ADHD and Aspergers

Beckies Mental Mess this week has been doing a great job of raising awareness about (ADHD) Attention Deficit Hyperactive Disorder. I’ve just read Rory’s words which explain so well what it’s like to live with ADHD.

From here in this quiet part of Yorkshire ADHD is very much part of our life. It’s now officially part of our sons diagnosis. But it feels very much like a junior version. During the long and ever so frustrating diagnostic process which he went through ADHD was an after thought. It was missed. Never mentioned. Everything was lumped into Aspergers and Dyspraxia.

Then our Paediatrician changed. In his first meeting with our Son he genuinely seemed surprised that he could find no mention of ADHD on the records. A few weeks later it was added to the diagnosis. Why was it missed?

We where made aware that Aspergers in most cases goes hand in hand with other conditions. Everything seems to merge together to give a unique set of symptoms and personality traits. It is often difficult to unpick the individual conditions. Generally Aspergers and Autism are just used as overriding terms to cover a wide and complex set of interrelated issues. In our sons case ADHD was just missed. A specialist went through the original symptoms list. Of the 16 original listed symptoms which were defined as Aspergers related 7 were later changed to ADHD.

As soon as ADHD was on the medical record we were offered medication. Interestingly although our Sons the symptoms had not changed at all suddenly the addition of four letters prompted the option of drugs. We declined. Or should I say Son declined. In his words

ADHD hasn’t changed me. I’m still the same person with Aspergers. It’s just who I am.

Since we declined medication ADHD has never been specifically mentioned again by our Doctors. They have continued to offer behavioural therapy to try and ease the young Aspergers kid into this strange old world. Due to Government cut backs the therapy is becoming increasingly sporadic. Once someone gets past a certain age the health support basically dries up. But at least something happened. From an Education point of view basically no school interventions have occurred. No assessment of educational impact has been carried out. It’s the standard education package for all regardless of any specific needs. It’s so much easier to bracket individual kids as low attainment.

This is the shocking fact in education today. Certainly here in England. Specific educational help to those with a learning disability – some prefer to call it a learning disadvantage – is denied to too many kids in our society. Effectively they are seen as an expensive drain on resources. So much easier to write them off. How do we explain that to our kids. How as a society have we got education so wrong. We need to keep shouting as one day those in charge will listen.

Red Sky in the morning….

Red Sky at night …. fisherman’s delight. Red Sky in the morning …. fisherman’s warning.

Yes it works.

A routine dental appointment ended with me trying to stem blood from the mouth for 4 hours. That’s a good start. Especially as I’m one of those odd souls who is fine with blood as long as it’s not mine….

Then school struck again….

Son had been looking forward to getting his school award from the celebration evening. That’s all changed now.

I don’t want to go. I REALLY don’t want to go. Turns out it’s not a party after all. Everyone getting an award has to go on stage and then give a little speech to the crowd. Going to be at least 100 parents sat in the audience. We have to practice the speech tomorrow. When I told the teacher about my Aspergers she said ‘it would be good for me'”

So we have gone from a boost to self confidence to meltdown. Doesn’t help when the kids have been told that they are representing the school so they need to be in full uniform and speak with a loud clear voice. Speaking to a large audience is a challenge for anyone. For a kid with Aspergers it’s a nightmare. Room full of strangers, no where to hide, all those eyes on you. One final twist is that the kids can take notes on stage to read from – well that’s bloody helpful when your dyslexic. It’s just not right. AGAIN.

So we have agreed that son will ask if he can get his award without going to the event. If he has to go then he is going to decline the award. If that’s the case then I’m sure a Dad , Son, Cat, Dog and Gerbils can come up with our own FUN awards night. The magic word being FUN.

Dumbo meets Braveheart

Everyday more red bursts through to bring life to Yorkshire In Autumn. No creative license required here. Last night son asked to watched the Mel Gibson movie Braveheart. He quietly watched the movie in one sitting. When it had finished he had one of those looks. The Paddington Hard Stare.

Where do I start. I gave up making a note of the historical inaccuracies when I got past 30. I think they were averaging one a minute. I hope people don’t think it happened like that. As a piece of pure make believe it was ok. As an accurate record of real history I’d rather trust the new Dumbo movie”

I have to say the new Dumbo is great. But it’s one of the THOSE movies which would have been much easier to watch if it had come out before our world changed. Movies with the death of a mum are still very raw. For both of us.

Dumbo also touched on the idea that sometimes we are not prepared for what may face us a parent and as a human. Don’t want to give any real spoilers away so I can’t say too much about the movie.

I wasn’t prepared in the slightest way for being a single parent. For being a widow. For having that awful conversation with your son. For picking up the pieces of a life which had been based purely on three of us. But to be fair as a couple we were not prepared for the loss of one of us. Our lifestyle was based on two parents. Financially it only worked with two of us. After we became a family our careers only continued to work because we could share the load. We only continued to have a bit of a social life because the other partner was there.

So when you suddenly take one partner away …. it all comes tumbling down. Three years later we are still trying to rebuild our life’s. Watching another autumn and another set of red leaves makes you appreciate life goes on – even after a death.

The view opens up

One of my Running trail runs is tough. It’s a muddy slog through increasingly thick woods. It’s a slow claggy run climbing through undergrowth that sees only glimpses of the sun. It’s very claustrophobic. Your on your own. A little voice keeps telling you to just stop. Why am I doing this. One step forward, two back.

But with patience and effort the going becomes easier. The ground levels out. The cover starts to thin and the distant view begins to reveal itself.

Then your out. The openness is initially disorientating but it’s been so worth the struggle.

Then a reluctance. A moment of doubt. Need to turn your back on the openness and head back into the dark. The way is back through the woods.

This trail run reminds me of our life these days. I head into the working week with trepidation. Too much to do and not enough time. Self doubt is king. Often so little direction and so much frustration. It feels like you are against the world. Battling uphill through mud. Our Son heads into 5 days of mainstream school. So little help. Fighting on his own. Not sure why he is doing this. It’s an alien world. You just have to keep plodding on but then Friday comes. Our hopes and spirits build. Then you arrive at the weekend. For two sweet days life improves. The week’s slog and struggles are forgotten. But so quickly it’s late Sunday and you face the trepidation of the upcoming week and the return to the darkness.

So we move on. The week calls and maybe so does the woodland trail. That’s our life cycle.

Where are the cobwebs

Autumn is definitely here. The flowers have gone. Many of the trees are bare. The leaves that remain have increasingly turned vivid red. My partner loved this time. She would find any excuse to spend time outside. Just looking at the colours. Today looking at the reds in the garden I have purpose. These eyes are looking for her as well. I try to spend an extra minute. Spending as much time as she would.

Before the world changed my partner would be fixated on the colours but I would have other things on my mind. Cobwebs. I love Autumn for the intricate and beautiful cobwebs which begin to take over our world. The young spiders have had all summer to grow. It’s also a time when spiders are out looking for mates. AND the weather and the dampness are perfect for adding to the cobwebs drama.

The weather is perfect but for some reason the cobwebs are largely missing. Still no abundant arachnid display. Maybe next week. Then we can be both happy. But at least this weekend we did get one cobweb. Hopefully it’s the start of Autumn becoming complete.

The First Swiss Sunday

It’s Sunday. We are still clinging to our mad old planet. So it’s time to breathe and visit a place seemingly immune to the growing madness. A place of peace and beauty. It’s Switzerland.

I’ve been so fortunate to visit this wonderful country on a number of occasions. So many stunning locations. But I have a soft spot for one mountain. It’s called The First.

It’s not that big. It’s classed as a minor summit of the Schwarzhorn. But it would be massive if it was in the UK. It’s all relative.

The trip starts with a beautiful train journey to Grindelwald.

The First is special to me. It was the first Swiss Mountain I went up. It’s the one I’ve been on top the most. It’s the one I stood on top in a T-shirt and shorts in the middle of a massive snow drift. In fact it was the first adventure I ever had in this great country. On a Sunday 17 years ago.

So forgive me. Lots of photos.

Once in Grindelwald you take a small cable car to the top. The views are epic.

And they just keep on coming.

The higher you get The Alps slowly reveal themselves.

How can a country be this beautiful.

Eventually you arrive at the top of The First.

Next week the adventure will continue.

Night time visitor

For over a year we have had a nighttime visitor. Brief glimpses. Garden dug up. A few signs. Then last night FINALLY you revealed yourself in all your glory.

Kind enough to stay long enough for the mobile phone to adjust to the darkness.

Even a stroll close up to see what the strange humans were doing. The Government is trying to cull your kind. But you are most welcome here.

Bubble burst

Dad why are you smiling.

I’m playing that mind training game. My brain age has been assessed as 28.

I take that it’s 28 months and not years then Dad.

Consider my brief basking bubble has been officially burst.

I was listening to a chap on the radio basking in the news that Brexit has moved a step closer. In his bubble this is wonderful. The new deal our great PM has negotiated is brilliant. Billions been taken away from Europe and will be given to our NHS and schools. Taxes will come down. Businesses will boom. Wages will rise on the back of all these wonderful new trade deals. For our country and our kids I really hope his bubble is not burst. I really do.

I wish I was in this Brexit bubble – but I’m sadly not. This brilliant deal is based on two dubious principles.

  • A Customs Union Border in the Irish Sea splitting the UK in two with Northern Ireland effectively staying under EU trade rules. Bizarrely our PM said last year that this idea would be a disaster and no Government could ever sign up to it. Equally bizarrely our Foreign Secretary has said the arrangement will be a great deal for Northern Ireland. Staying in the Customs Union is a special deal. Ok so why is this special deal not been given to Scotland, Wales and England. Oh yes I forgot that would mean staying in the EU.
  • All the important negotiations on trade and relations with the EU will be done after we officially leave. Basically we would have 14 months from leaving to sort this out. So basically we leave without known on what basis we are going. But here’s the rub. Here’s why many on the Right love this idea. It gives the Government the right to leave with no deal. Just have to wait 14 months then thy can blame the EU. That’s the crash and burn strategy many on the Right have always wanted.

The bottom line is this new Brexit Deal is a BAD DEAL which was rejected last year. Rejected even by the team pushing it now. It’s a Great Deal for the Rich and a BAD DEAL for the rest of us. Again I hope I’m wrong but deep down I do fear for the future. No I don’t think the Country will go bankrupt. Life will continue. But it will be worse. We are not in a strong bargaining position for the new trade deals. Any deal with Trump will mean opening up our NHS to his big business friends. To compete the Government wants Britain (now Northern Ireland remains effectively in the EU) to move to an economy which is based on low wages and zero regulations. Where the drive is for tax cuts and profits for the Rich. Our wages are going to fall and our worker rights are going to be eroded with no safety net of public sector support.

But apparently I’m missing the point of Brexit. One of the biggest supporters of Brexit has said ‘Brexit was never just about the money’. That’s easy for you to say when your not exactly short of a penny or two. But ok point taken. Let’s look at travel rights. Britain’s will lose the right to travel freely in 26 countries and will not benefit from free or discounted medical cover in those countries. That’s not so good. One of the first actions of Brexit will be to scrap EU regulations on Food Standards, Environment Protection, Freedom of Speech, Workers Rights, Maximum weekly working hours, Maternity and Paternity Rules. The rules designed to protect us. Thats not good either. But hang on let’s not forget we get a different coloured passport with no mention of Europe on the front. Unfortunately last time I heard the new passports will be largely produced in the EU. But let’s celebrate having a blue passport, so much nicer than that red one.

For my sons sake I really hope I’m wrong. I really do. But at the moment I’m clinging to the hope that this new deal is rejected. Yes in an ideal world I would like to stay in the EU. The EU is certainly not perfect but it’s a whole lot better than the current alternative. But if we do go then WE still have time to do Brexit right. Just agreeing to keep Freedom of Movement would make a huge difference. And yes in our little bubbles we can still have our Blue Passports.

The boys are back town

The boys are back in town. Well I hope it’s ‘The Boys’ as we might get a plague of Gerbils soon.

Three is plenty. The pet shop certainly saw us coming with the line – they have always been together, such a shame to separate them. To be fair to the G Team (can’t believe someone came up with a rodent G Force before me) they are exceptionally friendly, clean and don’t eat much. When I say don’t eat much. They do shred cardboard. Epic proportions. They also do like to destroy gerbil houses. Good job we have started to make them ourselves.

Unfortunately some things you can’t make again.

Take a long hard look. A stunning Swiss Glacier. Many of these wonders have lost up to 2m of thickness just in this year. They have lost over 10% of their volume in the last 5 years. At current rates 90% of The Alps 4000 glaciers will be gone by the end of this century. Why? 2019 was the third hottest on record for Switzerland. 2018 was the fourth. 2017 the 5th. 2015 was the 2nd. In September a wake was held for another glacier which had been sadly lost. It won’t be the last.

Terrible Poetry

After a weeks sabbatical it’s time to return to some terrible poetry. This week the Grand Bard Chelsea Owens has started the following guidelines.

Here are the specifics:

  1. At the excellent suggestion of Deb Whittam, our Topic is fractured nursery rhymes. Since I’ve done this categorybefore, the rule is that you must take an existing nursery rhyme as your base.
    Mess up Mary’s lamb. Make Jack and Jill lose their heads; literally. Turn Little Jack Horner’s plum into a shark.
  2. The Length is determined by the rhyme you choose. No, you needn’t do every stanza of “Old Mother Hubbard.” It’s up to you.
  3. In terms of Rhyming, that is also dependent on the one you choose. All the ones I’ve read rhyme, so you can count on doing the same.
  4. Please, young writers, Make it terrible! Mother Goose will spontaneously molt at the very mention of your name and children everywhere will be permanently scarred for six months.
  5. The target audience is children, so a G-Rating is necessary.

You have till 9:00 a.m. MST next Friday (October 18) to submit a poem.

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Row, row, row your boat
Gently down the stream
Merrily merrily, merrily, merrily
Life is but a dream
Row, row, row your boat
Gently down the stream
Merrily merrily, merrily, merrily
Life is but a dream
Row, row, row your boat
Gently down the stream
Merrily merrily, merrily, merrily
Life is but a dream
Row, row, row your boat
Gently down the stream
Merrily merrily, merrily, merrily
Life is but a dream

Now for the updated version

Row, row, row your brexit
Gently wants to make me scream
Terribly, terribly, terribly, terribly
Life is but a dirty scheme
Bankers, fill, fill fill your boots
Gently wrecking our kids dreams
Horribly, horribly, horribly, horribly
Life is ruled by corrupt regimes
Row, row, row your lies
Gently down the pan
Stupidly, stupidly, stupidly, stupidly
Life is run by an ignorant racist madman
Hedge funds , screw, screw screw your world
Gently throw the climate down the garbage can
Corruptly, corruptly, corruptly, corruptly
Life is a dream if you are the bogeyman