. But I’m no specialist so who knows if I’m doing it correctly.

In terms of the visual and cognitive perception area unfortunately the health service is not allowed to provide any detailed dyslexia assessments. This has been defined by the Government as an educational area. And in our area the educational services have decided not to provide a specific dyslexia service. So kids like our son are left basically to fend for themselves. Branded as low attainment.

So the hard work will continue. I will try harder to catch some Pokemon. Not hopeful as I’m not that good with computer games (I struggle with fine motor skills as well). In terms of our Sons handwriting I am sure that he will continue to try hard. However just saying he must try harder completely misses the point. Just constantly pointing out the kids who write neater and saying that’s the level you should be at achieves only one thing – erodes personal confidence even more.

One final thought. Associating poor handwriting with low attainment is an interesting concept. Having worked in education, health and policing I can honestly say that the individuals often with the most illegible and scruffy handwriting are the HEADTEACHERS, DOCTORS and DETECTIVES. So if poor handwriting is a sign of low attainment – we are in trouble.