Posted on by bereavedandbeingasingleparent · 18 Comments

There is a storm coming…

A little bit of a Northern Lights Storm….

Need to keep remembering what a staggeringly wonderful world this can be.

The Government has started a formal review into the rising demand for ADHD, Autism and Mental Health services. But here’s the problem about that….

It’s the starting point for the review.

Setting up the review The Government has already stated what they see as being the key problem, ‘way too much over diagnosis’. Is this political opinion based on clinical or finance advice. Is it centred on a concern for individual welfare… sadly NO. The starting point isn’t about the families who can’t access the help and support they need, its not trying to help those struggling because they can’t access help, it’s definitely not about expanding and extending services . Rather it’s about a budget line on a spreadsheet which the Government wants to make much smaller. It’s about saving money. You can see what the end goal is….. Cutting the Special Education Budget by reducing which children can access services, cutting benefits paid to adults and reducing NHS services in these areas. THEN the Government will try to come up with a PR campaign to make it sound like it’s anything other than a budget cut. But it WILL be a budget cut probably dressed up as ‘helping’ those written off’. ‘Too many’ will be said to have been ‘written off’ by Doctors when they diagnose patients with ADHD and AUTISM, ‘allowing ’ too many education, benefit and support claims. And thus the Government will say that the best, and kindest way to help children and adults will be to just cut their benefits and services, ‘encourage’ them and families to help themselves. Remove more tailored education support and force more adults back into work regardless of their fitness to work. The last Government tried to do this, sadly this Government looks like they might do it this time.

Where are all these thousands of additional ADHD and Autism friendly jobs…..

What happens to the children who can’t access the Special Educational Services they need, have Teachers the training and spare capacity to pick up the pieces…..

Who’s best placed to make a clinical diagnosis, a Doctor or a Politician…..

Deep Sigh. It really shouldn’t be this way.

Posted on by bereavedandbeingasingleparent · 23 Comments

Little monsters

Every year we get the return of these little monsters….

Stand on one of these and you know it, wow you know it. Try picking one up and it’s like those dreaded Covid vaccine jabs all over again, just this time 50 jabs for the price of one.

And yes, for a month, it’s the gift that keeps on giving. All these have to come down……

The other night I was listening to someone from one of the exam boards on the radio. Not intentionally, I was waiting for my so called football team’s match to start, it was the next programme. Anyways this exam person said something that worried me a lot…..

One of the big complaints about the UK school system is that it is too inflexible, almost like a factory production line. Pushing too many children, regardless of individual need, regardless of if it’s working or not for them, through the same education channels. A one shoe fits all approach. Then the kids get to exams and then often 10 years of schooling comes down to 10 or more written exams, crammed into a couple of weeks. Written exams just don’t suit every child. They often don’t allow the individual child to demonstrate what amazing talents and skills they have. Don’t get good grades in those written exams and you can be way too quickly written off.

Thankfully things started to change a little. More course work counting towards final grades in some exams, allowing scribes and allowing typed answers. Hawklad got a bit more time and was allowed to type his answers, two fingered typing on a school laptop. Surely more flexibility is good for our children, it must be about making schools work for each child.

Back to this exam person on the radio. He was talking about the spread of AI and the problems it’s causing. AI has apparently got so powerful, it is just too professional at writing top answers to whatever you ask it. He was saying that he’s been in meetings nationally were there has been real concern that the treasured school exam integrity is being undermined now. It’s too easy for pupils to use AI to write top mark coursework, producing complete essays in just a few seconds and because AI is developing, it’s way harder for exam boards to pick out those pupils who are ‘cheating the system’ . It is also way harder for exam boards to make sure those pupils sitting exams via a laptop are not also using AI to cheat the system.

So one option being considered is too go back to old school exams. Absolutely no coursework counting to marks, no use of laptops in exams. Pupils sit old school exams using just a pen. That way the exams reputation and integrity is protected……

I never heard him mention the needs of the children once. It was all about the needs of the schools, the exams and the economy. No consideration of if AI could allow for more individuality in schooling, provide more options for teachers to find what works for each child. If they did go back to just old school written exams, it’s going to hurt way too many kids, all to just protect an outdated system. What a huge mistake that would be.

Posted on by bereavedandbeingasingleparent · 43 Comments

Night shift

Misjudged a late evening walk. Walking past a graveyard, located down a very deserted country lane, just as the night roles in. Always a bit spooky.

Somethings are always a bit unnerving.

In the UK, having to contact a company called BT, that’s unnerving. BT is a big telecoms company.

BT aptly can also mean Bloody Terrible…..

BT provide our broadband and telephone service. Both have been broken for 6 days now.

Do you remember when you had to queue when ever you went into a branch in person. Then the Call Centre was introduced and you ended up queuing for that, listening to the endlessly awful piped music and recorded message – ‘your call is important to us’.

Then CONTACT US ONLINE was brought in to stop the hours wasted waiting in person and on the phone. With good old BT you now have to queue online to use their online service.

Initially the wait time was 15 minutes, which in normal time was actually over an hour. The ‘less than a minute’ wait time turned out to be another 20 minutes. Deep joy.

Fast forward 6 days and still no telephone or broadband. Back on to BT again for the 6th day running. This time going old school, having to use my mobile to call them. Apparently to the BT person, we weren’t a customer priority as we were just a reduction in service rather than a service down issue. I was keen to understand if we only get two services from BT, and both are 100% not working, why wasn’t that service down. Service reduction sounds like we are still getting some services….

On the call, I think my tone went from friendly, to cordial, to a little gnarly… But nothing over the top, no raised voices, quite calm really. But it was a bit too much for Hawklad. One of the things he’s always struggled with is conflict. It throws him, he gets anxious, completely on edge. I have to be careful and over the years I’ve got better, much calmer, trying to avoid putting him through those emotions. Very few things brake me out of calm mode these days. My Football Team’s inability to pass to a colleague and the name ‘Nigel Farage’ are the only things recently to bring on the red mist. But I can’t micromanage every situation. When he went to school, one of the things that constantly unsettled him was the daily, frequent conflicts. Teachers raising voices, pupil on pupil stuff. He would frequently struggle to differentiate between real conflict, minor disagreements and play acting. I wonder if it’s because he struggles to read social interactions, pick up on tone, body language, taking some dialogue too literally. It could be that he really doesn’t like seeing anyone suffer or be hurt. But it does make the modern world a difficult place for Hawklad to fully integrate in to. We are still trying to figure that one out.

And yep, still no broadband……

Posted on by bereavedandbeingasingleparent · 56 Comments

Language

Language is so important. More than ever it frames the debate, creates headlines, fills social media channels and sadly can alienate, castigate.

We all have different views on society, on politics. In the UK, to me the last few years has been unremittingly grim. And yes I’m not the only one who thinks that.

Am I pleased there was a change in government last year, YES, maybe the right word is RELIEVED.

Am I pleased with the new government. NO, but to me it’s way less bad than what came before it. A bit of good stuff, some puzzling stuff, some bad stuff.

The BAD stuff includes LANGUAGE. I don’t like the language the government often uses in terms of Mental Health and Disabilities, in terms of the many needing real help. Way too often the language is grim, divisive, and riddled with stereotypes which easily make its way on to the front page of gutter newspapers. It portrays a real insensitivity and a clear lack of understanding on the real issues and problems many face during every day life. What happened to the so called enlightenment that society went through on how it sees Mental Health and Disability.

I completely understand the need to control spending, to ensure it’s targeted where it’s needed. BUT…

The language often being used creates the false impression that most on Mental Health and Disability benefits are intentionally work shy, have a choice to either push through any issues they may face to work or to choose to stay at home, lead a life of leisure paid for by taxpayers. How the rising mental health crisis is just a sign of an increasingly work-shy population, it just can’t be based on real need. How the rising demand for special educational support is more down to pushy parents than actual individual child need. How every pound spent on a child with specific educational needs is in some way depriving the vast majority of pupils much needed new books or teaching opportunities. That those benefits that are essential to so many people are in some way an extravagance, a waste of resources, unfair on hard working taxpayers.

This language then fuels so much which is wrong in our modern world. False information, bullying, victimisation, mistrust, division and hatred.

Is it really 2025, is this really positive change and new hope….

Posted on by bereavedandbeingasingleparent · 35 Comments

Listen

Newcastle…

The view from the top of the modern art gallery, The Baltic. A converted old flour mill set next to the River Tyne, on this cloudless yet cold Saturday afternoon. Trying to forget the proceeding two hours, where my alleged football team successfully donated 3 points and way too many goals to a visiting, actual football team….

The Baltic is the Joseph Rank building…

I’ve been thinking about the support Hawklad has had from the Education and Health services. Lots of ups and downs, hopefully a few more ups…. In the UK it can be a bit of a postcode lottery. Some parts of the country offer more support, more joined up support than others. Our area is definitely in the OTHERS column. An area that has prided itself on highly streamlined services, so streamlined that a few too many services have disappeared completely in repeated budget cuts.

Fortunately a few services survived and have tried to help Hawklad. So thankful for those. But even for those services, what hasn’t helped is the constant change over in staff. The longest Hawklad had the same nominated support clinician was 18 months, often they would change at least twice a year. He’s had 7 different Paediatricians. As for his Education Support Officer, they have changed more frequently than managers at my so called football team… Over the last 3 years, this officer has changed 8 times. This week we phoned to talk about exam support and yes, the person has changed again. Every change brings delays and the need to bring the new person up to speed on Hawklad, who he is and his needs. Above all things, Hawklad has to try and build up a connection, time and time again. That’s so not easy for him. It really doesn’t help him. Some changes are unavoidable, people move on, that’s life but frequently, the change has been down to management decisions. Too often we’ve read or heard the following words ‘unfortunately he’s been taken off my case list so I’ve had to hand his files over to another professional, hopefully they will be in touch with you soon….’

Continuity, hard thought connections and openness based on trust are so important to successful support and therapy. Listen to Hawklad and he will talk about this way better than me. But here’s another thing. How often do the services listen to the kids they are trying to support. In our area, the answer is I suspect somewhere near, never. To my knowledge, he has never been asked. Maybe if they did they might start to understand better the importance of qualities such as Continuity in the services they are trying to provide.

Posted on by bereavedandbeingasingleparent · 58 Comments

Elephant in the room

Don’t get many of these around here. It’s a FORD. It’s about the only time my car gets a wash….

You can see the houses still have sandbags up against the front doors. These days this lovely village sadly suffers from floods way more frequently.

Parked up in a traffic queue waiting to cross a storm damaged bridge, I unfortunately got to listen to the NEWS. MOST Unfortunate as it involved listening to the Government Education Minister trying to explain why more and more pupils are not attending school. Record numbers. Apparently it’s down to a number of factors,

Bad parenting

Immigration

Really bad parenting

Not enough discipline

Truly awful parenting

Benefits culture

Liberal politics

Moral standards

Monumentally bad parenting

Not enough Parents being fined for letting the Country down. Well over a quarter of a million parent fines just isn’t enough….

I guess I am one of THOSE parents the system has a problem with. Well as ONE of those parents I was surprised that the School System and Government Education Policy wasn’t mentioned. No mention of school budget cuts. No mention of the complete collapse in Special Education Provision and Support. No mention of NHS Mental Health Services struggling to cope with the huge numbers of young people crying out for help. No mention of rising class sizes and overcrowded, unhealthy classrooms. No mention of crumbling school infrastructure. No mention of rising teacher workload and stagnant pay. No mention of increasing Government control of what is taught, how it’s taught, how it’s assessed. No mention of the fanatical focus on exam results and discipline. No mention of the drive towards Victorian Education Standards.

That’s a large ELEPHANT in the ROOM.

Posted on by bereavedandbeingasingleparent · 55 Comments

Trains

A trip to the world’s biggest train museum.

When I was a kid many centuries ago I wanted to be one of FIVE things when I grew up.

Astronomer

Mountaineer

Professional Football Goalkeeper

Cricketer for Yorkshire

Train Driver

IT NEVER HAPPENED…

Actually never happened for clear reasons

– grew up in a town surrounded by heavy industry so never really saw a star in years…

– scared of heights with the balance of a three legged drunk giraffe…

– 5ft10 ain’t tall enough…

– basically crap at cricket…

– couldn’t ride a bike so assumed a big old train would be way beyond me…

No one ever asked me if I had any dreams , any hopes. Not once was I asked that at school. So my dreams faded. Never really had any more dreams to follow after that and looking back that makes me kinda sad. I was just expected to follow the path chosen for me and my fellow classmates.

Now Hawklad thinks I’m barking mad as I keep going on and on about him following his dreams. Him dreaming big.

And as the festive season approaches I might just buy myself a train set and do just a bit of that dreaming for myself.

Posted on by bereavedandbeingasingleparent · 19 Comments

Autumn

It’s been late this year but finally the trees have truly changed colour.

Change can be such a good thing.

I was talking to a mum who’s daughter goes to the same school as Hawklad went to. Hawklad is a couple of years older. The daughter is dyslexic with some specific educational needs. It’s telling that NOTHING HAS CHANGED. The daughter is going through exactly the same trials and tribulations that Hawklad went through. The School Approach and Attitude is UNCHANGED and as INFLEXIBLE as ever. It might be working for the School and System, but it’s still NOT WORKING for far too many pupils.

Change is needed.

Posted on by bereavedandbeingasingleparent · 22 Comments

The Wall – disc two

That’s a shed load of water heading towards the sea just a few yards further on.

Too many times in Hawklad’s school life, he came across an inflexible school system, setting him up to fail, blocking his path.

Two of many examples…..

He was struggling with French. The way it was taught wasn’t working for him, he was falling behind and getting really anxious. Parrot learning how to spell and read French for weekly tests. I approached the teacher to talk about this and our preference to try something different. A more visual and interactive learning App approach. An approach producing great results in some US schools for dyslexic pupils. We even offered to pay for the software. The response sadly predictable. No learning approach could be used that differed from the standard national programme. Even when I pressed on the fact that it just wasn’t working for Hawklad, it was a firm, he just has to work harder using the set learning script. In the end Hawklad was given just two options. Follow the class programme or drop the language course. So he dropped the subject, even though he really wanted to learn a language……

Computer Studies featured a significant element of learning and practicing coding. Month after month, trying to read stuff of a classroom screen then re type it. Get it slightly wrong and it errors out. A nightmare with dyslexia. Again Hawklad started to fall behind. Again the teacher was approached. This time more understanding but still inflexible. The teacher realised it wasn’t working for Hawklad and talked about in the past being able to try different things or switch out coding out for something else. But now the Teacher wasn’t allowed to do that even when the method isn’t working. He had to stick to the set curriculum. End result, Hawklad dropped the subject at the first opportunity…….

So many more examples but you get the picture. At no stage did school ever ask Hawklad what he wanted to do, what were his dreams, his big hopes, the things he was interested in. At no stage was the learning environment tailored to his needs or wishes. It was always, here is the education you must follow. What makes it worse is that this set education is ultimately dictated not by children, not by educational professionals, not by parents but by vested interests and politicians.

As a result far too many children are overlooked and forced into moulds that just won’t ever work for them. A WALL is built blocking the child from thriving, from enjoying developing, from dreaming big and for going down the path that works for them.

This has to CHANGE, that WALL has to come down.

Posted on by bereavedandbeingasingleparent · 40 Comments

The Wall – disc one

Our little bungalow needed a small water feature.

Please someone tell my I’m wrong…..

In the UK, in the STATE schooling system, far too often the focus is on the wellbeing of THE SYSTEM rather than on the interests of the individual pupil.

The key is that the system runs efficiently, can cope with limited funding and ultimately produces the UNITS the ECONOMY is expected to need. Not much mention of the needs of the individual child. Not much mention of the system going the extra mile for every child.

Am I being ……

Pupils pushed through one educational route regardless of whether it suits the individual. For many it’s never about how high they can fly, never about big or beautiful dreams, not about asking what the child what they want. Far too often it’s about what the SYSTEM decides the child IS.

Pink Floyd got it so right in The Wall.

Tell me I’m wrong……