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Putting this off for a while

Before the world changed we had quite good balance in our relationship. We both managed to maintain reasonable careers while making sure we always had one of us there for our son. Our trips out as a family curtailed when the Aspergers started to kick in more. However we realised it was important that we had time outs to recharge the batteries. My recharge times largely centred on climbing and going to see my football team.

The world has changed now.

Climbing has gone. Replaced by the very occasional trip with our son to do a bit of walking on some remote hill top.

Trips to see my Football team has kinda stayed in place. They feel like a connection with a much different world. Maybe three or four times a year our son will go to visit my sister for a few hours to allow a trip to see my team. Occasionally I can get a spare ticket so I can take our son to a match. More often than not my ticket is taking up by a friend.

Unfortunately a decision needs to be made. Something I have been putting off for a while. Football really doesn’t fit in with our new life. It’s very expensive. My son struggles with different environments – that even includes my lovely sisters place. My son will go to the stadium but the crowds don’t sit easily with him. It’s becoming very difficult to justify. It doesn’t help that my team is now owned by a really unsavoury and deeply unpleasant character – but that’s by the by.

It’s difficult. I have been going for 32 years. It’s the only time I get to meet some of my friends these days.

But now it’s time to close a particular chapter in my life. Things change, life moves on, you adapt. So after one final match then it’s goodbye Newcastle United….

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Safety Net

Photo taken from the top of The Niesen.

I never really thought about my own mortality. Before I met my partner my attitude to risk was “it will be alright and if something happens to me I’m not too great a loss to society”. After we became a family I started to become more responsible but I still had a reasonable risk threshold. If something happened to me our son would still have his mum and his granny.

This all changed when I lost my mum and then partner within 6 weeks of each other.

The first few days after my partner left us are still a blur. But I remember one incident like it was yesterday. It was my son’s first day back at school and I was driving to register the death. Suddenly a sports car pulled out in front of me. A suicidal overtaking manoeuvre. Luckily I saw him and managed to swerve onto the grass verge and miss him – just. At that speed it would probably have been game over. All I could think about was our Son. One second slower reaction time and he would have been parentless. The whole incident shocked me. Suddenly there was no backstop for our son. No cover if I couldn’t be there for him.

A couple of years later and it’s a new life. With new dreams, new hopes and new feelings. All the climbing and contact sports have been permanently ditched. No more drinking. No more stupid risks to my body. I just can’t take those chances anymore. I’m even more boring than I once was but much more importantly I feel that I am a much better parent now. Yes the world has changed. But hopefully I have adapted to it. The reality of parenting without a safety net…..

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Changes is good just not that early

Today started off in the usual manner. Early morning exercise session listening to rock on the radio. Things going fine apart from the usual creaking body. Put me down for the a full body transplant, I’ve used this one up.

Then things started to change.

I hate doing the plank but apparently it’s good for me. This morning it became even more a form of modern day torture. Two cats decided to sit on my arched back while a dog attempted to lick my face off. Apparently this was one of the Spanish Inquisitions favourite tortures. But I survived.

Then almost immediately the radio signal disappeared. The sound of silence. So I quickly grabbed the first cd I could find. Black Sabbath Vol 4 and tried to complete the session.

Vol 4 is a fine album and features a rarity for Sabbath, a slow reflective song. CHANGES. This song finished off my exercises for the day. Normally at the end of a routine it’s an immediate mad sprint for the warmth of the shower. But not today. I just sat on the cold floor. Lost in thoughts.

A line from Changes had shaken me.

And I can still hear her last goodbyes

I can’t. As hard as I try I can’t remember hearing my partners last goodbye to me – blank. I can vividly remember her peacefully sleeping at the hospice as if it was yesterday. I can remember talking to her gently and holding her hand but as hard as I try I can’t remember her last goodbye. I can remember driving her to the hospital with our son but the conversations are gone. Why would I remember them at the time as she was only going in for a couple of tests and would be out by the weekend. I just can’t remember that last goodbye. That haunts me. Probably will always haunt me.

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Walls

Looking at some photographs I had found from our last holiday. Always brings back those bittersweet memories.

“Dad I love Switzerland. I love the fact that many of the houses in the mountains don’t have walls. It makes the world so much more beautiful. Silly people forget that as high as you build a wall you can always build a ladder just a bit taller.”

He is so true. Walls can be climbed, tunnelled under, knocked down or just walked round. They however do have a habit of ruining a view. Some notable visual exceptions to that – Great Wall of China, Hadrians Wall. I wonder if the Romans realised when they built it that as a defensive wall it was a little bit rubbish but as a tourist attraction it was a winner. Maybe we could sell it. I wonder if anyone is looking for a slightly used big wall. Might be a winner if you don’t mind picking a few weeds out of it and it probably comes with a few resident sheep as well.

“Dad what really annoys me is that we build little wildlife sanctuaries then wall the animals inside. People don’t realise that we have to create connections between all the sanctuary’s to allow the animals to roam. If we did that then Wildlife would start to flourish again”

Again can’t argue with this. Does feel like the humans continue to sprawl out and nature is increasingly contracted. It’s lucky if it’s granted a few areas of protection.

“Dad better idea for walls. Let’s squeeze humans into a few small human sanctuaries then wall us in. Nature can have all the rest of our planet”

Only problem is that I just can’t imagine how I would cope with being confined in such close proximity to some of our politicians. Boris Johnson – please no, just no. Yes walls do have some major drawbacks.

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New Years Day

The New Years Day trip to the Yorkshire Wildlife Park is now a lovely tradition. A new one since the world changed. Life is about creating new memories and not being completely stuck in the past. New Year Day is also the perfect time to go. Get there when it opens and you virtually have the park to yourself for an hour or so. Takes the anxiety out of the visit. Leave as the crowds arrive.

My photos don’t do the Park justice. It’s time to upgrade from the camera phone. Keep filling the coin jar. Much scouring of the second hand pages is required.

So many animals. He loves the two Giant Otters. So playful. And so inquisitive. The Lion Pack. The Rhinos.

An elusive Amur Leopard.

Newly rescued and re-homed Brown Bears from Japan.

Unbelievably cute Squirrel Monkeys.

The Polar Bears are one of his favourites. Until you have seen one you don’t appreciate the size and power of these majestic creatures.

The final part of the walk round the park takes us through a small wood to the Baboons and Painted Dogs. If you remember the Jelly Beam Roulette Challenge was who could spot the elusive dogs first. My strategy was to take us down the wrong path then before our son realised sprint off towards the dogs. Unfortunately a perfectly timed peloton breakaway left me trailing. To compound the misery the elusive dogs today decided to sit right next to the fence nearest the path. Game over.

So we come to the main event. The Battle for Helms Deep. It’s the Jelly Beam from hell. Skunk Spray. 2 litres of water later and it finally stays down. If I ever meet the kind soul who invented that one……..

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Sleepwalking

New Years Day brought the traditional trip to the Yorkshire Wildlife Park. It was a wonderful few hours – more of that in the next post.

On our return things seemed fine. Then steadily things started to deteriorate and eventually we had a full on anxiety vortex. Consuming so much energy and hope.

Our son started to think again about school. Like me he often tries to overthink problems. Visualise potential outcomes. And in a similar way to Dr Strange when asked by Ironman about the millions of potential scenarios to stop Thanos – “he could only find one option which had a chance of success”. In our Son’s analysis he could only see one option with a chance of success – leaving school as a solution to his anxieties.

  • Teachers who don’t understand him
  • Falling further behind in reading – he realises that although he is making progress this is not catch up progress rather this is at best slowing the widening gap
  • Friendships
  • Low school expectations
  • Little help
  • Sensory overload at school – too much noise, too many people
  • Too much homework
  • Constant fear of getting negative comments and falling foul of the penalty system. Even something like forgetting to button up your top button or forgetting to bring in your planner producing automatic penalties.
  • A school timetable which brings tight deadlines and logistics pressures to someone with Aspergers.
  • In a disruptive class
  • And on and on …..

Again today I couldn’t find the healing words. Just couldn’t stem the raging anxiety vortex. The vortex doesn’t just suck our son’s energy it feeds on mine to. Increasingly tired. Feeling broken. Mind keeps crashing back to those 6 weeks when I lost my mum and then my partner.

We try to get some sleep but the vortex continues to rage and our son is beyond sleep.

“Dad we need to do something, anything”.

Come on let’s take the dog for a walk.

“But I’m in my pyjamas and it’s nighttime”

Get changed quickly then.

Ten minutes later at 10.50pm we are walking the dog in the pitch black with one cheap torch to guide us.

The dark, the quiet, the spookiness – whatever the reason but suddenly the anxiety vortex is calmed.

Talk is now about the things we really wanted but never got as a kid. The things we love and hate about England. Favourite foods. Ghost stories.

Hopefully for one night our son is ok. He is asleep and hopefully has a good night. We dust ourselves down and go again tomorrow.

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Pets feel

Our pets give us so much entertainment and bring much needed smiles to this broken house. They have really helped get us through the last couple of years. Yes they can be terrors but humans can be oh so much worse….

But I think one pet needs a special mention. They big boy cat. He is such a softy. Even when the cats could venture outside he was not really an apex predator. Never worked out how to hunt. The girl cat would frequently bring him some live offerings. But the boy cat would carefully paw them, then roll over – I suspect he was hoping the vole would tickle his tummy. Strangely the vole would scurry off into the hedge counting it’s blessings. The boy cat would frequently get stuck in the tree requiring rescue. He was petrified of the cat flap so we had to cover it up. He had a favourite type of toy. He would only play with our son’s Dr Who Dalek plastic figures – nothing else. You would see him searching the toy box in a desperate attempt to find the elusive evil masterminds. He has worked out how to open door handles so he gets free run of the house.

But he was also inseparable from my partner. He would follow her about and he always seemed to be on her lap. When my partner went out the cat would sit at the front window and wait for hours until she came back. Sadly you can’t explain bereavement to a cat. I’ve got no idea what the boy cat is thinking. I can’t confirm that he is grieving like we are. But I know one thing for a fact. Every night he sleeps where our partner used to sleep and you frequently see him at the front window. I suspect he’s waiting for her to return.

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Today

DEEP BREATHS – MOVE ON

Grief is a double edged sword. Yesterday felt like repeated thrusts to the heart. Focusing on what has been lost. That ‘why did it happen to me’ feeling. Everything reminded me of the loss. That video. Sad songs. Radio advertising – anything from where to go for your romantic Christmas meal to the perfect present for your loved one. Her favourite painting. Her favourite cat. That empty bed.

The walk, the wet walk did help a bit. It did help me get focused and ready for our son.

Today I’ve experienced the other side of the grief sword. The positive side. Now the focus is on how privileged I am. Even someone like me was able to experience 16 golden years. Romance. So many happy memories. A beautiful, perfect son. Grief is really everlasting love. That is something which can’t be lost.

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One Million Minutes

For the first time in years I sat with my laptop doing some admin with breakfast TV on. I don’t know why, maybe the house just seemed too quiet. Then it all changed.

The TV programme showed an advert in support of a campaign to help lonely people in the U.K. – 1 Million Minutes. Within two minutes I was a flood of tears and a world of pain. I hadn’t realised the advert was about people who had lost love ones. Bearing in mind I cried watching an Indiana Jones movie. This took it it a whole new level. I’m still really shaky an hour later. Just thank god our son didn’t watch it. Not really sure why I’m sharing this or what I’m wittering on about. I think it probably shows the enduring power of love. Going to take the dog for a very long walk.

The video link is below.

http://youtu.be/AKLWE2bCYpQ

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Different takes on the world.

Came across a photograph taken probably 5 years ago. Oh how the world seemed so different then. Every Sunday in Switzerland we had the same ritual. We would take the first boat across Lake Thun to Interlaken. We would immediately head for this hotel and drink hot chocolate outside – regardless of the weather.

I also vividly recall sitting here when one morning my son’s different take on the world (to myself) became clear. I noticed sports cars driving past. I remember saying something like

“that’s a Ferrari and that’s a Porsche and wow that’s a Maserati.” Don’t get many of those in Yorkshire.

I remember turning to my partner who said without raising a glance “that’s nice” as she continued to scan the food menu.

Looking at our son he was excitedly flapping his hands. Not at the cars but at a bird flying above us.

“It’s a vulture.” Don’t get any of those in Yorkshire.

Now that my son has educated me. I realise which view is more stunning. Which view should be treasured. Now I would say “Wow that’s a stunning big bird, son what is it and I wish those noisy dirty cars would sod off”.