Posted on by bereavedandbeingasingleparent · 43 Comments

There is a storm coming…

A little bit of a Northern Lights Storm….

Need to keep remembering what a staggeringly wonderful world this can be.

The Government has started a formal review into the rising demand for ADHD, Autism and Mental Health services. But here’s the problem about that….

It’s the starting point for the review.

Setting up the review The Government has already stated what they see as being the key problem, ‘way too much over diagnosis’. Is this political opinion based on clinical or finance advice. Is it centred on a concern for individual welfare… sadly NO. The starting point isn’t about the families who can’t access the help and support they need, its not trying to help those struggling because they can’t access help, it’s definitely not about expanding and extending services . Rather it’s about a budget line on a spreadsheet which the Government wants to make much smaller. It’s about saving money. You can see what the end goal is….. Cutting the Special Education Budget by reducing which children can access services, cutting benefits paid to adults and reducing NHS services in these areas. THEN the Government will try to come up with a PR campaign to make it sound like it’s anything other than a budget cut. But it WILL be a budget cut probably dressed up as ‘helping’ those written off’. ‘Too many’ will be said to have been ‘written off’ by Doctors when they diagnose patients with ADHD and AUTISM, ‘allowing ’ too many education, benefit and support claims. And thus the Government will say that the best, and kindest way to help children and adults will be to just cut their benefits and services, ‘encourage’ them and families to help themselves. Remove more tailored education support and force more adults back into work regardless of their fitness to work. The last Government tried to do this, sadly this Government looks like they might do it this time.

Where are all these thousands of additional ADHD and Autism friendly jobs…..

What happens to the children who can’t access the Special Educational Services they need, have Teachers the training and spare capacity to pick up the pieces…..

Who’s best placed to make a clinical diagnosis, a Doctor or a Politician…..

Deep Sigh. It really shouldn’t be this way.

Posted on by bereavedandbeingasingleparent · 49 Comments

Extra miles

A trip out to the beautiful Lake District, a three hour drive from us. Carefully chosen to be a safe, uneventful, Hawklad adventure.

Originally we had planned to park up by Lake Ullswater, well that was the plan. We made it to within a couple of miles of our parking spot and we hit road works. The road was closed and we were sent on a signed magical mystery diversion tour. This part of the world there aren’t ever too many alternative road options. We later found out that this diversion was over 50 miles long and given the windy, narrow roads, would have taken absolutely ages to drive. Thankfully the diversion went past another stunning lake, Thirlmere and we parked up.

You can see why Wordsworth was inspired to write here.

The trip back was an adventure…

A motorway tyre blow out driving at 70mph, two hours stood on a roadside bank waiting for a recovery truck. That wasn’t the place to try and change a tyre. Thankfully a very nice Highway Patrol parked behind our car to ward off any collisions.

Here’s the thing, Hawklad was perfectly fine with the breakdown but really struggled when first the Highway Patrol Officer turned up and then the Recovery Mechanic. It’s the fear that he could be seen, will stand out, will get noticed. Thankfully the tyre was safely changed and off we set again.

Another reminder that as much as you try to plan or micromanage a day, life still happens….

Posted on by bereavedandbeingasingleparent · 42 Comments

Still Grey

Another grey Yorkshire day, just a bit stuck under this blanket of greyness. It’s also still very green for this time in Autumn, usually it’s way more yellow and red. Definitely feels like it’s been a longer growing season here. We also still have a handful of Swallows still hanging around, these fellows are usually back in Africa by now. They clearly are not hanging around because of the sun…. Maybe they are just putting off trying to get through the chaos and queues that is UK Passport Control these days. One of my neighbours foolishly tried and failed to get out of the country a couple of weeks ago to go on holiday. Apparently she didn’t look sufficiently like her passport photo anymore. In her words “you try looking like you did 5 years ago when you hit 84…”

Made me check my passport photo. I’m ok, still looks like me, still looks like Shrek.

I remember going to a fancy dress themed party years ago at University. Themed around cartoon characters. I went as Fred from Scooby Doo, back then I could rock an orange ascot….. A friend of mine put in way more effort to go as Shrek. He was mortified when the first couple of people thought he had come as Alfred Hitchcock.

Hitchcock was famed for talking about “always make the audience suffer as much a possible”. My so called football team have clearly been following that principle for decades now….

Another thing Hitchcock talked about was ‘DRAMA is life with the dull bits cut out’. I always think you could take out DRAMA and substitute that with SINGLE PARENTING. I’ve had a few people tell me they were sorry I was a single parent. Don’t get me wrong, it happened for tragic reasons, but actually being a single parent is such a wonderful privilege and experience. Being a parent has been the best experience and it feels like because of circumstances I got the chance to get just a bit more of that wonderful experience. It has been a wonderful experience.

Posted on by bereavedandbeingasingleparent · 23 Comments

Little monsters

Every year we get the return of these little monsters….

Stand on one of these and you know it, wow you know it. Try picking one up and it’s like those dreaded Covid vaccine jabs all over again, just this time 50 jabs for the price of one.

And yes, for a month, it’s the gift that keeps on giving. All these have to come down……

The other night I was listening to someone from one of the exam boards on the radio. Not intentionally, I was waiting for my so called football team’s match to start, it was the next programme. Anyways this exam person said something that worried me a lot…..

One of the big complaints about the UK school system is that it is too inflexible, almost like a factory production line. Pushing too many children, regardless of individual need, regardless of if it’s working or not for them, through the same education channels. A one shoe fits all approach. Then the kids get to exams and then often 10 years of schooling comes down to 10 or more written exams, crammed into a couple of weeks. Written exams just don’t suit every child. They often don’t allow the individual child to demonstrate what amazing talents and skills they have. Don’t get good grades in those written exams and you can be way too quickly written off.

Thankfully things started to change a little. More course work counting towards final grades in some exams, allowing scribes and allowing typed answers. Hawklad got a bit more time and was allowed to type his answers, two fingered typing on a school laptop. Surely more flexibility is good for our children, it must be about making schools work for each child.

Back to this exam person on the radio. He was talking about the spread of AI and the problems it’s causing. AI has apparently got so powerful, it is just too professional at writing top answers to whatever you ask it. He was saying that he’s been in meetings nationally were there has been real concern that the treasured school exam integrity is being undermined now. It’s too easy for pupils to use AI to write top mark coursework, producing complete essays in just a few seconds and because AI is developing, it’s way harder for exam boards to pick out those pupils who are ‘cheating the system’ . It is also way harder for exam boards to make sure those pupils sitting exams via a laptop are not also using AI to cheat the system.

So one option being considered is too go back to old school exams. Absolutely no coursework counting to marks, no use of laptops in exams. Pupils sit old school exams using just a pen. That way the exams reputation and integrity is protected……

I never heard him mention the needs of the children once. It was all about the needs of the schools, the exams and the economy. No consideration of if AI could allow for more individuality in schooling, provide more options for teachers to find what works for each child. If they did go back to just old school written exams, it’s going to hurt way too many kids, all to just protect an outdated system. What a huge mistake that would be.

Posted on by bereavedandbeingasingleparent · 43 Comments

Night shift

Misjudged a late evening walk. Walking past a graveyard, located down a very deserted country lane, just as the night roles in. Always a bit spooky.

Somethings are always a bit unnerving.

In the UK, having to contact a company called BT, that’s unnerving. BT is a big telecoms company.

BT aptly can also mean Bloody Terrible…..

BT provide our broadband and telephone service. Both have been broken for 6 days now.

Do you remember when you had to queue when ever you went into a branch in person. Then the Call Centre was introduced and you ended up queuing for that, listening to the endlessly awful piped music and recorded message – ‘your call is important to us’.

Then CONTACT US ONLINE was brought in to stop the hours wasted waiting in person and on the phone. With good old BT you now have to queue online to use their online service.

Initially the wait time was 15 minutes, which in normal time was actually over an hour. The ‘less than a minute’ wait time turned out to be another 20 minutes. Deep joy.

Fast forward 6 days and still no telephone or broadband. Back on to BT again for the 6th day running. This time going old school, having to use my mobile to call them. Apparently to the BT person, we weren’t a customer priority as we were just a reduction in service rather than a service down issue. I was keen to understand if we only get two services from BT, and both are 100% not working, why wasn’t that service down. Service reduction sounds like we are still getting some services….

On the call, I think my tone went from friendly, to cordial, to a little gnarly… But nothing over the top, no raised voices, quite calm really. But it was a bit too much for Hawklad. One of the things he’s always struggled with is conflict. It throws him, he gets anxious, completely on edge. I have to be careful and over the years I’ve got better, much calmer, trying to avoid putting him through those emotions. Very few things brake me out of calm mode these days. My Football Team’s inability to pass to a colleague and the name ‘Nigel Farage’ are the only things recently to bring on the red mist. But I can’t micromanage every situation. When he went to school, one of the things that constantly unsettled him was the daily, frequent conflicts. Teachers raising voices, pupil on pupil stuff. He would frequently struggle to differentiate between real conflict, minor disagreements and play acting. I wonder if it’s because he struggles to read social interactions, pick up on tone, body language, taking some dialogue too literally. It could be that he really doesn’t like seeing anyone suffer or be hurt. But it does make the modern world a difficult place for Hawklad to fully integrate in to. We are still trying to figure that one out.

And yep, still no broadband……

Posted on by bereavedandbeingasingleparent · 48 Comments

We need a bigger bin.

‘We need a bigger bin’ doesn’t seem to have quite the same dramatic ring as ‘we need a bigger boat’ from Jaws….

Houston We have Problem….

In the great scheme of things, it’s not an Apollo Spacecraft is running out of fuel level crisis. It’s not even anywhere near the patio weedkiller isn’t really working with the Red Weed from War of the Worlds emergency.

Ok it’s just a wheelie bin issue…

But a common one round here.

As a cost cutting idea the local Council changed our recycling collections from every 2 to 4 weeks. To be fair they did give us a slightly bigger bin but in the good old days, every two weeks you would just pile up all the cardboard next to the inevitable full recycling bin and it would be collected. Now if it’s not in the bin, it ain’t being collected….

So these days, after about 2 weeks you see local residents employ various strategies to fit more and more into the already packed bin. Some carefully cut up the cardboard into smaller pieces (takes them hours), some madly folding and refolding as if in a crazy origami tournament, others have bonfires, others just start cramming cardboard into the normal refuge bin. I’ve elected for the get the ladders out, step into the full bin and start jumping up and down to compress. I dread to think of the internal pressures being applied to that poor wheelie bin. You never see good old Dr Who having to do that with his Tardis.

Anyways enough of Yorkshire Troubles.

We clearly haven’t had enough Castle trips this summer. Let’s have a look at Warwick Castle, one of Britain’s finest historic sites. Brings back a ton of memories, I went to university many many moons ago at Warwick.

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Years

I wonder how many years these wooden poles have survived the North Sea….

Looking in the mirror most mornings, they have clearly weathered way better than me. The front one has even got more hair than me. I’m not jealous, much 😂😂😂😂

We’ve been coming here since Hawklad was just starting school. Always the same routine. Find a parking spot where you can see the beach, let Hawklad see how busy it is. Too busy for him and we drive off, no questions asked. If it’s quiet enough, we hit the beach. Sometimes we don’t even park up, if the car park is busy, the beach will be.

So how does he manage concerts and now a F1 race.

We have a routine. Always try to buy the two seats at the end of a row, the back or front rows are best. If those seats aren’t available, then we don’t go. It’s the same for the cinema, has to be the two end seats on the front row. Hawklad takes the end of row seat. Sometimes that’s not enough and Hawklad decides it’s still too much. There have been a few concerts, movies and a football matches where it just never happened, still feeling too crowded, just never felt right for Hawklad.

At Silverstone it was even better, 168,000 watching an F1 race. But we still were able to find two end row seats, with no seats behind us. Plus next to our two seats was a roof support column, three more seats missing. Hawklad found space amongst the masses. All we had to do is arrive really early to miss the queues to get in, let Hawklad get to his seat before the crowd mayhem started. Setting off at 3.30am sorted that out.

That felt early, too early. Probably one of the reasons I’ve weathered worse than those beach poles.

Posted on by bereavedandbeingasingleparent · 41 Comments

Storm Farage

A peaceful walk in a Forest. But it’s not always this peaceful. It took the Forest Rangers quite a while to deal with the aftermath of the last storm which hit the area a few months back. Lots of tree damage still evident.

In the UK there is a new word hitting the dictionaries. One which has several meanings. The word is FARAGE. Often found in the phrase ‘Nigel FARAGE is a …..’

FARAGE can mean to some – a wise and gifted political orator who is a man of the people.

But FARAGE can also mean ….

a Charlatan…

a Dangerous Opportunist…

someone who feathers his own best…

someone who tells others it’s wrong to be a part of Europe, has denied the right of his countryfolk to have free access to Europe yet keeps his own European Passport, enjoys unlimited access to Europe for himself .

someone who screams immigration is bad/foreigners are taking all our jobs, filling our schools and hospitals, YET is married to a French Woman

someone who bemoans Europe for how it’s wastes taxpayers money yet then keeps his lucrative European provided pension for life…

someone who is a fascist…

someone who is a racist…

someone who is a right f#@### w#@@#£#

The word FARAGE can also been a family commitment. Hawklad is one of those souls who struggles to find fault in others. Yet with Nigel FARAGE he gets very frustrated, very angry. ‘How can people vote for him, how can they not see through him…’

Once the idea of FARAGE being our Prime Minister seemed like a joke, but then we did get Johnson and Truss. Sadly now his party are increasingly winning local election seats. Unbelievably it could just happen. He could be in charge in a few years time.

That thought horrifies Hawklad. My thoughts are unprintable… Hawklad has made me agree (I didn’t take much convincing) that if that disaster ever happens, then WE will seek to leave the UK. See if we can move to say Ireland or France or Germany or Switzerland or Canada or somewhere that will have us.

All because of a nasty storm called FARAGE.

Posted on by bereavedandbeingasingleparent · 25 Comments

Words

There was a time when our UK Prime Minister talked about the pressures faced by all of us. How we needed to better support those in need both here in the UK and around the world, support the disabled, support those struggling with Mental Health conditions, support those in work, support our pensioners, support our children, support families, support those living alone, support those in work, support those who can’t work, support businesses.

Now the words have changed, he carefully and repeatedly says ‘recognise the pressures faced and the need to support businesses and hard working people’. Some groupings are not mentioned now, I wonder why…..

Posted on by bereavedandbeingasingleparent · 45 Comments

Same story

Caught the end of an interview with a UK politician who was giving his esteemed views on what was holding the country back and he specifically mentioned AUTISM…. That’s right along with Tariffs, energy costs, international conflicts, planning delays and the impacts of climate change, the cost of benefits, he specifically mentioned AUTISM….. He quoted the number of children currently diagnosed with autism and argued that it was clearly too high, and the rising numbers didn’t make any sense. He added that we weren’t seeing the same rapidly rising numbers in Adults…. And how far too many young people diagnosed with autism don’t get a job after they leave school, he argued reliance on benefits was a root cause of this. So if you cut the benefits available, more young people will enter (forced back into) the workforce. He concluded that the country needed to go back to some good old parenting with a sprinkling of tough welfare love. Welfare reform will over time stem the tidal wave of autism while reducing the tax burden on businesses and hard working taxpayers.

I keep hearing this argument more and more in 2025. Similar arguments are being directed towards a range of mental health and disability areas. Tough love will work and reduce the tax burden. One Government Minister even likened reducing disability benefits to cutting a child’s pocket money and encouraging them to get a Saturday job. Let’s not forget, Ministers usually closely stick to a script pre agreed by those at the highest levels of the Government. Those in charge don’t care or they are completely out of touch with the reality faced by millions they are supposed to be representing.

The reason adult autism rates are not rising is down to a couple of key issues. At the age of 18 autism support largely stops in the UK. Clinicians providing Child Autism Services do not have an equivalent adult service to hand an 18 year old on to. As a result large numbers simply drop off the system as adults. Relatively few General Practitioners (Family Doctors) have detailed autism training and it’s hard for them to make an assessment on the basis of a 3 or 5 minute standard length Doctor Appointment. As a clinician who worked with Hawklad explained to me, if an adult approaches a GP with an autism related issue, the busy GP will have little time to make an accurate assessment and anyway they won’t have any adult services to refer on to. So far too often GPs just end up offering some leaflets on mindfulness and possibly a course of Anti Depressants or sleeping medication.

That’s assuming that GPs are actually approached in the first place.

At school Hawklad was expected to put his hand up to get help with reading, or if he was feeling uncomfortable or struggling. But that meant announcing to his classmates that he couldn’t read something or having to publicly announce he was feeling uncomfortable, that was never going to happen. We might be in 2025 but we live in a world where way too many people have closed minds and the media still paint with inaccurate and harmful stereotypes. Autistic children still get bullied and pointed at in the school setting. Not only by children, sadly by parents as well. So Hawklad never put his hand up and the teachers assumed he was ok, the end result, he never got the classroom help he badly needed. Years later, he still won’t put up his hand with strangers or people he doesn’t trust. Even if he’s struggling, he is unlikely to call a GP for help.

2025 and sadly it’s the same old story.