Judging yourself through your grief

I am so thrilled that Katie and Evee have been so kind enough to write another post for me. I know from all the comments that the last one they penned was so loved. Please checkout their blog (The Grief Reality), it’s such a wonderful source of love, human spirit and hope. You might also come across another post from me there today as well.

I know how tough this post would have been to write for them. I have been feeling similar emotions about my Partner as well. They set these out so beautifully.

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Mum was always so protective of her daughters. If we came home from school crying about being bullied, she’d be straight on the phone to the headteacher even if we begged her to just forget it. She said her fierce protection was something we’d only understand when we became mothers ourselves – perhaps that is true. 

 

However, as time went on and we understood our mum’s growing fragility, we too stepped into a more protective role, that perhaps only children in our position would understand – we don’t know for sure. Eventually, simple things such as birthday parties became hazardous as they opened the risk of Mum becoming neutropenic with her compromised immune system. 

 

We miss our mum every single day and there is so much we have not been able to share with her over the last 18 months. Yet, with the current world events that are unravelling, quietly, we have both admitted to thinking “Thank goodness Mummy isn’t here to see this”. For the pair of us, this thought hasimmediately been silenced by shock, guilt and self-judgement: “I can’t believe I just thought that”. And it took a while for both of us to open up to one another to talk about this guilt. We were afraid to voice this utterly shocking feeling; about someone you physically ache to see again.

 

The fact that we can miss someone so much, but not want them to be here to bear witness to all the wrong in the world, is an unexplainable feeling. When we were early on in our grief, we thought it unthinkable when a counsellor told us we will one day consider that our mum is ‘safe’.

 

Well, we guess we are finally there. Mum cannot be touched or hurt anymore; and she is more protected than we could ever make her. We thank goodness that our mum is safe now and she does not need to worry about delayed chemotherapy treatment due to Corona Virus, or what we’d do if she needs to go into hospital. 

 

It is a conflicting emotion for us as this fear no longer lingersabove us. Yet, we still cry for the families who are living through it. 

 

Underneath everything, we know, no matter how far we come, all we will ever want is a cuddle from our mum, to be told this will all pass, and we will be okay. Isn’t that all anyone ever wants?

 

Go gently, 

 

Katie & Evee

The need for travel

Last night we were watching the new Sonic the Hedgehog movie. Yes we really do like to stretch our cultural boundaries. A couple of times during the movie I found myself thinking – wish I could visit that location. I’ve been doing that quite often recently. Can’t really blame the pesky virus completely for that. I was having those thoughts before the lockdown. Our Son’s world is naturally contracting. So mine is as well. The last time we spent more than one night away from our home was back in 2015. Sporadic day trips and the daily run partially helped fill my mind with some connection to the wider world.

So after Son had gone to bed I went in search of photos. Photos which would remind me of trips and holidays. Soon I was back in Northumberland with my partner. A week in a gypsy cottage.

Walking alongside Hadrians Wall and in the footsteps of Roman soldiers, almost 2000 years ago. Touching and drinking in ancient history.

Enjoying the open spaces. Hardly meeting another soul. Feeling that cold northern wind and walking on the soft moorland. Feeling no limits and letting the map decide the route.

Places like Northumberland have a unique atmosphere. A bleakness. An almost somber beauty.

And then a reminder of why I am so thankful for life.

Leave it

When we first moved into our home, my sister bought us two plants as house warming presents. 18 years later they are still going strong. The red one doesn’t flower for long but it’s just springing into life.

It’s quite amazing that after 18 years both plants are still going strong. I don’t have a great track record with plants. I remember my partner for a joke buying me a plant which was described as – the worlds most resilient….will survive anywhere. Clearly they missed off the words – apart from one house in Yorkshire. It was dead within months. But these two have survived. They arrived, I bunged them in large plant pots and left them. Since then they have occasionally been watered and that’s it.

Sometimes the secret is clearly to leave things to sort themselves out. Not always, but definitely occasionally.

I was listening to a politician last night talk about how schools should immediately reopen. According to him schools didn’t need to worry about things like hygiene or social distancing. Kids have been going to cramped classes for generations. Yes kids can catch our current nemesis but its an acceptable risk. Apparently teachers are paid to teach so they should ignore any concerns about things like social distancing and PPE. The economy is paramount. In one notable concession apparently government officials and assessors should avoid schools because of the risk of catching the virus. When asked about kids and parents fears the response was – tough, the economy is more important and if they refuse to attend then they should be forced to. It’s up to the government and the PM if a child attends school.

Really. I will see you in court then.

Schools do need to reopen when it is safe for kids, parents (guardians) and staff. Now is the time to make school a better place to learn and work in. Surely the days of treating schools like archaic education factories must be finally over. Yes schools have been this bad for years and years. That doesn’t make it right. We burned witches for years and years – does that make that practice right…..

And as for the idea that school visits by inspectors are too risky yet it’s ok for the kids and teachers…..

Let’s start making positive changes to schools and then we can start a process of gradually reopening schools. Fully involve teachers, pupils and parents in the process. That way we can build confidence in the system. Some families will be able to go back quickly. Others (like our son) will take longer. Some bloke in London telling people what to do would be just so wrong. My Son will only go back when HE IS ready.

Random memories

Today’s mobile phone, out of focus, wildlife photo. Another bird flying.

Another night and another bizarre dream. An LP (yes vinyl) was being released and I wanted to make sure I got a copy. So I camped out overnight outside a small record shop. During the increasingly wet and cold night the public telephone (just a few paces away) kept ringing. When I picked it up I could hear my partner at the other end, but she couldn’t hear me. Finally the record store opened and I walked in to find that what was the towns only music shop had been turned into a hairdressers…..

The record store in my dream was one from my past. I lived in a small seaside town which had few record store options. We had a Woolworths which was great for a few compilation records and those bizarre records that had the hit songs on but always performed by not the real artists. We had a Boots the chemist which sold a few records but only those from the likes of Sinatra or Shirley Bassey. Boots never allowed you to return records if they were scratched. Thankfully the town also had a little record store. A small ground floor, with an even more cramped first floor attic. The store was next to the towns Bus Station. Tony’s Records was my Saturday Mecca. I would spend hours pouring over album covers, carefully working out which record to buy.

Got so many memories from Tony’s. That time I bought a Mountain Live double LP. It was reduced due to a few minor scratches. Basically every song was unplayable accept one. Thankfully that one song, Nantucket Sleighride lasted 24 minutes. For those of a certain age in the UK, that song was the theme tune to the Sunday political show – Weekend World. I did get to see Mountain play that song live at my first ever music festival at Knebworth.

I remember Peter Cook and Dudley Moore bringing out the Derek and Clive records. Painfully funny but shocking. That bad you had to be over 18 to buy it. Tony’s wouldn’t sell it to me so I asked my mum. Nine the wiser she strolled into the store. The look my mum must have got when she asked if they had a copy of Ad Nauseum.

I bought my first cd from Tony’s. It was Rory Gallagher. Bizarrely I didn’t actually buy my first CD player for another year. I just couldn’t afford one. I just wanted to have one of those circular works of high magic.

That little shop closed down many years ago, but clearly it’s still going in my dreams

A trip to a castle

I was looking for batteries. Why are batteries so pesky. You spend most of the year cursing who many batteries you find on shelves, pockets and cupboards. But when you actually need them, the little blighters hide. When you do find them you can guarantee that they are the wrong size. Anyway I was looking for batteries with absolutely no success then ….

An old and forgotten box of old photos. It’s times like this that I am so happy that I had a habit of taking too many pics. This box was from a holiday we had way before our son was born. We arranged a last minute week long trip to Northumberland in the North of England. For those who don’t know England that well – find the most northerly English city (Newcastle). The bit above this city and all the way to the Scottish border is Northumberland. It’s a beautiful and often desolate place. With few large towns, rolling hills, moors and some of the countries finest castles.

For the week we rented an old Gypsy Cottage. The weather was so Northumberland like. Very windy, cold and often exceedingly damp. Today’s photographic memory trip was a day trip we had during that lovely week. A trip to Dunstanburgh Castle.

It’s a stunning castle ruins set right on the windswept North Sea coast. To get to it you park up in a small fishing village and walk along the beach. The walk started wet and basically added increasing amounts of water to the mix. The photos brought the memories flooding back. Wow we got wet.

It was a wonderful day. We had the place to ourselves. Hours spent walking along the coast, scrambling over history and even time for sand castle building. Finally we got back to the fishing village and looked round the local fish smoking business. It would have been rude not to sample the produce and chips. Then it was back to the cottage to a roaring fire and an attempt to dry out. Happy Days.

Old moon

A couple of full moon photos from last week. My poor old iPhone tries it’s best.

I remember looking up at the moon. I was lying on my back on the cold patio trying to keep still and give the camera phone a chance of trying to focus. Anyway I was looking up at the moon and thinking it was stunning. I really hoped that my partner could be seeing this as well. Maybe she was? Was she seeing it from a different angle? Was she looking up at it from one of her favourite places. Was she above the clouds?

These days I frequently look at things in a different way. For a long time after my partner died I felt bad about looking at beautiful things. Sunsets, landscapes, the Sea, our Son playing. It just wasn’t right that I could and my partner was missing out. She had been cruelly denied this chance. Her time ran out.

But slowly that feeling of guilt started to ebb.

Now when I look at beautiful things, I try to look that little bit harder. Look for just a few moments longer. Truly embrace the moment. Because now I’m looking for the BOTH of us.

Back to the moon. After a few minutes I was becoming distinctly uncomfortable. My back is not designed these days for lying on a cold, hard surfaces. Then a thought. What was I thinking about. My partner was the sensible one. She would be sat inside. Occasionally shouting “that’s very nice Dear”. She would not be outside freezing her butt off. She would be warm inside with a glass of something, watching one of her favourite movies.

That’s a view she would be happy with.

Good Friday ?

The headline in the prime UK gutter newspaper (a publication so bad and so vile I can’t even write its name down) was apparently today

Boris is out – now that really is a Good Friday.

Just those words on the front page….. Yes anyone leaving intensive care in a better state than they arrived is a wonderful little victory but it misses one rather salient point. At least 5000 people died in the UK this week and god knows how many worldwide. Will it be a good Friday for the scores of families who will be bereaved today……. The UK is now recording more deaths than any other European country and because of the shambles the government has made on testing – this probably vastly underestimates the real figure. But no need to report on that….. No need to talk about our wonderful nurses forced into using bin bags as protective uniforms.

What would be a Good Friday would be no one suffering today with only one obituary required – one for that loathsome newspaper. I remember once the newsagent accidentally sent that paper to my mum instead of her normal one. She refused to touch it and she burnt it on the doorstep. Stick that in your pipe and smoke it Murdock.

Let’s move on to the real Good Friday.

Our Good Fridays were slightly odd. Normally my partner would introduce all the family traditions. But not on Good Friday. I can’t remember my partner doing anything different on this day. She was a devout Quaker, maybe that was the reason. I do know that I was her biggest trial in life as we were very very different.

For some reason my family traditions kick into overdrive on Good Friday. So unlike me. What’s the old phrase

You wait hours for a bus and then three arrive at the same time.

  • So each Good Friday we would
    • Not be allowed to drink milk all day (No idea where that one came from, probably one of my random dreams tricked me into that one),
    • First food of the day had to be an unbuttered Hot Cross Bun. Not allowed to use a knife to cut it. Every year I’ve done this an yet I don’t like them. My partner hated them so I had to eat hers as well. Then Son hated them as well so that was THREE buns I had to get through.
    • Can’t eat meat all day.
    • The meal at lunchtime had to be fish.
    • Attend a morning cross parade. These don’t tend to happen here anymore and anyway this year they would be banned.
    • No alcohol before you have had the fish. That was actually a very hard challenge when I was at University.
    • We would fly a kite on the afternoon. Apparently this is a tradition which originates from the Caribbean. No idea why that one reached deepest Yorkshire.

    I have to say this year some of the traditions have been dropped while some are just happening out of our daily routine. No milk or meat so far but that’s because son has not had his lunch yet. I’m tea total these days. Not enough wind for a kite. We might have tuna for lunch if I can convince son to change his food routine. However a pesky hot cross bun (plus the one our son won’t touch) will be waiting for my 2pm meal starter. Unfortunately due to the currents our dog is not allowed to help eat them. Thin king about it I might start a new tradition. Have the smallest bite of the bun then share the rest with the birds. That’s a tradition I might be able to stick to.

    Stages

    One of my first records I purchased was ‘All the worlds a stage’ by the rock legends, Rush. Shakespeare wrote that ‘All the worlds a stage’. Don’t worry I’m not going all thespian on you. But I must admit I fancy my chances these days of doing a mighty fine Richard III stage performance. Why is the Stagecoach Bus always two hours late when I try to catch it. Just watched wrestling on the TV which is staged. So many stages.

    Then you get stages in grief. A couple of years ago someone asked me what stage I was at in my bereavement process. I just looked on blankly. All I could think of was two stages. Your life before the death and the life after the death. So I answered – in the second stage and I always will be. I guess that’s not the answer they were looking for.

    Last night I was reading an online article about bereavement counselling. It talked about every bereaved person going through the same 6 stage process. I wasn’t convinced. Surely every person’s grief journey is unique. Why force people to follow a predetermined text book bereavement route which doesn’t suit them. So I gave up with the online article and scribbled down my own staged journey so far. It’s my interpretation of MY journey and in no way is it supposed to fit other people. Remember I’m not a Doctor or Psychologist. I moved a potted plant into my bedroom to raise the rooms overall IQ score. The height of my powers these days is to get the cling film wrapper off food without slicing off a finger…. So here goes with my journey.

    The SHOCK STAGE. Within a period of 6 weeks I’ve just buried my mum and then my partner. I’m a complete mess. Barely able to function and yet I’m supposed to be a Dad. It’s like living in a prolonged nightmare. Trying to sort out the practicalities and legal side of death, but actually got no idea what I’m doing. Basically doing stuff I’m told to do.

    The FRUSTRATION STAGE. The cards, flowers and phone calls have dried up. I’m becoming more aware of the reality of the situation. Trying to get my head round how to be a single parent and at the same time keep some money coming in. I need to find an alternative to my career as it just isn’t doable anymore. The frustration comes from realising that what worked in the past just isn’t going to work now. It’s also so frustrating that the world is still spinning without seemingly even blinking after my partner exited stage left. It feels like I’m fighting this new normality.

    The ACCEPTANCE STAGE. Eventually I began to accept the new reality. This is how it is and I just have to deal with it. I came up with a mental picture which I still use today. A door on my former life has locked shut. It’s never going to open again. I can look through the door window and see memories but I can’t touch them. I could stand here forever but this door isn’t opening. So I have a choice. Continue to stand by the door or set off and find other doors which are still open.

    The IT’S LOVE STAGE. Linked with the Acceptance Stage. I opened a mental dictionary and found a better definition of grief. It defined grief as another word for LOVE. That sounded so reassuring to me.

    The IT’S OK TO GRIEVE STAGE. Up to now I would hide my grief. As if it’s something unhealthy, something deeply embarrassing to others. People might ask how I was doing but they appeared to rapidly change the subject if the answer I provided was not – I’m fine…..But suddenly as grief was another way of saying LOVE, suddenly it became ok to grieve. Yes it could still be so painful but it’s something I shouldn’t be hiding. It’s nothing to be ashamed about. It really is OK to be sad.

    The IT’S OK TO LAUGH STAGE. Up to now I felt bad about smiling and laughing. It was just not right. I would focus entirely on making our Son happy but shunned doing it for myself. It took well over a year but the penny finally dropped. Yes it’s ok to be sad AND YES it’s just as OK to be HAPPY.

    The IT’S OK TO LIVE AGAIN STAGE. After the funeral all my dreams died. When I looked at life I saw it entirely through our sons eyes. When I tried to see it through my eyes all I saw was blackness. Absolutely no future. However over time it became OK to live again. Remarkably I can still be happy. I can find new doors that will open and create new memories. Life can still be at times sad and painful BUT IT CAN also be fun. Just starting to dream again.

    That’s the stage I am at now. Embracing the happiness as much as I respect the sadness. Maybe, just maybe tipping the life balance in favour of fun. Yes it still can be a wonderful life.

    Fit for radio

    The walk across the local farm land always felt like top toeing across a minefield. Constantly looking down at my feet for the myriad little surprises. Cow piles, sheep droppings, mole hills, rabbit holes…. BUT NOW after weeks of walking exactly the same path it’s all changed. Suddenly my brain seems to have mapped out the various dangers. Now I can look up and take in the view. Luckily one view I don’t need to take in is my face. It’s definitely a face fit for radio.

    It was Wrestlemania this weekend. It went ahead without a crowd. We now have a tradition in our house that we stay up and watch it live. Have a party and a bit of a challenge. See who is best at predicting the results. Last year my inevitable defeat cost me a painful forfeit. Eating the hottest chilli we could find in the supermarket. My eyes are still watering. This year the stakes were raised significantly…..

    With his Aspergers, Son is often a creature of habit. Change is avoided. That includes things like clothes. As he grows out of stuff we need to find larger versions of his existing items. That also applies to me. He doesn’t like me to change. I have wanted to go for a really short hair cut for years. Unfortunately that has never been approved by his Lordship. Until now.

    Ok Dad let’s stake your hair on Wrestlemania. If you win the prediction game then you can have your haircut. But if I win you can’t AND it will cost you your beard.”

    Son found some old photos of us as a family of 3 featuring a beardless Dad. I think he secretly wanted me to go back to that look. So Wrestlemania came and went. I gave up counting after Son successfully predicted the first 10 matches and I DIDN’T. The end result – the beard went. I’m not sure I recognise that face in the mirror anymore. Son says I look younger. I’m not sure about that but we can both agree on one thing. It’s still definitely a face best suited to radio.

    Stay safe everyone.

    Sitting here

    It’s early morning and I’ve just finished my workout outside in the breezy Yorkshire air. Son is still asleep safe inside. I’m looking out into the distance and seeing no sign of human life. In the far distance you can just about see the main road leading to the coast. At this time of year it should be nose to tail with caravans and cars packed with excited families. Today it is completely deserted. I patiently waited for five minutes. Not one vehicle. Then I fall backwards and look at the heavens. An empty sky. Yes clouds and fleeting glimpses of lukewarm sun, but not one single aeroplane. To the East we can see one of the main air corridors. We often excitedly get the Flightradar24 app out and check where the many planes are heading. America, Canada, Europe, Asia. Today nothing. Not one single vapour trail.

    Has the world stopped turning?

    Three years ago our little home stopped dead yet the world kept turning. It was a harsh lesson. Even when good people leave us the vast majority of the world is oblivious. In the days after the funeral I would question

    Why has the world not stopped…..

    Well it appears to have stopped now. Yet does it help. NO.

    Later I am inside listening to music on the radio. It’s a sobering experience. Usually listeners are requesting celebratory songs for weddings, anniversaries and birthdays. Today the airwaves are frequently filled with songs dedicated to rock lovers who have lost a fight with an unseen new enemy. My heart goes out to you all. It was only a matter of time before someone requested Alter Bridge and Godspeed. The finest song I’ve come across about loss. My bereavement go to track.

    Test me once again
    You know I didn’t do anything
    Set my life on low
    You know I could have had it all
    Drifting out of place
    With no direction and no escape
    Set out all alone
    Oh to a place I don’t belong
    Without you
    I know that I must change
    Without you
    I’ll never be the same
    No
    Farewell
    Godspeed
    And goodbye
    You have lived
    And you have changed
    All our lives
    Test me all the way
    Surely you know
    I’m not afraid
    Prove now once again
    That I will never see the end
    Without you
    I know that I must change
    Without you
    I’ll never be the same
    Farewell
    Godspeed
    And goodbye
    You have lived
    And you have changed
    All our lives
    Cast away
    Our regrets and all our fears
    Just like
    Like you did when you were here
    And then the days
    They ran out
    And then the days
    They ran out
    Farewell
    Godspeed
    And goodbye
    You have lived
    And you have changed
    All our lives
    Cast away
    Our regrets and all our fears
    Just like
    Like you did when you were here
    And then the days
    They ran out
    And then the days
    They ran out

    Lyrics by Tremonti/Kennedy (source Musixmatch)

    Even after a few hours the cars and aeroplanes are still missing. The world may still have stopped. But son is finally rousing himself. Our little world cannot permanently stop. He has a childhood to live and enjoy. So one more sip of my hot drink and find that happy face. Reach for that bag of tricks we all have and find a way to shut this horrible situation out for a while. Start having as much fun as we can. Let’s keep living and hope the world starts turning again real soon.

    Stay safe my friends and I really hope you find your own way to smile. Maybe if enough of us do this then we might just be able to start the world turning again.