A letter dilemma

Out of the blue I received a letter addressed to my partner. It was a friend who clearly hasn’t heard the sad news yet. Reading the letter was heartbreaking as this lady had tragically lost her husband. She was clearly in a bad place.

This leaves a dilemma. Do I tell her or not?

I know the right thing is honesty and I should inform her. And yet…. does someone who is in such a bad place really need another piece of bad news. I told our son when he noticed that I was distracted. Interestingly he said that I shouldn’t make her even more sad. I had assumed his Aspergers Truth Filter would have made him say – just tell her straightaway. It rather puts a lie to the frequently heard argument from experts that people on the spectrum are cold and uncaring.

Even after a few hours I can’t make my mind up.

It doesn’t help that I remember when my partner found out about a friends death. She had met this wonderful lady from Channel Islands on a trip to China. They became good friends. I remember she came to stay with us for a few days. We hadn’t heard from her for a few months. Unfortunately a birthday card my partner has sent her was returned unopened and marked ‘person has died’. It had such a profound effect on my partner, I’m not sure she ever fully healed from it.

The circumstances are different but do I want to put someone through this now. I really don’t know. I just don’t know….. What I do know is that I can feel those icy fingers of sadness starting to circle my soul again.

12 uncomfortable things

Our son realises that he doesn’t naturally fit into this world. Certainly not in its current format. His attitude is basically

I might wait for the world to come round to my way of thinking but just in case I had better dip my toe in the icy cold water which is the big bad world. It’s something I’m not going to enjoy but it’s probably worth it….

As part of this process we have agreed to visit 12 new places this year. Doesn’t sound a big commitment but in-fact it’s huge for our son. We will have our first new excursion next week….

Tonight we started discussing potential places to visit but somehow the conversation careered off topic. It suddenly became name 12 things you like about you and your life.

I went first and it was a really uncomfortable experience. I do find it difficult to think constructively about myself these days. So much easier thinking about negatives. Anyway for someone who basically hates himself I kinda did ok

  1. Son
  2. Memory of my partner
  3. Family
  4. Pets
  5. Friends
  6. My eyelashes
  7. I am pretty fit
  8. I occasionally can be mildly funny
  9. Musical taste
  10. Decent imagination
  11. I’m kinda resilient
  12. I’m still here

Son went next with his 12 things he likes about his life

  1. Family
  2. Jimmy – Dog
  3. Bluey – Cat
  4. The gerbils I am going to get for my birthday (mad scramble – news to his dad)
  5. My dreams (don’t care if people think it’s not right for me to have dreams, I still dream)
  6. My house
  7. I’m funny (don’t care if lots of people think otherwise I still think I’m funny)
  8. I’m cool (don’t care if lots of people think otherwise I still think I’m cool)
  9. I’m clever (don’t care if lots of people think otherwise I still think I’m clever)
  10. I’m tall
  11. My memory (don’t care if lots of people think otherwise I still think I have a good memory)
  12. My ambition to be a scientist or a zookeeper or a wrestler or a goalkeeper or a falconer or a historian (don’t care if people think I can’t do these things …)

I think this reveals that he is quite comfortable with himself. The problem is that he doesn’t have that much faith in the outside world. I could go on but GERBILS are a pressing concern……

Fight Club

When you set your children off on their educational journey you have dreams of an idealistic life of happiness, development and fulfilment. Then you wake up…

On todays episode of Fight Club.

An argument broke out on the morning school bus. Several kids got involved in a heated exchange. Resulted in one of the protagonists being hit over the head with a bottle. Thankfully a plastic one.

In the first lesson a boy accidentally bumps into another boy. Quickly a pushing and finger pointing encounter develops. This is broken up by the teacher and negatives are issued.

In the next lesson boy X makes a not very nice comment about boy Y. This escalated into a missile exchange. Pens, rulers, calculators and books are launched. Again the teacher breaks this up and more negatives are issued.

In the final lesson of the day boy Y makes a comment about boy X. Suddenly a chair is hurled and a full fist fight breaks out with a few other kids getting involved. Teacher issues negatives and a couple of isolations.

On the afternoon school bus one boy accused another one of being unpopular and without friends. Quickly punches were exchanged. Several other kids got involved. Ended up with one boy in tears with a bloody nose.

Thankfully our son was just an observer in all these incidents. He did get hit by a stray projectile but it wasn’t intended for him and absolutely no pain inflicted. Not really sure how he views these incidents through his Aspergers filters. I suppose it teaches him about life. It might encourage him to start a martial arts club – these can really help with confidence and coordination. It highlights the issues many kids face when they are assigned to the bottom set. It’s certainly makes homeschooling look more attractive.

18 minutes

This is a week of school tests. At the moment it’s due to be 4 tests. French (x2), Science and History. I’m pretty sure they will sneak in a couple more before the week is up. I keep reminding myself our son is still only 11 – just too many tests for someone so young.

French could be interesting. One of the tests is a reading test. The kids need to read french text and then get the pronunciation correct. No reading help can be provided. The positive is our son is currently quite relaxed about this test. As he says

“I’m dyslexic so I will just do my best. On the basis of probability I should fluke a few words. And the worst thing that can happen is I get to be dyslexic in another language.”

Today was the History test. When I asked how it went the response was interesting

It went well. Didn’t get much help. All about Kings and Queens. But the questions where just too easy. As long as I guessed all the questions wording right then I probably got 100%. Probably a few minuses for spellings. I finished a bit early”

How early did you finish?

Well it was a 60 minute test. A couple of the other kids finished after about 40 minutes. I was a little bit sooner.”

So how soon did you finish?

I was finished after 18 minutes….”

Let’s break some rules….

Our school like so many others prides itself on discipline and the behaviour of its pupils. This is achieved with an inflexible set of rules. If a pupil breaks a rule then it’s an automatic negative. Four negatives in one week means detention. Repeated detentions bring the sanction of isolation. A serious negative can lead to an immediate spell of isolation. It’s all a bit Dickensian – was going to say Shawshank Redemption but that’s probably not a good example to use really…

The rules must come in about 7 volumes so too many to list. But let’s give a flavour by quoting some of the negatives which our son has seen issued.

  • Unbuttoned shirt
  • Incorrect positioning of the tie
  • Throwing a snowball – after school and not on school premise
  • Small coloured markings on white sport socks
  • Parent not signing off the weekly planner sheet
  • Forgetting your planner or text book
  • Incorrect colour pen used. Has to be black, unless it’s a correction which has to be green – still haven’t worked out what blue is supposed to be for
  • Forgetting to bring your cooking apron
  • Bringing the wrong measurement of food ingredients
  • School iPad running out of battery
  • Carrying snacks in a rucksack
  • Going to the wrong lesson if you misread the timetable
  • Getting lost in the school – it is a big school area with several separate buildings
  • Bringing the wrong type of calculator
  • Repeatedly asking to go home if you are unwell
  • Pointing out that the teacher had got a fact wrong (son’s only negative so far)

And on and on

Our son came home yesterday to say that he had to complete a series of corrections in his book. Failure to do so would result in two negatives…. When I checked he had one answer correction to make – fine. But he also had to correct spellings. As you can imagine with dyslexia he had many. We had the dreaded red “spelling mistake” label on almost every line. I gave up counting at 30.

The school has another rule which says that for every spelling mistake the pupil has to write out the correct spelling three times.

Call me awkward but he’s got dyslexia. How can this be right. I have spoken to the school on several occasions but I am told it is the rule for all pupils. Well bugger it. I have emailed school to tell them that he is not doing the corrections. We will add the words he has struggled with to our home reading work. But he is definitely not writing out the corrections three times. If he gets a negative for this then I have warned them that I will consider legal action against the school. U.K. organisations need to take reasonable steps to avoid discrimination on the grounds of disability. Under the Equality Act Dyslexia is classed as a disability. OR the school could just give me the detention – that could be really interesting (unbelievably I have never suffered that punishment).

Being stupid

Son accidentally knocks something off a shelf and it’s smashed. Son is mortified but I try to reassure him that it’s fine. These things happen to everyone. But he’s not happy.

“It’s because I’m stupid. It’s the same as why I am in the bottom set, it’s because I’m stupid. It’s the reason the teachers don’t spend much time with me, it’s because I’m stupid.”

Poor kid. It is so difficult for him. His logical mindset cannot fathom out school politics. He can see kids he consistently gets higher marks than sitting in sets above him. He can see teachers focusing on other children in class – often the disruptive ones. He hears me and the health professionals complaining to school about them not recognising his potential – but nothing happens.

Today homeschooling is looking a likely option. Practicalities still to be worked through. Finances will be a challenge. Maybe looking for a switch in the summer. This allows for one final push with school. Months to sort out the details – plenty of time.

Piece of cake. Talking of a piece of cake.

Our Prime Minister is still telling us that we can do Brexit in a few weeks. Really.

She assures us that they have the best people handling the process. Really.

My Dad wouldn’t have trusted them with a stick of rhubarb never mind the keys to the country.

But our Government does have it uses. They give us so many examples of real stupidity. I told our son about how our Government had decided that we needed extra emergency ferry capacity. The Government decided to give the contract to a company which has never run any sort of transport service and unbelievably doesn’t have any ships….

When our son heard that he smiled and said “Now that is properly stupid. Maybe I’m not as bad as I think I am.”

Son you are brilliantly gifted. Unfortunately the Government is not…..

Silence….

5 Days 14 Hours xx Seconds

No my blog has not been sponsored by Jack Bauer and the 24 TV Production Team. It’s the time I’ve gone without speaking to anyone (excluding our son). I’m not sure if I should be proud or a tad worried. Maybe both.

So almost a week without a phone call, chance meeting or random conversation. Even on two long runs – didn’t bump into a single person. Its one of the prices you pay for living in a small village.

It’s an odd feeling. Have I been secretly ostracised. Has my liking for Nickelback finally caught up with me…….

I had assumed my streak would have ended today as today was the food shopping trip. However I managed to get round the aisles without uttering a word. I did smile a few times at random folk. Surely a conversation will be struck with the assistant on the cash till. But no. All the tills were full so I opted for the self service lane. No scanning problems encountered so the streak continued.

Tomorrow I have to go to the work unit but that is in a largely deserted industrial estate and I will be the only person in our building. So the streak may continue into Thursday. Hang on a minute Thursday is Valentines Day. Wow am I going to be seriously cranky by the 14th…

Anyway we have started a little wager, who will break my streak. I’ve gone for a random cold caller with my first words being “will you just bugger off”. Son is going for the postman or randomly a lost Donald Trump.

I will keep you posted…..

No more than four words

We tried a new game a few hours ago. We had no more than 4 words to describe someone. It initially started as purely a wrestling game but spread out into the wider world. It sounds easy but I found it extremely testing. Just shows how verbose I have become.

Anyway it started off with Wrestling.

AJ Styles – Son (Best Wrestler on Earth), Dad (He has lovely hair)

Becky – Son (The Man) *** that’s on all her T-shirts

Undertaker – Son (A bit creaky now) Dad (Older Than Me)

Edge – Son (Best Entrance Music Ever)

Kane – Son (Still my favourite)

Brock Lesnar – Son (Paid Too Much) Dad (Scary but very boring)

Vince McMahon – Son (Likes Pretty Women) or (Likes Big Sweaty Men)

Then we went outside the Wrestling world

President Trump – Son (Sneaky and not nice) Dad (Plays too much golf)

Stephen Hawkings – Son (Science GOAT) *** GOAT stands for Greatest Of All Time, Dad (Appeared on The Simpson’s)

Einstein – Son (Science Second GOAT)

Homer Simpson – Son (Dad)

Hillary Clinton – Son (How did she lose)

Barack Obama – Son (Very Nice Clever Man) Dad (Can We Have Him)

Bill Clinton – Son (Cheeky and Naughty)

Bono – Son (Dad hates him) Dad (I hate him)

Gordon Ramsey – Son (Never heard of him) Dad (###@### f### off)

Bear Grylls – Son (Too mean to Bugs)

Squidward from Spongebob – Son (Dad)

PewDiePie – Son (YouTube Sensation) Dad (Who ???)

JK Rowling – Son (Made Money from Magic)

Patrick from Spongebob – Son (Dad)

Messi – Son (Footballs GOAT) Dad (Sign for Newcastle Please)

Arnold Schwarzenegger- Son (Terminator) Dad (Get Into the Chopper *** with an Austrian accent)

David Attenborough – Son (Mr Wildlife, Legend)

James Bond – Son (Drinks, Women, Guns) Dad (Sean Connery)

Prime Minister May – Son (Useless and Not Nice) Dad (Worst Ever PM)

Angela Merkel – Son (Proper Leader) Dad (Better than ours)

David Cameron – Son (Useless but almost nice) Dad (Caused this Brexit mess)

David Beckham – Son (Overrated) Dad (Never Liked Him)

Bill Gates – Son (Very Clever Very Rich) Dad (No More Updates Please)

Put in my place

The directness and purity of autistic children is a blessing. It certainly puts you in your place….

I told a really bad joke and got no reaction. So I told it again but this time started to explain it.

“Dad just stop. You don’t need to repeat it. The greatest artists and musicians never copied their masterpieces, they moved on to new ideas. Never repeated themselves.”

After a few seconds of silence

“Dad in no way am I saying you are a great artist or musician. The phrase can apply to others as well”

Enlightened by a flapjack

Son has always had a healthy appetite, but unlike his dad it doesn’t seem to impact on his body shape. At his last school (with less than 50 kids) lunch was very relaxed, with room to spread out and time for him to have several helpings.

At his new school meaningful intel about the practicalities of the school day has dried up. No feed back from school and a son who often wants to quickly forget about the traumas of the day. So I had no idea how lunchtime was going. I payed the school meal bill online and assumed a balanced diet was being consumed. He never complained about it so it must be ok – that’s my 479th bad parenting example, complacency. I did notice that he had a remarkable appetite on his return. Often eating me out of house and home.

This week as I paid the online meal system I noticed by chance an option to view what the menu was. Reassuringly it looked pretty good. Then I noticed another well hidden option which was tomview what he had actually selected. The selection was very enlightening…

********************

5th Sept – Pasta Main Meal

6th Sept – Macaroni Cheese (very surprising as he hates this)

7th Sept – Flapjacks x2 (sweet granola bar)

After that every day has been Flapjacks x2 apart from 2 days which showed up as a Tuna Sandwich.

*********************

By my calculations that’s 184 Flapjacks since September. Bugger – that’s my 480th bad parenting example, must stop swearing.

So it was time to have a more in-depth fact finding chat with our Son. Apparently on the first two days only his year group was in school. It was fairly quiet and he enjoyed his pasta dish. On the second day he thought the sign said pasta meal and was a bit miffed when he found macaroni cheese on his plate. After those two quiet days school lunch has become a nightmare. Too many kids, too little space and limited time. For a main meal you have to queue up for about 20 minutes. After that you need to circle round the dining area waiting for a space to become free. A bit of a nightmare for anyone, a lot of a nightmare for someone with Aspergers. To jump the queue you can opt for either a Sandwich or Flapjack or icebun. Queue jumping it was then for our son. I was puzzled why he broke his sequence of Flapjacks heaven with two Tuna Sandwiches (especially as he doesn’t really like bread). Apparently they had sold out of Flapjacks….

I have now spoken to school but they can do little, just too many kids to feed. I suggested staggering the lunch starts but apparently this cannot be done logistically. Really!!. They will however think about some dyslexic friendly food signage.

So I’m not sure where this leaves us. Packed lunch is not an option. These have to be dropped off at another part of the school prior to the first lesson and this would just provide more school stress for him. He’s never going to queue. So it’s Flapjacks, sandwiches or go hungry. I suppose at least he is eating something- 481st bad parenting example, it’s not a healthy option. Will just have to ensure he gets a good breakfast and have plenty of food in for his return.

One last thought.

After our conversation he asked what was for tea.

Rather sheepishly I replied

“I baked a fresh batch of Flapjacks this morning”

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For a different and far more astute take on the autism school lunchtime trials please read Robyn’s great post from earlier in the week.