Posted on by bereavedandbeingasingleparent · 71 Comments

Life snapshot

The Aspergers life can be racked with anxieties and obsessive behaviours. Additionally Aspergers can frequently coexist with OCD. Add the death of a mum and both grannies. Then on top of that you add a pandemic. Something has to give with that kind of pressure building up. That’s what our son is dealing with and it is so very tough for him. What does that mean in practice. Well here is a snapshot of life and the impact it has on him.

Every ache, every sneeze, every spot, every pain is seen as a potential sign of a serious disease or the C word. Anxieties bring on indigestion and constipation. These are then seen by him as more potential warnings of serious, life threatening health conditions. The natural response was to frequently wash his hands. It was both to cleanse his hands but also an attempt to pour water on the raging anxiety wildfire. Washing to the point of red raw skin. These issues have existed for years but slowly during 2019 slow progress started to happen. The hand washing was just about brought under control. Then the pandemic hit. The progress was instantly lost. Suddenly the months of reassuring talk a out avoiding serious illnesses, the bodies capacity to fight back and the advances in medical science are basically blown out of the water. The problems started to mount up again and escalate to new heights.

  • Hand washing every few minutes. From 15 second washing now to washing for minutes at a time.
  • A reluctance to dry washed hands as towels might be a source of germs.
  • Harmful germs are seen to exist everywhere. Suddenly it’s difficult for him to touch taps, toilet handles and door knobs. Sheets of paper have to be left next to these so he can avoid touching them directly. Even pulling on a shirt may result in the potentially unclean sleeves coming into contact with his hands. Shoes have to be put on without using his hands.
  • iPads and joysticks have to be washed frequently and definitely before he touches them. It’s the same for things like pens.
  • When he strokes his pets he will immediately run to wash his hands.
  • He needs to see evidence that I wash my hands before I touch any of his items.
  • Clothes have to be frequently washed often multiple times a day.
  • Outside he is constantly looking out for flies and flying bugs. If they come too close then he will need to go inside to wash.
  • He has to have his own seat and no one is allowed to touch it. If they do then the seat has to be cleaned.
  • When he goes out the the front door then he consciously tries to avoid walking over any areas that the postman or others might have walked across. When he comes back in them his shoes will need to be completely cleaned. If he ventures through the front gate and into the outside world then on his return he will completely strip, shower and change to new clothes. Those rules apply to me as well.
  • Mouth-washing and gargling is frequently repeated during the day.
  • Any item which hits the ground (inside or out) will need to be deep cleaned.
  • Any new food items have to go into the garage and complete a quarantine period if at least three days.

This is daily life in our little home. I do my best to reassure, reason and modify behaviours. But it feels nothing more than trying to plug a leaking dam at present. One hole maybe plugged but in the meantime another two new holes have appeared. Counselling was there but government cutbacks have taken their toll on services. The pandemic has temporarily suspended specialist help. The result is massive backlogs and no access to help. These are tough times. For him and yes me as well. As a parent you feel helpless, definitely so underprepared for these challenges. But we keep going. We pick ourselves up and go again. Yes we will get there. We will. But it will take time. Realistically maybe well into 2021. In practice timescales don’t matter, we take each day as it comes, fortified by the love of friends.

Posted on by bereavedandbeingasingleparent · 99 Comments

Not had a rant for days…..

I came outside to look at the roses. And breathe..

The UK Government has a natural ability to take the breathe away. What are the words I am looking for

Self-serving

Incompetence

Charlatan

Criminally negligent

Fraud

Part timers

Out of their depth

Nest of vipers

Dangerous

Liars

Elitist

One rule for the many, doesn’t apply to them

When you think it can’t get any worse and then they take it a new level……

So on the 4th July Britain is open for business again. Something we all can sign up to if it’s done properly and safely. But this is Boris Johnson we are talking about. The laziest and most inept Prime Minister in over 150 years. So here are just a few nuggets of his so called plan

  • The governments own scientists have warned against easing restrictions too soon. If we do the safe way is to do that carefully and in small stages. The PM has said oh tish to that. British wartime spirit apparently is all we need to follow. It clearly does help a leaders senses when he has rich backers and views the world through the bottom of an empty champagne glass….
  • For months we have been told that masks are a waste of time and that we should be keeping at least 2 metres apart. Suddenly 1m is cool as long as your wear those marvellous masks (but only if you really want to).
  • Since March we have been told that the key to beating this virus is the Tracking and Tracing App. Rather than go with the Google and Apple one we decided to give a contract to friends of the Government. This world class app was promised to go live in April, then May, then June. Then suddenly it’s dropped because it didn’t work (not the Government’s fault of course, it was all down to those pesky people at Apple). Now it won’t be ready until the winter but it’s ok as it was never a priority – everyone must have repeatedly misheard the PM and the Health Secretary …..
  • This scene according to the PM is perfectly safe, carries no pandemic risk and so can happen freely (this was our nearest beach yesterday) …..
  • However this scene is not allowed, carries huge pandemic risks and deemed unsafe….
  • People are not allowed to attend live theatre due to the risks yet our PM is delighted to allow pubs to open. The PM clearly trusts Joe Bloggs and his drunken mates to act responsibly and stay 1m apart at all times (wearing a mask) after 10 pints of strong lager.

But no they haven’t finished yet. Apparently schools will reopen fully in September. The plan is to ditch all social distancing rules for children. All we need to do is to tell the kids not to sneeze on others. Squeeze them back into cramped classrooms and act as if nothing has changed. Just in case each class should try not to spend too much time with other classes. Really. It’s ok for the Government as they send their kids to private schools where class sizes are less than 15, here social distancing can still happen. But not for the state schools with class sizes of over 30. In fact the PM has dropped rules so that the class sizes can go much higher than 30. If teachers become sick then you can just have supersized classes.

Well they can just sod off. They are no Government of mine. Time to bunker down.

So back to the roses and breathe.

Posted on by bereavedandbeingasingleparent · 68 Comments

Quarantine and Mental Health

So pleased to have another wonderful post from Katie and Evee for you. Can’t thank them enough. They also have just posted something from me on their site as well. If you get the time please check it out.

Thank you so much.

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Our current Quarantine Routine, looks a bit like this:

– Katie wakes up and makes us both a coffee and works out

– We read, write, blog or go on walks or bike rides.

– Evee works out

– We cook dinner together

– We have our own evenings where we chill out, talk to our friends, or watch Netflix. (Evee falls asleep significantly later than Katie (usually with the odd noise complaint thrown in!))

At the beginning of quarantine, there was a clear and obvious push for people to make the most of this time. People were learning how to make banana bread, teach themselves how to do handstands, and learn Spanish or Italian. We also had good intentions; to paint, write, eat completely cleanly and have a strict regimented workout plan.

When we couldn’t bring ourselves to be productive, we were filled with guilt at the thought of wasting this precious gift of time ( https://thegriefreality.blog/2020/05/06/the-gift-of-time/ link if possible ☺ ). It was almost too easy for our minds to wonder back to the days of our own lockdown after Mum’s funeral and the depression that followed. During these days, counsellors encouraged us to mark small things as “wins”: showering, exercising, or eating healthily. But also, to the even smaller wins, like waking up in the morning, making the bed.

After our mum passed away, we were completely alone. As said beautifully in Gary’s post, there does come a point when people stop checking in and stop asking how you are. Apart from a few golden people, many individuals you thought were going to be with you until the end, become memories as well. It is a desolate place to find yourself in.

Thankfully, we have always had each other, and through trying to look after one another, we found ways to build ourselves back up.

Simple acts of self-love may appear futile or irrelevant when the future holds so much uncertainty, but we cannot imagine what our health and wellbeing would look like without them.

Lockdown has been a journey and has impacted our mental health, alongside thousands of others’. For us, it felt hauntingly similar to those grey days of 2018 that bore witness to some of the darkest moments of our lives. But through self-care, we learnt self-love.

Self-care grew to become an essential part of our healing and an ongoing exercise for our health and wellbeing. It is a wonderful thing to do that we strongly advocate, and promote heavily on our blog: Plant those little seeds of self-love into your body and mind.

As with any new exercise, it has been a difficult lesson to learn. But today when the world finds itself in so much chaos, we know to focus our attention on making ourselves feel happy and healthy. Eventually, our calm approach to life and clarity come back to us, and we ground ourselves once again.

One simple act of self-care is to sit in the bath, with a face mask, cuppa tea, bubbles and a coconut oil hair mask. It truly is amazing how much these luxuries make a huge difference to our wellbeing.

We have linked a post of little self-care tid-bits, everyone can do; it doesn’t have to eat up too much of your time. (if you could link this post https://thegriefreality.blog/2019/04/03/i-dont-self-care/ that would be wonderful ☺) It can be as small as making yourself your favourite tea before bed.

Hold tight, eventually, the hustle and bustle of normality will resume, and when it does we hope you carry forward these acts of self-kindness. In doing so, we have no doubt you’ll be more than capable and prepared for it.

Katie & Evee x