Posted on by bereavedandbeingasingleparent · 41 Comments

Dark clouds

Midday dog walk, under the rain clouds, YES it felt that dark .

Almost daily headlines about how Special Education is in crisis in the UK. Councils can’t afford to keep up with rising demand, parents are struggling to access the support their children really need and schools are being pulled in a million directions with limited resources. The tragic result is that way too many children are being let down by the education and health systems.

But is it the real pressing thought for everyone. Is it the real issue for the Mainstream Media, the Politicians, the Service Managers and the Government.

I’m not hearing much in the debate about how we can better help the children who need the support. What I’m hearing is….

We are spending way too much on Special Education….

Special Education is diverting too many resources away from Mainstream Education…..

Pushy Parents playing the system…..

We can’t justify the rise in demand for Special Education, something is going wrong, there can’t be that number of real children needing real help…..

Why should Hard Working People have to pick up the rising bill…..

There is growing noise from Government that change is coming, but who will this change be for.

Currently there is a huge obstacle course ultra marathon which needs to be fought out for months and often years before a child is granted an Education Health Care Plan (EHCP). This is a legally binding document that is supposed to ensure that a child gets the necessary support they need. The EHCPs aren’t perfect, a child can still miss out on support, but they can help. It’s a baseline to work from. Hawklad was granted one after 2 years of fighting the system, he was backed by his Doctors and Primary School. After getting the legally binding document, some support started to arrive and it really helped BUT then …

  • If services are cut completely then the support they provide is just not available. Hawklad was identified as needing help with his speech and started work with a Speech & Language Professional. Real progress was made, then the Service was cut in a wave of budget cuts.
  • Some services are stretched, with real underfunding leading to long waiting lists. Hawklad was due to work with an Educational Psychologist. In our area there were 2 Professionals covering a huge geographic area and over 300 schools. After a two year wait he received an initial 30 minute assessment then was due for further work, he was never seen again, never made it to the top of the waiting list. Some services navigate the long waiting lists by just increasing the need threshold levels. Hawklad needed help with his fine motor skills and handwriting but revised thresholds resulted in him being removed from the waiting list. Even now, he really struggles to write,
  • At Secondary School things changed, the school approach changed. In a small school he received dedicated teaching time, the move to a much larger school removed that dedicated time. The funding he was granted was given to the School and added to the general teaching support budget. Each class of up to 30 pupils had a Teaching Assistant there to support the Teacher. That support hardly ever filtered its way to Hawklad. The teaching approach was if ‘a student doesn’t put a hand up to ask for help then the assumption is the student is fine, no assistance needed’. Hawklad never put a hand up even when he couldn’t read stuff, he didn’t want to shout out in front of other children that he couldn’t read… Like many children with special educational needs, in the larger schools, they become lost, assigned to the Bottom Set.
  • At the age of 18 most support services end. It doesn’t mean the need has gone, it just means there isn’t an equivalent adult service to provide support. At 18 it’s basically ‘you are on your own now……’. Hawklad now has no support and we both can see the negative impact that is happening.

These issues are not unique to Hawklad, many are facing the same or way worse. But my fears are that the current policy change drive has nothing to do with these educational issues, improving support for future pupils. It feels more like a balancing the spreadsheet bottom line exercise. How can we cut the Special Needs Budget, how can we restrict the number of children receiving support. Maybe the Government is looking at get rid of EHCPs and the legally binding stuff, then it’s game on to make proper, real cuts.

I hope I’m wrong but it is starting to feel like even more dark clouds are rolling in for many great kids in our schooling system.

Posted on by bereavedandbeingasingleparent · 43 Comments

Night shift

Misjudged a late evening walk. Walking past a graveyard, located down a very deserted country lane, just as the night roles in. Always a bit spooky.

Somethings are always a bit unnerving.

In the UK, having to contact a company called BT, that’s unnerving. BT is a big telecoms company.

BT aptly can also mean Bloody Terrible…..

BT provide our broadband and telephone service. Both have been broken for 6 days now.

Do you remember when you had to queue when ever you went into a branch in person. Then the Call Centre was introduced and you ended up queuing for that, listening to the endlessly awful piped music and recorded message – ‘your call is important to us’.

Then CONTACT US ONLINE was brought in to stop the hours wasted waiting in person and on the phone. With good old BT you now have to queue online to use their online service.

Initially the wait time was 15 minutes, which in normal time was actually over an hour. The ‘less than a minute’ wait time turned out to be another 20 minutes. Deep joy.

Fast forward 6 days and still no telephone or broadband. Back on to BT again for the 6th day running. This time going old school, having to use my mobile to call them. Apparently to the BT person, we weren’t a customer priority as we were just a reduction in service rather than a service down issue. I was keen to understand if we only get two services from BT, and both are 100% not working, why wasn’t that service down. Service reduction sounds like we are still getting some services….

On the call, I think my tone went from friendly, to cordial, to a little gnarly… But nothing over the top, no raised voices, quite calm really. But it was a bit too much for Hawklad. One of the things he’s always struggled with is conflict. It throws him, he gets anxious, completely on edge. I have to be careful and over the years I’ve got better, much calmer, trying to avoid putting him through those emotions. Very few things brake me out of calm mode these days. My Football Team’s inability to pass to a colleague and the name ‘Nigel Farage’ are the only things recently to bring on the red mist. But I can’t micromanage every situation. When he went to school, one of the things that constantly unsettled him was the daily, frequent conflicts. Teachers raising voices, pupil on pupil stuff. He would frequently struggle to differentiate between real conflict, minor disagreements and play acting. I wonder if it’s because he struggles to read social interactions, pick up on tone, body language, taking some dialogue too literally. It could be that he really doesn’t like seeing anyone suffer or be hurt. But it does make the modern world a difficult place for Hawklad to fully integrate in to. We are still trying to figure that one out.

And yep, still no broadband……

Posted on by bereavedandbeingasingleparent · 39 Comments

The elephant in the room

There is a lot of political and media focus on certain carefully framed questions at present in the UK…

  • Why are so many parents keeping their children from attending classroom education?
  • Why are there so many autistic children now compared to in the past?
  • Why are schools having to divert so many resources away from core teaching and into special needs support?
  • Why is there such rising demand for Child and Young Person Mental Health Services?
  • Why are so many young people unable to work and pay taxes?
  • Why are we spending so much on disability and carer benefit support? Why is it so easy to claim……

I will say it again, these are CAREFULLY FRAMED. All designed to support a narrative about the pressure this puts on businesses and hard working taxpayers. It’s like the framed questions and narrative which is being pushed about how immigration is causing unemployment, the lack of affordable housing, the breakdown in communities and public services. As a result many in our society now find themselves very much labelled as problems, a burden on others….

I find myself increasingly feeling at odds with the direction of travel the country is heading in. I guess I’m not the only one increasingly feeling like our voices are being drowned out.

Deep sigh….

In all this, in all the political, press, tv and social media coverage I’m not hearing three issues ever being discussed. I guess because they don’t fit in with the CAREFULLY FRAMED NARRATIVE. The large elephants in the room.

Just how difficult, stressful the process is, just how many hoops you have to jump through to try and claim any sort of financial help, disability and carer support. And when you get that support it is at best mo more than the bare minimum, it is NOT a life of luxury.

Child and Young Persons Mental Health Services are stretched to breaking point. It’s a service that has been cut back and underfunded for years. Huge delays in accessing services, services spread way too thin. Again it’s also a nightmare trying to get a young person registered for these stretched services. In our case it took two and half years. A process designed to discourage use. Far too many miss out on the help and support they badly need.

In the UK, as soon as a young person hits 18 they are signed off the support service. There is no equivalent adult service. With Hawklad his Care Lead wanted to hand him onto another service to continue the support after he reached the age threshold, but there was no service to hand him on to. So he was signed off. Support ended. To the number crunchers and spreadsheet decision makers, he is now classed as FIXED as he has been signed off from support. How many young people, how many families suddenly find themselves with no support, no help, no one to turn to. How many don’t even get the support when they were younger. The question shouldn’t be why are so many young people unable to work, why are so many listed as …… it should be why are we LETTING so many young people and adults DOWN.

Posted on by bereavedandbeingasingleparent · 34 Comments

What they need

Kinda sums up the Yorkshire weather this week…

Foolishly I listened into a radio phone in as I drove towards home. I think the show was supposed to be a discussion about the proposed disability benefit cuts but had rapidly become a ‘this is how you parent’ rant. Caller after caller jumped on a populist bandwagon. Far too many young people are receiving benefit payments rather than being FORCED to work. Mental Health issues, autism, adhd, you name it were modern day fairy tales allowing the youth of today to stay in bed, play games and be PAMPERED….. ‘In my day’ the rants continued, National Service and a good clip round the ear was the answer.

Not one young voice was aired.

Not one Health Professional voice was aired.

Not one parent voice was aired who had any experience in supporting a your person with daily, life affecting real needs.

I would have called in but strangely the show never gave out a number as the switchboard was jammed, I suspect with even more ‘in my day’ tirades….

After thirty minutes of this madness I switched off and drove the last few miles in stony silence.

This is supposed to be 2025 and it might well just have been Victorian times.

Posted on by bereavedandbeingasingleparent · 25 Comments

Huts

Tropical Scarborough on a blisteringly hot Autumn Day.

Forget the ice cream, hot soup was the order of the day.

Not sure if it was just the weather but when I offered to buy one of the brightly coloured beach hutches, Hawklad firmly declined…. The huts cost between about £70,000 to £160,000. You can rent them as well, Peak times set you back something like £300 for a week. For that you get a few kitchen items, a sink, deckchairs, use of the shared public toilets and free pet seagulls.

Peak includes Christmas, Wow that would be a brave call. Not sure the paper party hats would stay on too long with the inevitable Winter North Sea skin shredding sand blasting wind and icy horizontal rain.

Walking along the beach we passed a few groups of teenagers clearly starting the Half Term Break with some beach fun. I couldn’t help think about how Hawklad might view these scenes. It’s a part of teenage life that has so far eluded him, spending far too much time with his ancient relic of a Dad. Not sure those teenagers would spend too much time discussing beach huts…..

Posted on by bereavedandbeingasingleparent · 49 Comments

18

That’s a proper sign post, although I’m not sure how feasible it is to walk to Canada or The US from this part of the world.

Most of the support had already started to be pulled from Hawklad when he approached his teen years, that’s how it goes in the UK. Now at 17 the inevitable letter arrived. At 18 he will be signed off from the last service still providing support to him and his care will be handed over to Adult mental health care. In other words, the day he hits 18 any support he may need will need to come in the form of self help, or from family, friends, internet, leaflets and a few overstretched voluntary groups. NOT from health professionals.

As a Paediatrician cautioned me when Hawklad first started receiving support

Some support and help could be required for life. The level of support required may diminish over time, sometimes no support is required but often the level of support can grow as people try to forge their own adult life. But when someone reaches 18, we stop asking as a society, in fact we stop providing the support almost completely. Child Mental Health will inevitably hand over virtually every child under its care to an adult service that doesn’t exist in the UK. After that if someone picks up the courage to go to see a doctor, in most cases that doctor will have little real understanding of areas such as autism and will probably just want to put a plaster over any problems in the form of Anti Depressants.

As adulthood fast approaches for Hawklad, I keep increasingly focusing on the immediate future, the next stages. Trying to develop that independence yet worrying about where he can turn to if he ever needs support. It’s a sobering thought sometimes.

Posted on by bereavedandbeingasingleparent · 47 Comments

Catch up

Can you believe it. 14 months of school at home. Just over half of that time has happened with most of his classmates back at school. Trying to maintain a remote link with his class was always going to be difficult. It can never be perfect. Especially when the Government’s attitude has been to try and force all children back into classrooms as soon as possible. Schools instructed to make it more difficult for children to work remotely. Schools and parents threatened with legal action if pupils are not back in the class. Our school wanted to offer a remote learning option. Wanted to change the school week with most pupils spending part of the school week, remote learning. Wanted to tailor education and create a better school working environment. Unfortunately that was not allowed so the remote learning option had to be largely turned off. That makes things much harder…..

Revision is supposed to start for the upcoming school year exams this week. No idea how they will work for Hawklad. But the individual subjects are now issuing revision guides. Indicating which pieces of school work have to be revisited and revised. In a couple of subjects there are no surprises – we have covered those areas, undertaken the work required. But then there are other subjects. Areas that the class have undertaken that Hawklad was not aware of. In a couple of subjects clearly large tracts of class work, entire areas have not been shared. Is it ok to call it revision when he’s visiting an area for the very first time.

It’s such a mixed bag. Yes a couple of subjects have exceeded expectations, Hawklad has done the entire teaching requirements. A couple have been kind of as expected, covered most areas but with gaps. And some subjects have gone so much worse than expected, with Hawklad being so far behind his classmates.

Surely in the modern world, with everything that technology has to offer in terms of keeping connected, surely my country should be so much better at remote learning. So much better at EDUCATION.

Posted on by bereavedandbeingasingleparent · 55 Comments

Transition

Have we transitioned to home schooling without thinking.

Another week of family lockdown. Another week of school at home. But things are changing. Increasing amounts of the school day being unsupported. Yes a couple of lessons still try to provide good teaching support but…… The other subjects provide support which is at best patchy and often not there at all.

So what are the scores on the school doors this week….

Lessons this week 20

4 lessons well supported

7 lessons providing a little support, enough to allow us to try and fill in the missing sections

9 lessons absolutely NO support, no idea what was done in the class, don’t even know which area the teacher looked at.

So the amount of classroom radio silence is creeping up every week. Some subjects have gone weeks without any feedback or guidance. Without support we are having to do our own thing. No idea if Hawklad is working on the same areas as his classmates in a range of subjects. So increasingly what he is learning is determined by him and his hapless dad, not be his teachers. That’s starting to feel like homeschooling. With no classroom return imminent, maybe we have transitioned to homeschooling by accident.

Posted on by bereavedandbeingasingleparent · 54 Comments

Nothing to see here

I was reading a news article about home schooling during the lockdown. A government politician was quoted as saying basically that all children needed to be in the classroom. No exceptions. Pupils discipline and grades had deteriorated during lockdown. Homeschooling could never work properly.

Ok so the last year must have a write off for Hawklad

Well let’s think about that…… Over the last year his grades have gone UP. So well that he was moved up sets. Look at his best subject. A year ago he could talk for days about British medieval history. He could name and describe every English monarch. He could talk well about Roman history. A year later he can still do that but now listen to him confidently talk American, European and Chinese history. Listen to him talk about recent world history, Classical Greek times…. you get the picture.

He’s expanded his knowledge on the animal kingdom.

He’s getting great marks now in English Literature. Macbeth, Animal Farm are well within his grasp.

A year ago we were fighting to get him support for his dyslexia. He needed assistance to read even the simplest text. A year at home and he hardly ever needs to ask for help with reading. He can do it himself. Yes he has to skip some words but now he can read articles on line. He can read books now. Slowly yes, but read definitely. 7 years of classroom teaching and he’s made the leap forward at HOME.

I’m no superman. No Yoda. No expert in teaching. Watch me look blankly in most subjects. I’m a bang average parent. Homeschooling has just suited Hawklad. He’s more relaxed. Can pace around. Can jump around subjects. Take breaks. Look at things he wants to. No pressure asking questions, no anxiety putting his have up in front of an overcrowded classroom. It just works for him.

Here’s the thing, the traditional classroom will suit some children. But not everyone. So why do THEY force all kids through the same hoops. Through the same moulds. Through the same exam routes. If the last 12 months has taught us anything it’s that we need to cater for all children. One path just isn’t enough.

Posted on by bereavedandbeingasingleparent · 37 Comments

Grey

It’s a grey morning definitely in need of a few smiles.

We have both just sniggered a bit. Trying to help Hawklad with his school at home day. It’s French. I’m not much help really. German yes I could help. Speaking gibberish certainly could help. French not really. It doesn’t help that French is one of the subjects that he isn’t getting much support with these days. So he often just has to look at the online class chat system. It’s sometimes used in class and can give at least an indication of what the lesson is supposed to be all about. Maybe even provide some of the questions the class are working on. Well that’s the theory…..

This morning no set work provided so all he can do is crack on with other subjects or find things to learn about and wait… Today he was researching the American Civil Rights movement while waiting for anything from French. Then a class comment was posted. 

ma belle-mère a bu trop de champagne et ma grand-mère est tombée du cgair.

“Oh my….Dad. Whats that supposed to be”

Wow is there anything else.

“No Dad just that. Any ideas apart from it’s about a Grand Mother and a Step Mum”

It surely can’t be what I think it means. Have a go at translating it with your dictionary

“Dad it means thanks to Google “My step mum has drunk too much booze and my grandmother has clearly been at it as well and fallen off the chair…. “

Yes I thought it kinda did mean that.

“Ok Dad as given my family world I am unlikely to need those French words, can I ignore it and get back to Martin Luther King.”

Yes you certainly can……