Posted on by bereavedandbeingasingleparent · 43 Comments

Waiting

Apparently a heatwave is about to hit Western Europe. I’m not sure the required paperwork and clearances have been signed off for Yorkshire yet. As a result it’s gone back to cold, cloudy and very wet. Here this is called proper weather.

Anyway let’s see if the much vaunted hot stuff arrives. Knowing our luck it could be a long wait. But we are accustomed to waiting for things.

  • Snow at Christmas … 10 years
  • My so called football team winning a domestic trophy … 64 years
  • A U.K. Van Halen Tour … 35 years
  • Last Total Solar Eclipse in Yorkshire … 92 years, next U.K. one 2090

We can add to these the following waits.

  • Bereavement counselling for son … over 2 years and counting
  • Waiting to have son’s dyslexia initially assessed by an Education Psychologist … over 3 years
  • Aspergers Review and Assessment … 2 years
  • Dedicated Aspergers Therapy … 1 year
  • Anxiety Therapy … 6 months
  • Speech Therapy … 4 years
  • Paediatrician Assessment … 1 year
  • Parent Training on Autism … Never going to happen So far 5 years

You get the picture. Nothing comes easy. As a parent. As an Autism Parent. As a Aspie Parent. You have to push for the support your kid needs. Constantly chasing up contacts. Everyday seems like a new or recurring battle. Letter after letter. Chasing up phone calls. That’s something which isn’t mentioned when you start your new life journey. You sort of assume that the professional help will be there when you need it. You quickly find out that the professional help is withheld or is delivered at times to suit the system rather than the child.

What the system doesn’t seem to appreciate is that you get such a short window of time to foster real progress. As one psychologist said

Up to about 14 years is the development sweet spot. That’s when the real, long lasting progress is usually made. That’s when you have a chance to start closing the educational gap. After that it becomes increasingly difficult. If it’s left too long then its probably just about trying to stop the educational gap widening too quickly.

The frustration that causes you. It’s hard to explain that feeling. Maybe constantly walking in treacle. Every step forward is such an effort and yet you are so far away from your destination. But the fight has to be fought. As long as our son wants me to keep pushing then I will keep pushing. That’s what parents do.

Posted on by bereavedandbeingasingleparent · 89 Comments

Crop Circles

You can’t beat a good crop circle. Such intricate geometric patterns. These aliens are clearly very artistic with boundless amounts of patience. It’s kinda reassuring to know that the earth is clearly the preferred canvas of choice for alien art.

Unfortunately something is a clearly amiss with the Yorkshire Crop Circles.

Have the aliens that visit Yorkshire been indulging in too much Newcastle Nuclear Brown Ale or Black Sheep Holy Grail Ale.

Or are the Yorkshire Aliens the Galaxy’s avant-garde pioneers. No intricate geometric patterns here. Or maybe it’s the weather. You can imagine an alien more at home in fertile hospitable climes saying something like this as he is starting his Yorkshire Crop Circle in the pouring rain

“Bugger this for a lark let’s get it done as quick as possible then we are out of here”

When I told this story to our son he just looked at me with that look… thought for a few seconds then said.

“Dad why on earth would an alien fly all those billions of light years to do a bit of art then fly back again. You need to look for the rational explanation. Clearly we have some mighty big field mice these days”

Clearly the all too common stereotype that autistic people do not have a sense of humour is clearly true which thus means we need a much bigger cat….

Posted on by bereavedandbeingasingleparent · 45 Comments

The new Brexit team

It’s been a very good year for Daffodils. Flowers lift the heart. So while I set off my Stone Age Laptop to undertake a work task I headed into the garden to plant flower seeds. I have a horticultural tradition now. In September I visit the local garden shop and see what out of date seeds they are selling off cheap. One hour later 8 random and very cheap flower seed packs have been planted.

I returned inside to find the Laptop still apparently busy doing stuff so let’s put the TV on for a few moments. Just in time for the weather forecast.

“During the weekend the warm settled weather will be replaced with an extremely cold frontal pattern. Snow cannot be ruled out. Severe frosts are likely. Gardeners should take note of this Arctic Blast. Maybe delay planting for a couple of weeks”

You couldn’t tell me this an hour ago. Marvellous.

Then the news comes on. Brexit is still a monumental pile of pants – Deep Joy. Everyday I sound more and more like Stadler and Waldorf from the Muppets (sorry).

Anyway is it just me or does our Prime Minister look increasingly like Skeletor from the Master of the Universe cartoon. Sorry Skeletor you were never this self obsessed or so grossly incompetent.

We had a little game the other night. Come up with a list of cartoon characters who would do a better job of Brexit than the current shower of ineptitude – I cleaned this up as I did use two naughty words initially….

So our Cartoon Brexit Replacement Team is:

  • Prime Minister May becomes PM Lisa Simpson
  • Chancellor Hammond becomes Mr Krabby (Spongebob)
  • U.K. Europe Negotiator Robbins becomes Selma (The Simpson’s)
  • Foreign Secretary Hunt becomes Inspector Gadget
  • Brexit Secretary Barclay becomes Patrick (Spongebob)
  • Person responsible for negotiating trade deals – Liam Fox becomes Bill Cipher (Gravity Falls)
  • Minister for screwing up the Environment Michael Gove becomes Sid (Ice Age)
  • Brexit Buffoon Boris Johnson becomes Elmer Fudd
  • Brexit Twit Rees-Mogg becomes Yosemite Sam
  • Minister in charge of screwing things up Chris ‘Calamity’ Grayling becomes Goofy

I’m sure you would agree our cartoon team is significantly better equipped for the job. Now having sorted out Brexit it’s time to try and remember where I planted those seeds.

Posted on by bereavedandbeingasingleparent · 14 Comments

Uplifting rain

Yesterday was a strange day. Started very warm, dry and still. Finished very wet, cold and stormy.

It was also one of those moods swing days. It started really well with my son in great form. Then one Family movie later it had suddenly swung to tears and dark hearts. Movies which clearly advertise bereavement in the description can be planned for or better still avoided. It’s the ones which suddenly drop these on you without warning which cause the trouble. From a happy family on a trip of a lifetime to suddenly a young family trying to cope with the sudden death of the mum. I can’t remember seeing that bit in the synopsis. It really hit me, lord knows what it did to my young boy. It makes you feel like a completely incompetent parent … why didn’t we opt for the Scooby Doo movie.

But yesterday we had an unlikely saviour, the rain. After two months of completely dry weather the heavens opened. Stood outside in the rain, being almost blown off our feet in the wind. It just felt great. Seeing my son getting drenched to the skin and loving it. Today I just love the uplifting rain.

Posted on by bereavedandbeingasingleparent · 3 Comments

Winter continues

Tomorrow March arrives yet winter continues here. It’s bleak and very cold.

The weather is matching my mood. Today the world seems a cold, bleak and lonely place. Luckily my son will return from school soon and he will lift my spirits. Even the bleak landscape will start to be transformed. Its amazing what a snowman can do.