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Food

Now we are into the aftermath of the Easter Egg hunt. Son is happily piling on the calories and his Dad is looking at a bowl of dairy free cornflakes. Is this what my life has been building to…..

To be fair that calorie balance is right. Son tends to be very long and always below the median weight for his height. That is tall and slim. His Paediatrician told him that it was a great excuse never to diet. His Dad is average height (or to be strictly true – 0.5 cm above average) and keeping to an ideal weight is a bit of a struggle. That is big boned.

Son’s diet has been a struggle recently. Aspergers likes order and routine. We stick to the same 7 day food rota every week. To be fair it’s a reasonable diet with much fruit and vegetables. And many sausages…… But over the last few weeks many of his foods of choice have become unavailable. This has required change and change means STRESS. On top of the enforced food switches an increased fear of becoming ill has surfaced. So now he is desperate to eat healthy and avoid too many calories.

So the parents dilemma is trying to put that into a routine which is both sustainable and is actually a balanced, healthy diet for him. That’s at a time when fresh fruit and vegetables are often much harder to source. So keeping the calorie intake sufficient going forward might be a serious challenge. He has already started to refuse foods he considers unhealthy. He’s even started to question his chocolate intake. As the paediatrician explained a couple of years back

his weight is right at the bottom of the perfect band, but don’t let it drop below that. If that means a few more bars of chocolate than usual then that’s just fine. But just watch him. We really don’t won’t to go down the line leading to eating disorder.

Eating Disorders within the Autistic community is a significant issue. Research into eating disorders such as anorexia have found that anywhere between 15% to 35% of total cases can be linked to people on the autism spectrum. However food disorder health care is still largely done in isolation from autism specialists. Autistic services continue to be squeezed as a result of government policy priorities. So improved care and support for autistics with food disorders is unlikely to improve under the current UK government.

This may well be the latest challenge our son has to face down. So long may he tuck into his chocolate egg.

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Return or not

WARNING: This is a covid related post… it may contain grotesque examples of confusion.

This friendly bird is a frequent visitor who keeps returning for a daily meal. A visitor who doesn’t bother with social distancing rules but is far too fast for my poor mobile to get a truly in focus picture. On the subject of RETURNING.

The school return question is starting to be vexing again. When the schools closed down a few weeks back the advice was that they would be closed indefinitely. Exams in June and July cancelled. They would certainly remain closed until the virus was under control and the country had implemented systems to keep track infection rates. A return was not going to happen until it was safe to do so.

Let’s set the context in the UK.

  • Each day a 1000 people are dying in hospitals as a result of the virus and the numbers are continue to rise. The UK is likely to have the highest mortality rate in Europe,
  • That horrendous number does not include the many deaths occurring in care homes and in household settings. Up to half of all deaths could be occurring in care homes,
  • Medical staff, care workers, teachers, bus drivers, people who have attempted to self isolate are continuing to die,
  • 5 under the age of 20 have died,
  • Each day something like 40 people die from this virus who have no underlying health issues,
  • The official ‘those at most risk’ list has clearly missed off many thousands of vulnerable patients,
  • Currently the UK can only perform 18000 virus tests per day. That’s not even enough to cover the urgent requirements of our front line staff,
  • Unless your the daughter of a government cabinet minister you are unlikely to be tested if you are self isolating at home,
  • We are still to introduce a virus contact service or app,
  • Even based on the country’s inadequate testing regime we officially have 84000 cases recorded.

That doesn’t strike me as under control.

This week the governments’s appointed scientists and will meet with the Cabinet to consider the lockdown arrangements. The government are keen to reopen the economy as a matter of urgency and revert back to the original herd immunity strategy. Even though growing evidence is developing that people can be become infected more than once. How long any acquired immunity lasts is still uncertain. As part of demonstrating that we are getting back to normal many in the government want schools to reopen ASAP. Certainly well before the ban on mass gatherings are eased. The argument is that kids are at a lower risk of serious complications.

Ok I fully understand the need to start living again. I hope it’s done as quickly as it is safe to do. If decisions are truly based on the best and broadest scientific advice then I think many of us will support that. But then I put my parent’s hat on.

Parents potentially are going to face a decision in the coming weeks. A decision where there is no right or wrong answer. If schools opens early, do I send our kids in. That is a personal decision and not one that I will allow the Government to take for me. Personally this revolves around a number of factors

  • Kids may be at a lower risk of serious complications but that it not NO RISK. Already 5 under the age of 20 have horrifically died,
  • UK schools are not designed for adequate social distancing or effective hygiene. Too many kids, teachers and support staff are crammed into out of date, inadequate facilities,
  • Homeschooling v Schooling – not planning to go there today,
  • The anxiety and stress the return may place on our kids. Some kids may be busting to meet up with friends again and start being a school kid again. But equally many will find the return stressful. With our Son’s Aspergers he struggles with many social and health anxieties. He has a huge issue with the fear of hygiene, illness and death. Co-vid has sent that off the chart. To the extent he struggles to leave the confines of our front gate these days. If we do venture out then it’s a quick walk, keeping at least a field distance between others and not touching any surface. That’s walking a dog in a quiet village, what on earth will it be like when we are talking about a confined building with a 1000 people. The medical support we might be able to tap into to help with this has been cut back by the government. The service is stretched and is currently not able to do face to face counselling until later in the year – currently it’s not deemed safe to do so.

So it’s a personal decision. No right or wrong decision. We all are just trying our best to navigate this mess. For me (with my parent hat on) I can’t see any foreseeable set of circumstances where I would be willing to send him back into school this side of September. But it’s a personal decision. It’s his decision. So when the times comes that the school is open then it’s his call completely. It’s his risk, his stress, his life.

Stay safe people.

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Stages

One of my first records I purchased was ‘All the worlds a stage’ by the rock legends, Rush. Shakespeare wrote that ‘All the worlds a stage’. Don’t worry I’m not going all thespian on you. But I must admit I fancy my chances these days of doing a mighty fine Richard III stage performance. Why is the Stagecoach Bus always two hours late when I try to catch it. Just watched wrestling on the TV which is staged. So many stages.

Then you get stages in grief. A couple of years ago someone asked me what stage I was at in my bereavement process. I just looked on blankly. All I could think of was two stages. Your life before the death and the life after the death. So I answered – in the second stage and I always will be. I guess that’s not the answer they were looking for.

Last night I was reading an online article about bereavement counselling. It talked about every bereaved person going through the same 6 stage process. I wasn’t convinced. Surely every person’s grief journey is unique. Why force people to follow a predetermined text book bereavement route which doesn’t suit them. So I gave up with the online article and scribbled down my own staged journey so far. It’s my interpretation of MY journey and in no way is it supposed to fit other people. Remember I’m not a Doctor or Psychologist. I moved a potted plant into my bedroom to raise the rooms overall IQ score. The height of my powers these days is to get the cling film wrapper off food without slicing off a finger…. So here goes with my journey.

The SHOCK STAGE. Within a period of 6 weeks I’ve just buried my mum and then my partner. I’m a complete mess. Barely able to function and yet I’m supposed to be a Dad. It’s like living in a prolonged nightmare. Trying to sort out the practicalities and legal side of death, but actually got no idea what I’m doing. Basically doing stuff I’m told to do.

The FRUSTRATION STAGE. The cards, flowers and phone calls have dried up. I’m becoming more aware of the reality of the situation. Trying to get my head round how to be a single parent and at the same time keep some money coming in. I need to find an alternative to my career as it just isn’t doable anymore. The frustration comes from realising that what worked in the past just isn’t going to work now. It’s also so frustrating that the world is still spinning without seemingly even blinking after my partner exited stage left. It feels like I’m fighting this new normality.

The ACCEPTANCE STAGE. Eventually I began to accept the new reality. This is how it is and I just have to deal with it. I came up with a mental picture which I still use today. A door on my former life has locked shut. It’s never going to open again. I can look through the door window and see memories but I can’t touch them. I could stand here forever but this door isn’t opening. So I have a choice. Continue to stand by the door or set off and find other doors which are still open.

The IT’S LOVE STAGE. Linked with the Acceptance Stage. I opened a mental dictionary and found a better definition of grief. It defined grief as another word for LOVE. That sounded so reassuring to me.

The IT’S OK TO GRIEVE STAGE. Up to now I would hide my grief. As if it’s something unhealthy, something deeply embarrassing to others. People might ask how I was doing but they appeared to rapidly change the subject if the answer I provided was not – I’m fine…..But suddenly as grief was another way of saying LOVE, suddenly it became ok to grieve. Yes it could still be so painful but it’s something I shouldn’t be hiding. It’s nothing to be ashamed about. It really is OK to be sad.

The IT’S OK TO LAUGH STAGE. Up to now I felt bad about smiling and laughing. It was just not right. I would focus entirely on making our Son happy but shunned doing it for myself. It took well over a year but the penny finally dropped. Yes it’s ok to be sad AND YES it’s just as OK to be HAPPY.

The IT’S OK TO LIVE AGAIN STAGE. After the funeral all my dreams died. When I looked at life I saw it entirely through our sons eyes. When I tried to see it through my eyes all I saw was blackness. Absolutely no future. However over time it became OK to live again. Remarkably I can still be happy. I can find new doors that will open and create new memories. Life can still be at times sad and painful BUT IT CAN also be fun. Just starting to dream again.

That’s the stage I am at now. Embracing the happiness as much as I respect the sadness. Maybe, just maybe tipping the life balance in favour of fun. Yes it still can be a wonderful life.

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First rant of the month and then the garden beach

Before anyone says anything this photo was NOT today and not 2020……

It’s a bizarre country which I live in.

A place where British war time spirit and a stiff up lip is the way to defeat this unseen enemy – well that’s what our newspapers are claiming. No I think you will find that it’s actually antibodies and vaccines that will do that. Self distancing will help dampen the curve but on its own it will not do the job.

A country which for 10 years has invested heavily in academic testing for an increasingly younger range of school kids. The only principle in UK education is meeting government targets by testing millions of kids, week after week. Test, test, test. Yet the same Government can’t see the importance of testing when it applies to a pandemic. They can’t even provide virus tests for our brave medics and front line carers. Actually the can’t even provide the appropriate protective kit to all our nurses. Suddenly we have a mad scramble for kit, tests and ventilators. It’s not as if the Government didn’t know. Three years ago a study reported to the then Government on how poorly prepared the country was for a pandemic. The Government (including many in the current cabinet) decided to bury the report.

That’s probably why the UK is soon going to have the worst pandemic mortality rate in Europe.

Deep deep sigh and divert gaze to domestic matters.

“Dad would you mind if I didn’t do any revision this week for the school tests. Not sure I’m in the right frame of mind for it.”

Given the current climate why on earth is the school doing exams. Oh I forgot – it’s government policy. Can we just give the kids a break. Especially as the tests are based on such a narrow educational range. It’s more about proving to kids what they don’t know and spotlighting their individual weaknesses. What about letting kids show what they are good at, what they do know.

“Ok Son that’s fine with me. When you feel the revision force is with you then if you want to, then do some. If it’s not then just have FUN.”

And that’s what we did. We had to abandon the planned eat some whip cream while bouncing on the trampoline competition. The pigeons who have adopted our garden have now decided to build a nest right next to the trampoline AND it now has eggs. So we opted for plan b and c. Try to make some homemade ice cream. Followed by setting up our very own beach. In the garage I found a couple of old bags of play sand. So that was emptied onto the little patio and the old kiddies paddling pool was filled with water. Shorts and suncream on. An MP3 file of seaside bird and animal sounds was played on my portable music player. Hey presto we are at the beach. Ok we need to work on the beach sounds. The sound of whale songs and walruses fighting are not that common on the Yorkshire coast – but that’s nit picking. As a safe, social distancing adventure it most certainly worked. Now I just need to rebag the sand for our next trip. Maybe it’s to a desert.

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Sitting here

It’s early morning and I’ve just finished my workout outside in the breezy Yorkshire air. Son is still asleep safe inside. I’m looking out into the distance and seeing no sign of human life. In the far distance you can just about see the main road leading to the coast. At this time of year it should be nose to tail with caravans and cars packed with excited families. Today it is completely deserted. I patiently waited for five minutes. Not one vehicle. Then I fall backwards and look at the heavens. An empty sky. Yes clouds and fleeting glimpses of lukewarm sun, but not one single aeroplane. To the East we can see one of the main air corridors. We often excitedly get the Flightradar24 app out and check where the many planes are heading. America, Canada, Europe, Asia. Today nothing. Not one single vapour trail.

Has the world stopped turning?

Three years ago our little home stopped dead yet the world kept turning. It was a harsh lesson. Even when good people leave us the vast majority of the world is oblivious. In the days after the funeral I would question

Why has the world not stopped…..

Well it appears to have stopped now. Yet does it help. NO.

Later I am inside listening to music on the radio. It’s a sobering experience. Usually listeners are requesting celebratory songs for weddings, anniversaries and birthdays. Today the airwaves are frequently filled with songs dedicated to rock lovers who have lost a fight with an unseen new enemy. My heart goes out to you all. It was only a matter of time before someone requested Alter Bridge and Godspeed. The finest song I’ve come across about loss. My bereavement go to track.

Test me once again
You know I didn’t do anything
Set my life on low
You know I could have had it all
Drifting out of place
With no direction and no escape
Set out all alone
Oh to a place I don’t belong
Without you
I know that I must change
Without you
I’ll never be the same
No
Farewell
Godspeed
And goodbye
You have lived
And you have changed
All our lives
Test me all the way
Surely you know
I’m not afraid
Prove now once again
That I will never see the end
Without you
I know that I must change
Without you
I’ll never be the same
Farewell
Godspeed
And goodbye
You have lived
And you have changed
All our lives
Cast away
Our regrets and all our fears
Just like
Like you did when you were here
And then the days
They ran out
And then the days
They ran out
Farewell
Godspeed
And goodbye
You have lived
And you have changed
All our lives
Cast away
Our regrets and all our fears
Just like
Like you did when you were here
And then the days
They ran out
And then the days
They ran out

Lyrics by Tremonti/Kennedy (source Musixmatch)

Even after a few hours the cars and aeroplanes are still missing. The world may still have stopped. But son is finally rousing himself. Our little world cannot permanently stop. He has a childhood to live and enjoy. So one more sip of my hot drink and find that happy face. Reach for that bag of tricks we all have and find a way to shut this horrible situation out for a while. Start having as much fun as we can. Let’s keep living and hope the world starts turning again real soon.

Stay safe my friends and I really hope you find your own way to smile. Maybe if enough of us do this then we might just be able to start the world turning again.

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Random Tree

A random Yorkshire tree. When it snows, a random Yorkshire Tree positioned at the end of our sledging run. So a random Yorkshire tree with a very hard trunk which I have collided with on more than one occasion. It’s like a Rome. All the sledging runs seem to abruptly end at this tree.

So this morning’s fight with WordPress was a bit of a score draw. On the plus side it went remarkably smoothly and very quickly. On the downside my attempted fix – didn’t pigging work. So the app is still possessed. My comments on many sites just disappear. One explanation is that I’ve upset one of the Spam filters. I might have used a naughty word on a comment (or two ). See kiddies swearing is not big or clever. Anyway until it’s resolved I will keep trying to comment on your sites – a few comments are still sneaking through. Enjoy the peace and waffle free time while it lasts.

So the school version of homeschooling has ended for another week. It’s now the two week Easter break. A break which will probably look very like the last few weeks. Normally we look forward to these two weeks but this time it feels like just the same as the last few weeks. No real change except the school iPad can remain switched off.

But as everyday is FUN DAY let’s try to make the most of them.

It’s good to see school is getting into the celebratory mood. The kids have been set homework and have been given plenty of revision to complete over the holiday. After Easter it’s straight into online exams and YES the delights of spelling tests. Deep joy.

But we are not going to let school put a dampener on life over the next couple of weeks. So at lunchtime we reverted back to one of sons favourite games. Bouncing on a trampoline while holding a bucket filled with water. It’s amazing how even Son’s bucket of water ends up over his Dad. Maybe that’s why the game is so much fun. Then it was back to online lessons and trying to explain to a bewildered son the finer details of love poetry. You might have seen my sledgehammer writing style in Thursdays Terrible Poetry submissions. Me advising on poetry is like asking a pheasant to operate a pedestrian crossing. Some lessons are about personal growth and development. However this one was just about survival.

After the last lesson of the day the Easter break started with a dog walk. A walk to our sons self imposed world boundary. And a look over to a distant random tree. A tree beyond our little world. Let’s hope that when we get snow again, once again all our sledge runs will be able to meet this tree again.

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Like new

Two daily visitors waiting patiently for breakfast. I must clean the gutters….

After yesterday’s unplanned washing of my mobile, I found myself outside in the cold early morning air. Doing a great workout supplied by a very kind friend and listening to music on my super clean phone. Crystal clear sound. In fact it’s never sounded so good. Maybe I should try my body out in a quick machine wash cycle. If only I could fit the car in our old washing machine.

I was a bad parent last night and I’m not talking about letting son watch Deadpool 2 again. School emailed all the parents to say that they had not been picking up all the students who had been submitting inferior work or worse submitting work late. So to rectify that the only thing they could do would be to send out an email each night at 11.30 to warm parents about any issues which may have occurred with their kids online work for that day. I can imagine many parents sending letters of approval in or even asking for a tougher stance from school. I took a slightly different stance on my short reply.

Please don’t bother.

This morning followed up with a much longer reply basically talking about how tough it is for many kids at present and how about school using the resources they were putting into this sanction into doing something positive – something fun for the kids. Maybe even allowing some social interaction with friends. I’m not hopeful but at least it will get me another black mark in the awkward parent log.

Anyway school might not do fun but that doesn’t mean that we can’t. It’s so important we all find ways of still living. So in between online lessons we have squeezed in some activities. Bouncing on the trampoline, Jenga, air hockey and jelly making. Then after the school day had finished we made some cakes. Played football and attempted to build the largest possible Lego tower. Unfortunately due to the wind, curious pets and my eagerness to build higher before a stable base was formed – it didn’t get much higher than 5ft. It clearly had the same design fault as Trumps Mexican Wall. Oops that’s going to bring on my fan mail from Texas again.

Over Easter we will definitely revisit the Lego tower. It might even stand up long enough to take a photo. The point is that actually fun day is not enough. It really is so tough for kids to enjoy their childhood in 2020. So much anxiety and so little space to dream. So fun day is now fun EVERY day. Maybe just like my mobile phone, we can find ways (maybe unusual) to improve things in life. WE can do this.

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Foreseeable

Looking back from the edge of the micro world. Our little village increasingly isolated. Sadly we can’t take this walk now. Son started to freak out about having to touch so many farm gates – just in case. So we are restricted to hands stay firmly in our pockets walks for the foreseeable future. How long is foreseeable these strange days….

After yesterday’s accident mayhem we approached April 1st with some trepidation. What enhanced carnage would April Fools Day bring. As life is clearly so foreseeable the answer was rather surprisingly – NOTHING. No accidents. No backfiring pranks. Zip all went wrong. My family tradition was that April Fools Day ends at midday. No accidents by lunch to distract from today’s aim.

We decided to make today a fun day. No talk of the bad stuff happening in the world. No depressing talk. No news. A day of respite amongst the mayhem. I keep saying this but if it’s bloody tough for grizzly old farts like me, what the hell is it it like for our kids. The adults are not that good at living like this, kids most certainly are not designed to live like this. So that’s why today was going to be a rebalancing day. That was the plan but not everything is foreseeable…

Today’s first lesson was Religious Studies. Given the current stress and anxieties kids are facing why don’t we pick a fun or light topic. Well the teacher picked a belter.

Look at four different countries and see what their approach is to DEATH. What are the funerals like….

Well that’s a real laugh a minute project. What next, how about History looking at the Black Death, Geography looking at the spread of pandemics, Science taking a closer look at the Ebola mortality rates.

So we have postponed the fun day for the foreseeable future. As that is clearly not very long we shall be having it tomorrow. Once we rearranged the fun day and put April Fools Day to bed for another year we could get back to normality for the rest of the day – household madness.

Have you ever pressed the start button on the washing machine and as soon as it starts spinning you notice something going round which does not look like an item of clothing. As the machine slowly turned and a rouge object kept appearing, my mind whirled – what is it. Then the penny dropped. It’s my mobile. Oh bugger. An hour later it emerged looking sparkly clean but a little soggy. In a further moment of madness I decided to put it in the pocket of one of the washed jeans and tumble dry it. Maybe that will dry it out. Please children – don’t try this at home. Only really tired parents are allowed to do such stupid things. Unbelievably the super clean phone came out dry. And it still works although I may wait a day or so before I try to charge it up.

So in our foreseeable world tomorrow is fun day and today has been ‘wow my ancient iPhone is sparkly clean day’. Who needs April Fools Day for the foreseeable future.

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Toy Story

Lovely midday weather here in Yorkshire.

It’s funny how you can overthink even the simplest of tasks. We try to make Saturday evening the official movie night of the week. A regular thing for son to look forward to. Popcorn, cola and a great movie. We save up new movies for the full Saturday experience. If we don’t have a new movie then the next best thing is a blockbuster. For days I had been working on a list of potential movies for this Saturday. Scores of candidates slowly whittled down to three favourites.

The Martian

Terminator – Dark Fate

Rocketman

So Saturday night arrived. I proudly gave son the list of three movies.

“Ok Dad, let’s watch Toy Story.”

And with that it was Woody and co. A top top movie. Perfect escapism for today’s anxious world. But how much energy did I waste on picking an unused movie list. But I guess the point is that it successfully distracted me for a few days. While watching the movie I played my usual game of trying to pick which character I was most like. Toy Story was easy, clearly I am Rex. Although this morning I am a bit more Mr Potato Head.

We often forget how stressful the current situation is for kids. Confined to base, seeing parents stressed, unremittingly bad news on social media, kept apart from friends. In our sons case the confined to base and kept apart from friends is not really an issue. But his Aspergers requires routine and controllability. These have gone out of the window over the last few weeks. Adjusting to different daily routines. Food on the set weekly schedule (which has been in place for years) becoming unavailable. A completely unpredictable world. The fear of illness and worse ramped up by a spreading pandemic. He’s so young, had to deal with so much already and he’s facing this.

He asked what my best guess was for when things might begin to settle down a bit. Sadly I couldn’t say anytime soon. When he asked about schools opening and I couldn’t see anything happening and sticking before September.

“Dad is that September 2020 or September 2021”

I wouldn’t like to bet my shirt on that. We just don’t know who long the current restrictions will be in place for. When they do come off, how long before they need to be reintroduced. But we just have to deal with that. I’ve got to focus on the one overriding aim. Give son the best childhood possible. So we make the best of the new normal. Strengthen the new routines. AND above all try to have as much fun as possible. So Toy Story is perfect. It’s fun. Thank you Woody and co.

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Hotel Window

Another cold start. I’m calling it an official three jumper day.

One of those cold starts that as hard as you work out, or regardless of how many warm layers you put on – your still cold.

The first week of schools version of homeschooling has now finished. Some subjects did embrace the opportunity. These offered the child a chance to be creative and to see where their learning interest would take them. Sadly that was not much of the week. Most of the lessons reflected the normal parrot learning teaching approach. What is the point of getting someone with dyslexia to translate page after page of French (without any context or help). What is the point of setting an online spelling test where the spoken words are so rare that I had to look every one up in a dictionary to see if they actually existed.

But he survived. The parent got through it as well. So that’s something.

Whether it was my lack of sleep, the unremittingly grim news or a week of homeschooling but last night I couldn’t get a thought out of my mind. Maybe, just maybe this is our world now. No more holidays. No more new lands. No more Switzerland. Certainly the financial shock of the next few months will take me a number of years to repair the bank balance. Generally travel may become more difficult over the next few years. Aspergers and the fear of social interactions is certainly not going away any time soon. So maybe that’s it with travel.

That’s sad but actually there is more to life than travel. So much to see and visit close by if it comes to that. Anyway we have not had a holiday since 2015 so we are used to it anyway. Doing virtual tours is a fun, safe, environmentally friendly and is so much cheaper. Then a thought crossed my mind. It was inspired by Basil Fawlty (John Cleese) while we watched Fawlty Towers. Basil was getting seriously cheesed off with a guest who was disappointed with the view from the bedroom window.

“Well may I ask what you expected to see out of a Torquay hotel bedroom window? Sydney Opera House perhaps? The Hanging Gardens of Babylon? Herds of wildebeest sweeping majestically”

Actually could we scale the virtual tours up a notch. Why don’t I pick a window with a chair next to it. Then why don’t I stick a poster or large photo over the window glass. Suddenly my view of say the trampoline could be transformed into whatever I fancy. I’ve seen other people do this in the past. So tomorrow I am going poster hunting. Got a couple of belting posters of The Alps to find.. But in the meantime I’m hoping my bedroom window will look something like this.