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Huts

Tropical Scarborough on a blisteringly hot Autumn Day.

Forget the ice cream, hot soup was the order of the day.

Not sure if it was just the weather but when I offered to buy one of the brightly coloured beach hutches, Hawklad firmly declined…. The huts cost between about £70,000 to £160,000. You can rent them as well, Peak times set you back something like £300 for a week. For that you get a few kitchen items, a sink, deckchairs, use of the shared public toilets and free pet seagulls.

Peak includes Christmas, Wow that would be a brave call. Not sure the paper party hats would stay on too long with the inevitable Winter North Sea skin shredding sand blasting wind and icy horizontal rain.

Walking along the beach we passed a few groups of teenagers clearly starting the Half Term Break with some beach fun. I couldn’t help think about how Hawklad might view these scenes. It’s a part of teenage life that has so far eluded him, spending far too much time with his ancient relic of a Dad. Not sure those teenagers would spend too much time discussing beach huts…..

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Uneasy feeling

Bereavement brought in stark focus the thought ‘YOU ARE ON YOUR OWN’, NO one to bounce ideas off, to talk to, definitely SINGLE Parenting. It’s often a scary place to be, feeling like you are way out of your depth. Sink or swim without arm bands.

I’m getting that feeling again…..

All too quickly the Child Health and Autism Services that have worked with Hawklad since he was 5, that have provided support, therapy and help will be pulled when he hits 18. We’ve been warned that after that date, the support he can get will almost be nonexistent. If he does try to speak to a doctor, on the basis of at most, a 3 minute consultation, he may well just be prescribed Antidepressants, provided leaflets on Mindfulness and then sent on his way. Sink or swim without armbands again.

Definitely getting that uneasy feeling again.

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Donuts

Another late evening trip out for Hawklad, this time a couple of hours drive to the beautiful Peak District. It might well have been quicker but I managed to get lost in the dreaded Yorkshire Twilight Zone, otherwise known as the city Sheffield’s road network.

On the bright side, while lost we discovered a Dunkin Donuts store. One of those occasions where I happily ignore any gluten issues I may have for the GREATER GOOD….

The downside of evening trips is that you can far too quickly start to run out of light, BUT for those couple of hours, having somewhere as amazing as this place basically to ourselves, absolutely wonderful for Hawklad.

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6.30PM

Summer poses its own set of challenges. This season’s weather hasn’t been great with few warm weather days. Yes there has been sun but it’s often felt more like late October than high Summer. But the weather hasn’t deterred the crowds. Try to go anywhere around midday and the car parks are mobbed. Hawklad doesn’t do mobbed car parks….

But leave it until the evening and suddenly the car parks are empty. Ok that usually means the venue is shut but not everywhere. Just like Dalby Forest. A few hours earlier this walk would have been rammed with hikers, dog walkers and mountain bikers but now at 6-30pm it’s all change. It’s quiet, we are the only car in the car park. A 2 hour walk and we didn’t see another soul.

Or just like 6-30pm on the North East Coast. A couple of intrepid surfers enjoying warming drinks on the beach. A couple of ball chasing dogs with well wrapped up owners. That’s it. Solitude.

Yes 6-30PM cuts down the places open but it opens up so much space and peace. It works for us. Just don’t forget the Woolly Hats, it is Summer here.

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Green Day

Somedays you just can’t touch anything. A few years back that would have shut everything down, locked down in the house or in the garden.

But now we have figured out a bit more stuff, actually you can do so much with a bit of preparation and patience.

200 miles of driving.

Park up in the UK’s third most populous city.

Walk to a big Cricket Ground.

Strike lucky and find quite a bit of space close to the side of the stage. Amazing as it’s a 50000 sell out.

See a double rainbow.

See Green Day, one of Hawklad’s favourite bands.

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Still cold

An April trip to Scarborough. Time to put on the Simon and Garfunkel cover of the old English Folk Song.

Are you going to Scarborough Fair…

Well I hope they got wrapped up as it was seriously COLD, AGAIN. Beautiful but COLD.

The Scarborough song is about asking too much of others, asking impossible tasks, love fracturing. Well it would mess up if one lover was expecting a Caribbean beach holiday and they ended up on a long weekend in not so tropical Yorkshire.

We had been over here for an appointment, the last bit of formal support Hawklad gets these days. One 45 minute session every 3 weeks or so. From about the age of thirteen the support levels have shrunk rapidly. Get to 18 or 19 and they will have completely disappeared. Not because the need isn’t there, it’s likely to be there more than ever, but because nationally access to services are being restricted. Years of cut backs and efficiency restructurings have led to ‘streamlined’ services being overwhelmed with demand. So we get frustrated and angry with the lack of local support but unless mental health is given the priority it needs nationally, then it’s an IMPOSSIBLE task to support every need, it just can’t happen.

Or is it IMPOSSIBLE, at least could we do better, could we give some more support to those who need it. I guess it comes down to a couple of drivers…

– Maybe those in charge see more votes in focusing on tax cuts and immigration crackdowns,

– There are just not enough profits to be extracted by greedy hands from Mental Health Services.

The UKs so called Prime Minister will give daily speeches solely focusing on how he is being tough and proactive on trying to fly a few desperate refugees to Rwanda at a cost of £500 Million (plus…), yet he never seems to ever raise an eyebrow at the mental health crisis unfolding across the country. But what is clear.

The money is there, the money to fund services is definitely there.

This shouldn’t be impossible.

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Muddy paths

Muddy paths everywhere.

At this time of year this should be a nice, dry way through the local woods. Not this year. In fact part of the path is closed off as it is flooded. Early morning runs through here are currently a slide FEST. Hopefully it can dry out as the bluebells will be out real soon, maybe they can swim.

As my muddy legs got even more muddier this morning, I was pondering on something a work colleague had said in a meeting.

‘Daughter will be going to University September next year. That’s it, most of my full time parenting will be definitely over. She wants to go to St Andrews, then travel for a few months, then get a job in London. So in 17 months we get a spare room and maybe I can finally get that pool table….. Just need to get her through her driving test in November.

A clear timescale. Yes things might change, but still plans. It feels quite ordered with clear milestones.

I don’t get that feel, never have with this parenting gig. The way forward is hopefully full of so much potential, but it’s filled with so much uncertainty, so many unknowns, so many complications. When will he be able and willing to leave home. How much support will he need, where can he get that support from. Even have no idea about if and when he will be able to start driving. So much uncertainty, I’ve given up trying to plan or put in milestones. Just got to keep being there as best as I can for Hawklad and see what the future brings.

And YES, I ain’t ever buying a pool table. It will just end up being another shredded, pet hair disaster zone. I can definitely predict that fact.

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Never the same

In the quiet my mind wandered. Watching and listening to the latest rain storm to crash into our little bungalow, sat on a little Yorkshire Hill.

How can I get Hawklad for a holiday somewhere. How to do it without ramping up his anxieties, how to fund it, where to go. I kept going back to previous holidays, holidays before our little world changed. Coming to the same phrase in my head.

Can never be the same again.

The logical approach is to go back to our former Swiss trip base, Spiez. I know how to get there, the ways that would work and not work for Hawklad. Ways to avoid queues, and crowds and anxieties. Familiarity is important to him, reassuring. Spiez would offer that.

Plus it is a wonderful base to explore the rest of Switzerland and even Northern Italy .

Plus it is one of Europe’s most beautiful bays.

BUT

Things have changed. It’s not 3 or maybe more now. It’s just 2 of us. So many memories there. Maybe so many ghosts round every corner…

Much to ponder, but it is one stunning place. Always will be a special place for us.

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searching for

The weather isn’t playing ball but the flowers have had enough, they are starting to bloom.

Just need the sun now….

It might be a bit of a wait for that ….

Excessive handwashing,

Excessive clothes changing,

Excessive need for reassurance,

Excessive need to order and arrange things,

Excessive need to check and recheck things,

Excessive hoarding.

I was told by a Paediatrician that OCD was one of the potential anxieties that we should look out for with Hawklad. As a toddler he was obsessed with lining toy animals and cars in increasingly long straight lines. Apparently that can be a forewarning of later life OCD and an early flag of Autism. The Paediatrician said for unknown reasons there is a link. I think he said that 2% of the population can experience severe OCD, for Autism the percentage jumps to 20%.

Whatever the reasons, whatever the numbers, OCD has a huge impact on daily life, it ramps up anxiety and stress levels. It does with Hawklad. If anything the OCD grows. Sadly up to now the advice and support with OCD can be best described by the phrase

Best of luck with that….

It’s often down to individuals and families to try to chart a path through these never ending storms. Trying to find ideas, anything to try.

The search is ongoing here.

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Sigh

That’s as bright as it’s been really….

But at least there are the first signs of this year’s flowers.

I recently bumped into someone we got to know at Hawklad’s first school and she asked after him with the following words…..

“Is he now over his Autism….”

Deep sigh…. Where do you start with that….

What’s really worrying is those words came from a Teacher.