Come on it’s Friday

So like the weather we crash into the weekend. This photo was taken minutes before the heavy rain rushed in. It’s time to batten down the hatches for 24 hours.

For 10 brief minutes a delightful dry run in sublime autumnal colours. What followed was a long and protracted slog through a mud bath and driving rain. One step forward and two back. Seriously doubting if I could make the climbs which had been done countless times before. Soul destroying. No fun anymore just hard labour. Frigid isolation in this hostile environment. Doubting my sanity. What am I doing here.

It’s been a perfect microcosm of this week.

A week which has rapidly gone downhill. A long hard slog giving my soul a good kicking. Leaving my mojo and my confidence in tatters. Almost complete social isolation. Never ending pain from dental work. Failure to find solutions to home, school and work problems. Error strewn days. The house is filled with echoes of the past. Even blogging has been harder than usual. The words seem to be failing me. Three draft posts on Aspergers and one on Dyslexia deleted. Just not good enough. Not sure I trust myself enough to venture there. But then life interrupts my meltdown.

We have crashed into Friday. It’s also the start of the half term week holidays. It’s Halloween week. Remember the number one priority. The only one that matters in the end.

Give son the best childhood possible.

So it’s time to put my game face on. Work can wait until son has gone to bed. Halloween gives endless scope for creative fun. My problems will be pushed into the background by boundless youthful energy released by the school gates closing. I’m sure they will be back but just not this week. That’s not allowed.

Only one possible song to leave you with. Mr Alice Cooper and Schools Out.

Schools Out – Live

ADHD and Aspergers

Beckies Mental Mess this week has been doing a great job of raising awareness about (ADHD) Attention Deficit Hyperactive Disorder. I’ve just read Rory’s words which explain so well what it’s like to live with ADHD.

From here in this quiet part of Yorkshire ADHD is very much part of our life. It’s now officially part of our sons diagnosis. But it feels very much like a junior version. During the long and ever so frustrating diagnostic process which he went through ADHD was an after thought. It was missed. Never mentioned. Everything was lumped into Aspergers and Dyspraxia.

Then our Paediatrician changed. In his first meeting with our Son he genuinely seemed surprised that he could find no mention of ADHD on the records. A few weeks later it was added to the diagnosis. Why was it missed?

We where made aware that Aspergers in most cases goes hand in hand with other conditions. Everything seems to merge together to give a unique set of symptoms and personality traits. It is often difficult to unpick the individual conditions. Generally Aspergers and Autism are just used as overriding terms to cover a wide and complex set of interrelated issues. In our sons case ADHD was just missed. A specialist went through the original symptoms list. Of the 16 original listed symptoms which were defined as Aspergers related 7 were later changed to ADHD.

As soon as ADHD was on the medical record we were offered medication. Interestingly although our Sons the symptoms had not changed at all suddenly the addition of four letters prompted the option of drugs. We declined. Or should I say Son declined. In his words

ADHD hasn’t changed me. I’m still the same person with Aspergers. It’s just who I am.

Since we declined medication ADHD has never been specifically mentioned again by our Doctors. They have continued to offer behavioural therapy to try and ease the young Aspergers kid into this strange old world. Due to Government cut backs the therapy is becoming increasingly sporadic. Once someone gets past a certain age the health support basically dries up. But at least something happened. From an Education point of view basically no school interventions have occurred. No assessment of educational impact has been carried out. It’s the standard education package for all regardless of any specific needs. It’s so much easier to bracket individual kids as low attainment.

This is the shocking fact in education today. Certainly here in England. Specific educational help to those with a learning disability – some prefer to call it a learning disadvantage – is denied to too many kids in our society. Effectively they are seen as an expensive drain on resources. So much easier to write them off. How do we explain that to our kids. How as a society have we got education so wrong. We need to keep shouting as one day those in charge will listen.

The soldier

A few years back I played in the same team as an Ex Royal Marine. A huge bear of a man. He left the Marines early. He would never talk about the service much. But occasionally he would drop the occasional line into the pub conversations. I know he had a really bad time in Afghanistan. I remember him telling me once that he might be a huge intimidating figure but he was not prepared for what he experienced. He then said but your not supposed to talk about it. He on more than one occasion said that he was not the hero he set out to be. He certainly struggled big time with his mental health since he left the service. One day he without warning just moved out of his house. Disappeared off the radar and no one from the team saw him again. I often think about him and I really hope he found a better place.

Similarly my Dad never wanted to really talk about his time in the army and the fighting. In his eyes talking about it just opened old wounds. He needed to bury the pain and loss.

Recently I came across this music video on a similar theme. It’s called He Died at Home. The lyrics from this Neal Morse song resonate because they are based on real events.

https://youtu.be/88e74WaQioI

*********************

William always wanted to be a soldier
“Army men were his favorite toys,” tells his mother
He was going to be the hero of the story
Live with honor or die in a blaze of glory
So he joined when he was seventeen
Kissed his mom goodbye
She wept as she packed his duffel bag
With notes of love and pride
She’d never guess six years from then
Tortured and alone
William wouldn’t die in fields unknown
He died at home

He loved the army, it’s all he ever wanted
To serve his country and look death in the face undaunted
But after a couple of tours, the fire in him died
You can’t watch friends be killed and stay the same inside
He told his mom “you’d hate me
If you knew the things I’ve done”
“I will never hate you
You are my beloved son”
He said, “no mom, the son you loved
Died somewhere over there”
But William didn’t die in the combat zone
He died at home

He came back ill at ease with civilians
His mother woke to screaming – it was William’s
The army shrugged and gave him more prescriptions
As William’s mind grew more and more distant

Before he died he told his mom
“Don’t bury me in my uniform
No military funeral
That’s for some who gave their all”
One night he shot the soldier dead
To kill the voices in his head
They gathered at the weekly wake
They have at every army base
‘Cause more will die by their own hand
Than fall in any foreign land
They covered William in the flag
But there was not a boast or brag
When asked how soldier William died
No one mentions suicide

The cause of death is hard to say out loud
The soldier who once stood so strong and proud
His mother looks away and simply moans
He died at home

Song by Neal Morse

Lyrics from songmeanings