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Brexit and Christmas

The parliamentary term is less than 3 days old and already the world has discovered what whose of us who have worked with Boris Johnson have always known: he is cowardly, weak, vindictive and without morals. Behold your Prime Minister, ladies and gentlemen.

Going well for our so called Prime Minister – those are the words from an MP from his own party….

Now putting my cards on the table I voted against Brexit and still think it’s a bad idea which runs the risk of making things much worse for the weakest in our country. The only real winners will be the the millionaire hedge fund investors who helped fund the leave campaign. But if we are having Brexit then we need to do it properly and make the very best of it for all of our communities.

I had an appointment with the Dentist today. The Dentist said that I needed some treatment but she was full until October. But the work would be completed before the end of October just in case they start to struggle getting dental supplies due to Brexit.

One of my university friends is a civil servant who works within one of the Government Departments. He was saying that they are working on the basis of significant risks of fuel shortages, fresh food supply disruption, medical rationing, veterinary drug shortages within a month of Brexit. He reassuringly described the current Government approach as swinging between headless chickens and an ostrich burying its head in the sand. The current thinking seems to be if we are lucky it will be fine but there is more of a chance that it will be somewhere between bad and appalling but we can blame Europe for that.

So better keep all those fingers crossed then.

Another friend of mine works in the car production sector. His plant works on a Just in Time basis so needs a constant supply of parts. He was saying that the supply is likely to be severely disrupted as soon as Brexit starts. Apparently the Government has only just realised this and has added this to its risk plans – with just weeks to go. I remember hearing a Minister sound surprised that companies might be so dependent on the free movement of goods.

So this week our Prime Minister closed down parliament with the excuse that he wanted to develop some really radical policies. Maybe he should put down his fine claret glass and concentrate on a few other matters first. If it has to be a no deal Brexit why not give yourself some more time to do it properly rather than winging it.

The other week we went for a walk. Too engrossed in a chat about Monty Python we missed out path and ended up on the wrong side of the forest so we couldn’t get back to our village. The Forest was too dense to just walk through it. So we had two options. Walk the 20 minutes back down the path or take the only short cut through the forest. Only problem is that the short cut is a deep beck with unknown underfoot conditions either side (due to thick undergrowth). Yes we could wing it and rely on good fortune but in life that doesn’t often work out well. So we walked back down the path and 40 minutes later we were back home. Safe and dry. Yes the unplanned shortcut might have worked but it wasn’t worth the risk.

My old pop had a saying. Nowt worse than doin a job half cocked.

Dad I’ve started the planning process for Christmas.

Last year I put out son in charge of Christmas. What we do, what we eat, where we go, what decorations to have and when to do it. It was our my attempt to deal with the fallout from son hearing that chat about Santa. Him planning everything worked out quite well last year. The feeling of control alienated a lot of the Santa let down.

I’ve set myself until the end of September to have the Christmas timetable mapped out then I can sort out the details.

His first call looks like it is to move the traditional Christmas lunch to Boxing Day. Christmas Day lunch will now be pizza based – more time for fun less work. The traditional trip to the zoo on New Years Day will happen again. This year he wants some external lights on the house but wants to think about the environmental impact. He wants a couple of additional day visits. He’s deciding between Edinburgh, Northumberland, Lake District and Stonehenge.

The interesting point is that son is giving himself twice the length of planning time for Christmas than the PM is giving the country for his no deal Brexit. I know which one is going to be better organised.

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School inspection

Ok troops stand by your bed at 6am for a kit and bed inspection from the Sergeant Major. If you fail you will do 100 press-ups and your on peeling spud duty for a week. Dad had those when he was in the army. He’s one of the troops in the photo above – enjoying the winter weather in Iceland. Apparently inspections are good for discipline and builds character….

Dad can you help me with my school bag and kit. I’m really worried I don’t have the right stuff.

Don’t worry son I filled your bag up with school supplies last week.

Do I have a 4b pencil.

Not sure but you have pencils.

If you don’t have a 4b pencil you get a negative.

Son it will be ok you have pencils.

No Dad you get a negative for not having the right pencil. Do we have colouring pencils covering all of the colours of the rainbow.

You have a load of pencils in the Peppa Pig pencil case. (I really must change that). It’s at the bottom of your school bag. It has lots of different colours.

No you need to ensure you have all the colours covered or it’s another negative.

It will be ok Son you do have enough coloured pencils for art and the teachers won’t know anyway.

Dad on Thursday the Form Tutor is doing a full school bag inspection. He’s going to check that we have every item on the school list. Every time he finds a mistake he will give you a negative.

******My jaw hits the flaw and I am stunned. It was later confirmed that school bag inspections are taking place with punishments for breaches of rules. I am speechless.*******

So after 30 minutes work we managed to rustled up a kit list that would hopefully pass the Drill Sergeant role call.

Dad we will need to move the coloured pencils to the main pencil case as the tutor has said that he will only check one case. And all the essential items have to be in there.

***************************

Maybe it’s just me but I find this completely staggering. I’ve got a kid with Aspergers seriously spooked over the type of pencil he has in his school bag. How can that be right. Whatever happened to the idea of building a warm and welcoming learning environment. I thought the days of negative reinforcement had been assigned to the bin. A few months ago we went to a zoo where the keeper in charge of the Sea Lions talked about how an approach based on punishments never works. The animals will only respond to positive reinforcement. So an approach not ok for Sea Lions is perfectly acceptable for our children.

Why can’t school turn this round and award house points for the neatest bag. Or give every kid with the full school kit a flapjack. School could have prizes for the sharpest pencil tip, the funniest sharpener and the most original pencil case design.

To be fair to school they are following an approach favoured by our so called government. But I’m sorry the approach is fundamentally wrong. If I could sort the finances out he would be pulled from school immediately and taught at home. School and more importantly the so called government have a duty of care to kids which they are failing. This years battle with school is going to get very messy indeed.

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Burns

It’s hot. That’s Yorkshire hot. Which probably means mild in other parts of the world. My Dad would have called it mafting. It’s that mafting that even the Yorkshire Farm Machinery can’t cope. The photo shows the smouldering wreck of an unfortunate tractor with a badly burnt field. That’s a first on the dog walk.

Our Son does suffer from stress and overpowering fears. When he took one look at the burnt carnage he immediately panicked that our house would soon be engulfed in flames. It’s understandable as the field is less than a mile from us. I tried to calm his fears with words but with no luck. So actions are required. A mad Dad sat down in the blackened field. Look son my bum is getting a little warm but my shorts are not ablaze. Although it did demonstrate a point I should have thought the plan through a bit. Light grey shorts are maybe not that fetching when they have two buttock shaped black marks on the rear.

Although our son’s wild fire fear has been dampened down a little. Sometimes silliness works better than rational argument. It is still there and will be until normal Yorkshire weather returns.

When you have a child who suffers from these inhibiting fears it is vital that you try and keep on top of them. Working in partnership with school and health services is vital. At his last school they were usually on the ball. The teacher would catch me at the end of day or send a quick email to let me know if something had happened. If it was particularly significant school would phone immediately.

Unfortunately at his new school this has completely stopped. I fully understand that it’s a much bigger school and he has different teachers for each subject. But surely they still have a duty of care. I know speaking with the health professionals they say unfortunately most schools in they area are the same now. The close partnership working which was in place a few years ago has dried up. Again and again it comes back to the same reason. Government. As one Doctor said

Under the last Labour Government it was about the patient. Now the patient is a secondary consideration to income generation, competition and profit. Money is now king.

So increasingly it’s just left to parents, families and friends. The days of government for the greater good are over. Its all about self help and what the individual can afford. Must deliver tax cuts. It’s back to Victorian ethics. Days when democracy could be overridden by the powerful and the rich. A time when it was ok to send poor kids up chimneys. When hatred and discrimination was the norm.

Maybe it’s just me and I’m in the minority. Just my irrational fear. But increasingly my country is becoming alien to me. I hate what is becoming. Too many kids do not get the support they badly need. As a generation we have really messed up our priorities. Our leaders happily play fiddles while Rome burns. Or maybe we should now change that to our leaders go to comedy clubs while the Amazon burns.

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Hot

It’s hot. Yes I’ve said it now. Yes Yorkshire is hot. When I say hot I mean hot for Yorkshire which probably means it’s probably two jumper weather in Arizona.

A grand day for a trip to the zoo.

Clearly the zoo animals had the right idea. Stay in the shade and watch the silly humans walk round in the blazing sun.

Dad can I have a slush.

What a grand idea. Unfortunately the kiosk informed us that they had just switched the slush machine on and if we came back in a couple of hours they should be available. It was a similar story with the ice cream machine. So we purchased from the limited available snack range. Sat in the hot sun with two cider lollies and a bag of just fried hot donuts.

Dad it’s a good job your a professional athlete or you would be getting a Dads Belly.

Clearly a kid with Aspergers don’t have a sense of humour. Come on Hollywood get your facts right.

Dad it’s getting too busy.

And with that we left. But the zoo gave us one last memory. As we were walking out of the main door a delivery driver had arrived and asked a parking supervisor where he was supposed to drop off. He was told “Through those gates. Just unbolt the lock and drive into the compound. Just make sure you lock the gate immediately”. The delivery driver in a slightly alarmed voice asked “Are you sure”.

Visions of Jurassic Park and a driver about to come face to face with a suitably pissed off carnivore came to mind. Clearly the driver had similar thoughts as he made sure he round his van window up before he ventured any further.

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The phone

A couple of miles from our village a large TV event has been taking place. Something like 20000 people have been attending. But we haven’t seen a soul. The dog walk felt like we had the land to ourselves. Isolation.

This summer is probably going to be my most isolated ever (so far). Outside our gang I would be amazed if I have spoken more than 30 words to the outside world. Probably had more conversations with the plants (weeds) in our garden. It really is starting to show. Even something as simple as buying a couple of entry tickets leaves me a gibbering wreck.

Not had a single conversation with anyone in the village in months, Suspect the village are celebrating that. Even the postman has gone into stealth mode. Absolutely no sign of the neighbours.

A few years back I remember a clinician telling us that we should probably get used to the idea of becoming isolated. Get used to your own company. She had seen a lot of parents in our position get cut off from friends and the outside world. That seemed fine as I had my soul partner with me. Didn’t realise how applicable own company would become.

This afternoon I checked if our phone was still working. It’s not rung once during the entire school holidays. In fact my mobile has only had two brief work calls. As the months go on my isolation from the world gathers pace. I’m not sure if that scares me or delights me. It’s got to the stage that I’m not sure if anyone would notice if I replaced the phone with a large bust of Boris Johnson. Probably not.

I would hope that the Boris bust would become a favourite cock a leg spot for the dog. Suppose I would need to move it outside. Wonder if Boris would tell the migrating birds to bugger off back to their own country. Sorry should really give Boris his full name

Alexander Boris de Pfeffel Johnson.

Ironically Boris wasn’t born in this country. Given his position on immigration maybe he should send himself back to America. Anyway I bet his phone rings more times than mine. A man who currently wants the UK to be isolated Internationally probably doesn’t understand what isolation really means.

Maybe I should offer my services. I could be the Governments expert on isolation. I did think about being the Government expert on talking gibberish but they have already got that position well and truly covered.

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Hadrians Wall

This is the final instalment of our unscripted and unplanned day trip. So far we have ventured to Kielder Forest and Kielder Water. So where next. After a series of left and right turns we are driving along a road when.

Dad stop. That most be Hadrians Wall. Ok it could be a farm wall. But it looks Roman to me.

It was the famous Roman Wall and ten minutes later we were trying to find a parking place at a Roman Fort.

Dad this is really busy. Too busy.

Luckily after buying tickets (while son hid in the car) I was able to find an alternate way onto the site avoiding the crowds. Hopefully the sheep in the neighbouring field didn’t mind us trespassing too much. It would have been such a shame for our son to miss this piece of ancient history.

Housesteads Roman Fort was built around 124AD to help defend Hadrians Wall. The wall was 73 miles long and stretched across Northern England from the Tyne to Solway Firth. It marked the northern boundary of the Roman Empire.

When it was constructed the wall was up to 20ft tall.

Housesteads is the most complete Roman fort in Britain. It stands on a stunning Northumberland escarpment. Can’t think of a more stunning location for a history lesson.

I wonder what the Romans would have made of me. Aspergers wasn’t even a word back then.

Before I could say anything he smiled and said.

Maybe they would have just said he’s on whatever Nero is on.

Back to the Fort tour. Son had obviously banked a considerable amount of information about this Fort from somewhere. No need for a guidebook.

As son was lost in a dream I wandered around the Fort silently with him. Trying to imagine what the site would have been like almost 2000 years ago. Good job the Romans installed steam underfloor heating. Would need it in summer never mind winter. Then another thought. All those years later and we are still trying to build walls. Put up barriers to try and protect our way of life. Have we learned nothing in all those years. Actually our PM is increasingly Nero like. A few other countries have their very own modern day Nero’s.

George RR Martin has revealed that Hadrians Wall provided the inspiration for Game of Thrones. The imagery of the book and it’s Wall are strong and echo that of a Hadrians Wall all those years ago. Romans stood on a huge wall marking the very edge of their civilisation. That view to the unconquerable northern lands must have been truly frightening.

Dad it’s funny when you think about it. The Romans would probably now be standing in the opposite direction, looking South and thinking the same frightening thing. A strange, scary land.

Yes England seems to have gone completely barking mad. Looking into England is a very scary prospect.

And with that we head back home. The road trip has been a great success. Especially as I only thought we would be having a random visit to somewhere local in Yorkshire.

Dad I’ve decided we need to have more road trips to make sure I visit the 12 new places. One needs to be to Scotland. Sorry Dad that might mean we are setting off before we go to bed.

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That play

We had set our hearts on a trip out. Son wanted to go for a walk round a quiet lake. I wanted sea air to cleanse my soul. I was born near the sea and it has great healing properties. But the weather was grim. Too grim. So a change of plan.

Plan B. We needed a few smiles this morning so off we set to the cinema to see the new Horrible Histories movie. Maybe not quite as funny as Bill but it was a really good film. Yes it brought many smiles.

As the rain lashed down on the drive back home it was decided to just have an afternoon of movie watching.

Dad let’s watch Bill when we get home.

So it was a TV lunch. Jacket Potatoes and a super funny take on Shakespeare. It’s amazing how a couple of funny films can lift the spirits. Makes you forget your own reality. It’s a most odd feeling these days. That feeling of laughing. So as Bill finished I wondered what comedy classic our son would pick next. Monty Python? Paddington? Ice Age? Spongebob?

I’ve decided Dad. Can you check if you can find XXXXXXXX for free. Always fancied watching it.

So 20 minutes later we are watching another movie. MacBeth staring Michael Fassbender. Yes not the happiest movie. A bit short on laughs. One of those films which is just so bleak that it forces you to put on the thickest jumper you can find. Even the steaming hot coffees fail to warm my bones. It’s gory, it’s dark, the music is brooding, the imagery is stunning. Not quite the family movie I had set my heart on but I suspect William Shakespeare would have loved what his words had become.

It’s strange how something so bleak can help you forget your reality as well. My mum would always say she would play sad songs to cheer herself up. I understand that now.

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Castle Time

Why is it that when you take the car in to a garage the words you never never hear are

Don’t Worry it’s nothing

It’s a cheap fix

It’s sorted and there is no charge

So today the car misbehaved. Took it into the garage and within minutes was told it needs a new ……. and it’s going to cost £XXX

One of the benefits of a spectacularly unreliable and expensive to maintain car is that they seem to have allocated it its own dedicated service team. We can look at it straight away. It will be ready in a couple of hours.

So we had a couple of hours to pass and luckily we were in walking distance of a castle. A fine ruin of a castle.

Pickering Castle was originally built around 1070. It is reasonably well preserved as it missed out on the carnage which was the War of the Roses and the English Civil War. I hoped that this unplanned visit would count against our sons target of 12 new places to visit. Sadly he pointed out the exact date and time of his school visit here 4 years ago.

I always think castles look better in black and white. Brings out their hidden Hammer Horror character.

It was a fun couple of hours as son explained in great detail the history of the castle. It’s linkages to wider English History and the various different structural improvements which have occurred over the years. I added important stuff like cool places for ghosts to hide.

Unfortunately the hours flew by and all too soon it was time to return to the garage. Luckily they still take cheques. That buys a couple of days to keep the bank manager happy. Son helpfully pointed out that a few hundred years ago I could just have raised taxes to pay for it – probably a Poll Tax. That assumes my role would have been Lord and not Peasant. In my all to likely Peasant role I had better start shovelling that muck quicker.

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Summer Rain

It’s SUMMERTIME. It’s YORKSHIRE. It’s still RAINING.

As a kid I remember being told if it was settled and fine on the 31st July then the rest of summer would be great. However if it was wet on that day then summer would stay poor. It’s funny how often we have great weather in July then we hit the 31st and the weather breaks. So basically here in Yorkshire at this time of year – once the weather breaks it stays broken. But it’s great conditions for ducks.

See it’s true the Brits are always taking about the weather…..

Today was supposed to be another attempt to visit a new place. A local castle. Unfortunately lots of rain stopped play. So we will try again tomorrow.

Dad if we go now then we will have the castle to ourselves. But it’s a ruin. So no cover. Going to get so wet. On balance I will take a risk on crowds. This is way beyond wet.

Yet one hour later.

Dad can we go out and play footie.

It’s pouring down.

When the aliens come to invade earth they ain’t going to say – it’s raining we will give it an hour.

So in the pouring rain we played football then it was aquatic trampolining. Drenched. That wet that you can feel your feet shrivelling up. That wet that the football becomes like a bar of soap and weighs as much as a set of dumbbells. That wet that the ducks bugger off inside.

Tomorrow the colds will start but today it’s fun.

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Waiting

Apparently a heatwave is about to hit Western Europe. I’m not sure the required paperwork and clearances have been signed off for Yorkshire yet. As a result it’s gone back to cold, cloudy and very wet. Here this is called proper weather.

Anyway let’s see if the much vaunted hot stuff arrives. Knowing our luck it could be a long wait. But we are accustomed to waiting for things.

  • Snow at Christmas … 10 years
  • My so called football team winning a domestic trophy … 64 years
  • A U.K. Van Halen Tour … 35 years
  • Last Total Solar Eclipse in Yorkshire … 92 years, next U.K. one 2090

We can add to these the following waits.

  • Bereavement counselling for son … over 2 years and counting
  • Waiting to have son’s dyslexia initially assessed by an Education Psychologist … over 3 years
  • Aspergers Review and Assessment … 2 years
  • Dedicated Aspergers Therapy … 1 year
  • Anxiety Therapy … 6 months
  • Speech Therapy … 4 years
  • Paediatrician Assessment … 1 year
  • Parent Training on Autism … Never going to happen So far 5 years

You get the picture. Nothing comes easy. As a parent. As an Autism Parent. As a Aspie Parent. You have to push for the support your kid needs. Constantly chasing up contacts. Everyday seems like a new or recurring battle. Letter after letter. Chasing up phone calls. That’s something which isn’t mentioned when you start your new life journey. You sort of assume that the professional help will be there when you need it. You quickly find out that the professional help is withheld or is delivered at times to suit the system rather than the child.

What the system doesn’t seem to appreciate is that you get such a short window of time to foster real progress. As one psychologist said

Up to about 14 years is the development sweet spot. That’s when the real, long lasting progress is usually made. That’s when you have a chance to start closing the educational gap. After that it becomes increasingly difficult. If it’s left too long then its probably just about trying to stop the educational gap widening too quickly.

The frustration that causes you. It’s hard to explain that feeling. Maybe constantly walking in treacle. Every step forward is such an effort and yet you are so far away from your destination. But the fight has to be fought. As long as our son wants me to keep pushing then I will keep pushing. That’s what parents do.