Countries gone mad

“Dad if we won the lottery could we buy a deserted island and live there?

It’s kinda sad that an 11 year old thinks that way. But I fully understand why and YES I would jump at the chance. I remember a time when I loved my country. Those days have sadly gone. Like many folk from Yorkshire we would happily declare independence. York becoming a capital city sounds cool. The national dish could be the Yorkshire Pudding. Our national sports would be cricket and being grumpy. The national animal would be the Ferret. Instead of having a nuclear deterrent we could threaten people with our rhubarb sticks.

You might think this is daft but trust me this is off the scale sensibility compared to the stupidity of modern Britain. Nothing sums up the state of the union better than just one single news story. Given all the potentially catastrophic events circulating around us (and there are many) – the attention of the media and a good proportion of the population has been on …… the horror of a bakery introducing a vegan sausage roll across its 900 stores. The likes of Piers Morgan (one of the not funny loonies and self pronounced TV Star) went into meltdown saying things like “Nobody was waiting for a vegan bloody sausage you PC ravaged clowns”. The news story is everywhere, you just can’t get away from it. I use the term news story very loosely.

I waited with anticipation for our son to return. He would cheer me up, bring much needed sensibility to my world. Unfortunately not this time.

“Dad the school want me to either write left handed or type left handed until my right hand gets better, that includes trying to do exams with my weak hand. I told them that I struggle to coordinate my left hand and that’s the reason I can’t tie knots. Told them that the Doctor was trying to help me with it but the teacher said I just had to do it”

“Dad did you complain about the behaviour in our bottom class”

Yes….

Well they did something”

Please let it be something positive

They moved a really well behaved girl up a set because she was struggling with the behaviour in our class and they moved a really naughty boy in to replace her. It was a lot worse today”

Only thing left is to go and buy a lottery ticket. That remote island is calling. Anybody fancy joining us.

York is not the end of the story

It only takes us 30 minutes to drive into our closest city, the beautiful York. We are so fortunate to live so close to such an historic city. Such a rich pedigree.

  • It was founded by the Romans in 71AD,
  • The Emperor Septimus Severus ruled the entire Roman Empire from York for 2 years,
  • Constantine The Great was proclaimed Roman Emperor in York,
  • York was captured by the Vikings and named Jorvik,
  • Guy Fawkes (remember remember the fifth of November) was born in York,
  • York Minster is one of the worlds largest Cathedrals and took 250 years to build. It is the largest Gothic Cathedral in Northern Europe,

  • The Shambles is the best preserved ancient retail street in Europe dating back before 1086,

  • Dick Turpin the famous Highwayman was executed in York,
  • It has 3 miles of ancient City Walls still intact,

  • It is regarded as one of the worlds most haunted cities with over 500 recorded ghosts,
  • It has the worlds largest Railway Museum,
  • While other Northern British Cities built their wealth on coal, steel and textiles – York made it on Chocolate and Sweets. Rowntree’s and Terrys.

That was supposed to be the end of the post. Trust me York is worth a visit. Basically it’s a really cool City. Especially for a young kid with aspergers whose thirst for facts just keeps growing. He just laps up the facts. When I started writing this post I asked our son to supply me with the information. I completely trust his memory and haven’t bothered to double check the facts.

So it’s so upsetting when he came out with the following Statement a couple of hours later:

“I don’t want to be stupid, I would love to be clever one day”

So off we went for another late night dog walk. I try to provide reassurance. Try to build up his confidence and restore his faith in his dreams. But it often feels like a short term fix. Applying a temporary bandage to the wound. A bandage only protects the wound it doesn’t treat it. As Extreme would sing – I need to find more than words. I need to raise my game…..

Sleepwalking

New Years Day brought the traditional trip to the Yorkshire Wildlife Park. It was a wonderful few hours – more of that in the next post.

On our return things seemed fine. Then steadily things started to deteriorate and eventually we had a full on anxiety vortex. Consuming so much energy and hope.

Our son started to think again about school. Like me he often tries to overthink problems. Visualise potential outcomes. And in a similar way to Dr Strange when asked by Ironman about the millions of potential scenarios to stop Thanos – “he could only find one option which had a chance of success”. In our Son’s analysis he could only see one option with a chance of success – leaving school as a solution to his anxieties.

  • Teachers who don’t understand him
  • Falling further behind in reading – he realises that although he is making progress this is not catch up progress rather this is at best slowing the widening gap
  • Friendships
  • Low school expectations
  • Little help
  • Sensory overload at school – too much noise, too many people
  • Too much homework
  • Constant fear of getting negative comments and falling foul of the penalty system. Even something like forgetting to button up your top button or forgetting to bring in your planner producing automatic penalties.
  • A school timetable which brings tight deadlines and logistics pressures to someone with Aspergers.
  • In a disruptive class
  • And on and on …..

Again today I couldn’t find the healing words. Just couldn’t stem the raging anxiety vortex. The vortex doesn’t just suck our son’s energy it feeds on mine to. Increasingly tired. Feeling broken. Mind keeps crashing back to those 6 weeks when I lost my mum and then my partner.

We try to get some sleep but the vortex continues to rage and our son is beyond sleep.

Dad we need to do something, anything”.

Come on let’s take the dog for a walk.

But I’m in my pyjamas and it’s nighttime”

Get changed quickly then.

Ten minutes later at 10.50pm we are walking the dog in the pitch black with one cheap torch to guide us.

The dark, the quiet, the spookiness – whatever the reason but suddenly the anxiety vortex is calmed.

Talk is now about the things we really wanted but never got as a kid. The things we love and hate about England. Favourite foods. Ghost stories.

Hopefully for one night our son is ok. He is asleep and hopefully has a good night. We dust ourselves down and go again tomorrow.

Top Cat Trumps

Our son has always loved Top Trumps. It’s the same ritual every time. Before we play he loves to line the cards up in order for each of the categories. Clearly the girl cat is not a fan of straight card lines. Apart from the cat the other thing which frustrates our son with the game is that he has to rely on me to read out the text on each card.

We continue to try and work together on our son’s dyslexia. Some progress is being made. Although he still struggles in general he now can just about spell the player names from his favourite football team. He can spell my teams player names as well. ‘Loser’ covers that one.

But for all the progress he still can’t read the books he is so desperate to enjoy. This is made worse when he hears other kids talking about the stuff they have read. So I have bought him a reading pen. Basically it’s a pen shaped scanner with a headphone. It reads out scanned text. He has used them sporadically at school and they do give him a sense of independence.

We have opted for the C-Pen Exam Reader. Will report back on its performance. However today a very happy boy enjoyed reading a comic by himself. Plus the scanner works on Top Trump Cards. The signs are good.

Jelly Bean Challenge: How many ScoobyDoo movies and episodes have been made?

Different sites have different numbers but going to use these as our marking scheme

Shows (not including cross overs and stuff not including Scoobie) – 406

Films – 39

Specials – 11

Total about 456

My guess was 350. Son’s guess was 399. So again I visited the Jelly Bean Lounge. This time no bullet in the chamber – lucky to select normal apple flavour. However due to earlier attempted cheating I was forced to select a second bean. This time I can confirm blood flavour is revolting.

The next challenge was set by a random question setter we have found on the internet. The question is how many types of poisonous snakes live in Australia. Apparently the answer “too many” is not specific enough.

Early morning

I decided to get up really early this morning to try and do a bit of work catch up. But the work gods are still against me. In my half asleep state I somehow found a way of opening up the laptop and switching it on.

“Configuring Windows Update. Do not turn off your computer”

Stumbled off to make a cup of tea (as Velma Dinkley would say – Jinkys) why did I choose this week to give up coffee.

“Configuring Windows Update. Do not turn off your computer”

Stumbled back into the kitchen to make a bit of breakfast.

“Configuring Windows Update. Do not turn off your computer”

Stumbled back into the kitchen to make another cup of tea. Clearly the last one didn’t wake me up.

“Configuring Windows Update. Do not turn off your computer”

Better sort out the smelly cat litter, like smelling salts, that’s woke me up.

“Configuring Windows Update. Do not turn off your computer”

And on and on and on. Two hours later it’s still in configuration meltdown.

So I can’t turn off the computer but it doesn’t say anything about using it as the new cat litter tray,

“Configuring Windows Update. For gods sake don’t let that cat pee on your computer”

So zero work done but I did get to see a sunrise and hear the stunning 🦅 dawn chorus. I had forgotten how magical this time of day can be.

Literally

Children on the autistic spectrum can often take words literally. Now most of this can be put down to the confusing nature of language. Why do we make it so difficult. Often English doesn’t even seem like my second language. It did take me three attempts to pass my English exam.

It is something we noticed with our son at an early age. I can clearly remember one time when naughty dad had eaten all the smarties. When our son quizzed the suspect I remember saying

“Must have been the dinosaur in the kitchen”

Five minutes later our son is ransacking the kitchen in a desperate dinosaur hunt.

Another time I remember saying “and Pigs might Fly”. A few weeks later at nursery our son began telling the other kids that pigs could fly. And given a lot of the kids realised how much he knew about animals – they all started believing it to. So if you ever hear someone like Coyote Peterson or Chris Packham talking about flying pigs on their nature shows – then you probably know who to blame. Sorry

We had to become more careful in what we said. We tried to make sure if a joke was told or any colloquial language used that we immediately pointed what had been done and why. Explaining that words can have different meanings. We also tried to stress the importance of not only hearing the words but also trying to listen for how things have been said. We worked on his body language recognition skills. One game which helped was watching the TV with the volume turned off and trying to guess which people were happy or sad or angry or being serious.

To this day he still quite often takes words literally. It’s a worry going forward into senior school. But he is learning. He now frequently asks “is that real” or “is that true” to try and confirm meaning and last week….. He was using my iPad in another room. He kept shouting that it wasn’t working properly. Me being a lazy sod I was trying to shout instructions back rather than going to look at it. After several minutes he shouted that it was still not working. Without thinking I replied “just flush it down the toilet”. Few seconds later the toilet flushed. I have never ran so fast. Fortunately I found a laughing son saying “got you there dad”. Happy Days….

Bridges

Sunday seems such a long time ago. I just love the quayside area of Newcastle. Yes it’s built up. Some of the architecture is 18th century housing modern wine bars, restaurants, fast food joints and pubs. But it just seems to work and dovetail together.

But the highlight for me are the bridges over the River Tyne. All so different and just stunning.

Too often people look towards the famous Tyne Bridge and forget to look in the other direction.

Son was really brave and made it into the football stadium. He enjoyed the full Mr Men display from his dad. He even got animated with the pompous and bumbling referee (without prompting). For anyone who follows English Football – Mike Dean is infamous. Yes it ended up with my team losing again but that misses the point. It was one of those days where our son ventured into a world which is not his and rather enjoyed it.

Monday Monday Monday

Monday finishes off with a visit from Santa. It’s about the only event the village has. Raising money for charity. Raising smiles with children. Sorry for the poor photo.

However we never get a dull day.

Nice dog walk completed. Return of the strange yellow thing. Coffee made. Laptop opened. Work commenced. PHONE RINGS.

As Captain Jack Sparrow would say – “Bugger”

So ten minutes after opening the laptop I’m on the way to meet our son at the hospital. Accident at school and a hurt hand. Few x-rays and it’s a visit to the fracture clinic tomorrow.

Back home for some needed TLC for our son. Work day has turned into a marathon movie day. Can we get through the complete Pirates of the Caribbean series in one day. It’s odd watching the movies having now seen Johnny Depp live – playing guitar.

Lord knows when I’m going to get some work done. Maybe a few all night sessions. But in the scheme of things it doesn’t really matter. Now back to Captain Jack and the third movie.

Mr Men

This is the best the weather has managed since the strange yellow disk appeared yesterday morning. A brief thinning of the clouds then the darkness descends and it just rains and rains and rain. This is not good for the soul. Another thing which is not good for the soul is football.

I have taken a punt and bought two tickets for my teams next match on Sunday. It’s a bit of a lottery taking our son to a game. He would really enjoy it if it was just the two of us in the crowd. Unfortunately it will be 52000 in the crowd. We turn up at the stadium and see how he feels. If he shakes his head we scrap the football and head towards the river so he can do some Pokemon Go hunting. However sometimes he’s ok to give it a go and when he gets inside the stadium he enjoys the atmosphere. Never been able to pinpoint why we get the different reactions. So fingers crossed for Sunday.

Apart from the atmosphere he loves watching the Mr Men show. That’s not referring to my alleged football team but my reaction to the game. Our son says it’s about getting the popcorn in and then watching his dad go through the characters in the Mr Men show.

Entering Stadium – Dad is going to watch the game MR HAPPY

Trying to find the seats – Dad always gets lost MR FORGETFUL

Start of the match – Dad very nervous MR JELLY

Few minutes into the game – team started ok MR CHEERFUL

Game starting to go downhill – team starting to struggle MR WORRY

Team now losing – team playing badly MR GRUMBLE

Team now getting hammered – Dad getting annoyed MR GRUMPY

Team clearly going to lose again – Dad getting VERY annoyed MR RUDE

Team lost – left stadium Dad needs to eat lots of food to cheer up MR GREEDY

Strange Yellow Thing

The morning started as has the last 5 days have – grey, wet and cold.

The school bus was missed yesterday morning – never a good sign. We slightly overslept, only by a few minutes but…. Sticking to the established routine is so important to our son. Routine is king. I tried to stick to the plan but just slightly quicker. It was never going to work. I could sense the tension building within him so we just went back to the usual routine. So we missed the bus. It’s not a disaster it’s only a 15 minute car journey to school. Plus it’s one less bus trip for him to deal with.

On the way back from school a very odd thing happened. The clouds parted and a strange yellow disk appeared in the sky. I don’t know what it was (remember this is Yorkshire) but it was lovely to see. With this being Yorkshire the strange yellow disk disappeared behind grey clouds thirty minutes later.

Update. Looking out into the pouring rain this morning – even too wet for the dog – I am confidently predicting the strange yellow disk has packed his bags and won’t be appearing here anytime soon.