I speak proper

These little beauties seemingly flower earlier every year. When we first moved here the snowdrops flowered mid February. These guys flowered mid March and the Daffodils arrived during April. I guess my Dad would have said something like ‘blimey I’ve only just planted me Goosegogs‘. Goosegogs is Yorkshire for Gooseberries.

Once a week we have school bagmageddon. Poor bairn (kid) is packed off lugging (carrying) two bursting at the seams bags. I wish someone would invent a Dr Who Tardis like school bag. Small on the outside yet massive on the inside. For bagmageddon he needs to take with him

  • Packed lunch as he rarely gets the chance to eat a school meal,
  • A drink as he rarely get the time to get a drink at school,
  • School iPad,
  • Mobile phone in case he misses the bus,
  • Pencil case for coloured crayons and felt tip pens,
  • Art brush,
  • Calculator,
  • Reading pen just in case he needs to use it,
  • French dictionary,
  • Book for reading – no dispensation for dyslexics so it can’t be a picture book,
  • Pen case including black pens, blue pens, green pens, red pens, HB pencil, ruler, protractor, rubber (eraser), pencil sharpener, highlighter pen and compass,
  • School planner,
  • Drama kit – plain black T-shirt, plain black tracksuit bottoms,
  • School homework books which are required for that day,
  • Bus pass,
  • Outdoor sports kit – football boots, white school sports top, blue school rugby shirt, blue football socks, school shorts or blue leggings, gum shield, shin guards,
  • Indoor sports kit (in case outdoor sports is not happening) so training shoes and white socks.
  • Could be even worse – if he played team sport for the school he might need to carry a hockey stick or cricket bat as well. When I was at school the teachers would call any boy with his own cricket bat – posh (rich) and then they would talk about learning to play cricket with a stick o’ Rhubarb.

That’s on top of the mandatory school uniform. Chuffing Eck (********* hell). It’s a logistical nightmare for the parent but that pales into insignificance compared to the poor kids trying to cope with all this. Yes the kids can pay for a locker but the lockers are not conveniently located so it’s almost impossible for them to get to them and back in the 10 minutes max between lessons. Hence the two expedition rucksacks. No wonder he is jiggered (very tired) when he gets home. Sometimes I expect to get a call to say he is rigweltered (stranded on his back) on the hoose on wheels (bus).

How times change when I went to school it was one small haversack. A haversack carefully painted with your favourite bands. Mine was emblazoned with Whitesnake, Bad Company, Black Sabbath and Saxon. The paint was the heaviest part of the bag. It had to be painted on thick as the poor bag would often be wanged aboot (thrown about). Inside was your butty (sandwich), some chuddies (chewing gum), footy top, shorts and Gola football shoes. Kids would take it in turns to bring in a Casey (football). Nowt (Nothing) else. The teacher handed out pencils for the school day. Then she took them back in when we headed back yam (home). Being the twonk (idiot) I was I frequently had to get Dad to recover my bag from the top of a tree after an all too successful wanging session. The bag also acted as an invaluable cushion to sit on when you got a croggy (getting a lift on the handlebars of a bike).

Basically it’s a different world now. But surely flowers blooming earlier is not great bit of man made progress. Sending kids into school with a mule train of kit is equally not a sign that the school system is progressing well. It’s also not great that we are slowly losing many of our local dialects.

Sithee (goodbye) until tomorrow.

Old

It’s been one of those days when I just feel old. Lack of sleep doesn’t help. Fighting a cold which I just can’t shake certainly doesn’t help. The weather most certainly doesn’t help – a bitingly cold gale force wind. Work was a slog with everything going wrong and the computer just saying NO. School was definitely very vexing. Now even the school governors have given up responding. I guess I must be on the official naughty list. My run was hard work. Slow, cold and a real effort. At times it seemed like one step forward and two back. Even the view failed to lift my spirits. It just provided an excuse to stop for a minute. The post school garden football was an effort. Not so much Messi or Pele, more like a knackered three legged giraffe trudging about in a vat of thick treacle. So yes today I felt much older than my 339 years. I’ve used this body up can I have another one please.

For sons mathematics exam he did really well given the lack of dyslexia support. He came second in his class. Just over 70% in one paper and high 60s in the second paper. That’s not too shoddy for a kid who could only read some of the words on the question sheets.

As I couldn’t read some of the questions I wonder if I would have got a similar mark if I had sat the maths paper but it was in French. Wouldn’t it save time if you could just combine subject exams so you could sit two at the same time. French & Maths, Science & Art, History & Drama, English & PE, Geography & Cooking.”

I could sign up to that. I would combine my worst subjects and get them out of the way in one exam. So I could do Drama and Cooking in one sitting. Or maybe I combine a really good subject with a bad one – PE could drag up my French score. It’s definitely a winner.

Dad are you sending an email”

“Yes I am. I am emailing the Prime Minister”

“Oh. Your not telling him about my sitting two exam in one go idea!”

No Son. I’m emailing him a question about dyslexia support.”

Do you think he will answer it”

Well let’s see.”

You didn’t have a go at him.”

“No I was very polite”

Well you weren’t very polite playing football. You said some naughty words when you tried to run.”

“I am getting older. Sometimes running hurts. And I didn’t use naughty words. I used my special made up words. Those which might be naughty but no one will ever know. Scully. Jellycup, Fumf.”

SO YES I FEEL OLD TODAY. ITS SUCH A JELLYCUP SCULLY FUMF……

End Game

The way forward is shrouded in mist but a clear route is emerging.

As we move into the second week of the Year 8 exams we have a clear state of play emerging. Son is trying his hardest, school clearly is not. Son again was upset this weekend as he clearly thought that school sees him as not very bright and a failure. He found out that he came third bottom in his Drama exam. Well was that surprising when he was given only a short period of time to read questions then an equally short timescale to write answers. Absolutely no help was provided. So clearly autism, dyspraxia and dyslexia do not apply in the world of Drama.

Sadly this has not been an isolated incident.

  • In subjects like Mathematics, Design Technology and French he received zero help. No additional time. No help with reading. Nothing. Maybe help was considered but as Son pointed out

One of the kids broke his hand so the one Teaching Assistant had to scribe for him. Maybe that’s why I didn’t get help. I really struggled to read and understand the questions. Even maths had lots of words I didn’t recognise in the questions.”

  • History did not proved a scribe but he was given a laptop to type his answers in. So he still had to try and read the questions. He was given a laptop because the teacher was concerned about being able to read his handwriting. Problem is that son is waiting for some therapy work to try and help with his typing skills. His typing is slow and very inaccurate. He hadn’t practiced answering test questions on the computer. The computer also had the spelling aids disabled. No additional time was provided.
  • Science and English did provide a scribe. He hadn’t practiced working with the scribes provided. He was really uncomfortable trying to work with the two assistants he had previously had very little interaction with. He had thought incorrectly that he was getting extra time but with a couple of minutes to go the scribe just said the exam is finishing when it’s 10.15. He struggles to tell the time using an analog wall clock. The scribe in English only read out the questions. She was not allowed to read out the passages which he had to answer comprehension questions on.

What was the point. The scribe would tell me things like for this question you need to read lines 5 to 12 of the text then describe what writing techniques the author has used. Well I would if I could actually read the text. Some of the text was using slang language – I struggle with proper language, got no chance with slang.”

So basically it’s been a mess. If his marks are not good then this is going to hit his confidence going forward. Currently school are deadpanning my queries but I guess they will just say that appropriate support was provided and he just needs to work harder. Poor results will confirm their assessment of low attainment. I just hope for his sake that he manages to get some decent marks. I’ve told him that for me it’s not he who is being assessed, it’s school. And clearly school have failed – AGAIN. To quote a reasonably popular movie, it feels like that we are moving to the mainstream education END GAME. No we still can’t truly afford to homeschool but this failure of due care can’t go on. Son deserves better than this.

King Henry III meets manga

It’s been that kinda day. The occasional brief glimpse of the sun then just grey, cold and damp.

Dad that’s so wrong. That’s not Henry II. It should be Henry III. “

Son was talking about a national History Revision package which his school is using. All the kids are expected to revise using this. On history I would never doubt our son. But as this was a national teaching package so I thought I would double check. Yes full marks to Son and the Teachers compiling the package – you must try harder. Yes they were referring to the wrong King Henry.

I also certainly don’t agree with that view of King John. It’s as balanced as the biased tosh Shakespeare wrote about him and Richard III.”

When Son raised this with school they told him that the pack had been compiled by teachers and it had been used by many kids. So basically accept it. I’m happy to report that Son is sticking to his guns and if asked will stick to his version of history. His version which is factually more accurate. If he’s marked down by school for this then stuff them.

It’s been a bizarre set of exams that he’s had to sit. In English and Science he’s been given a scribe. But in the other subjects he’s had no help so he has had to read the papers on his own. He’s certainly been provided with no additional time. I’m still not convinced school has any real idea how to deal proactively with dyslexia and autism. Given this is 2020 I find that staggering. Even with the scribes it’s been far from ideal. At his last school Son knew weeks in advance who his scribe would be. They worked together on a number of dummy test runs to get used to each other. He also received additional time. This week he only found at if he was getting a scribe at the start of the exam. The exam was the first time that he had worked with the person scribing for him. The scribing happened in a room he had never been in before.

“So how did the history exam go Son?”

Well I didn’t get any help. Not sure I read the questions correctly. But I knew the answers to the questions I sort of read. Not sure they will be able to read my answers anyway. I definitely got one question wrong. I knew the answer. But I could not spell the two battle names. In the end they looked more like Pokemon or Manga character names rather than English Civil War sites.”

So if the teacher is reading this

The Battle of Nagato means the Battle of Naseby

And

The Battle of Madoka Mano means the Battle of Marston Moor.

Pink legged German

He survived his challenges today. Staggeringly our French telling the time trick probably picked up a few marks. To be fair to school son was provided with a scribe for the English exam. No scribe for French. Will have to find out why.

I survived today’s challenges. Made it out in one piece from the bizarro world which was work. Then made it round the 12k run. Once again the view helped lift the soul.

Well clearly the bizarro work world had rubbed off on to me. On the run I was listening to my German language course. It seemed to be the right thing to do as son would be currently sitting his French exam. It was basically going in one ear and straight out of the other one. A passing cyclist then flagged me down and asked if I knew where the nearest cafe was. I suspect he wasn’t expecting the following response.

Guten Tag. Es ist diese Straße runter. Über 5 Kilometer

As I noticed the cyclist’s bewildered I just repeated my amateurish German but this time a bit slower and a bit louder. Then it dawned on me. What a wally. All very embarrassing. What was even more embarrassing was that when I finally switched to English I’m not sure the cyclist was any more the wiser. Although we where in Yorkshire he clearly didn’t understand my Yorkshire accent. As we speak the poor man is probably lost somewhere on the moors cursing that useless German in his pink leggings. Still it took my mind off Son’s ongoing French based anxieties.

I will leave the last words to a modern day Philosopher.

Well Dad I survived. The problem with the French Exam was that it’s basically in French. English is hard enough but French. It might as well have been in a foreign language.”

Memory tricks

You get sone days when running is particularly tough. Tough physically and certainly tough mentally. On those days I need to set mini goals to tick off on my run. Memory tricks to convince the body to keep going. On this route it’s to reach 9k. At 9k I get this view. Doesn’t matter how many times my little legs take me past here, this view never fails to deliver. The view is lost way too soon and it’s back on the slog again. A couple of hill climbs are fast approaching. I’m not the spring chicken I once was. Those hills hurt. Currently the only thing that works (apart from using a car) is to count. When the climb starts it’s about counting from 1 to 100. The deal is that I can only stop running up the hill at 100. So far every time I have got to 99 I have reset the count back to 1. Don’t say 100 or skip past it really quickly and I must keep going for a while longer.

These little tricks help me. Now we are searching for another one.

We all have blind spots.

One of mine was historical dates. I’m normally good with numbers. I can memorise phone numbers really well yet I just can’t remember dates. As hard as I try those dates just won’t stick.

Son has a few blind spots. He’s good with numbers but can’t get his head around decimal places. Ask him to work out 24×37 and he can do it ever so quickly. Yet ask him to add 1.3 and 3.8 and it’s impossible. Whatever we try just doesn’t work.

He can remember dates with ease yet times are a different matter. He struggles with the concept of time. He struggles to tell the time. Digital clocks are problematic while analog clocks are impossible. Everything we have tried has basically failed. So now we come to this Sunday.

It’s the Year 8 French Exam tomorrow. One of the areas which is bound to come up is telling the time in French.

Dad if I can’t tell the time in my own language what chance do I have in telling the time in something which probably isn’t even my second language.”

Everything we have tried has failed. In the end we settled on an educated guess approach.

Learn parrot fashion il est ….. heures ….

Then assuming he can’t work out the right time in English he will put the first number he sees (converted to French) after heures and the second number before. If he can only see one number then that goes before heures. That gives him a chance. Ok it doesn’t work with every time but it’s the best he can manage. He’s found his own way of trying to get through this challenge. It convinced him that if he’s sees time questions then he still has a chance. It’s worth having a go. Gives him hope and belief.

So tomorrow at the same time he is enduring his exam I will go for a run. I will suffer with him. Let’s hope both our memory tricks work.

Knock on effects

Oh my ….. Daaaaaaad. I’ve forgotten some homework.”

A shout at 7.00am to send shivers through every parent.

Forgotten French. We have five online tests to complete. It’s due first lesson today. SORRY. ”

Any thoughts of a calm relaxing morning had just been torpedoed. The normal carefully mapped out pre school routine replaced with an hour of panic and a rush to answer 60 questions. A stable routine is so important for most kids on the spectrum. Well not here today…

As Son later described the scene. A Dad whose French skills are very sketchy. His French skills apparently heavily weighted towards buying alcohol – not much use in school homework. And a kid who is even more dyslexic in French.

Dad it was like the script for Dumb and Dumber 2″

After 30 minutes of mayhem I ordered Son to grab some breakfast.

Can’t find the cornflakes Dad can I have some biscuits and an apple.”

“Son if it’s food then I really don’t care…”

Then I shouted out the questions and typed up the replies from our son. Finally five minutes after we normally leave we finished the last question. A mad scramble to get the school uniform on. He struggles with knots so I have to do his school tie. Today that skill deserted me. Now we are seriously behind schedule. Fingers crossed for clear country lanes. So today we get stuck behind the driver who clearly learned to drive in either a milk float or Sinclair C5. A driver whose instructor had taught them that the best racing line was straight down the middle of the road so no bugger can overtake. A driver who today was heading all the way to school.

Somehow I managed to get him into school with seconds to spare. Problem was that now I was late for a works meeting. In the carnage I had not managed a drink or a visit to the toilet this morning. No time to brush my teeth. Wearing yesterday’s clothes. So I arrived looking totally disheveled, in real need of a drink and the toilet. Guess what. The water was cut off at work due to emergency repair work. So no drink and NO TOILET…. It felt like the longest meeting ever.

Ninety minutes later I’m running into a petrol station like Usain Bolt. The one toilet was engaged. You couldn’t make this up. Ten further painful minutes later – RELIEF. Unfortunately in the breakfast chaos I had left my wallet at the house. So no money. So no drink. Not good when you looking at row upon row of drink heaven. So another thirty minutes before the first drink of the day.

Yes it was a chaotic morning. Simply forgetting a piece of homework had a knock on effect for the next few hours. Got to keep it in perspective though. So many people are truly suffering and this was at worst just mildly annoying. I can smile about it. I did eventually get a nice run with some gloriously moody views. And I expanded my French vocabulary.

Je vous souhaite une bonne journee.

Two quotes

“I AM DIFFERENT NOT LESS” – Dr Temple Grandin

Another week we dust ourselves down and go again. Although the route is still shrouded in mist and we face countless dead ends – we must keep going. If not for me but for our son.

A session with a new health professional. Always a good sign when she does not ask me what I want, she asks our son. The health professional is going to contact school to see what work they have undertaken to help with our son’s handwriting. Assuming school has done nothing and has no plans to do so (which we believe is the position) then the health service will start a programme to help with his writing. This will be the first time in three years work that son will have had specific help with his writing. Let’s see what progress can be made, what writing aids help. If progress cannot be made then that might be the time we start to move away from pen and paper to keyboard and voice recognition.

So we start down another path.

These are the specific areas son asked for help with

  • Handwriting
  • Shoelaces and Ties
  • Holding objects like handles which require two hands.

Interestingly he sees Aspergers as who he is – his personality. Aspergers is not a label just him. However he now sees himself as not dyslexic.

The fact that I can now read some of the words and can mostly guess the rest means I’m not dyslexic. Now I’m just not very good at reading.

I think this recent view of dyslexia is down to school. Firstly school sees anyone with dyslexia as low attainment. Son hates being branded as below average. As a result Son sees dyslexia as an unwelcome label. Secondly the label dyslexic brings him no additional help from school. Whats the point of referring to yourself as dyslexic if it brings no support benefits and only results in being automatically branded below other kids in the class.

The bottom line is the school system has failed him. It has failed too many kids. That’s one of the reasons you read so many cases of great individuals who have decided to hide their dyslexia. Kenny Logan is a Scotland Rugby legend playing 70 times for his country. He choose to keep his dyslexia secret. From his team mates. Even from his wife. Only at the age of 34 did he finally seek help. On what planet can this be allowed to happen. So much wasted talent and opportunities. So much stress and suffering. This is nothing short of a disgrace.

I started with a quote and I will finish with one. One from our son

When someone has a disability your not allowed to discriminate against them. If your in a wheelchair you shouldn’t have to put your hand up for help. So why is it that when someone has an invisible disability you can be ignored and that you have to say ‘Please will you help me’ and when they ignore you it’s not discrimination.

Took its toll

A brief few moments of calm and mellow light before the dark clouds rolled in and it absolutely chucked it down – AGAIN. A photo sometimes doesn’t tell the entire story. It doesn’t show the person behind the camera. Caked in mud and water dripping off his sodden clothing. The lane in the distance looks inviting through the lens. Really! In practice it was stream. Torrents of mud and water making it a runners nightmare. But for these brief moments it did look pretty.

The other thing the photo doesn’t tell you about the lane is the surface condition. It’s a dirt track. Trying to navigate the exposed bedrock, ankle breaking potholes and badly eroded surfaces. I first ran down this path in 2010. The new nursery was close by so I could occasionally squeeze in a quick run before it was time to pick up our Son. Then it was a beautiful lane to run down. The surface was in a wonderful condition. Flat and ever so forgiving. Clearly the decade took its toll.

Sadly it was not the only thing that the decade took its toll on. As my MP3 player had run out of juice, pondering on this helped take my mind of the battering my knees and ankles were taking.

  • The Dreamer has seen his soul darkened,
  • The thick mop of black hair now more resembles a badly worn corridor carpet,
  • The body once fluid is a little more wooden,
  • The knees once strong are a little squeaky and in need of oiling,
  • The reliable feet now most definitely over pronating,
  • My pert bum is definitely more rounded. To the extent that it has developed its own gravitational pull.

But that’s life. I can still smile. I’ve still got my best feature – my long eyelashes. I’m probably stronger and fitter than I was back in 2010. I was drinking far too much in 2010 and now I’m completely tea total. My excellent sartorial taste is still with me – bright pink leggings today. I’m certainly more resilient these days.

So yes the decade has definitely taken its toll on me but that’s not to say that actually I might be a better person for it. Which neatly brings me to saying thank you to Di for tagging me for the Ten Years (2010-2020) challenge.

Play Along Guidelines

Please share a link to the creator of the tag-jesusluvsall.wordpress.com

Share some highlights for you over the past decade and if you want, a few low points

 Tag whoever you wish to.

Ask them some questions

Use any picture appropriate for such a tag.

Going with the last guideline first, I’m also going with Rory’s choice as it works on so many levels!

So here goes then….

Is there any year in the past decade that stands out as the best?

2010. Son was a bundle of joy and energy. This was probably the last year my partner was truly healthy. Best winter in ages. Plenty of snow which hung around for two months. It was properly cold. Didn’t feel like Yorkshire. It was a dry cold. More Alpine. It was snowman central in our garden. The first snowman lasted 10 weeks.

Has your taste in music changed in the past ten years or do you think music in general has changed?

Went into the decade a metal head who liked classical music. Left the decade as a metal head who liked classical music and who plays a little bit of Leonard Cohen.

Are you heavier or lighter than you were ten years ago?

I have much improved muscle mass density with some incremental drift on the biometrics …. in other words heavier….

How many cars have you owned in the past decade?

Two plus my partners car for 2 months until it was sold. I think she would have been smiling down at me as I tried to drive her automatic which was the size of a glove compartment.

Highlights of the decade

  • Son
  • Switzerland
  • Partner

Low points

  • Death
  • Constantly trying to push up hill on support for Son
  • Rupturing Bicep

Grief and muddy puddles

A brief respite before the next storm arrives. Grey, cold and very muddy. Soon to be grey, cold, very muddy, very wet and stormy. It’s been one of those winters. Constantly just trying to avoid deep muddy puddles. Today I failed. My old running shoes have hardly any tread left on them. As I tried to sidestep a large puddle my foot slipped and I ended up standing in 4 inches of dirty water. Lovely. I really should buy a good pair of trail shoes but money is a little tight. Expenditure is prioritised. They will have to wait their turn.

If you we’re like me then you tried not to think about death and grief. I knew it would strike at some stage (that’s life) but best not think about it too much. I could understand the emotions as I had experienced losing my Dad when I was quite young. But I was shielded from much of the fallout. I really didn’t have the faintest idea about the practicalities. Years passed and I avoided thinking about death again. Then my mum died. This time no shield. Suddenly I was grieving again but this time I was also dealing with practicalities. So when my partner then died 6 weeks later. I was doubling up on the emotions and doubling up on the practicalities.

That is what’s tough about losing someone so close to you. At your lowest emotional point you are saddled with practicalities. You can’t think but you are trying to organise

  • Registering the death
  • Informing people
  • Organising a funeral
  • Sorting out your job
  • Sorting out your partners job. Returning work assets and documents.
  • Trying to work out finances
  • Trying to find the will and wade your way through probate
  • Dealing with Government Departments, Banks, Utility Companies
  • Trying to change the deeds to the house
  • Going through personal items and enduring countless trips to charity shops
  • Trying to change car ownership so I can sell her car
  • Sorting out what to do with the ashes

Your not even warned that the ashes come back in a glorified giant sweet jar. I wasn’t expecting an Egyptian Sarcophagus but I certainly wasn’t expecting a sweet jar shaped thing.

Like grief the practicalities tend to stick with you. As we were not married probate was brutal and took 15 months to finally bottom out. I didn’t expect that. I never considered that my career would have to be ditched quickly as it became incompatible with the now number one priority – single parenting. Suddenly two steady incomes dropped to one zero based hours contract income. Where did that practicality come from. I should have realised really. The sudden loss of someone your intrinsically linked with is going to send seismic waves through the very foundations of your life. Stuff will fall down. Things will change. Seismic waves – guess whose been trying to help son with Wave Theory for school.

So here we are in 2020 and I’m still dealing with grief. Still dealing with practicalities. I have managed to kinda stabilise the new post death financial world. But things are tight. Very tight. Again something I would never have immediately associated with losing someone close to you. But it is what it is. You prioritise the essential stuff. Unfortunately brand shiny mud loving trail shoes are not essential. So I guess it won’t be the last muddy puddle I end up standing in.

I guess I can forgive myself for not seeing that particular connection. Grief and muddy puddles.