Posted on by bereavedandbeingasingleparent · 45 Comments

Bubble burst

Dad why are you smiling.

I’m playing that mind training game. My brain age has been assessed as 28.

I take that it’s 28 months and not years then Dad.

Consider my brief basking bubble has been officially burst.

I was listening to a chap on the radio basking in the news that Brexit has moved a step closer. In his bubble this is wonderful. The new deal our great PM has negotiated is brilliant. Billions been taken away from Europe and will be given to our NHS and schools. Taxes will come down. Businesses will boom. Wages will rise on the back of all these wonderful new trade deals. For our country and our kids I really hope his bubble is not burst. I really do.

I wish I was in this Brexit bubble – but I’m sadly not. This brilliant deal is based on two dubious principles.

  • A Customs Union Border in the Irish Sea splitting the UK in two with Northern Ireland effectively staying under EU trade rules. Bizarrely our PM said last year that this idea would be a disaster and no Government could ever sign up to it. Equally bizarrely our Foreign Secretary has said the arrangement will be a great deal for Northern Ireland. Staying in the Customs Union is a special deal. Ok so why is this special deal not been given to Scotland, Wales and England. Oh yes I forgot that would mean staying in the EU.
  • All the important negotiations on trade and relations with the EU will be done after we officially leave. Basically we would have 14 months from leaving to sort this out. So basically we leave without known on what basis we are going. But here’s the rub. Here’s why many on the Right love this idea. It gives the Government the right to leave with no deal. Just have to wait 14 months then thy can blame the EU. That’s the crash and burn strategy many on the Right have always wanted.

The bottom line is this new Brexit Deal is a BAD DEAL which was rejected last year. Rejected even by the team pushing it now. It’s a Great Deal for the Rich and a BAD DEAL for the rest of us. Again I hope I’m wrong but deep down I do fear for the future. No I don’t think the Country will go bankrupt. Life will continue. But it will be worse. We are not in a strong bargaining position for the new trade deals. Any deal with Trump will mean opening up our NHS to his big business friends. To compete the Government wants Britain (now Northern Ireland remains effectively in the EU) to move to an economy which is based on low wages and zero regulations. Where the drive is for tax cuts and profits for the Rich. Our wages are going to fall and our worker rights are going to be eroded with no safety net of public sector support.

But apparently I’m missing the point of Brexit. One of the biggest supporters of Brexit has said ‘Brexit was never just about the money’. That’s easy for you to say when your not exactly short of a penny or two. But ok point taken. Let’s look at travel rights. Britain’s will lose the right to travel freely in 26 countries and will not benefit from free or discounted medical cover in those countries. That’s not so good. One of the first actions of Brexit will be to scrap EU regulations on Food Standards, Environment Protection, Freedom of Speech, Workers Rights, Maximum weekly working hours, Maternity and Paternity Rules. The rules designed to protect us. Thats not good either. But hang on let’s not forget we get a different coloured passport with no mention of Europe on the front. Unfortunately last time I heard the new passports will be largely produced in the EU. But let’s celebrate having a blue passport, so much nicer than that red one.

For my sons sake I really hope I’m wrong. I really do. But at the moment I’m clinging to the hope that this new deal is rejected. Yes in an ideal world I would like to stay in the EU. The EU is certainly not perfect but it’s a whole lot better than the current alternative. But if we do go then WE still have time to do Brexit right. Just agreeing to keep Freedom of Movement would make a huge difference. And yes in our little bubbles we can still have our Blue Passports.

Posted on by bereavedandbeingasingleparent · 89 Comments

The Golden Ticket

It’s amazing what you come across on a daily basis. You get good discoveries that just make you go ‘wow’. The ones you can look at for ages and get a sense of wonder.

Then you get other discoveries which make you go ‘wow’ for entirely different reasons.

Today I came across a headline in one of our so called better newspaper – The Times.

************************

“Pupils lose out as £400m schools funding diverted to special needs

Children have been losing out because millions of pounds earmarked for their education has been siphoned off to pay for special needs education, an investigation by The Times has found.

A surge in pupils categorised as having special needs has led schools to lay off staff, increase class sizes and cut back on subjects as councils raid mainstream education budgets to fund support for them.

One headteacher said that the funding reforms introduced in 2014 created a new education, health and care plans that were seen by some parents as golden tickets”

************************

Don’t try to read the article as you have to pay Murdock for the pleasure. No free news here. Where do we start with this article from the Rupert Murdock stable.

  • Am I missing the point here but surely SEND (Special Educational Needs and Disability) kids are pupils as well. My son is a pupil surely. Not according to this newspaper. Clearly The Times would like to scrap inclusion and go back to the good old days where too many kids where denied the opportunity of mainstream education. The Times journalists have an underlying principle to most of its commentaries. Well if I don’t need that support so why should we be paying for it.
  • This article is likely to cause some parents to start resenting and blaming SEND kids for school problems. It’s pouring fuel on the fire of resentment and bullying. Basically what this article is saying is the those SEND kids are robbing Normal kids. It is deeply irresponsible and distasteful journalism.
  • The article doesn’t mention the 1500 SEND kids who are unable to find a mainstream school that will accept them. But it according to this journalist – that doesn’t matter as they are not pupils.
  • Blaming SEND kids for the £400m short fall in school budgets is lamentable. Clearly according to The Times this countries crisis in class sizes and falling teacher numbers is purely down to SEN kids. Let’s not mention that school budgets have been severely squeezed as a directly consequence of Government funding cuts. Let’s not mention that this Government introduced a new assessment system but refused to fund that change, That’s the very Government this newspaper supports whole heartedly.
  • This country has had a crisis in SEND school funding for years. It is chronically underfunded, it has always been chronically underfunded. Recently it has been subject to further Government cuts. No mention of that then.
  • A surge in pupils categorised as having special needs. It makes it sound as if suddenly parents are inventing SEND symptoms. This country has an estimated 350000 kids with a learning disability. Most experts say this is a fraction of the actual number. So many kids go through education without having a learning disability diagnosed. For too many years we have failed to address this educational crisis. This is going to get worse as a direct consequence of Government Policy as the criteria for SEND diagnosis is becoming stricter – purely to save money and not based on any health grounds. This is at the same time that funding cuts are resulting in longer wait times for an actual diagnosis to take place.
  • Finally ‘a golden ticket’. Really. In our case it’s the reverse of the article. The funding which has been awarded to our son for his learning disabilities is being used to part fund Teaching Assistant support for the whole school. The article also fails to reference that most SEND parents are already paying for additional care and educational support. This so called Golden Ticket only covers a fraction of the true cost of support.

Once again journalism gives us an insight into the deep rooted problems we have in society. The media reflects the current views of our so called Governments. It shows how far we have to go. How difficult this fight is going to be. I will leave the last word to my old Dad. He would call The Times ‘excellent toilet paper’. Thats all its good for.

Posted on by bereavedandbeingasingleparent · 60 Comments

Not Great anymore

Donald Trumps Wall appears to have started in Yorkshire. Here it’s probably to separate the privileged few from the many.

In my country professions like Teaching, Policing, Nursing, Clinical Specialties once we’re highly respected. This respect was reflected in pay and pensions. Unfortunately times have changed. Or should I say Government Priorities have changed. The argument was that low taxes was the new king. Low taxes on the rich and the money generators started to dictate thinking. The Government started to pick fights with various professions. A deliberate attempt was made to erode public confidence in areas like teaching, health and policing. Then the money generators messed up and we had the financial crisis. Suddenly austerity was needed. But again it was austerity for the many while protecting the few. So the Many and the Public Sector took the hit.

Government introduced competition into all areas. Suddenly contracts were awarded on best value for money. Best value rapidly became defined as the cheapest. As a result the workload on services increased. Quality levels dropped. Providers repeatedly changed. Unfortunately on top of this the pay and pensions of hard working professionals were also squeezed.

When people find their wages and pensions squeezed three things can happen

  • They buckle down for less money but their standard of living is eroded,
  • They become disillusioned,
  • They leave the job.

The Government trots out the argument about the cosy public sector life. The country will be better when everyone works in the good old private sector. Let’s not forget that our Prime Minister said of his own position

‘My Cabinet Ministers salary of £141,000 is not enough for me to live on’

When he said those wise words he was living in his rent free £20M Ministerial Mansion…. one rule for the few and a completely different rule for the rest of us.

A kid with Autism needs above all stability. Continuity in care. Trust is a commodity which takes along time to develop. But those key qualities have been destroyed by Government Policy. This year every single Teacher and Teaching Assistant changed for our Son. We have had to start again trying to build up the so important knowledge base of his particular educational needs. His Paediatric Care Provider has changed and we wait for his new clinicians. Wait is the buzz word. Appointments have gone from 4 times a year to twice a year to once a year. Not sure what the definition for a Year is. We recently received a letter saying that due to the change of provider the next appointment will be significantly delayed. He has had the same Physio for 4 years. But she quit her role. Then the next Physio left after one session. Another Physio then left before the first session. Currently we are waiting another a Physio to be appointed. He had access to a brilliant Clinical Psychologist but she retired and was never replaced. He started work with a Speech Expert but after 2 months she left the profession and the service was cut. He started a programme to work on his optical muscles but the service was cancelled with responsibility passed over to Education. Education refuses to provide that programme. I could go on…

So while our PM moans about his falling living standards the many are picking up the pieces. That’s modern Britain. It’s not Great Britain anymore. It’s certainly not great if you are not one of the Few. And it’s certainly not Great if you are a kid with Autism.

Posted on by bereavedandbeingasingleparent · 37 Comments

Magic Tree

And still it rains.

My phone is old but at least it’s just about waterproof.

Unlike my old battered raincoat which is anything but waterproof.

Our helpful government likes to point out to the great unwashed – there is no magic money tree. Well there is but it’s only available to the few. So like many households the number of items which are beyond their useful life is growing each day. Yet as we don’t have access to a money tree we just have to make do. Our list is not unusual.

  • Washing Machine – can’t select a cycle you get what the machine gives you. Plus it has a door which doesn’t shut properly so it needs to be kicked until it locks.
    Oven – has two settings no heat or nuclear fusion.
    Car – needs 4 new tyres which at least will triple the value of the car.
    Back Door – has so many leaks it’s been renamed WikiLeaks.
    Hairdryer – only blows cold.
    Shower – produces about as much water as the smallest water pistol.
    Dvd Player – only plays discs if they have been properly cleaned by Mary Poppins. Every disk seems to go into mad picture breakdown on the merest speck of dust.
    Boiler – was installed prior to the introduction of video recorders and home computers.
    Light switches -No lights in one room so it’s a great place to play hide and seek.
    Microwave Oven – has more rust than my first ever car (mk1 Ford Escort).
    Conservatory Door – doesn’t shut anymore unless you are called The Hulk.
    Laptop – in a permanent state of update and has as much processing power as a stick of rhubarb.
    Camera – has never been the same since it was accidentally dropped into a pan of boiling bake beans. Now everyone ends up looking like Donald Trump.
    Chimney – to narrow to safely light a fire. What were the builders thinking of. How the fiddle sticks did Santa get down that.
    Tumble Dryer – as much drying effect as one of my sneezes.
    Curtains – all shredded by cats.
    Furniture – all shredded by cats.
    House – all shredded by the cats.
    Freezer – the 3 plastic draws have disintegrated so all the food is just wedged in. When you open the door it’s an explosion of food items.
    Dish Washer – is no more, it is an ex dishwasher.

Every week the list of disrepair gets longer. But you just get on with it. Make the best of things. See the funny side to it. And above all remember that as bad as you think things are THERE are so many people out there with no home and no possessions. Which is appalling when you think of the wealth the few control. Just think what good that magic tree could do in the right hands.

Posted on by bereavedandbeingasingleparent · 97 Comments

Burns

It’s hot. That’s Yorkshire hot. Which probably means mild in other parts of the world. My Dad would have called it mafting. It’s that mafting that even the Yorkshire Farm Machinery can’t cope. The photo shows the smouldering wreck of an unfortunate tractor with a badly burnt field. That’s a first on the dog walk.

Our Son does suffer from stress and overpowering fears. When he took one look at the burnt carnage he immediately panicked that our house would soon be engulfed in flames. It’s understandable as the field is less than a mile from us. I tried to calm his fears with words but with no luck. So actions are required. A mad Dad sat down in the blackened field. Look son my bum is getting a little warm but my shorts are not ablaze. Although it did demonstrate a point I should have thought the plan through a bit. Light grey shorts are maybe not that fetching when they have two buttock shaped black marks on the rear.

Although our son’s wild fire fear has been dampened down a little. Sometimes silliness works better than rational argument. It is still there and will be until normal Yorkshire weather returns.

When you have a child who suffers from these inhibiting fears it is vital that you try and keep on top of them. Working in partnership with school and health services is vital. At his last school they were usually on the ball. The teacher would catch me at the end of day or send a quick email to let me know if something had happened. If it was particularly significant school would phone immediately.

Unfortunately at his new school this has completely stopped. I fully understand that it’s a much bigger school and he has different teachers for each subject. But surely they still have a duty of care. I know speaking with the health professionals they say unfortunately most schools in they area are the same now. The close partnership working which was in place a few years ago has dried up. Again and again it comes back to the same reason. Government. As one Doctor said

Under the last Labour Government it was about the patient. Now the patient is a secondary consideration to income generation, competition and profit. Money is now king.

So increasingly it’s just left to parents, families and friends. The days of government for the greater good are over. Its all about self help and what the individual can afford. Must deliver tax cuts. It’s back to Victorian ethics. Days when democracy could be overridden by the powerful and the rich. A time when it was ok to send poor kids up chimneys. When hatred and discrimination was the norm.

Maybe it’s just me and I’m in the minority. Just my irrational fear. But increasingly my country is becoming alien to me. I hate what is becoming. Too many kids do not get the support they badly need. As a generation we have really messed up our priorities. Our leaders happily play fiddles while Rome burns. Or maybe we should now change that to our leaders go to comedy clubs while the Amazon burns.

Posted on by bereavedandbeingasingleparent · 96 Comments

Priorities

The U.K. newspaper the Guardian ran an article today on how Special Needs Education is breaking Council budgets. It’s underlying argument is that as special educational needs are growing the Government is simply burying its head in the ground. As our son is one of the 354,000 mentioned in the article it feels very pertinent to what I’ve been waffling on about for months. We live in times when Austerity reigns supreme. Even the Special Education Budget is seen as an increasingly easy target for cuts.

The Government and our soon to be gone PM are very keen to stress that money doesn’t grow on trees. But surely it does. How else can you explain these little facts.

  • When the current government failed to secure a majority in Parliament it needed a new friend. Friends don’t come cheap. The Government found an additional £1Billion in funding for Northern Ireland budgets which was enough to buy the support of the DUP party. Basically money appears if it means keeping the PM in a job.
  • The Government decided that due to Brexit we needed more Ferry capacity. It unbelievably awarded a £14M contract to a company that had no ferries and had never run shipping before. Basically £14M down the pan.
  • £14M wasn’t enough for this Government so they decided to ignore Procurement Rules in the award of the Ferry contract to a company that doesn’t have any ships at all. So they got challenged by another company. To avoid an embarrassing trial the Government paid another £33M out. That’s a lot of money for no Ferries especially when Brexit was delayed so we didn’t need them anyway.
  • Not quite finished yet with Ferries. The Government paid just under £1M to have Private Consultants assess the viability of a Ferry Company that had no have Ferries. You couldn’t make this up.
  • £67M per year spent on the Royal Family.
  • The Government spent £13M on consultants over two months in a failed attempt to get MPs to back the PMs doomed Brexit proposal.
  • Over £2B has been spent on planning for a no deal Brexit.
  • The Government spent £4M on advertising to try and promote its discredited Universal Credits Policy.
  • Every year taxpayers fork out just under £1M for the PM to use the Chequers Country Estate.
  • The previous Government cut the very highest tax rate from 50% to 45%. This has cost over £8.5B.
  • The Government spent £9M on a leaflet promoting the dangers of Brexit. Now essentially the same Government is promoting the benefits of Brexit.
  • Money is tight but the Government found £55Billion to essentially build a vanity high speed train set through some of our countries finest countryside.
  • £14Billion to build another runway at Heathrow. Bugger the environmental costs. A policy so mad that even the king of buffoonery Boris Johnson said “I will lie down in front of those bulldozers and stop the construction of that third runway … Heathrow is just undeliverable, and the sooner we face that the sooner our salvation“
  • The previous PM wanted his own Air Force One. So we spent £10M on one. The funny thing is that Cameron only got to fly on his plane once before he resigned.
  • Although money doesn’t grow on trees money was found to put adverts on vans and in newspapers telling potential illegal immigrants to Go Home. They then found another £200000 to pay for a study to show how good the idea was.
  • Every year Taxpayers are paying £3.7M subsidising our MPs and Lords food and drink cost when they are in Parliament. I’m still waiting for my food and drink to be subsidised.

I could go on an on but I hear you cry no more.

So the bottom line is money is available to the few when it’s needed. Sadly that does not apply to the 354,000 kids with recognised special educational needs and the countless thousands who fall through the system.

We live in hope of change. Unfortunately hope or change is not the middle name of the two chaps competing to be the new PM. They live in a different world

  • Jeremy Hunt regularly earned dividend of over £900k per year on top of his Cabinet salary. He later sold a company which earned him £15M.
  • Boris Bozo Johnson said that his cabinet salary of £141,000 was not enough for him to live on….

So no hope here then. But one day a revolution will come. We will start to get our priorities right and our society will start looking after the many and not the few…

That’s probably got me blacklisted on the American Visa system now and will certainly have pissed off several million in my own country…..

Posted on by bereavedandbeingasingleparent · 46 Comments

Eyes wide open

It’s amazing what you find when you open your eyes.

Another application for additional support. This one was a long shot. Additional funding to provide some specialist support in school for our son. Turned down.

Same line. He already has funding (the maximum available with an Education Health Care Plan) which allows him to take up his place in school. The funding goes into the general support budget which funds the school wide teaching assistant system. Plus he’s doing so well without support.

The fight goes on.

Then speaking with his Doctor. Son is now starting to become too old for many of the health programmes focusing on autism.

The fight goes on.

It feels like the agencies have signed up to support our son while he is in school or college up to the age of 25. The agencies provide virtually no support now. They will continue to provide virtually no support up to the age of 25. Then they can officially provide no support after that….

Ultimately the agencies are just following Government policy and funding decisions. The current government sees austerity and cutbacks as essential for health and education. Yet they are happy to provide funding for tax breaks for the better off and bungs to Northern Ireland Unionists to keep themselves in power.

Nothing is going to change any time soon.

So the fight goes on. But one day the government will change and hopefully we will get one which governs with eyes wide open.