Anxiety

Anxiety is far too often an unwelcome visitor to our house. I have suffered from it since childhood. It got so much worse after the world changed. Never ending road. Virtual all the worries now focused on our son. Not sure I am that bothered about myself these days….

This morning I woke to that unwelcome guest again. So many voices in my head. All saying the same thing … son is due a anxiety meltdown. Unfortunately that was the truth.

Anxiety and Depression are real inhibiting factors for so many in our society. Research clearly indicates that the risk of suffering from these awful conditions are increased for those living in the world of autism. At least a two fold increase is often reported. Yet from personal experience this was never identified in any of the briefings or guides we received during our journey. It is just not addressed appropriately by society. This can and does have catastrophic results. In our case it took several years of pushy parenting before our son started to get some help.

It’s so difficult to unpick the anxiety for our son. Is it Aspergers related, is it Dyslexia related, is it bereavement related, is it human life anxiety, is it all four….

With our son we have a frequently returning swirling mix of worries and demons. They recede then they blast back. On really bad days they all materialise at the same time. He has many repeating spectres.

  • Dyslexia and it’s unwanted consequences.
  • Friendships and social interaction.
  • Not understanding this strange, alien world.
  • Fear of death (his, mine, his pets, his remaining family, the people he cares for).
  • Related to the fear of death is his fear of illness. Everything is catchable. Everything can be a risk. Every sneeze, every ache, every speck of dirt is a potential harbinger of a health disaster.
  • School. Homework, rules, punishments, no support, cold and scary environments.
  • Feeling different, feeling inferior, fearing the finger pointing, fearing being laughed at.
  • Running out of money, going broke, losing everything.
  • The climate, wrecking the natural world, world politics, Brexit. World is going wrong.
  • Being alone.
  • Having to fit into large social groupings.
  • Fear of being long term depressed.

This is someone so young.

Today it is the return to school and fear of illness. The anxiety vortex is building strength. The bag of tricks we try only helps take the edge off but doesn’t fix today. All we can do is just be busy. Constant activity. Try to stop the mind thinking. These apply to both of us. My world is full of anxiety today as well….

Frazzled

Frazzled that’s a good word. When I was younger I used it to describe the dreaded over heating meltdown the early laptops would often descend into. These days my laptop is that old and slow that it can’t even get warm – except for when the fat boy cat decides to sleep on it.

But now I have adopted Frazzled as my most common state of mind…..that’s even before school holidays start.

School holidays are fantastic as I get to spend even more quality time with our son. Yes I would prefer to sit with a cup of coffee in the happy knowledge that he is having wonderful adventures with friends. But this is a great backup option.

But one downside of school holidays is an outbreak of acute Frazzlement.

I start from a point of parenting fatigue. Then from breakfast until bed time I engage continually with a mind that operates on a completely different level to mine. One that runs at a speed way beyond the capacity of my really outdated brain. So many questions, so many different facts, so many different logic constructs. No outside world to help reset the brain. Rapidly my brain overheats and becomes frazzled. Son calls it Zombie Parenting. I’m there but the brain has shutdown. The simplest tasks become impossible. By the end of the day I am spent. Then you wake up even more tired and the cycle continues.

A blogger far cleverer than me talked about the desirability of having a backspace button options in life. I so so want a brain reset button. That would be fantastic. The chance to press reset then sit 5 minutes while the brain clears out the crap and reloads itself again. I would then be good to go again. Rather than wandering around for hours with an overheating and completely useless brain. System error messages pinging around the head. That’s my excuse for the poor level of my parenting currently. Today’s highlight has to be peeling a banana then handing our son the banana skin. Yes the actual banana had been binned. Not far behind that was trying to unload the bag from the Hoover … while the Hoover was still switched on… had to clean the ceiling.

Bring on Frazzled Friday.

Multitasking

Some can multitask some cannot. I am certainly in the latter camp. A few examples from yesterday to evidence the point

  • Attempt to make breakfast and prepare a pack up for lunch. Ended up pouring fruit juice on the cornflakes and using cold water in the coffee,
  • Driving to Doncaster and son asked my opinion on King James II. Two minutes later I had demonstrated a complete lack of historical expertise AND I also realised that I had missed our motorway junction,
  • I tried to pay the zoo entrance fee while holding a bottle of water and a cup of coffee. Although I did manage to purchase two tickets I also managed to drop the water and spill the coffee down my leg,
  • Trying at the same time to make soup, grill some vegetables and cut some carrots. Unbelievably I managed to not turn the cooker on the stove so the soup didn’t heat up, burn the vegetables and almost slice my finger off,
  • Tried to send a relative a birthday card while trying to make a telephone complaint to our broadband supplier. After posting the envelope I discovered the card still sat on the desk.

So I can’t multitask however our son…..

During the evening I found him sat with both iPads on his lap, while at the same time the TV was on. When I asked why the response was

“Somedays just don’t have enough hours to do all the stuff. Had three things I still really needed to do so I am watching a video about William Shakespeare on your iPad and a video about caring for gerbils on my iPad. Plus I am listening to a documentary about the Dinosaur mass extinction on the TV.”

Clearly from our later discussions he managed to absorb an unbelievable amount of detail from all three information streams. I could only dream of that.

Having said that if someone is so good at that how difficult can it be to put his dirty clothes in the washing basket…….

Changes

We had a lovely trip to Doncaster Wildlife Park today. It was a relatively brief visit. He was a bit uncomfortable with the crowds, but as we got there early so we had an hour of relative quiet before the masses started to arrive. The animals all outside – basking in the warm sun…Yes warm sun and Yorkshire.

On the way back home he was getting increasingly agitated at the amount of building work appearing in the countryside. I have to say it is staggering and so frustrating. The amount of derelict and unused land in built up areas and we still decide to encroach on what is left of our unspoilt areas. Can we please leave just a bit of our beautiful planet for future generations.

A few miles later I asked our son what things he would change in the world today. Reading my mind he initially said

The last 4 Star Wars Movies

And

Buying that Alvin and The Chipmunks DVD

And

Giving the pup that really annoying squeaking Toy Crocodile

And

Buying those Lycra Cycle shorts (I added that one, what was I thinking of)

But eventually he answered for himself and the changes he proposed were revealing.

  • Tackling Climate Change
  • Not one more tree felled
  • U.K. NOT leaving Europe
  • Finding a way to end Terrorism
  • Replacing President Trump and Prime Minister May.

I really can’t argue with theses changes.

What would you change?

A letter dilemma

Out of the blue I received a letter addressed to my partner. It was a friend who clearly hasn’t heard the sad news yet. Reading the letter was heartbreaking as this lady had tragically lost her husband. She was clearly in a bad place.

This leaves a dilemma. Do I tell her or not?

I know the right thing is honesty and I should inform her. And yet…. does someone who is in such a bad place really need another piece of bad news. I told our son when he noticed that I was distracted. Interestingly he said that I shouldn’t make her even more sad. I had assumed his Aspergers Truth Filter would have made him say – just tell her straightaway. It rather puts a lie to the frequently heard argument from experts that people on the spectrum are cold and uncaring.

Even after a few hours I can’t make my mind up.

It doesn’t help that I remember when my partner found out about a friends death. She had met this wonderful lady from Channel Islands on a trip to China. They became good friends. I remember she came to stay with us for a few days. We hadn’t heard from her for a few months. Unfortunately a birthday card my partner has sent her was returned unopened and marked ‘person has died’. It had such a profound effect on my partner, I’m not sure she ever fully healed from it.

The circumstances are different but do I want to put someone through this now. I really don’t know. I just don’t know….. What I do know is that I can feel those icy fingers of sadness starting to circle my soul again.

12 uncomfortable things

Our son realises that he doesn’t naturally fit into this world. Certainly not in its current format. His attitude is basically

I might wait for the world to come round to my way of thinking but just in case I had better dip my toe in the icy cold water which is the big bad world. It’s something I’m not going to enjoy but it’s probably worth it….

As part of this process we have agreed to visit 12 new places this year. Doesn’t sound a big commitment but in-fact it’s huge for our son. We will have our first new excursion next week….

Tonight we started discussing potential places to visit but somehow the conversation careered off topic. It suddenly became name 12 things you like about you and your life.

I went first and it was a really uncomfortable experience. I do find it difficult to think constructively about myself these days. So much easier thinking about negatives. Anyway for someone who basically hates himself I kinda did ok

  1. Son
  2. Memory of my partner
  3. Family
  4. Pets
  5. Friends
  6. My eyelashes
  7. I am pretty fit
  8. I occasionally can be mildly funny
  9. Musical taste
  10. Decent imagination
  11. I’m kinda resilient
  12. I’m still here

Son went next with his 12 things he likes about his life

  1. Family
  2. Jimmy – Dog
  3. Bluey – Cat
  4. The gerbils I am going to get for my birthday (mad scramble – news to his dad)
  5. My dreams (don’t care if people think it’s not right for me to have dreams, I still dream)
  6. My house
  7. I’m funny (don’t care if lots of people think otherwise I still think I’m funny)
  8. I’m cool (don’t care if lots of people think otherwise I still think I’m cool)
  9. I’m clever (don’t care if lots of people think otherwise I still think I’m clever)
  10. I’m tall
  11. My memory (don’t care if lots of people think otherwise I still think I have a good memory)
  12. My ambition to be a scientist or a zookeeper or a wrestler or a goalkeeper or a falconer or a historian (don’t care if people think I can’t do these things …)

I think this reveals that he is quite comfortable with himself. The problem is that he doesn’t have that much faith in the outside world. I could go on but GERBILS are a pressing concern……

Fight Club

When you set your children off on their educational journey you have dreams of an idealistic life of happiness, development and fulfilment. Then you wake up…

On todays episode of Fight Club.

An argument broke out on the morning school bus. Several kids got involved in a heated exchange. Resulted in one of the protagonists being hit over the head with a bottle. Thankfully a plastic one.

In the first lesson a boy accidentally bumps into another boy. Quickly a pushing and finger pointing encounter develops. This is broken up by the teacher and negatives are issued.

In the next lesson boy X makes a not very nice comment about boy Y. This escalated into a missile exchange. Pens, rulers, calculators and books are launched. Again the teacher breaks this up and more negatives are issued.

In the final lesson of the day boy Y makes a comment about boy X. Suddenly a chair is hurled and a full fist fight breaks out with a few other kids getting involved. Teacher issues negatives and a couple of isolations.

On the afternoon school bus one boy accused another one of being unpopular and without friends. Quickly punches were exchanged. Several other kids got involved. Ended up with one boy in tears with a bloody nose.

Thankfully our son was just an observer in all these incidents. He did get hit by a stray projectile but it wasn’t intended for him and absolutely no pain inflicted. Not really sure how he views these incidents through his Aspergers filters. I suppose it teaches him about life. It might encourage him to start a martial arts club – these can really help with confidence and coordination. It highlights the issues many kids face when they are assigned to the bottom set. It’s certainly makes homeschooling look more attractive.

18 minutes

This is a week of school tests. At the moment it’s due to be 4 tests. French (x2), Science and History. I’m pretty sure they will sneak in a couple more before the week is up. I keep reminding myself our son is still only 11 – just too many tests for someone so young.

French could be interesting. One of the tests is a reading test. The kids need to read french text and then get the pronunciation correct. No reading help can be provided. The positive is our son is currently quite relaxed about this test. As he says

“I’m dyslexic so I will just do my best. On the basis of probability I should fluke a few words. And the worst thing that can happen is I get to be dyslexic in another language.”

Today was the History test. When I asked how it went the response was interesting

It went well. Didn’t get much help. All about Kings and Queens. But the questions where just too easy. As long as I guessed all the questions wording right then I probably got 100%. Probably a few minuses for spellings. I finished a bit early”

How early did you finish?

Well it was a 60 minute test. A couple of the other kids finished after about 40 minutes. I was a little bit sooner.”

So how soon did you finish?

I was finished after 18 minutes….”

Let’s break some rules….

Our school like so many others prides itself on discipline and the behaviour of its pupils. This is achieved with an inflexible set of rules. If a pupil breaks a rule then it’s an automatic negative. Four negatives in one week means detention. Repeated detentions bring the sanction of isolation. A serious negative can lead to an immediate spell of isolation. It’s all a bit Dickensian – was going to say Shawshank Redemption but that’s probably not a good example to use really…

The rules must come in about 7 volumes so too many to list. But let’s give a flavour by quoting some of the negatives which our son has seen issued.

  • Unbuttoned shirt
  • Incorrect positioning of the tie
  • Throwing a snowball – after school and not on school premise
  • Small coloured markings on white sport socks
  • Parent not signing off the weekly planner sheet
  • Forgetting your planner or text book
  • Incorrect colour pen used. Has to be black, unless it’s a correction which has to be green – still haven’t worked out what blue is supposed to be for
  • Forgetting to bring your cooking apron
  • Bringing the wrong measurement of food ingredients
  • School iPad running out of battery
  • Carrying snacks in a rucksack
  • Going to the wrong lesson if you misread the timetable
  • Getting lost in the school – it is a big school area with several separate buildings
  • Bringing the wrong type of calculator
  • Repeatedly asking to go home if you are unwell
  • Pointing out that the teacher had got a fact wrong (son’s only negative so far)

And on and on

Our son came home yesterday to say that he had to complete a series of corrections in his book. Failure to do so would result in two negatives…. When I checked he had one answer correction to make – fine. But he also had to correct spellings. As you can imagine with dyslexia he had many. We had the dreaded red “spelling mistake” label on almost every line. I gave up counting at 30.

The school has another rule which says that for every spelling mistake the pupil has to write out the correct spelling three times.

Call me awkward but he’s got dyslexia. How can this be right. I have spoken to the school on several occasions but I am told it is the rule for all pupils. Well bugger it. I have emailed school to tell them that he is not doing the corrections. We will add the words he has struggled with to our home reading work. But he is definitely not writing out the corrections three times. If he gets a negative for this then I have warned them that I will consider legal action against the school. U.K. organisations need to take reasonable steps to avoid discrimination on the grounds of disability. Under the Equality Act Dyslexia is classed as a disability. OR the school could just give me the detention – that could be really interesting (unbelievably I have never suffered that punishment).

Being stupid

Son accidentally knocks something off a shelf and it’s smashed. Son is mortified but I try to reassure him that it’s fine. These things happen to everyone. But he’s not happy.

“It’s because I’m stupid. It’s the same as why I am in the bottom set, it’s because I’m stupid. It’s the reason the teachers don’t spend much time with me, it’s because I’m stupid.”

Poor kid. It is so difficult for him. His logical mindset cannot fathom out school politics. He can see kids he consistently gets higher marks than sitting in sets above him. He can see teachers focusing on other children in class – often the disruptive ones. He hears me and the health professionals complaining to school about them not recognising his potential – but nothing happens.

Today homeschooling is looking a likely option. Practicalities still to be worked through. Finances will be a challenge. Maybe looking for a switch in the summer. This allows for one final push with school. Months to sort out the details – plenty of time.

Piece of cake. Talking of a piece of cake.

Our Prime Minister is still telling us that we can do Brexit in a few weeks. Really.

She assures us that they have the best people handling the process. Really.

My Dad wouldn’t have trusted them with a stick of rhubarb never mind the keys to the country.

But our Government does have it uses. They give us so many examples of real stupidity. I told our son about how our Government had decided that we needed extra emergency ferry capacity. The Government decided to give the contract to a company which has never run any sort of transport service and unbelievably doesn’t have any ships….

When our son heard that he smiled and said “Now that is properly stupid. Maybe I’m not as bad as I think I am.”

Son you are brilliantly gifted. Unfortunately the Government is not…..