Posted on by bereavedandbeingasingleparent · 18 Comments

There is a storm coming…

A little bit of a Northern Lights Storm….

Need to keep remembering what a staggeringly wonderful world this can be.

The Government has started a formal review into the rising demand for ADHD, Autism and Mental Health services. But here’s the problem about that….

It’s the starting point for the review.

Setting up the review The Government has already stated what they see as being the key problem, ‘way too much over diagnosis’. Is this political opinion based on clinical or finance advice. Is it centred on a concern for individual welfare… sadly NO. The starting point isn’t about the families who can’t access the help and support they need, its not trying to help those struggling because they can’t access help, it’s definitely not about expanding and extending services . Rather it’s about a budget line on a spreadsheet which the Government wants to make much smaller. It’s about saving money. You can see what the end goal is….. Cutting the Special Education Budget by reducing which children can access services, cutting benefits paid to adults and reducing NHS services in these areas. THEN the Government will try to come up with a PR campaign to make it sound like it’s anything other than a budget cut. But it WILL be a budget cut probably dressed up as ‘helping’ those written off’. ‘Too many’ will be said to have been ‘written off’ by Doctors when they diagnose patients with ADHD and AUTISM, ‘allowing ’ too many education, benefit and support claims. And thus the Government will say that the best, and kindest way to help children and adults will be to just cut their benefits and services, ‘encourage’ them and families to help themselves. Remove more tailored education support and force more adults back into work regardless of their fitness to work. The last Government tried to do this, sadly this Government looks like they might do it this time.

Where are all these thousands of additional ADHD and Autism friendly jobs…..

What happens to the children who can’t access the Special Educational Services they need, have Teachers the training and spare capacity to pick up the pieces…..

Who’s best placed to make a clinical diagnosis, a Doctor or a Politician…..

Deep Sigh. It really shouldn’t be this way.

Posted on by bereavedandbeingasingleparent · 36 Comments

Made it

It’s that time of year when the Bluebells start to appear. We have a Bluebell Wood close by but today we headed a bit further. An hours walk over streams, fields and gentle hills. To a wood that we always talked about venturing to when we first moved here but never got round to it. Two decades later, much water under the bridge and finally we made it.

Beautiful walk but walking across farmers fields today bothered Hawklad. Just didn’t feel right for him, started to unnerve him. That’s the thing, somedays he can freely walk these paths, somedays not so. It’s not programmable, not predictable.

I was scrolling through an autism support website and a thread talked about employment. Just how difficult it is still to find employers willing and able to make the environmental adjustments and put in place the support individuals need to secure regular employment. Then for those in employment just how difficult it is to hold down regular employment. Many employment settings are just not autism friendly. On top of that, many talked about the unpredictability of work. Some days work is possible, other days it just isn’t viable. One young person described it as ‘some days I can walk into the office and work, other days I simply can’t get through my front door’.

Yet there seems to be an assumption at Government level, take away benefits and people will suddenly find regular employment to more than replace the lost benefits. Life isn’t that predictable sometimes.

Today we abandoned the farm tracks and walked along the quiet roads. That worked for Hawklad.

Posted on by bereavedandbeingasingleparent · 45 Comments

Same story

Caught the end of an interview with a UK politician who was giving his esteemed views on what was holding the country back and he specifically mentioned AUTISM…. That’s right along with Tariffs, energy costs, international conflicts, planning delays and the impacts of climate change, the cost of benefits, he specifically mentioned AUTISM….. He quoted the number of children currently diagnosed with autism and argued that it was clearly too high, and the rising numbers didn’t make any sense. He added that we weren’t seeing the same rapidly rising numbers in Adults…. And how far too many young people diagnosed with autism don’t get a job after they leave school, he argued reliance on benefits was a root cause of this. So if you cut the benefits available, more young people will enter (forced back into) the workforce. He concluded that the country needed to go back to some good old parenting with a sprinkling of tough welfare love. Welfare reform will over time stem the tidal wave of autism while reducing the tax burden on businesses and hard working taxpayers.

I keep hearing this argument more and more in 2025. Similar arguments are being directed towards a range of mental health and disability areas. Tough love will work and reduce the tax burden. One Government Minister even likened reducing disability benefits to cutting a child’s pocket money and encouraging them to get a Saturday job. Let’s not forget, Ministers usually closely stick to a script pre agreed by those at the highest levels of the Government. Those in charge don’t care or they are completely out of touch with the reality faced by millions they are supposed to be representing.

The reason adult autism rates are not rising is down to a couple of key issues. At the age of 18 autism support largely stops in the UK. Clinicians providing Child Autism Services do not have an equivalent adult service to hand an 18 year old on to. As a result large numbers simply drop off the system as adults. Relatively few General Practitioners (Family Doctors) have detailed autism training and it’s hard for them to make an assessment on the basis of a 3 or 5 minute standard length Doctor Appointment. As a clinician who worked with Hawklad explained to me, if an adult approaches a GP with an autism related issue, the busy GP will have little time to make an accurate assessment and anyway they won’t have any adult services to refer on to. So far too often GPs just end up offering some leaflets on mindfulness and possibly a course of Anti Depressants or sleeping medication.

That’s assuming that GPs are actually approached in the first place.

At school Hawklad was expected to put his hand up to get help with reading, or if he was feeling uncomfortable or struggling. But that meant announcing to his classmates that he couldn’t read something or having to publicly announce he was feeling uncomfortable, that was never going to happen. We might be in 2025 but we live in a world where way too many people have closed minds and the media still paint with inaccurate and harmful stereotypes. Autistic children still get bullied and pointed at in the school setting. Not only by children, sadly by parents as well. So Hawklad never put his hand up and the teachers assumed he was ok, the end result, he never got the classroom help he badly needed. Years later, he still won’t put up his hand with strangers or people he doesn’t trust. Even if he’s struggling, he is unlikely to call a GP for help.

2025 and sadly it’s the same old story.

Posted on by bereavedandbeingasingleparent · 47 Comments

Can’t put my finger on it….

Nice calming photo before the rant…..

Politicians in designer power suits, talking platitudes and manicured slogans. On their 6 figure pay checks, with second or third lucrative jobs plus more than generous expenses, gold standard protected pensions. Dressed to kill while they announce drastic cuts to disability benefits hitting many of the most hard pressed and struggling members of our society.

Spin Doctors please note, it’s not a great look seeing politicians smiling to camera while announcing disability cuts….

Can’t quite put my finger on it….. Something not quite right about this in my mind…….

Yes this is a Labour Government who has spent the last 10 years howling with protest whenever the previous Government went anywhere near welfare cuts, taking the moral high ground. At least the Conservatives are upfront about it, if they can could get away with it, they would cut.

Listening to the politicians, they seem to have no idea about the real lifes many in the country are struggling with each and every day. In politician world many receiving benefits are just avoiding work, exaggerating disabilities, over playing the impact of mental health issues and are clearly a burden on society, holding the country back.

Deep sigh.

Benefits don’t lead to a life of leisure, rather they allow people just to survive. Even with benefits many in society are living on the edge or beyond. Plus the process of trying to get those benefits is laborious, taxing and angst filled. The system is already stacked against claimants. The ‘cut benefits and suddenly people will get a job’ tag line just isn’t the reality for many. Health, Mental Health and Social Care support is patchy, overstretched, chronically underinvested and in many areas, NONE EXISTENT. Many are having to give up work or reduce hours to care for loved ones as a result of the lack of support. Now even these carers are facing losing the meagre care allowances they currently receive. So if these carers are now financially forced to stop caring, who then looks after those you need full time home support.

Unless this can be reversed or properly thought through, this is going to be a nightmare for many in our country.

Definitely deep deep sigh.

Posted on by bereavedandbeingasingleparent · 33 Comments

Is this really 2025

Eleven years ago I remember reading a newspaper headline about Autism. I can picture the scene clearly, sat on a platform at a London train station, waiting for my connection back North. A once smart black suit now a bit creased and unfortunately showing clear signs of an egg sandwich accident. Under the headline a politician was claiming that finally autism was now mainstream, embraced and on the political agenda. Individuals on the spectrum were finally going to start to get the help and support they needed. I remember the article so clearly because the newspaper had managed to spell Aspergers wrong….

2025 and I’m sat in a traffic jam, listening to the news. A politician is talking about Autism. Apparently far too many children are being diagnosed as autistic and it’s costing way too much money. The reason behind the rising cost couldn’t be real and was clearly due to pushy parents playing the system. It was unfair on taxpayers, businesses and other parents. That’s why it was right that the Government was going to crack down on the issue. Crack down on the rising tide of Autism….

Is it really 2025.

Posted on by bereavedandbeingasingleparent · 56 Comments

Language

Language is so important. More than ever it frames the debate, creates headlines, fills social media channels and sadly can alienate, castigate.

We all have different views on society, on politics. In the UK, to me the last few years has been unremittingly grim. And yes I’m not the only one who thinks that.

Am I pleased there was a change in government last year, YES, maybe the right word is RELIEVED.

Am I pleased with the new government. NO, but to me it’s way less bad than what came before it. A bit of good stuff, some puzzling stuff, some bad stuff.

The BAD stuff includes LANGUAGE. I don’t like the language the government often uses in terms of Mental Health and Disabilities, in terms of the many needing real help. Way too often the language is grim, divisive, and riddled with stereotypes which easily make its way on to the front page of gutter newspapers. It portrays a real insensitivity and a clear lack of understanding on the real issues and problems many face during every day life. What happened to the so called enlightenment that society went through on how it sees Mental Health and Disability.

I completely understand the need to control spending, to ensure it’s targeted where it’s needed. BUT…

The language often being used creates the false impression that most on Mental Health and Disability benefits are intentionally work shy, have a choice to either push through any issues they may face to work or to choose to stay at home, lead a life of leisure paid for by taxpayers. How the rising mental health crisis is just a sign of an increasingly work-shy population, it just can’t be based on real need. How the rising demand for special educational support is more down to pushy parents than actual individual child need. How every pound spent on a child with specific educational needs is in some way depriving the vast majority of pupils much needed new books or teaching opportunities. That those benefits that are essential to so many people are in some way an extravagance, a waste of resources, unfair on hard working taxpayers.

This language then fuels so much which is wrong in our modern world. False information, bullying, victimisation, mistrust, division and hatred.

Is it really 2025, is this really positive change and new hope….

Posted on by bereavedandbeingasingleparent · 41 Comments

Still cold

An April trip to Scarborough. Time to put on the Simon and Garfunkel cover of the old English Folk Song.

Are you going to Scarborough Fair…

Well I hope they got wrapped up as it was seriously COLD, AGAIN. Beautiful but COLD.

The Scarborough song is about asking too much of others, asking impossible tasks, love fracturing. Well it would mess up if one lover was expecting a Caribbean beach holiday and they ended up on a long weekend in not so tropical Yorkshire.

We had been over here for an appointment, the last bit of formal support Hawklad gets these days. One 45 minute session every 3 weeks or so. From about the age of thirteen the support levels have shrunk rapidly. Get to 18 or 19 and they will have completely disappeared. Not because the need isn’t there, it’s likely to be there more than ever, but because nationally access to services are being restricted. Years of cut backs and efficiency restructurings have led to ‘streamlined’ services being overwhelmed with demand. So we get frustrated and angry with the lack of local support but unless mental health is given the priority it needs nationally, then it’s an IMPOSSIBLE task to support every need, it just can’t happen.

Or is it IMPOSSIBLE, at least could we do better, could we give some more support to those who need it. I guess it comes down to a couple of drivers…

– Maybe those in charge see more votes in focusing on tax cuts and immigration crackdowns,

– There are just not enough profits to be extracted by greedy hands from Mental Health Services.

The UKs so called Prime Minister will give daily speeches solely focusing on how he is being tough and proactive on trying to fly a few desperate refugees to Rwanda at a cost of £500 Million (plus…), yet he never seems to ever raise an eyebrow at the mental health crisis unfolding across the country. But what is clear.

The money is there, the money to fund services is definitely there.

This shouldn’t be impossible.

Posted on by bereavedandbeingasingleparent · 58 Comments

Elephant in the room

Don’t get many of these around here. It’s a FORD. It’s about the only time my car gets a wash….

You can see the houses still have sandbags up against the front doors. These days this lovely village sadly suffers from floods way more frequently.

Parked up in a traffic queue waiting to cross a storm damaged bridge, I unfortunately got to listen to the NEWS. MOST Unfortunate as it involved listening to the Government Education Minister trying to explain why more and more pupils are not attending school. Record numbers. Apparently it’s down to a number of factors,

Bad parenting

Immigration

Really bad parenting

Not enough discipline

Truly awful parenting

Benefits culture

Liberal politics

Moral standards

Monumentally bad parenting

Not enough Parents being fined for letting the Country down. Well over a quarter of a million parent fines just isn’t enough….

I guess I am one of THOSE parents the system has a problem with. Well as ONE of those parents I was surprised that the School System and Government Education Policy wasn’t mentioned. No mention of school budget cuts. No mention of the complete collapse in Special Education Provision and Support. No mention of NHS Mental Health Services struggling to cope with the huge numbers of young people crying out for help. No mention of rising class sizes and overcrowded, unhealthy classrooms. No mention of crumbling school infrastructure. No mention of rising teacher workload and stagnant pay. No mention of increasing Government control of what is taught, how it’s taught, how it’s assessed. No mention of the fanatical focus on exam results and discipline. No mention of the drive towards Victorian Education Standards.

That’s a large ELEPHANT in the ROOM.

Posted on by bereavedandbeingasingleparent · 55 Comments

Bad parenting

That’s a moody landscape, maybe it knows just how messed up this LAND has become. That it has become the LAND of BAD GOVERNING.

Every single day more evidence of corruption, lies, self interest, extremism, vacuous morality and staggering incompetence.

The Environment, The Economy, Education, The NHS, Public Services, Democracy, Governance, Law, Support to those in Need, Equality, Families, Communities, Futures, ALL being TRASHED.

But what do you expect when we vote in clowns and charlatans to lead this Land.

Case in point, The Deputy Chairman of the Conservative Party and frequent spokesman for the Government. Lee Anderson MP who previously claimed ‘Poverty in the UK’ was NONSENSE has now stated that….

ADHD is down to BAD PARENTING.

That bad science bombshell is news to the actual Scientists, Experts, Professional, Families and everyone who better understand ADHD. ADHD is associated with factors such as Genetics, Brain Structure, Brain Chemical Reactions and with extremely low levels of associated neurotransmitter transmission.

This bloke from the Government is spouting unfounded urban myths and conspiracy theories, AGAIN. This time by stigmatising caring and loving families who are just trying their hearts out and doing the best they can. He is trying to turn people against them. Divide and conquer.

As a parent who still lives in the ADHD world, I’m not going to take any lectures from this CLOWN. He has no idea, he doesn’t care but sadly has a massive ego and even bigger mouth.

Come on people of the UK, when the time comes, DO THE RIGHT THING and get rid of the Charlatans.

Posted on by bereavedandbeingasingleparent · 38 Comments

When will it stop….

Famous old Whitby. Captain Cook, Dracula and probably the best Fish & Chips on the planet….

Ok, Deep Breath.

The so called UK Government strikes again. Several reputable news agencies are reporting that the Government has started work on cutting by a fifth the number of New Education Health Care Plans issued to children with Special Educational Needs. The millions saved by this cut are to go into funding tax cut giveaways which will be an election promise.

These plans are already a nightmare to get hold of. It took us 18 months of fighting, scraping and torture to get some additional funding for Hawklad. Huge numbers of children with special needs already fail to get any additional help and what help that has been made available has been significantly cut. Schools do not get enough funding to cover additional help and as a result thousands of children suffer. AND now the Government wants to cut even more, make it even more difficult for families to get hold of help and support. The very same Government who cut the tax on Champagne costing millions….

It’s a mess and it’s going to get way worse.

How do people still willingly vote for these Charlatans.