Apparently a heatwave is about to hit Western Europe. I’m not sure the required paperwork and clearances have been signed off for Yorkshire yet. As a result it’s gone back to cold, cloudy and very wet. Here this is called proper weather.
Anyway let’s see if the much vaunted hot stuff arrives. Knowing our luck it could be a long wait. But we are accustomed to waiting for things.
- Snow at Christmas … 10 years
- My so called football team winning a domestic trophy … 64 years
- A U.K. Van Halen Tour … 35 years
- Last Total Solar Eclipse in Yorkshire … 92 years, next U.K. one 2090
We can add to these the following waits.
- Bereavement counselling for son … over 2 years and counting
- Waiting to have son’s dyslexia initially assessed by an Education Psychologist … over 3 years
- Aspergers Review and Assessment … 2 years
- Dedicated Aspergers Therapy … 1 year
- Anxiety Therapy … 6 months
- Speech Therapy … 4 years
- Paediatrician Assessment … 1 year
- Parent Training on Autism … Never going to happen So far 5 years
You get the picture. Nothing comes easy. As a parent. As an Autism Parent. As a Aspie Parent. You have to push for the support your kid needs. Constantly chasing up contacts. Everyday seems like a new or recurring battle. Letter after letter. Chasing up phone calls. That’s something which isn’t mentioned when you start your new life journey. You sort of assume that the professional help will be there when you need it. You quickly find out that the professional help is withheld or is delivered at times to suit the system rather than the child.
What the system doesn’t seem to appreciate is that you get such a short window of time to foster real progress. As one psychologist said
Up to about 14 years is the development sweet spot. That’s when the real, long lasting progress is usually made. That’s when you have a chance to start closing the educational gap. After that it becomes increasingly difficult. If it’s left too long then its probably just about trying to stop the educational gap widening too quickly.
The frustration that causes you. It’s hard to explain that feeling. Maybe constantly walking in treacle. Every step forward is such an effort and yet you are so far away from your destination. But the fight has to be fought. As long as our son wants me to keep pushing then I will keep pushing. That’s what parents do.