Posted on by bereavedandbeingasingleparent · 64 Comments

Conversations

Sorry this is a couple of days late. The new WordPress editor took a dislike to this post and it’s taken two days to fix it.

Well a bit of blue sky and no rain is a start. Even the wind has eased. Feels almost like Autumn now.

Two conversations have rather defined this autumnal feeling day. The first one with the dentist.

I finally managed to speak to my Dentist about my chipped back tooth. In a nutshell this is what the Dentist said.

  • The practice partly reopens tomorrow.
  • They have a huge backlog and waiting list.
  • They are allowed to start looking at emergency cases but won’t be able to do much with them. Basically just temporarily patch them up. No drilling or aerosol inducing treatments allowed.
  • They will get back to me when they can have a look at it. But the repair will be some time. Dependent on getting the go ahead from the Government.
  • The Government is a shambles. Just making things worse.

So basically just got to grin and bear it. Will add temporary dental fixes to my increasing list of almost skills. It’s quite bizarre that the UK’s Health Minister is spending more time and energy on getting Horse Racing going than be is on helping out the NHS and Dental services. It’s amazing what being funded by the Horse Racing Industry does for a persons priorities.

The second conversation involved a muppet but not our Health Minister thankfully.

“Dad remember when we worked out that you are 25% human and 75% muppet.”

75% is probably understating the muppetry.

“Well Dad I’ve been trying to work out which muppet DNA runs through you.”

Well when I used to go and watch Newcastle United play footy. When I say ‘play’ I should say ‘get beat’ at footy. Me and my friend would just sit and slag off our own team. We were definitely the two old muppets in the audience. Waldorf and Statler.

“Ok but now you don’t go anymore then they don’t count. I am seeing three muppets in your DNA. First one is Beaker. That expression and the hair sticking up is just so you..”

“The second muppet I see in you has to be Fozzie Bear and those terrible jokes of yours..”

“The final muppet in my Dad is definitely Animal. You seem to approach everything. Things like cooking, gardening, hairdressing with the same care and attention that Animal approaches life..”

I can’t argue with this assessment, although I am a little disappointed not to have a little bit of Miss Piggy in me. Now do I trust Animal with this emergency dental kit…

*****Photos from Wikipedia******

Posted on by bereavedandbeingasingleparent · 108 Comments

Ever shrinking world

A photograph from our garden. Just five paces from the door. Part of Son’s world.

Our Son really struggles with health related anxieties. I remember the first pamphlet his Doctor handed to us about Aspergers all those years ago – second bullet point – may encounter obsessive fears over health and hygiene. For our Son they were real, life altering fears. Then in quick succession he lost his mum and both grannies. The fears became even more scary and real to him.

In the early party of his Aspergers life he was under the care of a wonderful Clinical Psychologist. She slowly helped but then she retired (and was never replaced due to the decisions backed by many of those in our current Government). His care became a real hotchpotch which achieved very little. Then we were so lucky. Son’s case landed on the desk of a young nurse health counsellor. Since then she has been the only constant through his care. Now because of Government cut backs, she is the only specialist help he gets. Although not an Autism expert she has patiently worked with him and delivered real benefits.

His fears became manageable.

Due to our Governments continued running down of the NHS, her workload has become ridiculous. She just can’t spend the time she needs to with him. But she does what she can. She still cares.

Then 2020 hit. Is it really only 4 months old…….

His fears have gone off the chart. Can you blame him. The worlds gone potty. Everything is up in the air and showing no sign of settling down. Because of the new clinical rules his wonderful health counsellor is not allowed to see him until after the crisis has eased. Being realistic that’s not going to be until the back end of the year at the earliest. So he’s started burning his bridges.

Bridges is a theme I am sure I will come back to over the coming weeks. The world of autism and the big bad world don’t naturally coexist. They are often separate. Links and bridges need to be built. Unfortunately the big bad world is not interested in developing links. It’s been up to our Son to try and build the bridges. That’s allowed him to enter the big bad world. Those links have never been particularly strong. NOW HE HAS BURNED THOSE BRIDGES. The outside world is just too scary and full of dangers. He has bunkered down to his house, his back garden, his world.

The thing is that when things start to improve again. And they eventually will. The big bad world will make no effort to rebuild those bridges again. One lone nurse counsellor will try. I will try. Sadly, I’m not entirely convinced Son will make much of an effort this time. Maybe in the future he will but it will take time. In the meantime his world has shrunk.