Posted on by bereavedandbeingasingleparent · 32 Comments

Missing

One of those days for staying inside. Heating on. Welcome again to the Yorkshire summer.

No excuse then to avoid baking. So here’s my honey and sunflower bread. Dairy and gluten free.

I don’t know what happened to the sunflower seeds but it tastes not too bad at all. Will go well with my completely plant based Cream of Tomato soup when I get round to finding where I put the pesky red things. How can things go missing in such a small kitchen.

Talking about going missing. While I was getting stuck into the bread dough I was listening to the local radio station. I caught the back end of a phone in about people living on government benefits. It wasn’t the must sympathetic range of callers. Out of the 5 callers I endured, 4 came up with the same opinion. Single parents are living the life of luxury, they get shed loads of taxpayers money, do no work and spend the benefits all on, wait for it. Designer clothes, cigarettes, booze, nights out, restaurants and holidays.

I did try to phone in to get on air but the lines were closed. Shame as this single parent wanted to point out a few things….

a) I get pennies in handouts from the Government and I work…

b) I have never bought designer clothes in my life,

c) I have never smoked a cigarette in my life,

d) I have been tea total in over 5 years now,

e) I haven’t had a holiday since 2015. In fact since I have been a single parent I have not spent one night apart from my son. Strangely 2015 was also the last time I ventured into a restaurant.

PLUS some people should wind their necks in and stop prying into other peoples life’s. These people phoning in don’t have the faintest idea what it’s like for the vast majority of single parents out there. Just how tough a slog it is to keep paying the bills while trying to be the best possible parent they can be. Just how little support there is and just how isolating a life it can be. But you hardly ever hear that side of the story. Like too many things, it’s gone missing.

Posted on by bereavedandbeingasingleparent · 73 Comments

Autism

It’s Autism Awareness week. It does feel like it should be Autism Awareness Week every week, every year until we finally start to make some real progress. Let’s not kid ourselves as we have are only just starting down that road.

This years theme is centred around inequalities. Inequalities that have become even more stark and exposed during the pandemic.

I tell you what is unequal. Bridge building. It’s always up to the autistic person to try and build those bridges. Our society, our institutions and too many of our communities are not interested. They see Autism through inaccurate stereotypes. Something to be ignored or brushed under the carpet. We’ve all experienced that approach. Individuality is frowned upon. People need to be forced into set moulds and templates.

Yesterday I was listening to the words of a really wonderful, unique and brilliant teenager. He was talking about his struggle with autism. His daily fight with inequalities and ignorance. Why was it so hard for people to understand. He was saying that every day he heard so many false stereotypes. But in fact he had a sense of humour, he liked having fun, he liked having friends, he had feelings, he cared. He was as valid as an individual as anyone else.

That lad wasn’t different he was UNIQUE. We all should be. It’s a better world for that.

We all should be welcomed and supported.

Posted on by bereavedandbeingasingleparent · 31 Comments

Avengers

A day outside in the – wait for it – warm Yorkshire sunshine……

An afternoon of outdoor table tennis. An afternoon of losing my pride. It’s never been my sport. One of the few sports I can’t pick up.

“Dad Table Tennis is a MARVELlous sport. You do know the sport should be played like a game of chess. Carefully moving your opening around the table until an opening appears. That’s the idea. Your approach Dad is basically the Avengers Strategy. HULK SMASH…”

No need to mess about with the delicate strategy. Why waste time when with one massive swing of the bat you can immediately move to the ENDGAME

“But Dad you are supposed to play with VISION.

Ok I’m out now, you win the pun war. Pick up your crisp packet. If you do then you can be scaAVENGERS hero.

“I never THORt of that one Dad. Best keep the envIRON MANaged. I wonder if anyone else would understand these puns other THAN US.”

*********

Lets not forget the stereotype. Asperger Kids don’t have a sense of humour and can’t have fun ……….

Posted on by bereavedandbeingasingleparent · 87 Comments

Story to tell – two

We all have a story to tell. Every persons story is just as precious and important as the next. Our life’s are filled with good and bad times. A rollercoaster of emotions. Filled with memories. Some bring smiles, others bring tears.

2016, it’s August. A week before I had been to my mums funeral. My partner had not been well but currently no reason to be truly worried. A Wednesday afternoon and we drove her to the Hospital for an overnight stay and some routine tests. I can see her walking across the lawn to the car. We talked in the car. Can’t remember what about. Just general stuff I guess. After she is settled on the ward we are asked to leave so the medics could start the tests. Told to come back tomorrow to visit, maybe even to pick her up. It’s now Thursday lunchtime and I’ve returned to the ward. The Doctor pulls me to one side. A sudden collapse in her condition. I sit in stunned silence. Tests results are shocking and grave. The prognosis horrific. 95% chance that she will be dead within a couple of weeks. Zero chance of making Christmas. She is in and out of consciousness. It’s extremely likely that she is not aware anymore. If family need to say goodbyes then you need to do it really quickly. Driving from the hospital like a zombie – how do I explain this to our 8 year son. She never regained consciousness and died in a hospice a few weeks later. We never did have a conversation again. The last time we talked was in the car and I can’t remember what it was about.

That’s one of my stories. It’s not easy to tell even now. I can feel the darkness starting to sweep over me. But there are other stories. Stories which bring light and are easier to tell.

Holding our son for the first time after the birth. Looking into his eyes and thinking I’M A DAD. Then thinking he’s very small – don’t drop him. Then one overriding thought. How can something so small be so pigging LOUD.

Sat on a scary rollercoaster with Hawklad as we slowly pick up speed. Hearing his must reassuring words echo along the suddenly panic filled seats – “Dad I’ve just spotted two missing nuts and one support joint without any bolts.”

Sat watching a 4 year old Hawklad in Switzerland. He runs up to a man trying to do some post run stretches. He then spends 5 minutes excitedly telling this man all about Dr Who and The Tardis. Speaking to the man later to apologise we found out that the man had never heard of Dr Who and didn’t speak a word of English. What a poor confused person he must have been.

So we all have stories. Some bad and some good. That’s life for you. They add together to make up who we are. Actually taking the time to listen will open your eyes to another person. If you are fortunate you might even hear some back stories. Gain an understanding of who that person really is. What makes them tick. Without that understanding it’s not wise to jump to assumptions. Without those back stories you really don’t know anything about that person.

Posted on by bereavedandbeingasingleparent · 67 Comments

A story to tell – one

We all have a story to tell. All stories are just as valid and important as the next one. Sadly many stories are not told. Well actually that’s incorrect. Sadly many stories are not heard. They are replaced by stereotypes. Too many jumping to conclusions. A view that fits better into the needs of so called modern society.

This week again stories of single parents coming from The Government and it’s Friends. Scrounging off society. Shying away from work. A life of luxury…. That fits in with the message. BUT Cut to a supermarket. A parent is struggling to control a child. Those knowing looks and tuts from other shoppers. They have no idea of the back story. Just how tired that parent is. Trying to figure out a way to feed the family with so little money. Trying to cope with zero help. Being crushed by anxiety and living no life at all. Crushed by circumstances. It’s often easier for some people to cast the first stone rather than offer a hand of support.

The story of kids with Autism and Aspergers again often not heard. Drowned out by stereotypes and unfounded assumptions. Each and every child is different, unique. Each child has their own back story. But so often we here – uncaring, cold, demonic, unfeeling, lacking empathy, no sense of humour, unable to love, a burden on society, low attainment, not really like a kid should be.

Wrong, wrong , wrong. Every child is unique. That’s the point of this blog. Others bloggers do it far better than my drivel. But we try to show the real story of our kids. Hawklad has Aspergers yet he can be funny, caring, have empathy, play games, understand others, be funny, have talents, be lovely, have dreams they want to achieve, have a sense of humour and love. All kids deserve a chance. Deserve a childhood. All kids.

Everyone has a unique story. Maybe as a society we need to start listening.

Posted on by bereavedandbeingasingleparent · 104 Comments

Challenge The Storm

We survived the storm…… The wind and rain finally eased late last night. The electricity was fully restored late afternoon. But has gone off a few times since. One outside light has been snapped off. Our old wind gauge was destroyed. A few items have gone missing. I guess currently being blown around the Jet Stream. We were very lucky in the end. A number of villages are still under water. Houses are still without power. That’s so tough. Many of the places flooded have only just recovered from the last flooding a few months ago.

Today was still windy, damp and cold. Although we did get a couple of hours of blue skies. The run was restricted to roads and lanes. The fields and tracks are either submerged or mud baths. Even sticking to the roads didn’t save the socks and shoes from getting drenched. Now the skies have darkened. The winds picking up again and it’s periodically chucking it down.

After a quick shower and change it was back to a couple of hours more work. Foolishly I left the radio on. Some folk really get up my nose these days. First was the person who was annoyed that people kept going on about a storm. “Well it was just a bit windy. I was fine. Wish people would stop calling it a storm.” Tell that to the people of Hebden Bridge who where 3 foot underwater.

Then we had the commentator talking about a certain world leader. ‘Look at his baffling and often obnoxious behaviour. Clearly he is very clever. You don’t get a bank account like his without being intelligent. Yet he is without any empathy, does not have a sense of humour and has no social awareness. To me the reason is clear, he has Aspergers. It’s the only explanation.’

F##@##g unbelievable.

I’ve noticed a real worrying trend recently. A growing number of self proclaimed experts who are making spurious associations with Aspergers. Every rouge action, every piece of evil behaviour, every unpleasant and mean individual is blamed on Aspergers.

F##@##g unbelievable.

This discriminatory rubbish is too often based on no evidence. It takes its basis from the narrow minded unfounded views of biased media groups, lazy stereotyping in movies and skewed urban myths. The worry is how many actually buy into this dross. Too many. Let’s not forget that only a couple of months ago Greta Thunberg was attacked by the right wing press for looking, acting and sounding demonic. It just shows how far we have to travel as a society. How hard society makes life for people on the spectrum.

That’s why we have to keep fighting. Why we have to keep telling our real life stories. Some storms you are best just battening down the hatches. But some man made storms need to be met head on and challenged. We owe it to so many.