Two quotes

“I AM DIFFERENT NOT LESS” – Dr Temple Grandin

Another week we dust ourselves down and go again. Although the route is still shrouded in mist and we face countless dead ends – we must keep going. If not for me but for our son.

A session with a new health professional. Always a good sign when she does not ask me what I want, she asks our son. The health professional is going to contact school to see what work they have undertaken to help with our son’s handwriting. Assuming school has done nothing and has no plans to do so (which we believe is the position) then the health service will start a programme to help with his writing. This will be the first time in three years work that son will have had specific help with his writing. Let’s see what progress can be made, what writing aids help. If progress cannot be made then that might be the time we start to move away from pen and paper to keyboard and voice recognition.

So we start down another path.

These are the specific areas son asked for help with

  • Handwriting
  • Shoelaces and Ties
  • Holding objects like handles which require two hands.

Interestingly he sees Aspergers as who he is – his personality. Aspergers is not a label just him. However he now sees himself as not dyslexic.

The fact that I can now read some of the words and can mostly guess the rest means I’m not dyslexic. Now I’m just not very good at reading.

I think this recent view of dyslexia is down to school. Firstly school sees anyone with dyslexia as low attainment. Son hates being branded as below average. As a result Son sees dyslexia as an unwelcome label. Secondly the label dyslexic brings him no additional help from school. Whats the point of referring to yourself as dyslexic if it brings no support benefits and only results in being automatically branded below other kids in the class.

The bottom line is the school system has failed him. It has failed too many kids. That’s one of the reasons you read so many cases of great individuals who have decided to hide their dyslexia. Kenny Logan is a Scotland Rugby legend playing 70 times for his country. He choose to keep his dyslexia secret. From his team mates. Even from his wife. Only at the age of 34 did he finally seek help. On what planet can this be allowed to happen. So much wasted talent and opportunities. So much stress and suffering. This is nothing short of a disgrace.

I started with a quote and I will finish with one. One from our son

When someone has a disability your not allowed to discriminate against them. If your in a wheelchair you shouldn’t have to put your hand up for help. So why is it that when someone has an invisible disability you can be ignored and that you have to say ‘Please will you help me’ and when they ignore you it’s not discrimination.

Swiss Sunday – Buildings

It’s Sunday so it’s Swiss Sunday.

Switzerland has a truly staggering array of landscape visions. Rolling hills, meadows, lakes, soaring mountains, crashing waterfalls and crystal clear rivers.

But often what is missed is how the buildings often just blend perfectly into the stunning backdrops.

So it’s time to give a quick shout out to Swiss architecture.

Every time we crossed Lake Thun on the boat we would see this building. Usually with a man fishing just in front of it and dream of living here. Maybe in another life.

The 14th century wooden bridge in Lucerne has poignant memories. It’s the last place my partners mum visited in Switzerland before she became to frail to travel. It was a privilege to share that moment with her. Its one of the most striking man made structures I have ever seen.

Most holiday Sunday’s we would come to Interlaken. We would never fail to sit outside for a Swiss hot chocolate. Then as we walked round the town we would pass this luxury hotel. We never did save up enough to one day stay here. Again another one for another life.

On our wonderful trips we spent most of our time on the Lakes and in The Alps. We didn’t often venture into the cities. But when we did we started to really appreciate Swiss architecture. How much did we miss?

I want to take this opportunity to thank those who have been very complementary on this weekly series on Switzerland. It’s convinced me to keep it going. I’m starting to get suggestions for particular Swiss themes that some kind folks would like to see. So in the coming weeks I will see what I can come up with for waterfalls and the Swiss Capital.

Took its toll

A brief few moments of calm and mellow light before the dark clouds rolled in and it absolutely chucked it down – AGAIN. A photo sometimes doesn’t tell the entire story. It doesn’t show the person behind the camera. Caked in mud and water dripping off his sodden clothing. The lane in the distance looks inviting through the lens. Really! In practice it was stream. Torrents of mud and water making it a runners nightmare. But for these brief moments it did look pretty.

The other thing the photo doesn’t tell you about the lane is the surface condition. It’s a dirt track. Trying to navigate the exposed bedrock, ankle breaking potholes and badly eroded surfaces. I first ran down this path in 2010. The new nursery was close by so I could occasionally squeeze in a quick run before it was time to pick up our Son. Then it was a beautiful lane to run down. The surface was in a wonderful condition. Flat and ever so forgiving. Clearly the decade took its toll.

Sadly it was not the only thing that the decade took its toll on. As my MP3 player had run out of juice, pondering on this helped take my mind of the battering my knees and ankles were taking.

  • The Dreamer has seen his soul darkened,
  • The thick mop of black hair now more resembles a badly worn corridor carpet,
  • The body once fluid is a little more wooden,
  • The knees once strong are a little squeaky and in need of oiling,
  • The reliable feet now most definitely over pronating,
  • My pert bum is definitely more rounded. To the extent that it has developed its own gravitational pull.

But that’s life. I can still smile. I’ve still got my best feature – my long eyelashes. I’m probably stronger and fitter than I was back in 2010. I was drinking far too much in 2010 and now I’m completely tea total. My excellent sartorial taste is still with me – bright pink leggings today. I’m certainly more resilient these days.

So yes the decade has definitely taken its toll on me but that’s not to say that actually I might be a better person for it. Which neatly brings me to saying thank you to Di for tagging me for the Ten Years (2010-2020) challenge.

Play Along Guidelines

Please share a link to the creator of the tag-jesusluvsall.wordpress.com

Share some highlights for you over the past decade and if you want, a few low points

 Tag whoever you wish to.

Ask them some questions

Use any picture appropriate for such a tag.

Going with the last guideline first, I’m also going with Rory’s choice as it works on so many levels!

So here goes then….

Is there any year in the past decade that stands out as the best?

2010. Son was a bundle of joy and energy. This was probably the last year my partner was truly healthy. Best winter in ages. Plenty of snow which hung around for two months. It was properly cold. Didn’t feel like Yorkshire. It was a dry cold. More Alpine. It was snowman central in our garden. The first snowman lasted 10 weeks.

Has your taste in music changed in the past ten years or do you think music in general has changed?

Went into the decade a metal head who liked classical music. Left the decade as a metal head who liked classical music and who plays a little bit of Leonard Cohen.

Are you heavier or lighter than you were ten years ago?

I have much improved muscle mass density with some incremental drift on the biometrics …. in other words heavier….

How many cars have you owned in the past decade?

Two plus my partners car for 2 months until it was sold. I think she would have been smiling down at me as I tried to drive her automatic which was the size of a glove compartment.

Highlights of the decade

  • Son
  • Switzerland
  • Partner

Low points

  • Death
  • Constantly trying to push up hill on support for Son
  • Rupturing Bicep

2003

2003. A time before parenting. A happy dreaming couple. A time when digital photography was still seen as the work of the devil by many. When a mobile phone was just that – a mobile phone – nothing else. My football team was still playing in the European Champions League.

31st May 2003. As the local paper described it. A once in a lifetime opportunity. The chance to see a 90% solar eclipse. Two problems

  • The peak eclipse would happen dead on sunrise. Best viewed from the East Coast.
  • This is Yorkshire.

Yorkshire does many things well. Cricket, Rhubard, Beer, Ferrets, Terriers, Chocolate, Moody Moors. We also do lots of cloud and rain. We don’t really do sun – bit of a bugger when your looking forward to a solar eclipse.

With a wing and a prayer we set off for the coast at 3am. Arriving at Scarborough an hour later. People looking out across the sea. Just before sunrise it’s hard to tell if the clouds have formed.

The first signs of morning and we wait with baited breath. Will the Sun appear.

As the sunrise time came still no sign of the sun. Maybe too much sea mist.

Then at 4.36am a thin red strip of sun appears. The crowd let’s out a huge cheer. Some hardy folk jump into the sea for a swim.

Unbelievably the infamous Yorkshire weather was playing ball today. Not a cloud in the sky.

As the Sun continued to rise a beautiful red then orange water path virtually led the way to the eclipse. Someone had brought a ghetto blaster and almost hypnotic music drifted across the morning air. The dreaming couple talked about an adventure to a far off land to see a full eclipse one day. One day.

17 years later. The Yorkshire weather is certainly not playing ball. I came across these photos looking for my birth certificate. They instantly took me back to that time of dreams and a truly magical partial eclipse.

One more little miracle. A photo involving me. A photo I can sign up to. So to those who have asked for a picture. Ok here it is.. Me back in 2003.

Terrible Poetry

It’s time for of hopefully terrible poetry in the form of Chelsea Owens weekly competition. This week the rules are.

  1. The Topic is The Bleak Midwinter. Yes, I know some of you are not experiencing cold weather and do not feel bleak. Maybe come stare out my window for inspiration…
  2. Try for a Length of a standard 3-75.5 words.
  3. Rhyming is wholly up to you.
  4. Make it terrible. I want your poem to force travel agencies to contact your therapist to make appointments for themselves after reading it.
  5. Keep things PG or cleaner. It’s about the bleak midwinter, for heaven’s sake.

You have till 8:00 a.m. MST next Friday (January 17, 2020) to submit a poem to Chelsea.

************

Boy it’s bleeding bleak

Low chance of me doing a streak

Every day it rains

An everybody complains

Keep hoping for some snow

More chance of seeing Marilyn Monroe

In every lane and field

Dreaded mud congealed

Wind so strong

It blows over King Kong

No chance of seeing the sun

This is no bloody fun

Every day is exactly the same

Redonculous Boris that’s whose to blame

Strange Yellow Thing

Such a change 24 hours. Yes still very very very wet and muddy. But that strange yellow thing in the sky has returned. It does make such a difference.

Son did you get time to look at the strange yellow thing in the sky today”

What strange yellow thing.

“That big yellow thing we don’t often get in Yorkshire”

Dad was it a large Canary or Yellow Parrot.

No it was Big Bird from Sesame Street”

Your pulling my leg aren’t you Dad. And Big Bird can’t fly.

Son it was the Sun. Did you see the Sun today”

Dad your not supposed to look at the Sun directly. It could damage your eyes.

*******

But life is good as the strange yellow thing is here.

*******

It’s Wednesday so it must be time for this weeks spelling test. Not the easiest thing for a kid with dyslexia. Ok Gang your words for this week which you need to learn or makeup fiction with are

Overreact, Hero, Claudio, Beatrice, Benedick, Character, Scene, Subservient, Discipline, Accused, Blessing, Suspicion, Breadwinner, Complicated, Stereotypical.

*******

But life is good as the strange yellow thing is here.

*******

A letter came home with Son today. In two weeks his year group will sit exams for all subjects. They will be organised in the same way as final exams to better prepare students. Exams will last 75 minutes with time for reading provided. Results are important as they will largely form this years assessment. This determines which set you are placed in.

*******

But life is good as the strange yellow thing is here.

*******

So beginneth the first true school test of 2020. A test for school not pupils. What support will school put in place for our son. For kids like our son. I have already let school know very clearly what we expect. Additional Time. A Reader & Scribe. Separate room. If these are not viable in any particular exam then significant marking adjustments or removing son from exams where adjustments can’t be made. Over to school now.

*******

But life is good as the strange yellow thing is here.

*******

Today at work I found out that the office unit might be relocating. A local Car Garage is looking for a trustworthy organisation to share a unit with. Oh what fun. It’s closer. More modern office. And best of all maybe I get some company. No more Billy no mates.

*******

But life is good as the strange yellow thing is here.

*******

On further investigation I do get some company just not quite what I was expecting. The garage will be using it’s part of the unit to store car parts and tyres. So my new buddies are called Mr Dunlop, Miss Bridgestone, Mr Goodyear, Mrs Pirelli and Mr Continental. Will have to tread carefully with these guys…..

*******

But life is good as the strange yellow thing is here.

Sad Playlist

It’s been yet another wet, muddy and stormy day. This photo was taken during one of the slightly drier spells.

Grim dog walk.

Exceedingly grim run.

I wasn’t planning on running today but I just needed to get out of the house. I felt the house walls closing in on me. For times like this I often find a run is the most reliable way of clearing my head. It certainly worked. Not sure it worked for the skin. Came back looking like a Prune.

When I say running works I should add And listening to music on my MP3 player as well. I have a playlist for this type run. The music is either quite deep or somber. I blame my mum for this. If she was feeling down she would always listen to music. Always sad songs. As soon as you went through the front door you could tell if mum was trying to cheer herself up. Johnny Cash, Leonard Cohen, Runrig, Sinatra, Roger Whittaker or Andy Williams would be blasting out. She always said that sad songs cheered her up. I always thought it was very bizarre yet all these years later and I’m doing the same. So here goes. Here are some of the songs which have made the list. And no Roger Whittaker and Durham Town is not included.

Alter Bridge – Godspeed

Disturbed – Sound of Silence

Shinedown – Get Up

Five Finger Death Punch – Gone Away

Runrig – Somewhere

Avenged Sevenfold – So far away

Johnny Cash – Hurt

Anathema – One Last Goodbye

Leonard Cohen – You want it darker

Queen – Who wants to live forever

Neal Morse – He died at home

Pink Floyd – Coming Back to Life

Just in case Mum is expecting it, here’s one just for mum. This is certainly not on the playlist.

Roger Whittaker – Durham Town

And here’s one for my partner. This could make the playlist.

Madness – It must be love

Grief and muddy puddles

A brief respite before the next storm arrives. Grey, cold and very muddy. Soon to be grey, cold, very muddy, very wet and stormy. It’s been one of those winters. Constantly just trying to avoid deep muddy puddles. Today I failed. My old running shoes have hardly any tread left on them. As I tried to sidestep a large puddle my foot slipped and I ended up standing in 4 inches of dirty water. Lovely. I really should buy a good pair of trail shoes but money is a little tight. Expenditure is prioritised. They will have to wait their turn.

If you we’re like me then you tried not to think about death and grief. I knew it would strike at some stage (that’s life) but best not think about it too much. I could understand the emotions as I had experienced losing my Dad when I was quite young. But I was shielded from much of the fallout. I really didn’t have the faintest idea about the practicalities. Years passed and I avoided thinking about death again. Then my mum died. This time no shield. Suddenly I was grieving again but this time I was also dealing with practicalities. So when my partner then died 6 weeks later. I was doubling up on the emotions and doubling up on the practicalities.

That is what’s tough about losing someone so close to you. At your lowest emotional point you are saddled with practicalities. You can’t think but you are trying to organise

  • Registering the death
  • Informing people
  • Organising a funeral
  • Sorting out your job
  • Sorting out your partners job. Returning work assets and documents.
  • Trying to work out finances
  • Trying to find the will and wade your way through probate
  • Dealing with Government Departments, Banks, Utility Companies
  • Trying to change the deeds to the house
  • Going through personal items and enduring countless trips to charity shops
  • Trying to change car ownership so I can sell her car
  • Sorting out what to do with the ashes

Your not even warned that the ashes come back in a glorified giant sweet jar. I wasn’t expecting an Egyptian Sarcophagus but I certainly wasn’t expecting a sweet jar shaped thing.

Like grief the practicalities tend to stick with you. As we were not married probate was brutal and took 15 months to finally bottom out. I didn’t expect that. I never considered that my career would have to be ditched quickly as it became incompatible with the now number one priority – single parenting. Suddenly two steady incomes dropped to one zero based hours contract income. Where did that practicality come from. I should have realised really. The sudden loss of someone your intrinsically linked with is going to send seismic waves through the very foundations of your life. Stuff will fall down. Things will change. Seismic waves – guess whose been trying to help son with Wave Theory for school.

So here we are in 2020 and I’m still dealing with grief. Still dealing with practicalities. I have managed to kinda stabilise the new post death financial world. But things are tight. Very tight. Again something I would never have immediately associated with losing someone close to you. But it is what it is. You prioritise the essential stuff. Unfortunately brand shiny mud loving trail shoes are not essential. So I guess it won’t be the last muddy puddle I end up standing in.

I guess I can forgive myself for not seeing that particular connection. Grief and muddy puddles.

Earthquakes and The Scottish Play

Finally succumbed to the New Year ‘Sort myself out’ bug. So the Gluten, Soya, Caffeine, Dairy, Meat Free diet is back in force. Whats the old phrase – in for a Penny in for a Pound. So on top of that it is a fasting type regime as well. 10pm to 4pm no food. Allowed to eat in just 6 hours everyday. If I was sticking to the 8:16 diet then I could start eating at 2pm but as Son is not back from school until 4 then might as well wait. It’s funny the effect it has on me. Even a simple bowl of green salad takes on an out of body experience at 4pm. Almond Milk becomes pure nectar.

Anybody who experiences the pleasure of IBS will probably understand the length you will go to try and sort your innards out. You realise it’s unlikely ever to be that magic fix. You happily settle for work around that settles things down for a few months. As you get older more items are added to the banned list. Or at best the once a year I’ve got to have my fix and will take the consequences list. It never seems to be the boring or least favourite foods does it. This Christmas shockingly Marzipan has been added to the naughty list. Absolutely heartbreaking. It’s bizarre as Almond Milk is currently fine with my body and yet Marzipan…… So if you ever see me in the street looking like Mr Creosote then you know I’ve just succumbed to Marzipan with a large coffee.

Anyway the diet switch has been surprisingly easy this weekend. As soon as we have got up Son has wanted to play football in our mud patch and then take the dog for a walk. It’s helped pass the empty feeling hours. Frustratingly the football was set all day in a misty and rainy backdrop. Only as we started to pack up did the clouds finally part and we got to see the last embers of the setting sun. It will be a brief interlude as another Atlantic Storm is flying towards us. The Trampoline is hopefully well and truly sandbagged down.

So now we prepare for school. Last week was best described as a holding pattern. It didn’t get worse but certainly didn’t move forward. Currently we are trying to revise for a Science Test. For whatever reason Son suddenly gets areas of knowledge that he just can’t visualise. Being dyslexic visualisation is his memory method. I’ve previously talked about his struggles with decimal points and shapes. We can now add Waves to the list of struggles. Poor kid just can’t get his head round them.

Dad not sure Im going to do very well on this one. Can’t even spell Electromagnetic or Longitudinal. So even if I do fluke the right answer I still won’t be able to write it down correctly. Maybe as I’ve been practising for a Shakespeare spelling test I should just put down random bard words. At least they will be sort of spelt right.

That did make me smile. Imagine the look on the Science Teachers face when the response to the question. Which of the two types of wave produced by an earthquake is the first to arrive at a location. And will it be the P or S wave? Is as following

Macbeth and Stratford upon Avon.

Swiss Sunday

It’s Sunday so it’s time for a bit of Switzerland.

Time travelling back a few years. The Hotel Owner takes a look at our shorts, T-shirt and sunglasses.

“I do hope you have brought something warmer with you. It’s going to be warm this morning but we have a cold snap coming through this afternoon. If not let me know and I can get you some jumpers”

I know it’s a generalisation but I always found the Swiss to be staggeringly polite. My partner knew this country so well. Even though this was deep into May she knew it was worth bringing a few items of wool. So with warmer gear in my rucksack we set off. Within a couple of hours it was most appreciated.

Another thing about Switzerland. The weather forecasts. In the UK our gerbils give more accurate forecasts than the weather services. Switzerland is different. Like its trains the forecasts are usually precision perfect. Each day would start with watching the weather guide on the TV. No weather presenter here. Stunning live web videos from the countries best locations with the hourly forecast underneath. I could watch that all day. So on this Sunday the forecast had snow from 2pm. At 1pm the clouds rolled in and suddenly the temperatures dropped sharply. Just after 2pm the snow started.

We watched the snow line descend rapidly down the mountains.

A few snow ball fights later and we found ourselves in the hotel enjoying copious amounts of pizza and apfelsaftschorle. The Hotel Owner confidently predicting that tomorrow would be a sun cream day.

The next morning we opened the hotel window and were rewarded with this view. Yesterday’s cold snap was so worth it.