Posted on by bereavedandbeingasingleparent · 38 Comments

Last one

The dust is now settling on what feels like a new world. A while back Hawklad had his last bit of support from the Child Mental Health Team. As the threshold for Adult Support is so high and because there is actually no equivalent Adult service, that’s it. The need doesn’t suddenly go away as a birthday is reached, but in the UK, the service does.

It was odd, I wasn’t sure what to expect with the last appointment. Maybe a number to call if he really needs support, maybe some pointers where he could seek help, maybe a support website, a handful of support guides. But in reality it was a simple ‘best of luck’ and you will need to speak to your Doctor if you need help from now on. However Hawklad had already been warned that most Doctors support will be limited to Mindfulness Leaflet and the offer of Antidepressants.

Yes I’m concerned for Hawklad going forward but my heart really goes out to those who need way more support and suddenly find themselves cut adrift. I heard it described as a Trapeze artist who is performing a routine and suddenly finds the safety net missing. Maybe but just maybe the safety net is also there for the artist who can’t even make it onto the high wire. The artist who is struggling to even leave the house, struggling to function in daily life.

Without health support it’s down to self help, family and friends, thankfully Hawklad has some of that around him. But we need to recognise that most of us are not trained health professionals, effectively relying on a Wikipedia knowledge base. But at least it’s still support, importantly support that cares.

BUT many who are struggling are on their own, without any kind of local or specialised support. That can’t be right.

Posted on by bereavedandbeingasingleparent · 34 Comments

Let it

I guess many parents have probably done this. A Ninja Argument with your partner. Our Individual flaws mean that things like arguments can brew up anywhere, anytime, sadly even when our children are present. What follows next is an argument while desperately trying to hide this from the kids. Trying to portray normality, happy families while having a right ding dong…. Using all the tricks in the book, those looks, silence, sarcasm, sign language, under your breath anger, referring to your partner in the third person….

One of those arguments sticks in my mind even now, even after something like 10 years.

This argument’s fires were stoked in the gift shops of Interlaken, reaching their zenith on the lake boat returning to the hotel. It was one of those arguments that we couldn’t even agree on the length of the conflict. Sat at a boat dining table, I’d moved to let’s park this argument stage. Withering looks, caustic comments and a well placed under table shin kick clearly indicating that feeling wasn’t yet mutual.

Here’s the madness, I can remember the argument yet I have no idea what we were arguing about. Parents with a wonderful son, in a wonderful location, so many adventures to be had and we were consumed on pointless, destructive arguments. No recollection of good moments, just the self inflicted negativity. Apart from the madness the only other thing I can recall from that day was getting seasick. Seasick for the only time in my life. I’ve been on really rough North Sea crossings, NOTHING. Yet on this beautiful, wave free Swiss lake, as the argument finally subsided on both sides, the gentle movement of the boat got to me. Everything was moving and swaying, wow was I feeling nauseous. Even trying to hide this from Hawklad. Stumbling off the boat at our destination and slumping on the nearest bit of dry land grass.

My last memory of that day was one more comment I heard – ‘that’s a little too over dramatic…”. All I wanted was the world to stop spinning. Now I just want to play out those few hours again. Replace negative memories with fun ones. Life can be such a wonderful adventure , if only we let it.

Posted on by bereavedandbeingasingleparent · 56 Comments

Language

Language is so important. More than ever it frames the debate, creates headlines, fills social media channels and sadly can alienate, castigate.

We all have different views on society, on politics. In the UK, to me the last few years has been unremittingly grim. And yes I’m not the only one who thinks that.

Am I pleased there was a change in government last year, YES, maybe the right word is RELIEVED.

Am I pleased with the new government. NO, but to me it’s way less bad than what came before it. A bit of good stuff, some puzzling stuff, some bad stuff.

The BAD stuff includes LANGUAGE. I don’t like the language the government often uses in terms of Mental Health and Disabilities, in terms of the many needing real help. Way too often the language is grim, divisive, and riddled with stereotypes which easily make its way on to the front page of gutter newspapers. It portrays a real insensitivity and a clear lack of understanding on the real issues and problems many face during every day life. What happened to the so called enlightenment that society went through on how it sees Mental Health and Disability.

I completely understand the need to control spending, to ensure it’s targeted where it’s needed. BUT…

The language often being used creates the false impression that most on Mental Health and Disability benefits are intentionally work shy, have a choice to either push through any issues they may face to work or to choose to stay at home, lead a life of leisure paid for by taxpayers. How the rising mental health crisis is just a sign of an increasingly work-shy population, it just can’t be based on real need. How the rising demand for special educational support is more down to pushy parents than actual individual child need. How every pound spent on a child with specific educational needs is in some way depriving the vast majority of pupils much needed new books or teaching opportunities. That those benefits that are essential to so many people are in some way an extravagance, a waste of resources, unfair on hard working taxpayers.

This language then fuels so much which is wrong in our modern world. False information, bullying, victimisation, mistrust, division and hatred.

Is it really 2025, is this really positive change and new hope….

Posted on by bereavedandbeingasingleparent · 35 Comments

Listen

Newcastle…

The view from the top of the modern art gallery, The Baltic. A converted old flour mill set next to the River Tyne, on this cloudless yet cold Saturday afternoon. Trying to forget the proceeding two hours, where my alleged football team successfully donated 3 points and way too many goals to a visiting, actual football team….

The Baltic is the Joseph Rank building…

I’ve been thinking about the support Hawklad has had from the Education and Health services. Lots of ups and downs, hopefully a few more ups…. In the UK it can be a bit of a postcode lottery. Some parts of the country offer more support, more joined up support than others. Our area is definitely in the OTHERS column. An area that has prided itself on highly streamlined services, so streamlined that a few too many services have disappeared completely in repeated budget cuts.

Fortunately a few services survived and have tried to help Hawklad. So thankful for those. But even for those services, what hasn’t helped is the constant change over in staff. The longest Hawklad had the same nominated support clinician was 18 months, often they would change at least twice a year. He’s had 7 different Paediatricians. As for his Education Support Officer, they have changed more frequently than managers at my so called football team… Over the last 3 years, this officer has changed 8 times. This week we phoned to talk about exam support and yes, the person has changed again. Every change brings delays and the need to bring the new person up to speed on Hawklad, who he is and his needs. Above all things, Hawklad has to try and build up a connection, time and time again. That’s so not easy for him. It really doesn’t help him. Some changes are unavoidable, people move on, that’s life but frequently, the change has been down to management decisions. Too often we’ve read or heard the following words ‘unfortunately he’s been taken off my case list so I’ve had to hand his files over to another professional, hopefully they will be in touch with you soon….’

Continuity, hard thought connections and openness based on trust are so important to successful support and therapy. Listen to Hawklad and he will talk about this way better than me. But here’s another thing. How often do the services listen to the kids they are trying to support. In our area, the answer is I suspect somewhere near, never. To my knowledge, he has never been asked. Maybe if they did they might start to understand better the importance of qualities such as Continuity in the services they are trying to provide.

Posted on by bereavedandbeingasingleparent · 17 Comments

Three

A late evening walk on the Moors.

Three….

Hawklad now has three support sessions left then he’s discharged from Child & Adolescent Mental Health Services. He’s discharged because at the age of 18 there is no equivalent Adult service to be handed over to. There is some voluntary charity provision but it is very patchy.

Research has repeatedly highlighted the implications that can flow from the removal of dedicated mental health support as soon as someone reaches the age of 18

– Increased risk of Isolation and loneliness

– Escalation in untreated/undiagnosed mental health conditions

– Increased risk of depression and self harm

– Life opportunity limitations

– Increased risk of unemployment and employment insecurity

Even for under 18’s, services are stretched and far too many children don’t get the support they need.

From the age of 18 any formal support has to accessed via the Doctor Lottery system. Post Covid, in many areas patients have to try to navigate the appointments labyrinthine. Join a telephone queue at 8am and wait in line to be answered, a few minutes late and all the appointments for the day will be booked solid. If slots are still available you then first have to explain the symptoms to the Doctor Receptionist who then decides if you can have a face to face GP appointment or more likely a telephone call back. Way too frequently you are either told to try again tomorrow for an appointment or to try to self treat. If you do get a precious appointment or callback, you have at most about 5 minutes with a Doctor. In our surgery it is quite rare to get your own GP, often speaking to someone who is looking at your records for the first time. It feels very rushed and pressurised. Then you’re faced with a Doctor who is unwilling or unable to refer you to a specialist mental health service. As one Consultant told me,

Many Doctors just don’t fully understand specialist Mental Health areas. They are stretched and sadly they often try to treat anything that might look like Autism or ADHD with Antidepressants and a leaflet on Mindfulness.

This whole process ain’t going to work for Hawklad, he isn’t going to go through this process to get any support that he might need in the future. Family support is going to be even more important for him in the future. But then again, he doesn’t exactly have many trained mental health care professionals in the family…. That’s such a worry going forward.

Posted on by bereavedandbeingasingleparent · 51 Comments

In the dark

York Minster and the surrounding streets after dark.

It’s hard to avoid the countless city ghost tours, apparently it’s one of Europes most haunted cities. Any city with this much history is inevitably going to be on that list I guess. It’s hard not to walk past one of these tours and not shout ‘he’s behind you’ or hum the ghostbusters theme. The actors doing these tours are super talented and I’m sure they are more than use to that kind of terrestrial intervention from muppets like me.

I love the city at this time. It’s almost quiet, peaceful with the heaving daytime crowds having largely ebbed away. You can almost hear yourself think, you can remember, reflect. Recall a world which is now gone, feeling like it’s rapidly receding in my rear view mirror.

Christmas can be the most wonderful of times but it can also be the most painful of times. Isolation rather than solitude. A life that is out of reach.

Time to think.

Posted on by bereavedandbeingasingleparent · 41 Comments

Uneasy feeling

Bereavement brought in stark focus the thought ‘YOU ARE ON YOUR OWN’, NO one to bounce ideas off, to talk to, definitely SINGLE Parenting. It’s often a scary place to be, feeling like you are way out of your depth. Sink or swim without arm bands.

I’m getting that feeling again…..

All too quickly the Child Health and Autism Services that have worked with Hawklad since he was 5, that have provided support, therapy and help will be pulled when he hits 18. We’ve been warned that after that date, the support he can get will almost be nonexistent. If he does try to speak to a doctor, on the basis of at most, a 3 minute consultation, he may well just be prescribed Antidepressants, provided leaflets on Mindfulness and then sent on his way. Sink or swim without armbands again.

Definitely getting that uneasy feeling again.

Posted on by bereavedandbeingasingleparent · 27 Comments

Autopilot

Autumn definitely breaking out everywhere….

The day started with me sat up in bed trying to get my head round one of those bizarre dreams. This dream jolted me awake just before the story played out.

A right racket coming from my neighbour’s garden had me heading outside. I bump into the disgraced wrestling promoter Vince McMahon who he is clearly dressed for manual labour also carrying a hammer and chisel. I ask him what on earth he’s doing in the next garden and get a one word reply “Stonework….”. Bemused at why a Fallen American Wrestling Billionaire is doing stonework in a small Yorkshire Garden, I ask WHY… The growled response “I can’t tell you”. The dream ends….

The day ended up being like so many other days, seemingly sleepwalking through the day. Basically functioning in autopilot mode. Doing things like I always do them. Doing things without thinking. Never stopping to ask

What am I doing?

Why am I doing it?

Am I doing the right thing?

Am I doing it for the right reasons?

Is it working?

Are there better ways of doing it?

But I just switch off and plod on. All the more worrying is that in reality I am deeply flawed. Too reliant on my questionable judgment. I make mistakes, I get lots of things wrong. I have little faith that my autopilot mode will safely land the plane. So why do I way too often just switch off and let it randomly fly. Maybe it’s the reason I so often feel like life is drifting aimlessly, the bucket list of must do adventures keeps on growing without any items getting crossed off as completed.

Back to that weird dream. I initially just assumed that Vince McMahon didn’t tell me why he was working in my neighbours garden just because he was being secretive, protecting his business. But hang on, maybe “I can’t tell you” means he is just as bemused as me, he doesn’t know why he’s doing it. Is he flying autopilot as well.

Posted on by bereavedandbeingasingleparent · 40 Comments

Boarded up

A few hardy souls braved a distinctly cold and windy Yorkshire beach.

Definitely felt like Autumn.

Definitely looked like Autumn. The small rides, the cafes, the ice cream vans had mostly all closed down and boarded up for the year. No more intrepid crazy golfers until next year.

I wonder what it feels like to be a resident here in Filey right now. Sadness that the summer season is over with the crowds departed OR relief to get their seaside town back again. The chance to walk quietly along the seafront again, to breathe.

I guess it’s a similar feeling that this time of year brings to our little hilltop village. With no village shop or school or pub or cafe. A church with only one service a month. It’s not unusual to not see another village soul for week upon week upon week. The short days, bleak weather and zero street lighting all ramp up the feelings. So what’s it going to be this time around. Peaceful solitude or suffocating isolation…..

Posted on by bereavedandbeingasingleparent · 22 Comments

Destination

I don’t know just how many times I’ve driven past this reservoir and never stopped. Decade after decade of driving past here, always wondering what it’s like. Well finally, with Hawklad, Scaling Dam became the destination. Now I know.

It’s one of those reservoirs that looks natural apart from one side which is a bit too artificial.

I once knew someone who bought a sailing boat here. Apparently he saw an advert for it in a newspaper. Yes that was in the time before THE INTERNET….

He had no interest in sailing, I mean ZERO interest. To my knowledge he never once sailed his craft, it just sat tethered to where he found it. Yet virtually every Sunday he would drive here and spend hours sat on board. He would do nothing apart from eat his packed lunch and just relax. It worked for him. Maybe it saved him. I know that he had suffered from mental health issues for years. I remember at least two breakdowns and one suicide attempt. Nothing seemed to work for him. But suddenly on this boat, he found a place he could relax. A place he could actually enjoy. He talked about finally having something to look forward to, something he could rely on. This made such a difference to him. The last time we spoke he had even started to plan his next unmoving boat purchase. This time somewhere warm, maybe The Mediterranean.

I wonder where his boat is tethered currently.