Sitting down

I must have run past this monument well into a three figure number. Lots of times. I wonder when will be the next run here? 2021? 2022? or later.

Without running I’ve switched to more CrossFit and Yoga. I can definitely see a few more muscles but I’m not sure how far I could run now. It’s been many many months since I last put on my running shoes. My joints would definitely need a good oiling before I tried.

Today’s yoga was definitely interesting. 10 minutes of doing what appeared to be a simple task. Standing up from a cross legged position without using my hands. The standing up bit was ok, it was the getting down bit which was the challenge. How hard can it possibly be to go from standing up to sitting on the floor with my hands behind my back. Humpty Dumpty comes to mind. Give me running any day please. I can do that. But I guess over the coming months I will get the chance to improve. Not sure my bottom can cope with the bruises for that length of time.

We had two deliveries and the postman this morning. It’s unsettling for me to see each person arrive at the door fully masked up. Imagine what it does to someone fighting fears about germs and bugs. It really did spook Hawklad. Should really say spooked him even more. My job over the week is to rig up a post box outside to stop letters coming through the front door. Another thing that increasingly bothers Hawklad. As these anxieties continue to grow he becomes more clingy with me. His health professional has told me that his fears are so ingrained that they may not start to ease until this pandemic is under control and the vaccine has been rolled out and proven to be effective.

A clear time frame is starting to emerge on our lockdown. This is going well into 2021, maybe longer. That has huge implications for school, my work and our quality of life. Quality of life in the sense that our world will be the house and garden for the foreseeable future.

Running is not happening so I had better start to learn new skills. Skills like not collapsing in a heap when I try to get onto the floor without using my hands.

Family History

I was checking my phone for a photo for the blog and I came across this one. Yes Hawklad has been playing Pokémon Go again. Either that or my last selfie was a bit of a shocker.

I am listening to a cheery Pearl Jam cd and thinking about family history. For a lesson today he is trying to list some of his family tree. It’s easy with my partner as we can go back at least 300 years. Lots of documented history. Long line of Quaker and Liberal Political tradition. An MP. With mine it’s more patchy. Yes we can go back to someone born in 1805 but there are lots of blanks. Someone who refereed a big national football semifinal. Someone who walked on the Jarrow Poverty March. A female relative who went to be an exotic dancer in London at the turn of the last century. Someone who was gassed in World War One and survived. An uncle of mine who was a pilot during the Korean War. My Dad who fell in love with Iceland while serving during World War Two. But that’s about it. So many gaps.

So as Hawklad thinks about being partly English, Welsh, Scottish and German (maybe even more diverse), I have a new project. Time to try and fill in some of these family gaps. I owe that to my son.

It’s so important that we keep our own history alive because it forms a narrative to how we are.

Grouse

Most definitely not like this today. The strange yellow thing in the sky has most definitely gone on holiday. Hopefully not a long one.

Currently I am looking out of window into the rainy garden and thinking. I’m guessing this home at school project has many months to run. As a single parent it’s trying to get my head round the logistics of that. At present there is not much work and what work there is can be done at home. Shopping can be done through a combination of home delivery and very quick trips to the small local store. But what happens if I need to make a longer trip out. Hawklad is not comfortable at all being left alone.

The options are limited at the best of times and these are not the best of times.

Normally our options would be one of two sisters (but one-off those is 2 hours drive away, and both don’t drive) and a couple of local parents who have known Hawklad since the age of 5 (they are busy so are not often available). Unfortunately under the new Government Lockdown rules all four options are now banned. Breaking those would leave us open to heavy fines. The Government has even encouraged people to contact the police if neighbours flout the rules. The irony here is not lost, flouting rules if you are a member of the government or the dad of the PM is said to be entirely reasonable. Under the new rules our only option would be for a grandparent to stand in. Unfortunately ours have all left this world. But here’s another irony, those grandparents would fall into high risk groups. Those who should be shielding. Are grandparents seen as expendable….

The other irony is that those who would be an option before they were banned fall into much lower risk groups. They can’t babysit for us but I could go to work with them and sit alongside them in an office – that’s apparently fine. We could even put on green camouflage and go grouse hunting together without any punishment. Maybe that’s the childcare answer, we set up a grouse hunting lodge in the garden. The first ever vegetarian one….

Bit of orange

It’s been a good year for roses here but so not for other flowers. But occasionally the colour shines out. Just as summer is closing we get a couple of late visitors. They are must welcome.

Hawklad is due another home counselling visit this week. Every two weeks is the plan. Part of a long term care strategy to see if they can help him with his anxieties and fears. An attempt to help him feel sufficiently ok to venture back into the wider world. He needs that professional support. Some things are just a bit outside of my parenting skill set.

Even with that help it’s going to be a long process. We need a fair and supportive wind to help the process along.

Like in many parts of the world pandemic numbers are rising. Unlike some parts of the world, the UK is trying to navigate these stormy waters with no effective government. They have a natural talent to make things worse, to add oil onto the fire. So it’s all a tab chaotic and shambolic. The PM sticking to his whack a mole strategy. His words not mine.

I was contacted by Hawklads care team to let me know that they will have to keep assessing if the service will be able to continue in the short term. They are receiving contradictory instructions from the top. It is likely that the home visits will have stop at some point. Probably very shortly. When they do stop then they will look into things like video appointments. Better than nothing I guess but far from ideal. Hawklad really struggles with that type of thing. The worry is that if the visits are forced to stop then they will not probably restart until after winter.

It’s just one of those things. Outside my control. Outside the care providers control. We just have to make the best of it. But it does add to the feeling that a return to school is a very long way off, if at all. It kind of feels like that our castle drawbridge is being raised again. Time to start manning the battlements. That’s a bleak thought. AND that’s why seeing a couple of small orange flowers in the garden is such a big thing for me.

Odd sandwiches

The one thing that you get used to as an Aspergers parent is routine. Lots of routine. That’s tough for parents like me as I am not really a routine person. I’m a bit more impromptu. Bit more going with the flow, see what happens person. Maybe some would call it winging it. Which is most odd. On most of the old Aspergers tests I would score very highly yet on one I was way down. Routine.

On this Hawklad is completely different to me. He needs his routine, his order, his plans. He needs to have that safety net and he needs to follow them. It’s reflected in so many things. If we are driving somewhere then we need to follow the usual route, even if that means a much longer journey. He likes to wear the same types of clothing – if he grows out of them then we need to replace with almost exact copies. He has a TV and movie schedule which he sets way in advance. We will often watch the same movie over and over again. School lessons have to follow the timetable without variation. We need to buy the same types of pens and pencils. He likes to go out in the garden and talk at the same times. He doesn’t like me to do things like change my hairstyle or try new clothes. It’s funny I’ve been wanting to shave my hair off for years but that’s just not allowed.

Break the routine and he is immediately hit with waves of self doubt and fear. Over the years we have tried to work on this. Slowly trying to introduce change. Occasionally trying to introduce unplanned but definitely fun routine changes. But it’s never really worked. Routine is just a key part of who Hawklad is.

Another area of much needed repetition is food. He has the same seven day food menu. The same foods on the same days, year after year. Trying new foods is just not something he does really. Normally ends in failure.

Dad what on Earth is that.”

It’s a sandwich.

Yes I can see the bread but it’s what is between that which is the worry.”

That will be cheese and onion crisps. It’s going to be one of the great gourmet experiences. A crisp butty. A crisp sandwich.

Really. That is just wrong on so many levels.”

It’s fantastic. Go on try it. It’s a family tradition. Your Little Nan would always be treating herself with one. But her crisp butty would be made with Ready Salted crisps.

Just No Dad.”

Ok. But if it’s not a crisp butty then what about a chip butty. A sandwich made from fried chips (fries) with heaps of tomato ketchup. Another true taste sensation.

Erm NO. You can keep that as well.”

Ok Hawklad what about a fish finger sandwich. Fantastic.

Not happening. That’s a tradition which is not passing down the gene line anymore. It ends with you.”

The boys have lost things

This is the kind of house that just seems to encourage losing things. Lots of things. Which is remarkable when you consider it’s smallish bungalow. Including the garage and the loft, we only have 8 locations for stuff to mysteriously disappear. But it does. All the time.

The house is the home just to boys these days. That includes the pets. So we can definitely say that THE BOYS HAVE LOST THINGS.

Already today we couldn’t find

  • Hawklads FIFA 20 games disk,
  • The new pack of Weetabix,
  • My bank card to pay for something online,
  • My car key,
  • One of my socks – followed instantly by shouting at the dog,
  • A black pen. Can find loads of other colours but not a black pen which Hawklad needs to do a little homework,
  • My new pack of tea,
  • The laptop – how can you lose a laptop….
  • A pair of scissors,
  • My fitness band,
  • The WiFi passkey,
  • The new pack of batteries I bought on Thursday,
  • My mobile,
  • The book I’ve been trying to read for a couple of months now, frustratingly I only have 4 pages to go. It went missing while I was reading in bed. It has been lost for weeks. Ransacked the bedroom today, still no sign. It’s a rubbish crime story but I just want to find out who did it…..

That’s a typical day here. Boys will be boys….

But at least we found time to talk today. We ended up talking about our lockdown and the stuff that we miss. The things we have lost in our own little worlds. For me it was being around people.

Running in the countryside and walking in the mountains.

Going to see my team get beat. Spending time with the friend I meet up with.

We both agreed on missing concerts.

We also both agreed on missing going to Switzerland.

Hawklad talked about not going to zoos and falconries as much. Not being able to have a takeout or pop in for a real ice cream. Not being able to meet up with some of his friends. Missing out on not visiting the seaside.

Not going to wrestling shows.

And not being able to visit historical sites.

There was more but you get the point. Lockdown does have an impact on all our worlds. It means making sacrifices. But we do that all the time. The worry is that too many kids are losing out of key parts of their childhood. It’s about making the best of what we do have. Still trying to make memories. Remembering to keep living.

Cobwebs

Sorry this post is a day late. Think MONDAY….

Someone has been very busy. Boris is happily sat admiring all the hard work. Poor Boris the spider. Having a name which is now associated with our so called leader. Boris is a part timer, a serial liar, heartless, out of his depth, out of step with the world, a relic of a bygone era, addicted to his privileged lifestyle, not interested in the future of the species, has been repeatedly sacked, likes to hear his own voice and is basically a reptile at heart. Qualities not found thankfully in our little garden Boris.

So the start of the next phase of the school at home project got off to a predictable start. Looking at a blank screen. Waiting for something from school to allow Hawklad to try and do some work. Two hours of a blank screen. As we don’t even know what subjects are being taught today, there is nothing we can do. So all we can do is – I will send another email into school and Hawklad can play on Minecraft. You never know that game maybe part of the curriculum.

Cobwebs is an apt description for today. The first school day. An early start for Hawklad and even earlier start for me. Back to the delights of early morning workouts. Those early mornings when I just can’t seem to shake those cobwebs from my brain. It’s times like this that I really miss caffeine.

A few times this morning I found myself just repeating the same exercise. Over and over again for several minutes. The brain stuck in a tired loop or maybe it had just switched off and I was in autopilot mode.

Stuck in autopilot mode is probably a good description of the school system. Repeatedly doing the same thing over and over again, no variation, almost forgetting what you are trying to achieve. At least our garden Boris doesn’t do that. He is definitely a most able teacher about life.

Where did that go – The Sequel

The quickest sequel ever. Only a few hours ago I wrote about where did the summer holidays go! Where did the first 6 months of lockdown go. It’s ending for many but not for some. Not for us. That got me thinking, which is dangerous🤪🧐

What has changed for Hawklad and me over those 6 months.

So for Hawklad the following have been the big changes…

  • His fears about health and illness have gone through the roof. Just exploded. He is wracked with anxieties and the need to wash is never more than a few minutes away.
  • His social anxieties have become more prominent. He is more inward looking, and less likely to interact with others. As a result he had become more isolated.
  • He is more aware of the world.
  • He is more aware of Aspergers.
  • He is more aware of the incompatibilities between the outdated world and those who are on the spectrum.
  • His reading has really come on. In his words – ‘more of a part time dyslexic now’. The irony that happened without direct school teaching.
  • His available world has shrunk. The days of school, trips to the beach, a hill walk, an outing to a historic site, a visit to a friends house – they all seem a distant memory. Most days he can’t even get to his own front gate.
  • He has shot up. Now taller than his Dad.
  • He has become thinner. Need to watch that.
  • He became a teenager. Almost instantaneously he suddenly found movies like Dumb and Dumber, Bill and Ted and anything by Will Farrell hysterical.
  • He has a truly shocking hairstyle. Dad is great at doing them and he has so much hair to mess up.
  • He can now talk about his mum without so much sadness. Much more about being proud of her.
  • He sleeps much less now.
  • He is becoming more clingy. Needing more reassurance that I’m in the house somewhere.
  • Many of his personal traits, those that are often identified as being Aspergers, have become more pronounced. More marked.

So many things have changed for our son. Changes in circumstances, physical changes, changes in personality. Some of these changes could be down to the lockdown but it could also be a natural development. It’s a difficult time for him, to be a teenager. But add in Aspergers and it can be such a disorientating period. Trying to find a fit between the complex world and the need to find personal identity. Finding that sadly Aspergers is still not widely seen as being socially acceptable. What to do? Try to confirm or be himself. All this at a time when he may become more inwardly looking and less likely to talk to about his emotions. Potentially troubling times ahead. Maybe that’s the next theme for our journey. We shall see.

Soon I will try to do a similar list for me. What’s changed for this Kermit the Frog.

Turning

Those leaves 🍁 are turning. Autumn is coming.

Well actually the last few nights it has felt like winter has already arrived. It’s been freezing. Heating and lights full on. Jumpers (sweaters) most definitely are out of storage. I’m not very organised but I do always remember where I put my million jumpers. Normally I have all of them on at the same time.

So school starts on Monday. Our Son will not be returning at that time. If and when he returns is a matter of much uncertainty.

Dad have school decided what is happening on Monday then ?”

Not yet Hawklad.

Has school sent you the new codes so that we can check the online pupil pages for each subject?”

Not yet. Until we get these then we are basically stuffed.

So what will I be doing?”

Not sure as yet. I don’t have the school timetable. Don’t know what the subject teachers will be looking at.

As I’m now in a new set we won’t even know any kids we can ask to see what they have been doing.”

No. So I can’t speak to any parents and see what they have been given.

So basically Dad we will be winging the homeschooling thing.”

Yes definitely winging it.

So a bit like your cooking then. Bit of a disaster…”

Yep, but at least it won’t be dull.

If it’s bad then I’m going back to bed. Just to let you know.”

Don’t worry son, if it’s that bad I will be resorting to building lego sets…

***********

As it stands the plan is

  • Follow the school timetabled lessons for the day,
  • Email the individual teacher for a guide to what we should be doing….. not entirely hopeful about that. Failing that will see if any lesson notes have been loaded onto the pupil online pages ….. these are often blank or feature very brief notes loaded days after the lesson,
  • Look out for any homework tasks being posted. Submit these to the teacher somehow,
  • Try to find relevant videos online for him to watch. The BBC and other countries have some good resources,
  • Send copies of any work he does to the teacher …. somehow.

Yes winging it sums it up perfectly. I’m actually quite relaxed about the schooling side. The key is for our son to be in a good place. Assuming he is not at school for this half term, then it’s just about keeping him from falling too far behind the rest of the class. Certainly not looking for him to get gold stars. If keeping his hand in means he gets the school day done in an hour, then so be it. More time for him. More time for him to try and reconnect with his happy side.

The key thing is.

Yes we are doing school but it’s not the priority.

Saturn 5

We live on a hill. A not very big hill. But a nice one. This is the slope dropping down into the flat Vale of York. The Vale stretches for mile after mile. This gentle grassy slope is also our sledging run during winter. It’s not very steep but it’s long enough to generate enough speed. Enough to send this Dad flying through the air. That takes lots of momentum. Even those massive NASA Saturn 5 rockets would struggle to lift my butt into the air.

We don’t get much snow. But when we do it’s time to get to our hill slope.

What could possibly go wrong. The first time we tried sledging here Hawklad asked if I would safety test the run first. I reassured him that it was perfectly safe. I set off from the top and a few seconds later smashed into the tree at the bottom. I was like a precision guided missile. A missile with a large butt carrying much momentum. At least the padding helped protect me.

So when the snow comes again – what could possibly go wrong.