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Extra miles

A trip out to the beautiful Lake District, a three hour drive from us. Carefully chosen to be a safe, uneventful, Hawklad adventure.

Originally we had planned to park up by Lake Ullswater, well that was the plan. We made it to within a couple of miles of our parking spot and we hit road works. The road was closed and we were sent on a signed magical mystery diversion tour. This part of the world there aren’t ever too many alternative road options. We later found out that this diversion was over 50 miles long and given the windy, narrow roads, would have taken absolutely ages to drive. Thankfully the diversion went past another stunning lake, Thirlmere and we parked up.

You can see why Wordsworth was inspired to write here.

The trip back was an adventure…

A motorway tyre blow out driving at 70mph, two hours stood on a roadside bank waiting for a recovery truck. That wasn’t the place to try and change a tyre. Thankfully a very nice Highway Patrol parked behind our car to ward off any collisions.

Here’s the thing, Hawklad was perfectly fine with the breakdown but really struggled when first the Highway Patrol Officer turned up and then the Recovery Mechanic. It’s the fear that he could be seen, will stand out, will get noticed. Thankfully the tyre was safely changed and off we set again.

Another reminder that as much as you try to plan or micromanage a day, life still happens….

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Night shift

Misjudged a late evening walk. Walking past a graveyard, located down a very deserted country lane, just as the night roles in. Always a bit spooky.

Somethings are always a bit unnerving.

In the UK, having to contact a company called BT, that’s unnerving. BT is a big telecoms company.

BT aptly can also mean Bloody Terrible…..

BT provide our broadband and telephone service. Both have been broken for 6 days now.

Do you remember when you had to queue when ever you went into a branch in person. Then the Call Centre was introduced and you ended up queuing for that, listening to the endlessly awful piped music and recorded message – ‘your call is important to us’.

Then CONTACT US ONLINE was brought in to stop the hours wasted waiting in person and on the phone. With good old BT you now have to queue online to use their online service.

Initially the wait time was 15 minutes, which in normal time was actually over an hour. The ‘less than a minute’ wait time turned out to be another 20 minutes. Deep joy.

Fast forward 6 days and still no telephone or broadband. Back on to BT again for the 6th day running. This time going old school, having to use my mobile to call them. Apparently to the BT person, we weren’t a customer priority as we were just a reduction in service rather than a service down issue. I was keen to understand if we only get two services from BT, and both are 100% not working, why wasn’t that service down. Service reduction sounds like we are still getting some services….

On the call, I think my tone went from friendly, to cordial, to a little gnarly… But nothing over the top, no raised voices, quite calm really. But it was a bit too much for Hawklad. One of the things he’s always struggled with is conflict. It throws him, he gets anxious, completely on edge. I have to be careful and over the years I’ve got better, much calmer, trying to avoid putting him through those emotions. Very few things brake me out of calm mode these days. My Football Team’s inability to pass to a colleague and the name ‘Nigel Farage’ are the only things recently to bring on the red mist. But I can’t micromanage every situation. When he went to school, one of the things that constantly unsettled him was the daily, frequent conflicts. Teachers raising voices, pupil on pupil stuff. He would frequently struggle to differentiate between real conflict, minor disagreements and play acting. I wonder if it’s because he struggles to read social interactions, pick up on tone, body language, taking some dialogue too literally. It could be that he really doesn’t like seeing anyone suffer or be hurt. But it does make the modern world a difficult place for Hawklad to fully integrate in to. We are still trying to figure that one out.

And yep, still no broadband……

Posted on by bereavedandbeingasingleparent · 48 Comments

Edinburgh

A blustery old day for an adventure. A four hour car ride heading north, brought us to wonderful Edinburgh.

Eventually we gravitated to Edinburgh Castle.

The Castle has so much history and atmosphere, but the thing that always gets me, is the view.

A view with added Rainbow…

It was busy in the Castle, really busy. Fortunately we bought tickets the night before, as on the day it was completely sold out. This was a challenge for Hawklad. Under the right circumstances he can just about cope with crowds, but this at times felt too uncontrolled, too unpredictable. He feels more comfortable when a crowd is heading mostly in one direction, where he doesn’t have to face too many faces heading towards him. But here people were heading in all directions, way too random for him. It wasn’t just visually, unpredictable sounds, from all directions proved disorientating. He did manage to see a good part of the castle but some places he respectfully declined.

We agreed on a winter trip back here when hopefully the crowds will have thinned a little. That might well be a two woolly jumper trip…..

Posted on by bereavedandbeingasingleparent · 32 Comments

Time

Someone asked why do we go to so many concerts…

The obvious answer is that we both like music. I seem to have inflicted my musical tastes on Hawklad so it’s also easy to agree on which bands to see.

Maybe part of it is also to try and create as many memories as possible. It’s not always easy for Hawklad to feel relatively as ease in the wider world. But we have found a way to make concerts work for him. They are definitely something we can plan and do, minimising some of the risk factors for him. Concerts in that sense are easier to setup, much less problematic, more controllable than say going on holiday. Since our world changed we have been able to make happen quite a lot of concerts without encountering too many things going wrong. Over those nine plus years we haven’t managed yet to go on holiday. Still just feels a step too far for him yet. You can’t micromanage every factor that could happen, but at least with concerts there is a level of predictability that makes them safer bets for Hawkkad.

But we are still trying to find a way to make a holiday happen.

So we found ourselves at the new state of the art arena in Manchester, to see ELO on their last tour. This time life’s unpredictability happened to the band. Poor Jeff Lynne broke his hand in a taxi accident just before the short final tour started. He was also struggling with a systemic infection which was getting worse. The concert was really good but you could see Jeff was starting to struggle. He managed to finish the set but needed to sit for the final few songs and was quickly helped off stage at the end. Subsequently he had to cancel the final two concerts so currently we saw the last ELO concert. Maybe they can still do something down the road when he is properly healed.

Driving back from the concert I realised just how many of the bands I grew up with, bands I love and now Hawklad loves, are getting older. Time is moving on. More and more we are seeing bands on their last Tours. Some stars are sadly passing on. Hawklad never got to see Ozzy, we tried twice but the concerts were cancelled on health grounds. Wasn’t to be. I saw him once in the eighties, never imagining that would be the only time.

Time moves on….

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Years

I wonder how many years these wooden poles have survived the North Sea….

Looking in the mirror most mornings, they have clearly weathered way better than me. The front one has even got more hair than me. I’m not jealous, much 😂😂😂😂

We’ve been coming here since Hawklad was just starting school. Always the same routine. Find a parking spot where you can see the beach, let Hawklad see how busy it is. Too busy for him and we drive off, no questions asked. If it’s quiet enough, we hit the beach. Sometimes we don’t even park up, if the car park is busy, the beach will be.

So how does he manage concerts and now a F1 race.

We have a routine. Always try to buy the two seats at the end of a row, the back or front rows are best. If those seats aren’t available, then we don’t go. It’s the same for the cinema, has to be the two end seats on the front row. Hawklad takes the end of row seat. Sometimes that’s not enough and Hawklad decides it’s still too much. There have been a few concerts, movies and a football matches where it just never happened, still feeling too crowded, just never felt right for Hawklad.

At Silverstone it was even better, 168,000 watching an F1 race. But we still were able to find two end row seats, with no seats behind us. Plus next to our two seats was a roof support column, three more seats missing. Hawklad found space amongst the masses. All we had to do is arrive really early to miss the queues to get in, let Hawklad get to his seat before the crowd mayhem started. Setting off at 3.30am sorted that out.

That felt early, too early. Probably one of the reasons I’ve weathered worse than those beach poles.

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Storm Farage

A peaceful walk in a Forest. But it’s not always this peaceful. It took the Forest Rangers quite a while to deal with the aftermath of the last storm which hit the area a few months back. Lots of tree damage still evident.

In the UK there is a new word hitting the dictionaries. One which has several meanings. The word is FARAGE. Often found in the phrase ‘Nigel FARAGE is a …..’

FARAGE can mean to some – a wise and gifted political orator who is a man of the people.

But FARAGE can also mean ….

a Charlatan…

a Dangerous Opportunist…

someone who feathers his own best…

someone who tells others it’s wrong to be a part of Europe, has denied the right of his countryfolk to have free access to Europe yet keeps his own European Passport, enjoys unlimited access to Europe for himself .

someone who screams immigration is bad/foreigners are taking all our jobs, filling our schools and hospitals, YET is married to a French Woman

someone who bemoans Europe for how it’s wastes taxpayers money yet then keeps his lucrative European provided pension for life…

someone who is a fascist…

someone who is a racist…

someone who is a right f#@### w#@@#£#

The word FARAGE can also been a family commitment. Hawklad is one of those souls who struggles to find fault in others. Yet with Nigel FARAGE he gets very frustrated, very angry. ‘How can people vote for him, how can they not see through him…’

Once the idea of FARAGE being our Prime Minister seemed like a joke, but then we did get Johnson and Truss. Sadly now his party are increasingly winning local election seats. Unbelievably it could just happen. He could be in charge in a few years time.

That thought horrifies Hawklad. My thoughts are unprintable… Hawklad has made me agree (I didn’t take much convincing) that if that disaster ever happens, then WE will seek to leave the UK. See if we can move to say Ireland or France or Germany or Switzerland or Canada or somewhere that will have us.

All because of a nasty storm called FARAGE.

Posted on by bereavedandbeingasingleparent · 38 Comments

Last one

The dust is now settling on what feels like a new world. A while back Hawklad had his last bit of support from the Child Mental Health Team. As the threshold for Adult Support is so high and because there is actually no equivalent Adult service, that’s it. The need doesn’t suddenly go away as a birthday is reached, but in the UK, the service does.

It was odd, I wasn’t sure what to expect with the last appointment. Maybe a number to call if he really needs support, maybe some pointers where he could seek help, maybe a support website, a handful of support guides. But in reality it was a simple ‘best of luck’ and you will need to speak to your Doctor if you need help from now on. However Hawklad had already been warned that most Doctors support will be limited to Mindfulness Leaflet and the offer of Antidepressants.

Yes I’m concerned for Hawklad going forward but my heart really goes out to those who need way more support and suddenly find themselves cut adrift. I heard it described as a Trapeze artist who is performing a routine and suddenly finds the safety net missing. Maybe but just maybe the safety net is also there for the artist who can’t even make it onto the high wire. The artist who is struggling to even leave the house, struggling to function in daily life.

Without health support it’s down to self help, family and friends, thankfully Hawklad has some of that around him. But we need to recognise that most of us are not trained health professionals, effectively relying on a Wikipedia knowledge base. But at least it’s still support, importantly support that cares.

BUT many who are struggling are on their own, without any kind of local or specialised support. That can’t be right.

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Let it

I guess many parents have probably done this. A Ninja Argument with your partner. Our Individual flaws mean that things like arguments can brew up anywhere, anytime, sadly even when our children are present. What follows next is an argument while desperately trying to hide this from the kids. Trying to portray normality, happy families while having a right ding dong…. Using all the tricks in the book, those looks, silence, sarcasm, sign language, under your breath anger, referring to your partner in the third person….

One of those arguments sticks in my mind even now, even after something like 10 years.

This argument’s fires were stoked in the gift shops of Interlaken, reaching their zenith on the lake boat returning to the hotel. It was one of those arguments that we couldn’t even agree on the length of the conflict. Sat at a boat dining table, I’d moved to let’s park this argument stage. Withering looks, caustic comments and a well placed under table shin kick clearly indicating that feeling wasn’t yet mutual.

Here’s the madness, I can remember the argument yet I have no idea what we were arguing about. Parents with a wonderful son, in a wonderful location, so many adventures to be had and we were consumed on pointless, destructive arguments. No recollection of good moments, just the self inflicted negativity. Apart from the madness the only other thing I can recall from that day was getting seasick. Seasick for the only time in my life. I’ve been on really rough North Sea crossings, NOTHING. Yet on this beautiful, wave free Swiss lake, as the argument finally subsided on both sides, the gentle movement of the boat got to me. Everything was moving and swaying, wow was I feeling nauseous. Even trying to hide this from Hawklad. Stumbling off the boat at our destination and slumping on the nearest bit of dry land grass.

My last memory of that day was one more comment I heard – ‘that’s a little too over dramatic…”. All I wanted was the world to stop spinning. Now I just want to play out those few hours again. Replace negative memories with fun ones. Life can be such a wonderful adventure , if only we let it.

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Not at all

For days this part of Yorkshire has been weather stuck. Stuck under mist, grey clouds and no sign of the sun. Apart from a few dog walks, the kind of weather that keeps you not too far from the fire. Trying to keep warm, I was sat going through some old photos and came across similar greyness in Switzerland. Rather than sat by a fire, here we were sat inside a warm lake boat, with hot drinks and breakfast, watching the world go reassuringly slowly by. Not belting anywhere at 100mph, just leisurely making our way across lake water. Savouring the journey rather than just impatiently trying to get somewhere fast.

Too often I find life goes by way too quickly, way too much stress, feeling out of control with no time to contemplate life. Even when the weather was grey, I treasured those moments of stillness on that lake. A chance to quietly think and breathe.

Those boat trips are years back, definitely well beyond my rear view mirror now. They haven’t really been replaced with anything similar. Life happened, a new reality dawned. A reality which often seemed like constantly moving from one activity to the next. Constantly busy, constantly occupied, rushing, maybe not achieving anything, maybe not feeling like making progress, just always doing stuff. Feeling like I hardly had any time to stop and breathe.

I love nature, I find so much peace there. When was the last time I spent real time gazing at a real mountain, a lake, out to sea. Not just a a fleeting glance then off again, actually stopping and taking the time to take in the wonder and the beauty. I’m tempted to say I don’t do this enough, but sadly the real answer is NOT AT ALL….

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Bonfire Night

Blue Sky Yorkshire, if only this was the norm. Bonfire Night was certainly way more cloudy, way more drizzly. A few very damp fireworks, definitely way less than previous years. The only disruptive noise coming from next door’s mad Dog barking incessantly at the local Owl. The Owl sits on a tree overlooking the garden, and turns it back to the Dog. The Dog must get really frustrated at being ignored.

Hawklad loves F1, he has a real fascination for the motorsport. At the weekend we went to a talk by a former Team Principal and real character, Austrian Guenther Steiner. Hawklad loved it, especially as we got seats that were not next to anyone else, that really helps. If he feels hemmed in then it becomes way too stressful for him. If he feels stressed then he usually has to quickly leave. He has survived a number of rock concerts largely because of the combination of the noise, the darkness and people focused on the stage. This all adds to a feeling of anonymity, that’s the key. Plus he can move around to find less busy areas. He just doesn’t want to feel like he is seen.

This was all brought into stark focus after the talk had finished. Hawklad put his head down, hoody over his head. Out of the Arena, through the streets for 40 minutes, he never looked up once. Only when he got back into the safety of the car, did he raise his eyes and relax. The social side to life is so difficult for him.