Like new

Two daily visitors waiting patiently for breakfast. I must clean the gutters….

After yesterday’s unplanned washing of my mobile, I found myself outside in the cold early morning air. Doing a great workout supplied by a very kind friend and listening to music on my super clean phone. Crystal clear sound. In fact it’s never sounded so good. Maybe I should try my body out in a quick machine wash cycle. If only I could fit the car in our old washing machine.

I was a bad parent last night and I’m not talking about letting son watch Deadpool 2 again. School emailed all the parents to say that they had not been picking up all the students who had been submitting inferior work or worse submitting work late. So to rectify that the only thing they could do would be to send out an email each night at 11.30 to warm parents about any issues which may have occurred with their kids online work for that day. I can imagine many parents sending letters of approval in or even asking for a tougher stance from school. I took a slightly different stance on my short reply.

Please don’t bother.

This morning followed up with a much longer reply basically talking about how tough it is for many kids at present and how about school using the resources they were putting into this sanction into doing something positive – something fun for the kids. Maybe even allowing some social interaction with friends. I’m not hopeful but at least it will get me another black mark in the awkward parent log.

Anyway school might not do fun but that doesn’t mean that we can’t. It’s so important we all find ways of still living. So in between online lessons we have squeezed in some activities. Bouncing on the trampoline, Jenga, air hockey and jelly making. Then after the school day had finished we made some cakes. Played football and attempted to build the largest possible Lego tower. Unfortunately due to the wind, curious pets and my eagerness to build higher before a stable base was formed – it didn’t get much higher than 5ft. It clearly had the same design fault as Trumps Mexican Wall. Oops that’s going to bring on my fan mail from Texas again.

Over Easter we will definitely revisit the Lego tower. It might even stand up long enough to take a photo. The point is that actually fun day is not enough. It really is so tough for kids to enjoy their childhood in 2020. So much anxiety and so little space to dream. So fun day is now fun EVERY day. Maybe just like my mobile phone, we can find ways (maybe unusual) to improve things in life. WE can do this.

Toy Story

Lovely midday weather here in Yorkshire.

It’s funny how you can overthink even the simplest of tasks. We try to make Saturday evening the official movie night of the week. A regular thing for son to look forward to. Popcorn, cola and a great movie. We save up new movies for the full Saturday experience. If we don’t have a new movie then the next best thing is a blockbuster. For days I had been working on a list of potential movies for this Saturday. Scores of candidates slowly whittled down to three favourites.

The Martian

Terminator – Dark Fate

Rocketman

So Saturday night arrived. I proudly gave son the list of three movies.

Ok Dad, let’s watch Toy Story.”

And with that it was Woody and co. A top top movie. Perfect escapism for today’s anxious world. But how much energy did I waste on picking an unused movie list. But I guess the point is that it successfully distracted me for a few days. While watching the movie I played my usual game of trying to pick which character I was most like. Toy Story was easy, clearly I am Rex. Although this morning I am a bit more Mr Potato Head.

We often forget how stressful the current situation is for kids. Confined to base, seeing parents stressed, unremittingly bad news on social media, kept apart from friends. In our sons case the confined to base and kept apart from friends is not really an issue. But his Aspergers requires routine and controllability. These have gone out of the window over the last few weeks. Adjusting to different daily routines. Food on the set weekly schedule (which has been in place for years) becoming unavailable. A completely unpredictable world. The fear of illness and worse ramped up by a spreading pandemic. He’s so young, had to deal with so much already and he’s facing this.

He asked what my best guess was for when things might begin to settle down a bit. Sadly I couldn’t say anytime soon. When he asked about schools opening and I couldn’t see anything happening and sticking before September.

“Dad is that September 2020 or September 2021”

I wouldn’t like to bet my shirt on that. We just don’t know who long the current restrictions will be in place for. When they do come off, how long before they need to be reintroduced. But we just have to deal with that. I’ve got to focus on the one overriding aim. Give son the best childhood possible. So we make the best of the new normal. Strengthen the new routines. AND above all try to have as much fun as possible. So Toy Story is perfect. It’s fun. Thank you Woody and co.

Hotel Window

Another cold start. I’m calling it an official three jumper day.

One of those cold starts that as hard as you work out, or regardless of how many warm layers you put on – your still cold.

The first week of schools version of homeschooling has now finished. Some subjects did embrace the opportunity. These offered the child a chance to be creative and to see where their learning interest would take them. Sadly that was not much of the week. Most of the lessons reflected the normal parrot learning teaching approach. What is the point of getting someone with dyslexia to translate page after page of French (without any context or help). What is the point of setting an online spelling test where the spoken words are so rare that I had to look every one up in a dictionary to see if they actually existed.

But he survived. The parent got through it as well. So that’s something.

Whether it was my lack of sleep, the unremittingly grim news or a week of homeschooling but last night I couldn’t get a thought out of my mind. Maybe, just maybe this is our world now. No more holidays. No more new lands. No more Switzerland. Certainly the financial shock of the next few months will take me a number of years to repair the bank balance. Generally travel may become more difficult over the next few years. Aspergers and the fear of social interactions is certainly not going away any time soon. So maybe that’s it with travel.

That’s sad but actually there is more to life than travel. So much to see and visit close by if it comes to that. Anyway we have not had a holiday since 2015 so we are used to it anyway. Doing virtual tours is a fun, safe, environmentally friendly and is so much cheaper. Then a thought crossed my mind. It was inspired by Basil Fawlty (John Cleese) while we watched Fawlty Towers. Basil was getting seriously cheesed off with a guest who was disappointed with the view from the bedroom window.

“Well may I ask what you expected to see out of a Torquay hotel bedroom window? Sydney Opera House perhaps? The Hanging Gardens of Babylon? Herds of wildebeest sweeping majestically

Actually could we scale the virtual tours up a notch. Why don’t I pick a window with a chair next to it. Then why don’t I stick a poster or large photo over the window glass. Suddenly my view of say the trampoline could be transformed into whatever I fancy. I’ve seen other people do this in the past. So tomorrow I am going poster hunting. Got a couple of belting posters of The Alps to find.. But in the meantime I’m hoping my bedroom window will look something like this.

Bed protest

Another cold start. Press ups on the grass are definitely cold on the hands.

Now set into the daily school at home routine. That’s a better way to describe it. It’s not true homeschoolingits schools version of remote learning.

  • 6:30am – start daily exercise (weights, or army fitness, or exercise bike or running round the little garden)
  • 7:30am – try to get as many home cleaning tasks done
  • 8:00am – Son gets up and has breakfast
  • 8:30am – log onto school system and check school messages
  • 8:40am – register for first lesson and complete tasks
  • 9:55am – load completed tasks
  • 10:15am – register for second lesson and complete tasks
  • 11:25am – load completed tasks
  • 11:35am – register for third lesson and complete tasks
  • 12:45pm – load completed tasks
  • 12:50pm – take dog for one walk of the day
  • 1:00pm – outside for talk with son
  • 1:40pm – serve lunch
  • 1:55pm – register for final lesson and complete tasks
  • 3:10pm – load completed tasks and log off
  • 3.20pm – start to breathe and play football

Dad I’m thinking about going Lennon and Yoko tomorrow. Might stay in bed and do the complete school day from there.”

“What are you protesting about then?”

I’m working on that. Maybe the excessive use of red pen at school. Maybe the shortages of baked beans.”

Maybe I can ask one of the important people making daily contact with me. I’ve never had so many Chief Executives and Business Leaders speaking to me. It’s a daily stream of emails wishing me well and informing me of their evolving plans. Our most senior doctors and scientist are giving me helpful advice. Even the PM and the Government are sending me text messages.

It’s suddenly great to be valued and important. I wonder how long this will last. Will it last as long as Son’s bed protest.

Crazy

It’s all gone a bit crazy. Even the sheep I encountered on the one permitted walk out of the house .. It’s a scene of peace in front of the lens. Behind the lens I am being stalked by a pack of hungry sheep waiting for a biscuit.

Dad you have done some crazy things but that one is up there”

No it wasn’t my sanest moment. I lost a challenge and my punishment was to bounce for five minutes on the trampoline. In a moment of madness I made myself a cup of tea to drink while bouncing. Yes I didn’t really think that through. Unfortunately I didn’t come to my senses until after the first bounce had deposited the said contents of the cup onto my T-shirt. Clearly the tea is not the only thing that I have lost.

Dad what on earth are you doing”

I had made a mistake on a post that I was writing for a couple of friends.

“Son where is the rubber (eraser), I’ve messed up and need to change something”

Dad your using your IPad”

Yes I know”

Tell me Dad your not going thinking about using a rubber on the screen.”

Staggeringly I was in a moment of utter craziness. I guess it’s a combination of a complete lack of sleep, trying to help with French homework and the general oddness which has descended on to us all. It really is an odd feeling. Like we are living in an episode of the X-Files merged with Monty Python and Bear Grylls.

But at least we can still smile about it. If anything the craziness helps fill the day. So let’s have one more piece of craziness.

Rory (A Guy Called Bloke) has come up with a new music challenge.

you are to create a playlist of 15 songs based upon a weekly theme.  All titles must be relevant to the theme itself – not the artists just the song titles. This week the theme is CRAZY TIMES…

So here goes (going to try and just include songs from my music collection).

  1. Crazy Train – Ozzy
  2. Psychotic Break – Jerry Cantrell
  3. Madhouse – Anthrax
  4. Stone Cold Crazy – Queen
  5. Am I Going Insane – Black Sabbath
  6. Eyes of the Insane – Slayer
  7. Inmates (Were all Crazy) – Alice Cooper
  8. Crazy – Nazareth
  9. Crazy Horses – The Osmonds yes that’s my only Osmonds song
  10. Shine on you crazy diamond – Pink Floyd
  11. Crazy – Aerosmith
  12. Moon Crazy – Blue Oyster Cult
  13. Crazy World – Scorpions
  14. You’re Crazy – Guns n Roses
  15. Psycho – Metal Church

Hold off for a week

Looks like Spring. The daffodils are out in force, blue sky and the sun is beating down on the Yorkshire soil. A frozen Yorkshire soil. One problem with this Spring. It’s absolutely freezing and apparently it’s going to get colder. I will hold off getting my shorts out for another week or so.

Yes some things are best left for a week or so.

School is most vexing. Increasing signs that schools version of homeschooling is in fact just the same old, same old. Rebranded but essentially the same teaching approach. It might work for some kids but it’s not working for our son. Yes a couple of subjects have tried to think out of the box, change things up. But the majority have not. It’s such a wasted opportunity.

Most kids are working remotely with no physical contact with their friends. So why not let them use the schools online system for to exchange messages during the homeschool day. No no no. All chats are monitored to ensure they are restricted to school work. Woe betied any kid who is even a minute late to log onto the system at the start of a lesson. Stick to the required task and don’t deviate…..

But let’s give school a week or so to see if the remote teaching programme evolves.

It’s been interesting to notice how much of the online teaching so far has been based on just reading a piece of text then answering questions. No modification for those kids who struggle to read. No additional help for those with dyslexia. Nowt new there then. I asked school for the reading and writing progress he has made over the last 20 months. All school will say on his writing was that no issues had been raised by teachers but they will look at using a computer for his main exams. Will that come with keyboard skills therapy work to help with the problems he has with typing…. apparently not.

On reading they have done some testing. According to the results he is still well behind the expected reading age. Apparently his reading age has improved only marginally in those 20 months. As a result school consider he’s best placed in the bottom set. No one on one help will be provided, if he needs help with reading then he needs to put his hand up and ask the teacher. He just needs to accept that his reading is poor and additional work on improving it is a bit of a waste of time. That’s interesting as over the last six months his reading has drastically improved (no thanks to school). What could be achieved if school did make an effort.

Well let’s give it a week or so. We need to think about the road going forward. What’s the best for our son. Is it schools version of homeschooling (school gates are likely to be shut for months) or will it be our home version. The following weeks will tell us.

Home schooled breadq

Today was the Day 1 of the countries homeschooling project for many. Son’s school is trying to run a full days lessons online. At the usual start time of the lesson he needs to log into the school system. He records his attendance by a simple text message. Then he follows the instructions the teacher has provided. Any work completed is then loaded onto the school system for the teacher to review.

  • Geography was to research and answer a series of questions on Russia for 90 minutes. He quite enjoyed that,
  • Maths was to use an online teaching system. Complete one module. Unfortunately due to the numbers of kids nationwide trying to use the system – it broke,
  • French was to read a handout then try to write a few paragraphs in the remaining time. Didn’t really work for him.
  • Art was to try and replicate 4 photos in various styles. So he tried a few sketches then photographed them and sent that to the teacher.

It kinda worked. It did provide structure but I’m not sure some of the teaching methods really suit our son. But that’s modern teaching in this country. Let’s see what the next few days turn out like. I’m puzzled how some of the subjects will be run. Online PE and Drama could be interesting. Surely they will squeeze in a few of our favourite spelling tests. Food Technology mentioned cooking at home. Maybe even learning from your mum or dad.

“Say that again. Learn cooking and baking from your dad.”

He gave me a withering look.

Sorry dad I’m going to have to say a bad word. Oh CRAP.”

He knows me far too well. A couple of hours later.

Dad, I thought you had planned to put seeds on top of the bread”

“I thought I had put seeds on but clearly I accidentally put grated cheese on instead. It’s now cheesy bread.”

Its vegan cheese isn’t it.”

“Yes I believe it is as that’s the only grated stuff in the fridge.”

Well it’s grated cardboard topped bread then. I do learn from you. How not to cook…”

Prophecy

Colour slowly returning to the garden. Sadly just in time for the next weather blasting. Just so predictable….

A few years back our son had a wonderful medical expert who did an awful lot for him. Just before retirement I remember the experts prophecy. To paraphrase

Our country’s support for kids like yours is nothing short of a disgrace. Sadly if you think that the support he gets now is patchy and insufficient, well just wait a few years. It’s likely to get very much worse. Maybe when he is 12, most definitely when he is a teenager, the minimal support will dry up. He will get reassessed by clinicians who have no practical experience of your son. They will deem him above the clinical threshold and will turn off the support. Clinical threshold should be renamed budgetary threshold. It’s not a reflection of the clinical position. He will still have severe clinical need for intervention. The support will be removed because as a society we don’t support teenagers and adults on the spectrum. We expect them to fend for themselves. If they don’t fulfil their potential then tough. I’ve seen this happen to virtually every kid I have worked with. If they achieve anything in life it’s just down to themselves and their parents. On top of this the school system just assigns them to the bin. It stinks….

Sadly the prophecy is coming true….

Just before Christmas he was reassessed for one of the support services he receives. The assessment was done by someone who had never met our son. The outcome – the service was withdrawn as he no longer met the clinical requirement.

Today we had a therapy session at the local hospital. It’s a service he has had since he was 7. It’s made some great progress over the years. It’s taken time and many sessions. At the last session his worker agreed on a programme to help with his handwriting, keyboard skills, and areas such as shoelaces/school ties. The programme after that would look at trying to help with coordination specifically aimed at swimming and bike riding. He has significant problems in each of these areas. Well guess what. At today’s session his worker was joined by a senior member of the team. A reassessment was made of his case. After a few practical exercises we were informed that he was now above the support threshold. He was now discharged from the service. They would write to school and give them some suggestions on his future schooling. We were handed a couple of information sheets on handwriting and shoelace tying. We can ask his Paediatrician to review this decision. We are on the waiting list to see a Paediatrician – currently our last appointment was over two years ago.

So we are now down to one service support now. But that is so underfunded. His worker is wonderful but because of workloads she struggles to see him now. Last year we got invites to a couple of group sessions. His last one to one session was back in 2018. Clearly it’s only a matter of time before that last helping hand is removed.

It really feels like that the health service has now dumped our son since he’s a teenager. I guess they argue that it’s an educational problem now. Unfortunately the school system has washed its hands of our son already. Like so many kids the school’s write them off. Label them low attainment. If they get the odd exam certificate in the end then school has achieved its goal. Ticked it’s box on the Government’s school assessment.

So here we are in the brave new world. We are fending for ourselves. Our only support – a few pages of photocopied guidance from a textbook. How can we have got this so wrong. How many thousands and thousands of autistic teenagers and adults are in the position. Some of the statistics on autistic suicide rates, unemployment, depression and poverty are appalling. But society doesn’t care. Our leaders don’t care. That’s a truly sickening thought.

Cake test

This was my attempt at baking son’s birthday cake. It’s amazing what heaps of icing can hide. The cake was a bit over baked with a huge volcano like hole at its centre. I plugged the hole with soft sweets and then covered with thick icing. What was left of the sweet packet was scattered on top. I might be onto something here. The soft sweet centre worked brilliantly. As a result the cake was deemed “not too bad at all” which on our sons review scheme equates to just above two Michelin stars. So now that’s got me thinking what other things can I fill the inevitable cake sunken holes with. I’m going for jelly in the next one. I will report back on my test.

On the subject of tests …. ok troops, time to stand by up your beds. Its spelling test time.

School is slipping as we have had only one spelling test this week. So they better make it a doozy.

Imagery

Alliteration

Rhyming

Couplets

Syllables

Stanza

Rhythm

Sonnet

Simile

Metaphor

Hyperbole

Assonance

Personification

Onomatopoeia

Enjambement

Another cracking list of words that will be of great use in son’s future life. My last conversation with school stressed the point

That spelling tests for dyslexic students are not recommended practice. If they have to be used then they should only focus on the most commonly used words.

Good to see the school are sticking to the common words then. I had to look up Enjambement. I was sadly disappointed to find that it wasn’t a Caribbean Cooking term for combining Jackfruit with Jamba Juice. My favourite flying dinosaur (Onomatopoeia) makes a welcome return. Last time I pulled that joke I had a shedload of abuse from my Texan fan club….. For some reason Son can’t say ASSonance without cracking up. Must get to the bottom of that joke.

Plank

It’s been a blustery day with the clouds clearly in a hurry to pass over Yorkshire. Frustratingly work demands prevented a run. Looked a really good day for one. Maybe tomorrow. I managed to get work done 40 minutes before I had to drive to pick up son. The school bus experiment has now been abandoned. It was causing him just too much stress. So with a few minutes free just enough time to change the bedding and clear the ironing. I’m not sure which activity is more dangerous. Burns from the iron or the BP over a 1000 while trying to put on the new duvet cover. Today it was the ironing – yet another finger burn…..

Unbelievably both tasks were completed well within the 40 minutes. Still got 8 minutes free. So what to do. Not enough time to go for a run or get the weights out. I’m clearly thinking like a psychopath as I opted for trying to do a plank. Why did I not opt for a bounce on the trampoline or a quick cup of tea or a sit down. No I went for a plank. All was good for the first 4 minutes then the shakes began to kick in. At 6 minutes my body is experiencing a magnitude 9 earthquake. How can this be good for you. Thankfully the school run out me out of my misery. Seriously how did some nutter set a plank record which was over 8 hours longer than my attempt. I bet that nutter has those super tight abs that can crack a walnut. I’m not jealous.

Something which has lasted longer than my plank is my semi isolation. It’s now coming up to two weeks since I spoke to anyone other than our son. A school holiday in which we shut ourselves away boosted the numbers. Not sure what my first words will be when I do actually speak to another human. Maybe it will be when was the last time you did a plank. Or maybe it will be just one word – spellings.

Clearly school has decided that one spelling test this week is not enough. So stand by your beds troopers it’s time for your second spelling test of the week.

Article

Exaggerating

Gossip

Biased

Headline

Subtitles

Dramatic

Features

Scenery

Interaction

Relationships

Emotions

Claudio

Leonato

Margaret.

Claudio, Leonato and Margaret have given the game away. The teacher is clearly reading Much Ado About Nothing. So we have a new game. Let’s try to guess where the English Teacher has taken her spellings from. Clearly if it’s ever from an Encyclopaedia of Dinosaurs or the Guide to Welsh Place Names, then we are in for some rough spellings. We could get

Archaeornithomimus

Or

Llanfairpwllgwngyllgogerychwyrndrobwllllantysiliogogogoch