Given the lack of rain this summer in the north, still an impressive site. We have been here a number of times over the years but this was definitely the quietest it’s been, normally it’s truly thunderous. Streams feeding into the river are dry.
Most unlike our usual northern weather.
Always a bittersweet feeling for us here. This was the last place we visited as a family of 3 outside of Yorkshire. Over 9 years ago now but on this visit it felt a lot longer to me. At times almost like a different life, different world. As I tried to recall the memories they felt like faded old photos, proving difficult to hold onto, losing their colour. TIME and LIFE I guess inevitably has that effect. Eventually we have to move on.
Off we headed north to beautiful Northumberland. On this trip we were visiting a wonderfully well preserved castle.
Alnwick.
I first came here when I was at Uni, many many moons ago. It was the first time I had seen a castle that wasn’t in ruins. One you could actually walk inside, through all the rooms. It had paintings, sculptures, carpets, glass in the windows, complete ceilings. A fabulous library. It was lived in. That’s how the aristocracy lived….
Now walking around Alnwick Castle in 2025, it’s still beautifully maintained but now there is an added dimension.
Countless kids and yes some adults dressed up as wizards…
Never seen so many Harry’s and Hermione’s.
This castle is now almost more famous for being used as a film location for the first two Harry Potter movies. The first flying lesson, the early Quidditch training, Harry and Ron crashing the flying car will all filmed here.
On our trip there was no car flying but two wizard tutors were gamely trying to teach as many as possible how to fly a broomstick. As we walked past a line of broomsticks we were asked if we wanted a flying lesson. Hawklad ran off and I politely pointed out that my huge backside would need a jumbo jet sized broom, not one of those titchy things.
Later I realised maybe they had thought I was in character, looking like Hagrid who had really let himself go…..
It’s that time of year when the Bluebells start to appear. We have a Bluebell Wood close by but today we headed a bit further. An hours walk over streams, fields and gentle hills. To a wood that we always talked about venturing to when we first moved here but never got round to it. Two decades later, much water under the bridge and finally we made it.
Beautiful walk but walking across farmers fields today bothered Hawklad. Just didn’t feel right for him, started to unnerve him. That’s the thing, somedays he can freely walk these paths, somedays not so. It’s not programmable, not predictable.
I was scrolling through an autism support website and a thread talked about employment. Just how difficult it is still to find employers willing and able to make the environmental adjustments and put in place the support individuals need to secure regular employment. Then for those in employment just how difficult it is to hold down regular employment. Many employment settings are just not autism friendly. On top of that, many talked about the unpredictability of work. Some days work is possible, other days it just isn’t viable. One young person described it as ‘some days I can walk into the office and work, other days I simply can’t get through my front door’.
Yet there seems to be an assumption at Government level, take away benefits and people will suddenly find regular employment to more than replace the lost benefits. Life isn’t that predictable sometimes.
Today we abandoned the farm tracks and walked along the quiet roads. That worked for Hawklad.
Caught the end of an interview with a UK politician who was giving his esteemed views on what was holding the country back and he specifically mentioned AUTISM…. That’s right along with Tariffs, energy costs, international conflicts, planning delays and the impacts of climate change, the cost of benefits, he specifically mentioned AUTISM….. He quoted the number of children currently diagnosed with autism and argued that it was clearly too high, and the rising numbers didn’t make any sense. He added that we weren’t seeing the same rapidly rising numbers in Adults…. And how far too many young people diagnosed with autism don’t get a job after they leave school, he argued reliance on benefits was a root cause of this. So if you cut the benefits available, more young people will enter (forced back into) the workforce. He concluded that the country needed to go back to some good old parenting with a sprinkling of tough welfare love. Welfare reform will over time stem the tidal wave of autism while reducing the tax burden on businesses and hard working taxpayers.
I keep hearing this argument more and more in 2025. Similar arguments are being directed towards a range of mental health and disability areas. Tough love will work and reduce the tax burden. One Government Minister even likened reducing disability benefits to cutting a child’s pocket money and encouraging them to get a Saturday job. Let’s not forget, Ministers usually closely stick to a script pre agreed by those at the highest levels of the Government. Those in charge don’t care or they are completely out of touch with the reality faced by millions they are supposed to be representing.
The reason adult autism rates are not rising is down to a couple of key issues. At the age of 18 autism support largely stops in the UK. Clinicians providing Child Autism Services do not have an equivalent adult service to hand an 18 year old on to. As a result large numbers simply drop off the system as adults. Relatively few General Practitioners (Family Doctors) have detailed autism training and it’s hard for them to make an assessment on the basis of a 3 or 5 minute standard length Doctor Appointment. As a clinician who worked with Hawklad explained to me, if an adult approaches a GP with an autism related issue, the busy GP will have little time to make an accurate assessment and anyway they won’t have any adult services to refer on to. So far too often GPs just end up offering some leaflets on mindfulness and possibly a course of Anti Depressants or sleeping medication.
That’s assuming that GPs are actually approached in the first place.
At school Hawklad was expected to put his hand up to get help with reading, or if he was feeling uncomfortable or struggling. But that meant announcing to his classmates that he couldn’t read something or having to publicly announce he was feeling uncomfortable, that was never going to happen. We might be in 2025 but we live in a world where way too many people have closed minds and the media still paint with inaccurate and harmful stereotypes. Autistic children still get bullied and pointed at in the school setting. Not only by children, sadly by parents as well. So Hawklad never put his hand up and the teachers assumed he was ok, the end result, he never got the classroom help he badly needed. Years later, he still won’t put up his hand with strangers or people he doesn’t trust. Even if he’s struggling, he is unlikely to call a GP for help.
Politicians in designer power suits, talking platitudes and manicured slogans. On their 6 figure pay checks, with second or third lucrative jobs plus more than generous expenses, gold standard protected pensions. Dressed to kill while they announce drastic cuts to disability benefits hitting many of the most hard pressed and struggling members of our society.
Spin Doctors please note, it’s not a great look seeing politicians smiling to camera while announcing disability cuts….
Can’t quite put my finger on it….. Something not quite right about this in my mind…….
Yes this is a Labour Government who has spent the last 10 years howling with protest whenever the previous Government went anywhere near welfare cuts, taking the moral high ground. At least the Conservatives are upfront about it, if they can could get away with it, they would cut.
Listening to the politicians, they seem to have no idea about the real lifes many in the country are struggling with each and every day. In politician world many receiving benefits are just avoiding work, exaggerating disabilities, over playing the impact of mental health issues and are clearly a burden on society, holding the country back.
Deep sigh.
Benefits don’t lead to a life of leisure, rather they allow people just to survive. Even with benefits many in society are living on the edge or beyond. Plus the process of trying to get those benefits is laborious, taxing and angst filled. The system is already stacked against claimants. The ‘cut benefits and suddenly people will get a job’ tag line just isn’t the reality for many. Health, Mental Health and Social Care support is patchy, overstretched, chronically underinvested and in many areas, NONE EXISTENT. Many are having to give up work or reduce hours to care for loved ones as a result of the lack of support. Now even these carers are facing losing the meagre care allowances they currently receive. So if these carers are now financially forced to stop caring, who then looks after those you need full time home support.
Unless this can be reversed or properly thought through, this is going to be a nightmare for many in our country.
Eleven years ago I remember reading a newspaper headline about Autism. I can picture the scene clearly, sat on a platform at a London train station, waiting for my connection back North. A once smart black suit now a bit creased and unfortunately showing clear signs of an egg sandwich accident. Under the headline a politician was claiming that finally autism was now mainstream, embraced and on the political agenda. Individuals on the spectrum were finally going to start to get the help and support they needed. I remember the article so clearly because the newspaper had managed to spell Aspergers wrong….
2025 and I’m sat in a traffic jam, listening to the news. A politician is talking about Autism. Apparently far too many children are being diagnosed as autistic and it’s costing way too much money. The reason behind the rising cost couldn’t be real and was clearly due to pushy parents playing the system. It was unfair on taxpayers, businesses and other parents. That’s why it was right that the Government was going to crack down on the issue. Crack down on the rising tide of Autism….
The annual car test in the UK, oh what fun. You drop off your 4 wheeled rusting heap of metal at a garage and then wait hours for the call. Has it passed or more likely you hear those dreaded words ‘it’s failed on the following points… we need to replace…..’. The Latin equivalent of this is ‘let us emptinus your bank accountus’.
The garage I use currently is one of those really shiny new dealerships with lots of spanky expensive new cars outside. All polished and gleaming. Inside the posh building you are greated with the offer of an espresso and ushered to a comfy sofa. A proper sofa that puts our pet wrecked one to shame. While you wait you can watch the latest movie on a massive cinema like TV. Makes me smile thinking about the last garage I would use. Proper old garage. Oil and sawdust everywhere. If there was a chair for customers it was held together by tape. There was a drinks machine but it only dispensed painfully weak bovril and what I assumed was tomato soup. No TV there just posters of various Italian sports cars, cars that this garage would never ever get to work on. It’s the sort of place you take a car where it’s quicker to talk about the few things that work than the hundreds of actual faults. But this old garage had one beautiful feature, it was cheap. Cheap I eventually figured out also ment that sometimes the repaired parts were not actually guaranteed to work or be that securely attached to the car.
Now at the way more expensive yet reliable car fixer, I finish off the lovely coffee while I swap keys and off I go in a sparkly hardly used curtesy car. A really really really nice car. A car with a clear message to tell ‘why drive your crap car when you could give the dealership even more of your money and you could have a proper car like me….’. Sometimes they just go too far. Last year the dealership gave me a huge luxury tank powered basically by a fighter jet engine. During the thankfully brief hours I had that beast I had the feeling it was trying to kill me. The slightest touch on the accelerator and it behaved like a fighter jet going into take off mode. Even Hawklad said that it really sounded like it was growling at us. That kinda thing might have worked with Lewis Hamilton but not with a coward like me.
This time they gave me car with a way more sensible engine… but still there was a problem. The dashboard, the LCD screens, all the electronic graphs and digital performance information. Million options and settings to tailor the experience to suit the driver. It’s just too pigging complicated for me. It took me 15 minutes to find out how to switch the DAB radio on and another 15 minutes to find out how to turn the volume up. I just want to get in, listen to music and drive. Can’t we have two start up options on new cars now. One with all the technology graphs and complicated stuff. And yes one for muppets like me, press one button which basically turns the car on and puts on the radio… nothing else thank you. All this new car complications was not an issue I ever faced at the old cheap garage. The car you got to use there was most definitely not a curtesy car rather something that appeared to have raced in way too many destruction derbies. I think even the Flinstones car would have beaten that sorry looking vehicle in a race. That car definitely gave the message ‘if you think your car is bad try driving me for a week….’.
This time my so called heap of rust car needed many parts which even this garage didn’t have in stock. So I got to keep the curtesy car for a couple of days.
The final sting in the car test ordeal came the next morning. I flinged open the curtains and immediately got to see a brand spanking curtesy car on my driveway and for a few brief wonderfully delusional moments thought…. ‘Wow I’ve never really noticed how good my car looks’. Then I remember, my heap of rust is miles away in a garage being rebuilt, trying to be made roadworthy, at great expense and I can’t afford that car I’m looking at. Well at least I will get another nice coffee in a few hours when my heap of metal empties my bank account.
Language is so important. More than ever it frames the debate, creates headlines, fills social media channels and sadly can alienate, castigate.
We all have different views on society, on politics. In the UK, to me the last few years has been unremittingly grim. And yes I’m not the only one who thinks that.
Am I pleased there was a change in government last year, YES, maybe the right word is RELIEVED.
Am I pleased with the new government. NO, but to me it’s way less bad than what came before it. A bit of good stuff, some puzzling stuff, some bad stuff.
The BAD stuff includes LANGUAGE. I don’t like the language the government often uses in terms of Mental Health and Disabilities, in terms of the many needing real help. Way too often the language is grim, divisive, and riddled with stereotypes which easily make its way on to the front page of gutter newspapers. It portrays a real insensitivity and a clear lack of understanding on the real issues and problems many face during every day life. What happened to the so called enlightenment that society went through on how it sees Mental Health and Disability.
I completely understand the need to control spending, to ensure it’s targeted where it’s needed. BUT…
The language often being used creates the false impression that most on Mental Health and Disability benefits are intentionally work shy, have a choice to either push through any issues they may face to work or to choose to stay at home, lead a life of leisure paid for by taxpayers. How the rising mental health crisis is just a sign of an increasingly work-shy population, it just can’t be based on real need. How the rising demand for special educational support is more down to pushy parents than actual individual child need. How every pound spent on a child with specific educational needs is in some way depriving the vast majority of pupils much needed new books or teaching opportunities. That those benefits that are essential to so many people are in some way an extravagance, a waste of resources, unfair on hard working taxpayers.
This language then fuels so much which is wrong in our modern world. False information, bullying, victimisation, mistrust, division and hatred.
Is it really 2025, is this really positive change and new hope….
A Dad trying to cope with the loss of his Partner and becoming a single parent. 