Change of plan

It’s ok to change plan some days….

I was planning to post something which was quite dark and bleak. It was all scheduled to go and then….

I was doing my morning workout and just had a thought. A random thought. One word popped into my head….

DISNEY

Hawklad has been to Paris Disney three times now. He adores it. Much happiness.

So that word kept popping into my head. Looking at the dark grey sky I just thought maybe a bit of light relief is required somedays. So the bleak post has been replaced with this one. One day I will do a full Disney Day one but let’s just have a few happy memories to keep us going for now. Now that’s what a I call a candy floss…..

Perfect timing

A brief respite between storms. It’s summer you know.

As the rain from the storm kicks in the tumble dryer decides to go on strike. Perfectly timed as I have a load of bedding and clothes to dry – perfect timing. Suppose I could just go outside and throw them in the air and see what the jet stream will do to them. Central Europe – If you see some line green cycle shorts flying through the air, can I have them back please….

Then a few moments later I went outside to put the plastic garden chairs in a safe place – only to see one of the chairs flying tumbling over the fence and heading into the farmer’s field. Perfect timing. At least I know why we will be one chair down. Again Central Europe can you look out for a slightly dog chewed item of furniture heading at some rate in your general direction.

Don’t you love perfect timing.

The nurse counsellor garden appointment to see Hawklad has been rebooked for this week. To start the process of examining his anxieties which are effecting his life and preventing him from going into the wider world. The last visit was a perfect summers days but the nurse had to cancel at the last minute due to illness.

Well that’s the plan.

Looking at the weather forecast the garden appointment is scheduled to happen during Storm Francis. Expecting torrential rain and 70mph winds. Lovely garden weather – especially as we are perched on a hill with hardly any protection from the elements. The nurse is also not allowed to come into the house due to a current working restrictions. So I’ve got no idea what will happen.

Perfect timing.

Seems like a lifetime

I accidentally stumbled across a social media post from a parent from Hawklads school. It contained a photo of a trip to the beach whichsome of the families had made last week. Clearly having great fun. It will do the kids so much good to start living again.

I was so happy for the kids and happy for the parents. They are really nice people. They deserve fun.

But the post brought a touch of sadness. Wouldn’t it have been lovely if Hawklad had been there. To be with kids his age. Enjoying himself. Enjoying being a teenager.

Actually it would have been good for me as well. The last time we went to the beach with other families was 2015. I’ve kind of forgotten what the feeling must be like. You get use to the isolated life style. It becomes all consuming. It becomes who you are. Back in 2015 I remember turning up. Watching Hawklad play with the other kids. The parents had a barbecue. We played games and sand cricket. Built sandcastles. We talked, laughed. We hugged.

But that was then. It’s 2020 now. Different world. It was a different world even before a pandemic. The last time I actually hugged someone was at my partners funeral. That’s virtually 4 years ago. It’s 5 years since we went to a meet-up with other families.

It seems like a lifetime ago.

Blue rain

Funny old day. Stormy weather in the distance but blue skies overhead. Yet it’s cold and unbelievably it’s raining. Rain falling from these skies.

Dad it even rains here when it’s blue skies.”

It’s called Sods Law or Murphy’s Law.

No it’s not it’s called a weather anomaly.”

Yes that as well. Hawklad do you remember the days when you would have just replied – YES DAD.

That lasted until I was about 18 months.”

Yes it did. Well at least you will remember when all you wanted to do was talk about Peppa Pig, In The Night Garden, Thomas the Tank Engine and Dinosaur Train.

No Dad if you remember I would talk history, monsters, animals, birds of prey and the facts about real dinosaurs. It was you who would talk about those kiddy programmes. I still catch you watching them.”

They are educational. I get all my scientific expertise from Iggle Piggle.

So what you get out of watching Peppa Pig then Dad.”

My parenting skills come from Daddy Pig and my fashion sense comes from George.

These days it’s more Peppa than George. How else can you explain that T-shirt.”

It’s very fashionable.

Yes on a 4 year old.”

It can be a hand me down to you. It would fit you these days.

No thank you.”

Tell you what, tonight when I change your bedding I could dig out your old Peppa Pig bed sheets. That would be nice for you.

Why don’t you put that bedding on your bed first then. If it’s that good you use it then Dad.”

I did last week.

Tell me you didn’t”

I did. My bedding got stuck in the possessed washing machine and so I had to find an alternative. It was either Peppa Pig or your Pokemon sheets.

Tell me you didn’t use Pokémon.”

No it was Peppa, George and Daddy Pig.

Tell you what Dad how about tonight you go with Peppa and Friends again and I will go Pokémon.”

It’s a deal.

******************

Didn’t have the heart to tell him that I changed my bedding yesterday. This time to a Teletubbies one I had found in the cupboard. Best to have some secrets.

Castles

There’s an old expression here which says

‘An Englishman’s home is his castle’.

It was actually enshrined in common lawn 1628 and basically means ‘a persons home is their refuge’. Over the years it has often been cited by the right wing as justification for the principle ‘I can do whatever I like in my own castle, that includes stuff like smacking kids, shutting down public rights of way, hunting animals, mistreating people and using whatever weapons I like to defend it’.

I’m against all those activities but the law does have its advantages. I can take on the right wing interpretation and use it to say – STUFF YOU BORIS – inside my castle your stupidity, oversized ego and corrupt government can’t touch me – I’m just going to ignore ‘YA GREAT BIG PUDDING’.

In my castle I also can get away with wearing lime green compression socks and pink shirts. It’s my right…. Nowt the law can do about it.

And the other thing about a ‘home is a castle’ is that some castles are bigger than others. Much bigger…. Some are even big enough to be used as Harry Potters school in the movies.

But there is another positive element to the castle home idea. Because of circumstances many people need those castle walls. The feeling of safety which comes from pulling up the drawbridge and being inside your own space. That certainly applies to my Hawklad with his Aspergers.

So here’s to everyone’s very own castles, whatever size and shape they may be.

Tomatoes

It’s taken long enough but at last some tomatoes. For some reason they are about a month later this year. Blame it on 2020. But at least it’s a start.

This morning I had two firsts. To start with, I managed to do a weights move for the first time ever. Instead of using two hands to pick up the laden weights bar and push it over my head, I did it one handed. It’s not clever and a little reckless, but it’s certainly cool when you do it. Never been able to do that before.

Then I finally managed to correctly transition some yoga moves. Normally when the video instructor says carefully transition – that involves me falling on my face, crashing into a wall and swearing lots. Today I was almost ballerina like. A ballerina with hairy legs…

It gives you a lift when you finally achieve something. We all need that from time to time.

I was going through Hawklads school notes today. He’s made great progress, certainly in the time he’s been school working from home. But what concerned me was the lack of progress I was making with the school authorities. It’s been 18 months since I made any headway with them. Just seem to be stuck. Can’t get any more support for him. Can’t get the school to try new teaching approaches with him. Can’t get the regional education authorities to send in a dyslexia expert. Can’t get the authorities to show a little flexibility with his education funding. Basically it’s the set teaching programme, with any additional financial support he’s been awarded just been used to fund general teaching support budgets for all the kids. The so called special funding basically buys a kid with additional educational needs a place at a school. The Government is quick to point the finger at families getting additional schooling funds

– we are taking money off other kids,

– it’s the gravy train,

– waste of tax payers money,

– it’s wasted funding.

Yet what the Government never seems to mention is that the families never see that money. We can’t control it. It is basically recycled into general school budgets. So the kids who need it actually don’t get any direct benefit from it. Sometimes the fundings only purpose seems to be to just shift the blame for school failings away from the authorities and on to a minority of families.

So yes some education progress is needed. Either that or for Hawklad to elect to be educated from home. But progress would be nice.

Gemini

The old rose bush is going strong. Maybe a little frayed round the edges.

We had been watching the Will Smith movie, Gemini Man. Trying not to give the story away, basically you get a bit of the younger self getting to see the 50 year old version of yourself.

Hawklad was giving me a Paddington Bear stare.

Dad will I end up looking like you.”

Absolutely. The spitting image.

Really. What a nightmare.”

Its ok Hawklad, only joking. No you probably won’t. Apart from my eyelashes you are tending to look more like your mum.

What with the boobs.”

NOoooo. Your winding me up now. Excluding the female stuff, your face and hair is much more like your mums.

I do hope I have mums hair rather than yours!”

Stop it. I’m not sure about your body shape coming from me as well. Your going to be way taller and slimmer than anything from my side. Your definitely more elf than average size Gimli.

But the Orc runs strong in you Dad.”

That would explain my hairy legs and lack of dress sense.

Explains your cooking as well..”

True. But you are taking after your mums side of the family on body. I’m sure your male ancestors were frequently well over 6ft and slim.

So basically I might just end up just having your eyelashes.”

Yes Hawklad.

That’s a relief. This movie was becoming a bit of a horror show every time I looked at you…..”

*******

A cheeky smile fell across Hawklads face as he once again had successfully roasted his Dad.

Not what I expected

Not what I expected. I was sure this was a yellow rose last year!

It’s definitely red.

I was reading an article about the main things that have surprised people about the Pandemic and it’s impact on lifestyles. The author went for 5 things – Boredom of not physically meeting people, missing going to Pubs, Parties and Restaurants, missing playing Golf with friends, how hard mask wearing is and how much she misses going on holiday.

Ok let’s have a stab at this. What are the five things which has surprised me about the Pandemic. What was I not expecting.

  • The impact that just not being able to buy just a few of the useful foodstuffs can have on mine and Hawklads life,
  • How quickly you can settle in to new ways,
  • How much money you save if you avoid going to shops,
  • The way days and weeks can just merge into each other if you take out things like the school run and most shopping trips,
  • Just how difficult it is sometimes balance homeschooling, with work, domestic duties and things like running.

I guess a fundamental difference between me and the author is circumstances. She and her husband both work. They have one kid of a similar age to Hawklad but that child seems to spend a lot of the time with friends and doing group activities like sport. They use babysitters to allow for frequent social activities for her and hubby. So yes the Pandemic will have a major impact on her family’s social life. I can so understand why she would list those five things.

My life is currently different. I am a single parent to a kid with Aspergers. Even before the Pandemic I was partly cut off from society. Enforced isolation due to parental requirements. Many other people are in a similar position due to a range of circumstances. So if anything the Pandemic hasn’t really changed that much in terms of social contact for me. Yes it might have tightened things up a little further. But fundamentally there has been few radical changes. If anything it feels like for a few months some other people life’s have become a little more like my normal routine. Maybe it’s provided a glimpse for some people into what daily life actual feels like for many people out their. A daily life which existed before the pandemic.

I quite like this five unexpected things idea. Might see what if throws up in terms of things like grief and Aspergers.

1000 odd days

This is a photo from 3 years ago. I stumbled across it while looking for some old climbing ones. Another typical Yorkshire August day – all four seasons in one day. It got me thinking – what’s the same and what’s changed in those 1000 odd days. See that’s what a professional accountancy qualification can do for you – I’m good at those complicated adding up calculations.

THINGS WHICH ARE THE SAME

  • Getting no dyslexia support from school,
  • Getting no Aspergers support or accommodations from school,
  • Still bereaved,
  • Still a single parent,
  • Still a metal head at heart,
  • Hawklad is still a lovely character,
  • No holidays, no Switzerland,
  • Pets causing chaos,
  • My football team is still useless,
  • Still see myself as European,
  • Brexit is still a shambles and a monumental exercise of self destruction,
  • Vegetarianism,
  • Can’t cook,
  • Still exercising,
  • Still 5ft 10 and a half (don’t forget the half – it takes me beyond average height),
  • Still not climbing,
  • Still can’t work out the TV remote control,
  • The garden is still a mess,
  • Still don’t like U2,
  • Still haven’t seen Avatar without falling asleep,
  • Haven’t seen my brother even though we live only 50 miles apart,
  • The garden gate still needs fixing,
  • The washing machine is still possessed,
  • Still having bought myself that ginormous telescope,
  • The blog is still going,
  • Still writing about the same stuff,
  • Still waiting for official recognition of my stellar poetry skills,
  • Still haven’t won the lottery,
  • Still losing my car keys.

THINGS THAT HAVE CHANGED FOR THE WORSE

  • As Hawklad has reached the teenage stage many of the health support packages have been removed,
  • The waiting list to see The Paediatrician is now approaching 2 years,
  • A pesky pandemic,
  • Hawklads anxiety levels,
  • Hawklads isolation from the world and other kids his age,
  • Due to circumstances had to stop running,
  • Boris,
  • Trumps antics,
  • Might be a metal head but the days of skin tight jeans have gone,
  • Lost a couple of much loved pets,
  • Don’t really see my sisters anymore,
  • School’s view of Hawklad – definitely revising his perceived ability levels downwards,
  • The number of times I have to shout or pull my hair out at school is rising,
  • I’m physically meeting less people,
  • The list of things on the need sorting out when funds are available is growing.

THINGS THAT HAVE CHANGED FOR THE BETTER

  • Hawklad understands himself and his Aspergers much better now,
  • Hawklad is overcoming his dyslexia,
  • I understand now that it’s just as ok to Laugh as it is to Cry, YES it’s ok to live,
  • Friendship
  • Close Friendships,
  • Faith,
  • Love,
  • Happiness,
  • One step closer to home schooling (hopefully),
  • My dress sense – I finally chucked out some of my pink climbing shirts.

You might be thinking that looking at the relative number of entries on these lists that the last 1000 odd days have been generally bad. But look at some of those things on the last list. It’s not about quantity it’s about quality. Yep looking at that last list, over the last 1000 odd days we have challenges but some really good stuff has still happened. That’s why there is always hope.

World leader

Patience. Apple Crumble will eventually be on the menu. Just need to wait.

So today the news is filled here with stories of thousands of kids getting exam grades downgraded because of a statistical algorithm. The UK Government backing the decision as the don’t want ‘kids being over promoted beyond their abilities’. The irony – coming from a Government filled with the most incompetent, over promoted, out of their depth numpties this country has ever seen. Our kids deserve better than this.

Dad how unfair is that. That year group is not allowed to sit exams. So they have to go on schoolwork and what the teacher grades the kid at. Then they randomly drop the grades because they don’t think they deserve it. It’s just not right.”

It’s not fair. Especially as they are not doing the adjustment to kids going to Private Schools.

Dad is there anything Boris and his team has actually not messed up. Pandemic, brexit, exams, sending warships after immigrants in rubber dinghies, food, trains, environment, schools, hospitals. I might even blame them for the weather.”

I can blame them for my team not winning a domestic trophy since 1955.

No that’s just cos Newcastle United are rubbish.”

Ok but I can blame them for the state of the garden and the tomato plants.

No Dad that’s down to you.”

Fair point but surely Hawklad, I can blame Boris for my burnt baking.

“No that’s the muppet baker.”

This is not going well…. I blame Boris for allowing a Sith Lord to be in charge of the country.

That’s Cummings is it not. He does look like an evil villain. It’s scary that he tells the PM what to do. I will give you that one.”

It is scary. But not as scary as the thought of Boris being PM.

Even you would make a better leader. Now that’s a thought. You could be this countries first ever tea total, vegetarian, single parent, Newcastle United supporting, useless cook, world class muppet ever to be our PM.”

That would be an honour.

Even better your place in history would be guaranteed. The worlds first world leader called Gary….”

The world needs a hero, it needs a Gary…..