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Ghosts

I was listening to the new David Gilmour song and one line really hit me.

Yes, I have ghosts, not all of them dead.

For me that is so true….. Often the ones which are not dead are the hardest ones to deal with. They can appear at any time. They fill my head with negative thoughts. Once there they can haunt me for days. Missed opportunities. Past mistakes. Errors. Broken promises. Heartaches. Dead ends. Let downs. Sad memories. Inhibitions. Self inflicted hurt. Bleak times. They can hold me back, stop progress, bring on self doubt and herald the return of depression.

Those thoughts still live within me. They aren’t dead. Ready to reappear when I drop my guard. When I am low. When I am tired. When I’m facing a leap of faith. They all relate to past events but the memory still lives on within me. They try to shape my present day mood and choices.

Maybe it’s time to deal with them. Exorcise them. End the hold they have over me. Life is too short to waste. Its time to fill my soul with positive thoughts and memories. Ghosts should be dead.

Posted on by bereavedandbeingasingleparent · 89 Comments

Kind

It’s autumn and the leaves are falling. Here when they fall they undertake a kind of heroic mass migration. They migrate to our front lawn. Has to be our lawn, never any of my neighbours. These fallen ones have just started their journey heading inevitably to just below our front window. Then they like to stay put. That’s so very kind of them.

I’ve been trying to be kind to myself as well. If I’m happy then I will be a better parent. Trying to find enjoyable things to do. Maybe discover some new hobbies. One of which is learning to play the piano. Finally making use of an electronic keyboard which has been basically just gathering dust. The piano tuition app I’m using is good. Quickly I can now start to read music. I can play a rustic version of Ode To Joy. But I couldn’t understand why the piano app kept talking about one key being middle C when with my careful marking out of the keys came up with a different answer. Then the penny dropped. Can you spot the deliberate mistake in the pink scrawls……

What a muppet. Ok the app might be right…..

Posted on by bereavedandbeingasingleparent · 70 Comments

Which way

In life you get asked so many questions. But some questions keep repeating themselves. Like the classics ‘Are we there yet?’ and ‘where’s the remote control?’.

Then there are other questions. More vexing questions. One question keeps popping up. I’ve been asked this by family members, other parents, teachers and even once a nurse. It does have a number of variants but it’s basically the same question

Will your son get better?

Will his Aspergers improve?

Will his Aspergers improve as he gets older?

I’m no clinical specialist. Just a bumbling parent. But here’s my take on the question.

Aspergers is a lifelong syndrome. It’s not going to get better. Its not going to be cured. It’s not going to disappear. What might change is that over time the individual and the family may develop strategies to help deal better with some of the situations life will throw at them. Also some of the specific symptoms may fluctuate over time. For example in a number of individuals something like repetitive hand flapping may become less prevalent with age. Also Aspergers often coexists with a number of other conditions – dyspraxia, ADHD, dyslexia…. It is possible that some of these conditions could improve with time. For example our son has with hard work started to overcome some of the issues which his dyspraxia and dyslexia had caused him in his earlier years.

So yes it is possible that improvements may occur. But here’s the thing, it’s not guaranteed. Each individual case is different, unique. Things may stay the same with age. They can also get worse with age.

So we just don’t know.

The Clinical Psychologist who did the full review of our Son was quite clear. The majority of his Aspergers related traits will stay with him over his life. However at around the teenage period changes may start to occur. It could go either way. He could become fully independent or he may regress and may need some form of life long support. She talked through a number of possible scenarios. One scenario was that some improvements would occur potentially in the areas of dyslexia and the diminishing of some of the repetitive behaviours. Another scenario painted a downturn in his existing anxieties and fears. This could occur naturally during his teenage years or could be triggered by a single significant event which effects his view of the world. Tips the balance in his risk assessments of the world. This could lead to significant mental health concerns and potentially social isolation. Where we are sat currently, we are not a million miles away from that scenario. The triggers – the death of his mum, a pandemic, his teenage years…. He is currently physically cut adrift from the world. His fears and anxieties ramped up to the rafters.

Nothing is set in stone. We just have to go with the flow and see what life brings. It could be still be a fully independent life. But it could also entail a lifelong requirement for support. In this country we don’t cater for the latter scenario. Support has to be fought and won for young children. That support is at best is patchy. During the teenage years the support tends to be reduced due to funding cut backs. By early adulthood the support has completely vanished. That’s a sobering thought for parents in this position. It really is.

Posted on by bereavedandbeingasingleparent · 58 Comments

Changes

Definitely it’s a time of change. The season of change. Yesterday was T-shirt and shorts. Today is wet, windy and chilly. 50F probably means the T-shirt season has gone and it’s time for woolly jumpers. Ice Cream replaced with Hot Chocolate.

It’s that time of year.

Four years ago I would have been sat at home looking at the ‘Sincere Condolences’ cards on the mantelpiece. It was a couple of days after my partners funeral. Life was looking bleak. But as the years pass this time of year has increasingly felt like a time of personal change. The end of a period which marked the passing of my partner and mum. A time of sadness moving to thoughts of preparing for winter and all that entails. Thoughts of loss replaced by thoughts of short days and long nights. This year is complicated with our ongoing lockdown which is likely to stretch through the entire cold months. So yes this period of change feels different . Definite change but what? In previous years the next few months brought challenges but also things to look forward to. Concerts, Football Matches, Firework displays, Halloween parties, family meet-ups and meals, Christmas Markets, crisp winter walks and runs. This year these are all none starters. Could that tip the balance of the change. Only time will tell but the change is not yet set in stone. It can still be a positive period but it will need much work.

D

Posted on by bereavedandbeingasingleparent · 81 Comments

Insignificant

It’s a big sky. Its easy to feel very small and insignificant stood under it.

There are so many times when parenting is the best gig on the planet. Then there are other times…

I was trying to convince our son that he had washed his hands enough. He had been at the soap and water for nearly five minutes. Everything I said didn’t seem to have any impact. Finally he decided that was enough. He asked if the towel was clean and had it been washed that day. I assured him that was the case. He left the bathroom and I looked at his hands. His very red and sore skin. That’s what happens when you wash as often as he does. We are using skin friendly soap. I water it down further. But his hands are still red. I encourage him to use his skin care lotion. But his hands are still sore.

These are the times I feel inadequate as a parent. Missing the support of another person. Someone to share the load. Definitely running out of things to try. Actually ran out of things to try. His health professionals try to help but they see this intrinsically linked to the pandemic. Get the pandemic under control and we can start to bring his hand washing under control – hopefully. But that doesn’t make me feel any better as a parent. Feels like I had one job and I dropped the ball on it.

So I’m stood under that big sky. Feeling insignificant. Time to breathe. Reset and go again. Yes significant but definitely not beaten yet.

Posted on by bereavedandbeingasingleparent · 108 Comments

Working hard on harvesting

Apparently we are enjoying the last few days of summer weather. It’s kinda sunny and kinda warm – if you ignore the cold wind. The forecasters are warning that soon the weather will be most definitely very different. Very cold, wet, grim and grey. As a result the farmers around here are desperately trying to get on with stuff. Even working when it’s dark.

It’s also time to start harvesting our own little garden crop. Today it’s a few apples, onions, carrots, tomatoes and potatoes. Some have done better than others……

Can anyone speak carrot. What’s the carrot for ‘you do know this is Yorkshire and you are about to be given a right weather spanking. You don’t have months of sunny growing weather left, you have no more than 3 days. So get a move on….’

Why is it so simple to grow weeds yet those so called easy grow carrots prove so pesky. It’s as if the carrots pop out of the seeds, feel the Yorkshire soil and go ‘YOU HAVE GOT TO BE JOKING’.

So if the carrots play ball then we are moving into a spell of living off stews, soups and apple crumble. I can happily live with that. I’m always thankful for whatever the garden yields. It does have to contend with the muppet gardener and Captain Chaos.

So yes it’s that time of year. The weather starts to break OR in our case, break even more. It starts to get colder and darker. For many it can be a tough change. Heralding a long period of what feels like ever increasing claustrophobic imprisonment. Me included. That’s where friendships, happy things and dreams are so important. They can help soften the sadness, even lift us into a better place. So for me it’s time to increasingly focus on those things. I can’t do anything about the weather but I can do influence the truly important stuff. Soon the autumn colours will become spectacular. The important stuff can lift the soul. Yes the following months can be bleak BUT they can also yield so much beauty and wonderful moments as well

Now it’s time to give those carrots a good talking to.

Posted on by bereavedandbeingasingleparent · 72 Comments

Running to or from it

A view from one of my old running haunts. A wonderful place. Basically had the tracks to myself. Me, some farm land and nature. I enjoyed the peace.

Isn’t that strange. Looking back I really valued my space. Having some solitude. Yet fast forward to September 2020 and I fear the solitude and isolation becoming a prison. Surrounded by cold, grey walls.

Just can’t make my mind up can I.

But it is a genuine fear of mine. Becoming completely isolated. Cut adrift.

At present I am ok. I’m finding a way through the ever present danger of isolation. I still have dreams of a different life. There are people who care. We can find ways to stay in touch. I have a workable life balance at present. Not great but not too bad. The risk is that I know myself. I know how easily I can lose confidence. How my social skills can desert me. How I can start to overthink. Become too inward looking. That’s the danger zone for me. Then I can easily be sucked into a completely isolated lifestyle. A lifestyle which is not sustainable or healthy for me.

The other worry is that in the modern world it is so easy to be cut adrift. So easy for people to stop calling round. To stop noticing you. Just one unknown face in the crowd. It felt like that for a long time after I lost my partner. People stopped calling. I was just that unseen face in the crowd.

So for me it’s finding a balance. Enjoying more solitude but avoiding complete isolation. I guess it’s like climbing in thick hill fog. You might be relatively close to others, but they can’t see you. You might as well be alone. The solo climbing can be enjoyable but it can also be unnerving. You are never quite sure how close you are to the precipice. How close to falling over the edges do when your alone, no one will be there to stop you.

But the hope is that if it’s like the climbing metaphor. I’ve been caught out in those white out adventures many times. Yes they have been challenging, a little scary at times. But I’ve so far avoided falling off the edge. That represents hope.

Posted on by bereavedandbeingasingleparent · 105 Comments

Almost ready

The apples are almost ready.

It will soon be apple crumble time. Now what to go for with it – Custard or Ice Cream?

There is always something to be thankful for. Even in 2020.

I heard someone on the radio say that to him 2020 was the worst period he had ever known. We are all different. We will have our own very unique years to forget. Suffering years. To me 2020 has been an odd year. Yes some new battles. Mainly filled with old battles. More isolation but not that much more than previous years. BUT crucially some wonderful things have also happened.

Eventually when I look back at my life 2016 will take some beating as my worst year. But even then that oversimplifies things. The first 6 months were not bad at all. Then the 6 weeks from hell. Lost my mum and then my partner. Came crashing into the competing worlds of grief, depression and single parenting. Those 6 weeks changed everything for ever. The despair associated with those 42 days and the following weeks just mark 2016 as a bad one. But you easily forget the good stuff that happened before and after. For example November 2016 witnessed the arrival of this well behaved and sensible four legged chap.

Yes it’s easy to forget that good stuff happens all around us, even in the darkest years.

Posted on by bereavedandbeingasingleparent · 71 Comments

5 things about death.

That kind of weather day. Moody, cloudy, wet, windy, cool. Five things completely associated with a Yorkshire Summer’s Day.

A few days back I did a post about five unexpected things to do with the pandemic. Well let’s do another one.

Five unexpected things I encountered during bereavement. Could do a huge list but let’s just try to pick out the five main ones.

    Just how much paperwork, leg work and phone calls you need to make in the weeks leading up to the funeral. Speaking to the hospice and hospital. Letting friends and families know. Registering the death. Trying to sort out joint bank accounts. Solicitors. Informing government agencies. Cancelling cards, subscriptions, memberships. Returning work assets. Selling a car. Pension authorities. Tax authorities. Changing things like house deeds. Changing insurance cover. Booking a funeral. Arranging the service. Inviting guests…… And on and on. This is all at a time when you are at your lowest ebb.
    Just how quickly the phone calls and visits dry up. Within weeks your suddenly alone. No more checks to see if you are ok. You’ve stopped but the world has kept turning. That’s when the mental health issues can really kick in.
    One person down and just how empty the house feels. Deathly quiet. Too many empty spaces. A very empty bed and sofa.
    Just how many times your mind plays tricks on you. Going shopping and you still buy stuff for the person you have lost. When you make meals you automatically make one for your partner. You drive back home and see your partners car in the drive – the first thought is too often – wow she’s home early today.
    Just how long the the legal side of the death can drag on. In my case the Will took well over a year to be finally signed off by the tax authorities. One bank account took two years to be finally transferred into my name. The telephone and TV accounts are still in joint names – given up trying.

I guess the message is that it’s going to take you to the depths of despair. It’s also going to be a bureaucratic nightmare. You just need to prepare yourself for the long hall. But there is stuff that helps. An empty, deathly quiet house is easily fixed by a mad puppy. If you know someone who is going through loss then why not phone them or even just send a card, especially if it’s a few months down the line – they probably really need the thought. Accept any help when it’s offered – you don’t need to do this alone. Take your time doing this – you don’t get a medal for completing as soon as possible. You need to spend time focusing on yourself, you really do.

Posted on by bereavedandbeingasingleparent · 89 Comments

Night

I was brought up in a busy Yorkshire seaside town. Then I’ve done a bit of an English City Tour. Lived in Newcastle, Coventry, Portsmouth, London, Birmingham then York. Places with lots of noise, people and action. You get acclimatised to it. Becomes the norm.

Then we moved to a village in the countryside.

It all suddenly changed. The very first thing that struck me was how dark the night was. In a city you get street lights, car headlights, light shining out of window after window, late night shops, restaurants, advertising billboards …… its night but it’s never dark.

But in our village it’s all different. This is the view looking one way down the village street after the sun has set. It’s so dark.

The other way facing East is even darker.

No street lighting here. Hardly any cars on a night. The nearest shop is in another village 5 miles away and that shuts at 5pm. There’s a pub in another village 3 miles in the other direction. Another village a few miles away has a coffee and cake shop – that only opens a few hours a week. That’s it.

That takes a lot of adjustment for an urban bod like me. The first week I was here I went out to post a letter in the village mail box – after dark. I foolishly went without a torch. It was too dark I couldn’t find it. In fact when I decided to go back for a torch, I couldn’t find our house. Took me ages to stumble upon it. That’s properly dark.

The peace and quiet is wonderful. Not having to continually lock your door is refreshing. So is the feeling that your kids can wander a little more safely. To see the night sky without light pollution is awesome – you can so easily forget just how beautiful it is. But there are prices to pay for that.

No popping out for a loaf of bread or takeaway meal in the evening. It’s a 20 minute drive to the nearest late night shop. By the time you return with takeaway food, it’s cold.

Although you are in the country. In natural space. The night can feel suffocating. Very claustrophobic. No sign of human life, you can so easily feel a million miles from anyone. Especially in winter, you will go days without seeing another person. What was the ALIENS line – no one can hear you scream in space.

Village life has so many positives but you need to be prepared. It can be so tough as well.

BUT ITS WORTH IT….