Two quotes

“I AM DIFFERENT NOT LESS” – Dr Temple Grandin

Another week we dust ourselves down and go again. Although the route is still shrouded in mist and we face countless dead ends – we must keep going. If not for me but for our son.

A session with a new health professional. Always a good sign when she does not ask me what I want, she asks our son. The health professional is going to contact school to see what work they have undertaken to help with our son’s handwriting. Assuming school has done nothing and has no plans to do so (which we believe is the position) then the health service will start a programme to help with his writing. This will be the first time in three years work that son will have had specific help with his writing. Let’s see what progress can be made, what writing aids help. If progress cannot be made then that might be the time we start to move away from pen and paper to keyboard and voice recognition.

So we start down another path.

These are the specific areas son asked for help with

  • Handwriting
  • Shoelaces and Ties
  • Holding objects like handles which require two hands.

Interestingly he sees Aspergers as who he is – his personality. Aspergers is not a label just him. However he now sees himself as not dyslexic.

The fact that I can now read some of the words and can mostly guess the rest means I’m not dyslexic. Now I’m just not very good at reading.

I think this recent view of dyslexia is down to school. Firstly school sees anyone with dyslexia as low attainment. Son hates being branded as below average. As a result Son sees dyslexia as an unwelcome label. Secondly the label dyslexic brings him no additional help from school. Whats the point of referring to yourself as dyslexic if it brings no support benefits and only results in being automatically branded below other kids in the class.

The bottom line is the school system has failed him. It has failed too many kids. That’s one of the reasons you read so many cases of great individuals who have decided to hide their dyslexia. Kenny Logan is a Scotland Rugby legend playing 70 times for his country. He choose to keep his dyslexia secret. From his team mates. Even from his wife. Only at the age of 34 did he finally seek help. On what planet can this be allowed to happen. So much wasted talent and opportunities. So much stress and suffering. This is nothing short of a disgrace.

I started with a quote and I will finish with one. One from our son

When someone has a disability your not allowed to discriminate against them. If your in a wheelchair you shouldn’t have to put your hand up for help. So why is it that when someone has an invisible disability you can be ignored and that you have to say ‘Please will you help me’ and when they ignore you it’s not discrimination.

Green and pleasant land.

Welcome to Britain. A green and pleasant land.

A country where this man has just won a massive majority. A man who continues to cover up his repeated cockups which has led to a British Citizen bring help in Iran since 2016. Now his focus is on trade deals and turning the country into a trumped up lap dog. Sadly the poor British Citizen can’t offer a trade deal so she is stuffed.

Where this man from our Government claims that he has more common sense than those who died in the Grenfell Tower Disaster. He has made millions from his hedge fund company on the back of Brexit.

Where this man has been our Schools Minister since 2014. The man responsible for the current state of our schools. The man responsible for the introduction of testing for 4 year old kids. And the man who said kids taking time of for bereavement was like an extended holiday.

And a country where this man has just been awarded a knighthood. A man who introduced sweeping and brutal benefit reforms which has led to unprecedented levels of misery and is probably responsible for the deaths of hundreds who lost benefits.

Britain a green and pleasant land.

*** the photos of these lovely human beings are from The Guardian, Inside Croydon, Yorkshire Post, Change.org

Red School Sky

Red sky at night ready for the school fight.

So the dreaded hour is fast approaching. School opening its gates again. Feel so sorry, sad and angry for the kids like our Son having to face up to the nightmare which is modern schooling. I use the term modern in its loosest sense.

Increasingly my thoughts are turning to homeschooling. When to flick the switch. How to make it happen. Trying to stress tests the plans which are swirling around in my pea soup of a brain. Which options are best. What fits best with our circumstances. The aim being to have a workable plan in place by the end of February. As ever Son is the voice of reason. In fact as it’s his future he is driving the process. It has to be that way. He really isn’t happy but he’s giving the new term a go.

Dad going to give it a real go. Want to either see me moved up in the subjects I’m good at or want to be helped in the ones I struggle a bit in. Just one subject move would be cool.

“It’s not the subjects you struggle in. It’s the way the teachers judge you in those subjects. It’s never about the stuff you know. You have never had one comment about that. Remember what that teacher said last year – Don’t let anyone tell you your not clever. You are. The problems are not yours. It’s ours. We need to find better ways of getting the stuff in your head out into the wider world.

Ok Dad. Well let’s see what happens. What’s the plan if it goes pear shape this week at school?

Send you up chimneys to earn some money to pay for my rock and roll lifestyle”

Are you joking?

“Sorry, yes son I am pulling your leg. At least you can fit up a chimney.”

Your bottom would me a fine chimney sweeping tool. Not much would get past that.

“Let’s hope that school goes really well and your super happy. Let’s cross the over bridges if they happen. Most bridges are good ones.”

Which bridges. If I remember correctly we drive over 5 on the way to school.

And the voice of reason brings his Dad back into the real world again. So many options to consider.

  • Online tutor v Local tutor.
    How much will I teach. I can certainly do Computing, Mathematics, Science.
    Subjects like Geography and History maybe we just let him run with it. As last years Class Teacher said ‘you probably know the subject better than me already“. Just concentrate on how to access his ideas. Find the best way to express them.
    How to tailor some of the tuition around times that I need to go into the work base.
    Restructuring work to fit round the new world. Luckily I can probably do this. Just maybe will have to put off buying that sports car for say the next 100 years.
    When we move into the 15 and 16 age range how to handle examinations. Some of the colleges have courses for qualifications he could opt for. Would that work for him. Or do we go the tutor or online tuition routes.
    Languages – how far do we go down the online packages route such as Rosetta.
    Ways to ensure that he can socialise when he wants and needs to.
    And on and on

So much to consider. Maybe just maybe school might step up to the plate and this is never needed. That is probably a pipe dream so it’s time to sort this out. It will be a reassuring feeling when a plan is in place. When we have an idea what his education week and plan will look like. To our Son that level of practicality is an essential part of the transition process. It will help him at school knowing that he has a Plan b.

If anyone reading this has ever homeschooled then it would be great to hear from you. Either as a comment or email. What did your ‘learning week’ look like. What approach did you take. I’m sure this wont be the last you hear of this. I think the more we can talk about homeschooling the better. In many places it’s still frowned upon or it’s seen as a bit of a dark art. Maybe people should frown upon the mainstream school system instead.

I will leave you with one final thought.

Dad Santa can get down chimneys so there is always hope for you. There is always hope.

Flick the switch

Ans so the transition begins.

A transition from a happy and relaxed boy to one wracked with doubt and anxiety.

School starts to flick the switch again. How many kids are going through this experience. Far Too Many.

Here the school prison gates open on Monday. Son’s words not mine.

So on this glorious winters day he tries to wade through the homework which was dished out before Christmas. He spent an hour trying to sketch a mirror image of a Scream like skull photo. The fear of picking up a negative for not putting enough effort into the drawing driving him on. Sadly I fear it’s also driving any love he might have for art well and truly out of his system as well.

Once the skull torture was finished. He started work for two upcoming spelling tests. Then time spent on Science, Mathematics and French work. Finally he needed to work hard to complete a writing piece neatly. His teachers words. Whats the point, going to get told that it’s not good enough, I haven’t tried enough and it needs to be done again. Son’s words.

This really can’t go on. Son deserve so much more than this. So many kids deserve better than this. Is it so difficult to make education just a little less daunting and just a little bit more inclusive. What’s the word I’m looking for. Welcoming. Another word. Enriching. Another word. Fun.

Who am I kidding. It will be the same school that he was so pleased to escape from before Christmas. But 2020 feels different this time. This time the prospect of a positive change has dimmed significantly. Our Government is now in place until son will have left secondary school. It is committed to extending the current education philosophy which has already created this hell hole. We are now facing a real risk of son being failed for the entirety of his school life. That’s a sobering thought.

2020 will start with yet another push to deliver any positive change at all. Again school and teachers will be told exactly what actions and support son needs to be put in place to make his schooling work better for him. The dialogue will be constant – certainly from my side. But deep down I know what the likely outcome is. So this year the question is probably more about what it will take for us to flick the switch and turn off this failed schooling nightmare. If we were still a two parent family then the switch would have already been flicked. Homeschooling. With Single Parenting it’s more fraught with logistical and financial issues. So many issues to address. BUT son only gets one childhood. One go at his formative years. Flicking the switch is increasingly looking inevitable.

Three

2020 currently is very three orientated. My football team got beat three nil at home. They had to use up all three substitutes before half time because of injuries. Then quickly found out that three substitutes was not enough as another player had to go off due to injury as well.

I got three bills in the post today.

I phoned up for a Doctors appointment and was told I had to wait three weeks for the first available slot.

Currently I am missing 3 running socks. Paddington Bear Stare towards Captain Chaos. So for my next run I can choose between a red running sock or a blue running sock or a white running sock. I think the red and blue combo with be best.

We have three gerbils. They are super friendly and also rather fascinating. If I could ask the three chaps (hope they are three of the same sex) one question it would be

Why when I put cardboard and wooden tunnels in your cage do you always put the smaller tube inside a larger one. Even when I put them on opposite ends of the cage why does one end up in the other within a few minutes.

As my gerbil vocabulary is so poor I guess I will never find out the answer to this first burning question of 2020. But I can’t leave this post on such a unresolvable cliffhanger. Apologies for the early contender for the most rubbish link of the year. As I’ve got over my initial New Years Blues and in the absence of an answer from the three rodents maybe it’s time for a few lists of three from 2019.

3 Biggest Fears that came true

  • School giving up on son
  • Boris Johnson becoming PM
  • Governments/The U.N. paying lip service and kicking into the long grass the momentum for change generated by the likes of Greta Thunberg

Best books read

  • Jean Lee – Nights Tooth
  • Stephen King – The Institute
  • Blake Crouch – Recursion

Best 3 movies of 2019

  • Avengers End Game
  • Horrible Histories – The Movie
  • Godzilla

Best 3 concerts

  • Alter Bridge/Shinedown
  • Kiss
  • Lynyrd Skynyrd

Best 3 albums

  • Alter Bridge – Walk the Sky
  • The Hu – The Gereg
  • Whitesnake – Flesh & Blood

Best 3 places visited

  • Kielder Water
  • Housesteads Roman Fort
  • North Yorkshire Moors Railway

3 Most helpful bits of advice from 2019 – kind of

  • Maybe bring your dog back when he’s calmed down a wee bit – dog training school
  • Just needs to work a bit harder to improve his spelling and handwriting – teacher
  • Lager is better for your teeth than lemon water – Dentist

Best 3 things which helped our son

  • Setting a goal for the number of new places to be visited
  • Rock music and concerts
  • Catching balls while bouncing on a trampoline

Craziest 3 things the pets did

  • Muddy paw prints on the ceiling – how is that possible
  • Boy Cat getting the award for being the biggest and heaviest cat on the Vets books
  • Captain Chaos burying one of my running shoes in the garden. Took me weeks to find it.

Waiting

Every morning we get a scene from Hitchcock’s Birds. Hordes of feathered friends waiting for the me to get my act together. Come on it’s about time we got breakfast. Just remember what happened in The Birds. No cute Angry Birds here….

We watched Angry Birds 2 a few nights back. It’s very funny. Red and Big Terrence are my new role models. The Birds in the Hitchcock movie are just a bit too Deadpool for my liking.

Everyday the garden birds wait and every day it’s worth it. Free, easy and safe food within feet of their nests. So sometimes waiting is worth it.

We finally managed to get our sons Education and Health Care Plan approved a few months after WE lost his mum. I remember a few parents saying well that’s the job done, your quids in now, it’s top class education for your son now. You could feel the sarcasm dripping off the words. Many parents buy into the idea spread by the media that kids with learning disabilities are taking money off their kids education. Schools are short of money because of these privileged kids. And anyway what’s the point – they are just low attainment. So undeserving. Just give the money to the normal kids…..

Welcome to modern, inclusive, caring Britain…..

Thankfully I didn’t assume it was job done. Now the real battle had begun. Trying to get any meaningful support from our factory farming education system. In practice the small level of funding nominally provided to our son effectively bought him a place in a secondary school. Nothing else. The money is put into the school budget for general classroom Teaching Assistants. These Teaching Assistants then are a resource for ALL kids in the class. The Teaching Assistants are not trained in learning disabilities. The school does have one who has experience in the area yet she has never spent anytime with our son. The school does not provide any additional help to kids like our son. It so much easier to label the kids low attainment and do nothing. So we get into a never ending cycle. The media vilify kids with learning disabilities. The government never contradicts these miss truths and the schools continue to do provide any support. The kids fall further behind. The parents pull their hair out.

So we are still waiting. Still waiting for progress. Still fighting battles. Still listening to the campaign of hate promoted by the media. Trying to get any help which might give our kids a chance. Not asking for special treatment. Just an opportunity for a decent education. So many kids are suffering in silence.

Still waiting. But there is now a sobering thought. A thought to take into 2020. Many of the current failings with the school system can be traced directly back to government policy and educational dogma. Ten years of taking schools back to traditional teaching practices. Back to Victorian values. Back to a time of unmitigated suffering for any child not fitting the expected mould. NOW we have 5 more years of this Government. A government proposing an even more stringent traditional approach. But here’s the rub. In 5 years son will be leaving secondary education.

We wait. So we probably will be still waiting in 5 years.

So as we move into 2020 the conclusion is that the school system will will not help kids like our son for many years. It will never help our son. It has and will continue to fail him until he leaves. I’m still trying to get my head round this. We will keep fighting but with little chance of any progress. So we are now in Plan B zone. What is Plan B? I’m not sure yet.

Sometimes waiting is not worth it.

Need the full picture AGAIN

It’s difficult to work if you only have part of the picture. This is so true of dyslexia. A few days back we explored how difficult it is for a child with dyslexia to answer school questions without help. A help which is often absent.

Our son is dyslexic. He has found a way of reading up to half the words he is is presented with. The missing words are either filled in with educated guesses or just missed out completely. He faced the following test question without any help or any additional time.

Tissue is a structure made of many cells performing a similar function and different tissues do different jobs. Which tissue carries the fluid containing nutrients, oxygen and waste products?

Without help son read this question something like the following.

Tissue is a s……….. made of many cells p………… a s………. function and different tissue do different jobs. Which tissue c……… the fluid c…………….. n……….., oxygen and water products?

The letters in bold he guessed. When you guess you naturally gets some words wrong. Without help he was unable to read enough words to allow him to answer the question.

This is such an issue. You need to have understood enough words to allow you to make proper sense of the sentence. The more missing words. The more guessed words. The more words read incorrectly. The greater the likelihood that you will answer the wrong question or just be unable to answer at all. Our son is really good at maths as long as it’s just numbers and symbols. Add text and his performance starts to level off. He’s not getting the maths wrong. He’s getting the English wrong.

Another complication is that he frequently reads characters reversed.

He then has to make sense of the reversed character pattern. Sometimes he can process the character correctly. This takes time. Other times it throws his reading completely. When you think of letters like b and d. A reversal here is hidden but can have a huge impact. Is the word bad or is it dad or is it dab or is it bab.

The above example of reversed characters includes numbers. Number dyslexia is often forgotten. Son has less difficulty dealing with numbers. But it’s not plain sailing. Numbers can be read reversed. Numbers can be misread. He struggles to read numbers which contain a decimal point.

And there is one final surprising factor he has to deal with. We stumbled across this issue by chance. But it’s been confirmed by the health professionals. His mind switches between processing characters from left to right and then right to left. We haven’t been able to workout why his braindoes that or when the switches occur. But when he switches to right to left processing his brain must then try to reverse the image so it fits in with the English language. We had hoped educational professionals would examine this and see what impact this is having on his dyslexia. Maybe it’s the reason for it.. We are still waiting.

This is our sons dyslexia story. Every case of dyslexia is unique. It’s causes are not well understood and thousands of factors can impact on it. Surely it’s time our educational systems got up to speed with dyslexia. It needs commitment from government. Sadly in England this has not been forthcoming. In fact in many ways under the last 10 years of Conservative Rule the plight of dyslexic children in mainstream schools has got significantly worse. It’s time the Schools Minister got off his backside and did something about it. Maybe there is still time for him to see the bigger picture.

Need the full picture

Glorious weather for this morning’s run?

Looks can be deceiving. Looks good with a creative but of zooming. The actual full picture taken seconds after the first photo tells a different story.

Actually it was a cold, dark and damp run. Only seeing part of the picture can make such a difference.

One of the current on going battles with school relates to our sons dyslexia. What support does he need when answering written class questions or when he’s taking tests. At present he receives no help with reading questions or is given no additional time. The schools argues that because his marks are generally really good then he clearly doesn’t need help. Interestingly school seem to think his marks are too good to warrant help and yet he is classed as low attainment. The other reason school argues for not providing any help is that he doesn’t put his hand up and ask for it. Seriously which kid is going to put his hand up in a class of 30 plus pupils and announce that I can’t read this. It’s not going to happen. I don’t think I would put my hand up if I was in that position.

Let’s look at a few of questions our son has got wrong recently.

How many sides and angles does a parallelogram have?

The teacher was surprised he got this easy question wrong. Now let’s look at how our son reads the question. Remember with his dyslexia he can pick up no more than about half the words with the other words he fills in with educated guesses or leaves them blank. So the question he worked with was

How many sides and a……. does a p………………….. have? He correctly guessed the missing a was angle but the p was more of a problem. Is it parallelogram or Pentagon. He guessed Pentagon as he thought parallelogram would be too easy a question. He answered his maths correctly but got the actual question wrong. No marks. So let’s look at another maths question.

In a sale, the price of a notebook is decreased by ten per cent. What is the new price if the old price was one pound twenty pence?

Need my calculator for this one. Now let’s see the question our son read.

In a s…, the price of a n…………. is d…………. by ten per cent. What is the new price if the old price was one p…….. t………. p………? Suddenly this question goes beyond a calculator. He guessed the d was discounted which was ok but the price he used to work out the answer was one pound thirty pence. He used the right calculation method in his head but on the wrong amount. So he got no marks. His mathematics was perfect but he was penalised for his reading skills. Ok let’s look at a science question.

Tissue is a structure made of many cells performing a similar function and different tissues do different jobs. Which tissue carries the fluid containing nutrients, oxygen and waste products?

This question made me think. Now let’s try to answer the question our son could see

T……. is a s……….. made of many cells p………… a s………. function and different t……… do different jobs. Which t……. c……… the fluid c…………….. n……….., oxygen and w…….. products? To me that now becomes almost impossible to answer. He correctly guessed the T was tissue but was not sure as it could be tongue. He guessed the W was water. Unsurprisingly he didn’t answer this question just leaving it blank. Let’s look at one more question.

Refer only to Paragraphs 3 to 9. How is the author trying to build tension. What emotions are the two Detectives experiencing?

I will address the elephant in the room soon but our son read this question as

R….. only to P………………. 3 to 9. How is the author trying to build t………. . What e……… are the two D………………… e…………………….? Son eventually worked out roughly what the question was asking but it took him quite a bit of time. That’s limited exam time used up before he can even start thinking about answering the question. And the elephant in the room. That’s someone with dyslexia expected to read two pages of literature without help…..

This just does not feel like a level playing field. Not a fare chance. I know school argue that he’s doing ok in tests. But how good could he do with support or with straightforward adjustments. We just don’t know at the moment. Maybe this is his level. Maybe his level is higher. What’s the harm in giving him and kids like him a chance. That question is aimed at school and more importantly the Schools Minister. I wonder if they properly see the big picture.

People of Blyth

It’s Friday the 13th. It feels like a real horror story in Britain today. A new dawn of terror.

People of Blyth I really hope your decision to vote Conservative works out for you. I really hope Boris Johnson follows through on his promises. He gets Brexit done then finds money to cut taxes and spend more on public services like our health service. Although a Bart Simpson quote comes to mind.

You just bought another load of crap from the world’s fattest fertilizer salesman.”

To be fair to Blyth I could have picked a number of Northern English Towns and Cities. That includes my childhood home town – Redcar. Or as Johnson has now called it Bluecar. I hope people remember that Redcar is named after an area of poorly drained land. Kjar (Car) is old Viking word for marsh. Maybe Conservative Blue and poor drainage are a suitable combo.. My old Dad always said he would never ever vote Conservative. He must be turning in his grave at a Conservative MP of Redcar.

So we wake up to Boris Johnson as the Prime Minister. I was careful there not to say our or my PM. He certainly is not my PM. He needs to earn that. If he proves himself capable and trustworthy then I will start to call him MY PM. His remit is to get Brexit done. As far as many are concerned that is the a Brexit debate finished. We are now leaving. Leaving hopefully with the best negotiated terms and relationships possible. Although many of his backers want to have the process fail so they can just crash out of the EU without any constraints. I genuinely think it’s the wrong call but we have lost the argument and IT IS WHAT IT IS. We need to move on.

I’m not going to rant at the majority of people who voted Conservative. Your opinions and values are just as valid and heartfelt as mine. I do shake my head at some of the reasons a worryingly large number of people decided to vote on. Ones I have personally heard include

  • I’m not voting Liberal as the leader is a woman,
  • I’m voting for Boris because he is funny,
  • I’m voting for Labour as Gary Neville (ex Footballer) said he was,
  • I’m not voting Labour as they backed the Terrorist who attacked a London Bridge (a fake news story)
  • I’m voting Conservative as they will teach Europe a lesson because they are to blame for our problems.

Simply staggering….

Our political system is broken – probably beyond repair. Increasingly money buys you power. We have political leaders who openly lie and spread unfounded rumours. We have effectively a state sponsored public broadcaster while the other news outlets are in the hands of a few Conservative supporting billionaires. Media groups who openly flout electoral law and favour the incumbent government. Where opposition parties are scrutinised and vilified while at they same time reporters act as a mouth piece for government propaganda. It’s not even subtle anymore. A BBC News reporter days before the election told viewers that Boris Johnson ‘so deserves’ the victory he is hoping to get.

We have potential Russian meddling in our elections. A crucial report on this was buried by the Government a month before the vote. But let’s be fair to Russia it’s not as if the UK or the US have not also interfered in the the affairs of other nation states as well. If we do it why can’t they.

We have a fragmented opposition where the two main players have lost the plot and would much rather fight each other than actually focus on trying to be a credible government in waiting.

We have a ridiculously out of date electoral system that makes it virtually impossible for parties like the Greens to make any headway. Yet it gives huge majorities to a part that gets less than 50% of the vote.

We have a United Kingdom which is literally falling part. As much as Johnson has denied it his Brexit Plan will split Northern Island off from the rest of Britain with a dedicated border control. Scotland now votes in an entirely different direction than England. Scotland voted against Brexit. Scotland votes SNP. How can calls for independence be denied any longer. It’s probably appealing to Boris as he would get rid of a large and vociferous opposition grouping. Locking in a Conservative Government for a generation.

And then we get back to the good people of Blyth and Redcar. A political system which has for years ignored them and failed them. Now we have a hardcore of disillusioned voters who have little faith in their politicians and leaders. No wonder they see Brexit as a way of bringing change.

So we batten down the hatches. Focus on what is truly important – family and friends. Do whatever we can to protect them while doing our bit for the environment. Completely block out the tainted media groups like the BBC which simply cannot be trusted anymore. Find our own news sources. And we move on hoping that things don’t go as badly wrong as I fear. I really fear for minority groups, those who are sick, those who are on benefits, those who are out of work and I am petrified about what will now happen to our environment and wildlife. So ends the rant and now I get back to being a crap dad trying to cope with whatever life chucks at me. Fingers crossed I don’t need to mention Boris again.

Pink

Colour hanging grimly on in Yorkshire. This is an oasis surrounded by unremitting greyness.

Truly dreadful weather day. The wind has been blowing horizontal rain at the back door all day. Currently on the third towel trying to keep the utility room dry. It’s a bit of a losing battle. Let’s hope it’s the only losing battle today. I went to vote straight after the morning’s school run. Let’s leave it as that. Tomorrow will either be a hopeful post or a monumental rant of a post. You have been warned.

I’m writing this as son sits on the sofa watching a documentary on his tablet about Auschwitz. Yesterday he watched a few videos on the plight of the Palestinians. Puts everything into perspective. The fact that the youth of today watch this gives me hope for the future. Let’s hope we leave the next generation with a habitable planet so that they can mould a far better world.

With work for the day completed I set off for a run. Better described as a splash. Wow it was wet. After a few miles my poor hands were frozen so I foolishly put them in my waterproofs pockets for a warm. Rather than finding a haven of warmness they found a hidden pool of cold rain water. Lovely. I’m pleased that I opted for shorts. Not sure I fancied my leggings shrinking. My mind goes back to a mountain marathon during my university days. A six hour night drive to the Highlands of Scotland ready for the 9am race start. Everything was going so well until we arrived and changed for the race. I had forgotten my shorts. 30 minutes to the start time and the nearest sports shop was 20 miles away. The strange looks I was was getting as I walked around the runners saying ‘have you got a spare pair of shorts’. Looking like I would have to sit out the race when my race partner came to the rescue. ‘I can wear my shorts and you can try to use my leggings’. The problem was my partner was called Suzanne and she was somewhat more petite than me. To much laughter on her part I squeezed into the tight leggings. I was the only male competitor running in bright pink. It was also the only competitor that completed the race in with tears. Must admit the constrictor leggings did wonders for my dodgy hamstrings. But since then tight leggings have gone nowhere near my nether regions.

With my wet run completed it was a quick change and off on the school run. As a I arrived a very sodden Son trudged across the car park still in his sports gear. You could see him shaking with cold and the water dripping off his clothes. With the car heating full on he tried to get changed into his dry school uniform.

*****

“You’re drenched why didn’t you get changed out of your wet kit”

I didn’t want to risk it. We only get 5 minutes to change. If we are not out in that time you get a negative from the teacher.

Have any kids been given negatives”

Virtually every week at least one kid gets a negative. It’s unfair especially as it’s the last lesson of the day.

*****

And another telephone call will be made to school. Five minutes. When I played football it would take me at least 10 minutes to get changed. It took five minutes just to prize my constrictor pink leggings off my butt all those years ago. Five minutes sounds tight before you factor in Aspergers and Dyspraxia. Getting changed does not come easy to him. School have been told this on several occasions by me and in writing by the Paediatrician. So much for the school making positive adjustments to make his school life comfortable and enriching.

It’s the frustration felt by far too many children and their parents. Everything has to be fought for. It’s a battle to get a diagnosis in the first place then the real fight starts. Trying to get any positive adjustments and help. As much as the media try to paint a different story … we are not looking for special treatment … we just want our kids (all kids) to get a fair chance in life. Is that too much to ask for.

*** late addition *** it WILL be a monumental rant….