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Old

It’s been one of those days when I just feel old. Lack of sleep doesn’t help. Fighting a cold which I just can’t shake certainly doesn’t help. The weather most certainly doesn’t help – a bitingly cold gale force wind. Work was a slog with everything going wrong and the computer just saying NO. School was definitely very vexing. Now even the school governors have given up responding. I guess I must be on the official naughty list. My run was hard work. Slow, cold and a real effort. At times it seemed like one step forward and two back. Even the view failed to lift my spirits. It just provided an excuse to stop for a minute. The post school garden football was an effort. Not so much Messi or Pele, more like a knackered three legged giraffe trudging about in a vat of thick treacle. So yes today I felt much older than my 339 years. I’ve used this body up can I have another one please.

For sons mathematics exam he did really well given the lack of dyslexia support. He came second in his class. Just over 70% in one paper and high 60s in the second paper. That’s not too shoddy for a kid who could only read some of the words on the question sheets.

“As I couldn’t read some of the questions I wonder if I would have got a similar mark if I had sat the maths paper but it was in French. Wouldn’t it save time if you could just combine subject exams so you could sit two at the same time. French & Maths, Science & Art, History & Drama, English & PE, Geography & Cooking.”

I could sign up to that. I would combine my worst subjects and get them out of the way in one exam. So I could do Drama and Cooking in one sitting. Or maybe I combine a really good subject with a bad one – PE could drag up my French score. It’s definitely a winner.

“Dad are you sending an email”

“Yes I am. I am emailing the Prime Minister”

“Oh. Your not telling him about my sitting two exam in one go idea!”

“No Son. I’m emailing him a question about dyslexia support.”

“Do you think he will answer it”

“Well let’s see.”

“You didn’t have a go at him.”

“No I was very polite”

“Well you weren’t very polite playing football. You said some naughty words when you tried to run.”

“I am getting older. Sometimes running hurts. And I didn’t use naughty words. I used my special made up words. Those which might be naughty but no one will ever know. Scully. Jellycup, Fumf.”

SO YES I FEEL OLD TODAY. ITS SUCH A JELLYCUP SCULLY FUMF……

Posted on by bereavedandbeingasingleparent · 69 Comments

End Game

The way forward is shrouded in mist but a clear route is emerging.

As we move into the second week of the Year 8 exams we have a clear state of play emerging. Son is trying his hardest, school clearly is not. Son again was upset this weekend as he clearly thought that school sees him as not very bright and a failure. He found out that he came third bottom in his Drama exam. Well was that surprising when he was given only a short period of time to read questions then an equally short timescale to write answers. Absolutely no help was provided. So clearly autism, dyspraxia and dyslexia do not apply in the world of Drama.

Sadly this has not been an isolated incident.

  • In subjects like Mathematics, Design Technology and French he received zero help. No additional time. No help with reading. Nothing. Maybe help was considered but as Son pointed out

“One of the kids broke his hand so the one Teaching Assistant had to scribe for him. Maybe that’s why I didn’t get help. I really struggled to read and understand the questions. Even maths had lots of words I didn’t recognise in the questions.”

  • History did not proved a scribe but he was given a laptop to type his answers in. So he still had to try and read the questions. He was given a laptop because the teacher was concerned about being able to read his handwriting. Problem is that son is waiting for some therapy work to try and help with his typing skills. His typing is slow and very inaccurate. He hadn’t practiced answering test questions on the computer. The computer also had the spelling aids disabled. No additional time was provided.
  • Science and English did provide a scribe. He hadn’t practiced working with the scribes provided. He was really uncomfortable trying to work with the two assistants he had previously had very little interaction with. He had thought incorrectly that he was getting extra time but with a couple of minutes to go the scribe just said the exam is finishing when it’s 10.15. He struggles to tell the time using an analog wall clock. The scribe in English only read out the questions. She was not allowed to read out the passages which he had to answer comprehension questions on.

“What was the point. The scribe would tell me things like for this question you need to read lines 5 to 12 of the text then describe what writing techniques the author has used. Well I would if I could actually read the text. Some of the text was using slang language – I struggle with proper language, got no chance with slang.”

So basically it’s been a mess. If his marks are not good then this is going to hit his confidence going forward. Currently school are deadpanning my queries but I guess they will just say that appropriate support was provided and he just needs to work harder. Poor results will confirm their assessment of low attainment. I just hope for his sake that he manages to get some decent marks. I’ve told him that for me it’s not he who is being assessed, it’s school. And clearly school have failed – AGAIN. To quote a reasonably popular movie, it feels like that we are moving to the mainstream education END GAME. No we still can’t truly afford to homeschool but this failure of due care can’t go on. Son deserves better than this.

Posted on by bereavedandbeingasingleparent · 55 Comments

King Henry III meets manga

It’s been that kinda day. The occasional brief glimpse of the sun then just grey, cold and damp.

“Dad that’s so wrong. That’s not Henry II. It should be Henry III. “

Son was talking about a national History Revision package which his school is using. All the kids are expected to revise using this. On history I would never doubt our son. But as this was a national teaching package so I thought I would double check. Yes full marks to Son and the Teachers compiling the package – you must try harder. Yes they were referring to the wrong King Henry.

“I also certainly don’t agree with that view of King John. It’s as balanced as the biased tosh Shakespeare wrote about him and Richard III.”

When Son raised this with school they told him that the pack had been compiled by teachers and it had been used by many kids. So basically accept it. I’m happy to report that Son is sticking to his guns and if asked will stick to his version of history. His version which is factually more accurate. If he’s marked down by school for this then stuff them.

It’s been a bizarre set of exams that he’s had to sit. In English and Science he’s been given a scribe. But in the other subjects he’s had no help so he has had to read the papers on his own. He’s certainly been provided with no additional time. I’m still not convinced school has any real idea how to deal proactively with dyslexia and autism. Given this is 2020 I find that staggering. Even with the scribes it’s been far from ideal. At his last school Son knew weeks in advance who his scribe would be. They worked together on a number of dummy test runs to get used to each other. He also received additional time. This week he only found at if he was getting a scribe at the start of the exam. The exam was the first time that he had worked with the person scribing for him. The scribing happened in a room he had never been in before.

“So how did the history exam go Son?”

“Well I didn’t get any help. Not sure I read the questions correctly. But I knew the answers to the questions I sort of read. Not sure they will be able to read my answers anyway. I definitely got one question wrong. I knew the answer. But I could not spell the two battle names. In the end they looked more like Pokemon or Manga character names rather than English Civil War sites.”

So if the teacher is reading this

The Battle of Nagato means the Battle of Naseby

And

The Battle of Madoka Mano means the Battle of Marston Moor.

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Pink legged German

He survived his challenges today. Staggeringly our French telling the time trick probably picked up a few marks. To be fair to school son was provided with a scribe for the English exam. No scribe for French. Will have to find out why.

I survived today’s challenges. Made it out in one piece from the bizarro world which was work. Then made it round the 12k run. Once again the view helped lift the soul.

Well clearly the bizarro work world had rubbed off on to me. On the run I was listening to my German language course. It seemed to be the right thing to do as son would be currently sitting his French exam. It was basically going in one ear and straight out of the other one. A passing cyclist then flagged me down and asked if I knew where the nearest cafe was. I suspect he wasn’t expecting the following response.

“Guten Tag. Es ist diese Straße runter. Über 5 Kilometer”

As I noticed the cyclist’s bewildered I just repeated my amateurish German but this time a bit slower and a bit louder. Then it dawned on me. What a wally. All very embarrassing. What was even more embarrassing was that when I finally switched to English I’m not sure the cyclist was any more the wiser. Although we where in Yorkshire he clearly didn’t understand my Yorkshire accent. As we speak the poor man is probably lost somewhere on the moors cursing that useless German in his pink leggings. Still it took my mind off Son’s ongoing French based anxieties.

I will leave the last words to a modern day Philosopher.

“Well Dad I survived. The problem with the French Exam was that it’s basically in French. English is hard enough but French. It might as well have been in a foreign language.”

Posted on by bereavedandbeingasingleparent · 58 Comments

Memory tricks

You get sone days when running is particularly tough. Tough physically and certainly tough mentally. On those days I need to set mini goals to tick off on my run. Memory tricks to convince the body to keep going. On this route it’s to reach 9k. At 9k I get this view. Doesn’t matter how many times my little legs take me past here, this view never fails to deliver. The view is lost way too soon and it’s back on the slog again. A couple of hill climbs are fast approaching. I’m not the spring chicken I once was. Those hills hurt. Currently the only thing that works (apart from using a car) is to count. When the climb starts it’s about counting from 1 to 100. The deal is that I can only stop running up the hill at 100. So far every time I have got to 99 I have reset the count back to 1. Don’t say 100 or skip past it really quickly and I must keep going for a while longer.

These little tricks help me. Now we are searching for another one.

We all have blind spots.

One of mine was historical dates. I’m normally good with numbers. I can memorise phone numbers really well yet I just can’t remember dates. As hard as I try those dates just won’t stick.

Son has a few blind spots. He’s good with numbers but can’t get his head around decimal places. Ask him to work out 24×37 and he can do it ever so quickly. Yet ask him to add 1.3 and 3.8 and it’s impossible. Whatever we try just doesn’t work.

He can remember dates with ease yet times are a different matter. He struggles with the concept of time. He struggles to tell the time. Digital clocks are problematic while analog clocks are impossible. Everything we have tried has basically failed. So now we come to this Sunday.

It’s the Year 8 French Exam tomorrow. One of the areas which is bound to come up is telling the time in French.

“Dad if I can’t tell the time in my own language what chance do I have in telling the time in something which probably isn’t even my second language.”

Everything we have tried has failed. In the end we settled on an educated guess approach.

Learn parrot fashion il est ….. heures ….

Then assuming he can’t work out the right time in English he will put the first number he sees (converted to French) after heures and the second number before. If he can only see one number then that goes before heures. That gives him a chance. Ok it doesn’t work with every time but it’s the best he can manage. He’s found his own way of trying to get through this challenge. It convinced him that if he’s sees time questions then he still has a chance. It’s worth having a go. Gives him hope and belief.

So tomorrow at the same time he is enduring his exam I will go for a run. I will suffer with him. Let’s hope both our memory tricks work.

Posted on by bereavedandbeingasingleparent · 106 Comments

Knock on effects

“Oh my ….. Daaaaaaad. I’ve forgotten some homework.”

A shout at 7.00am to send shivers through every parent.

“Forgotten French. We have five online tests to complete. It’s due first lesson today. SORRY. ”

Any thoughts of a calm relaxing morning had just been torpedoed. The normal carefully mapped out pre school routine replaced with an hour of panic and a rush to answer 60 questions. A stable routine is so important for most kids on the spectrum. Well not here today…

As Son later described the scene. A Dad whose French skills are very sketchy. His French skills apparently heavily weighted towards buying alcohol – not much use in school homework. And a kid who is even more dyslexic in French.

“Dad it was like the script for Dumb and Dumber 2″

After 30 minutes of mayhem I ordered Son to grab some breakfast.

“Can’t find the cornflakes Dad can I have some biscuits and an apple.”

“Son if it’s food then I really don’t care…”

Then I shouted out the questions and typed up the replies from our son. Finally five minutes after we normally leave we finished the last question. A mad scramble to get the school uniform on. He struggles with knots so I have to do his school tie. Today that skill deserted me. Now we are seriously behind schedule. Fingers crossed for clear country lanes. So today we get stuck behind the driver who clearly learned to drive in either a milk float or Sinclair C5. A driver whose instructor had taught them that the best racing line was straight down the middle of the road so no bugger can overtake. A driver who today was heading all the way to school.

Somehow I managed to get him into school with seconds to spare. Problem was that now I was late for a works meeting. In the carnage I had not managed a drink or a visit to the toilet this morning. No time to brush my teeth. Wearing yesterday’s clothes. So I arrived looking totally disheveled, in real need of a drink and the toilet. Guess what. The water was cut off at work due to emergency repair work. So no drink and NO TOILET…. It felt like the longest meeting ever.

Ninety minutes later I’m running into a petrol station like Usain Bolt. The one toilet was engaged. You couldn’t make this up. Ten further painful minutes later – RELIEF. Unfortunately in the breakfast chaos I had left my wallet at the house. So no money. So no drink. Not good when you looking at row upon row of drink heaven. So another thirty minutes before the first drink of the day.

Yes it was a chaotic morning. Simply forgetting a piece of homework had a knock on effect for the next few hours. Got to keep it in perspective though. So many people are truly suffering and this was at worst just mildly annoying. I can smile about it. I did eventually get a nice run with some gloriously moody views. And I expanded my French vocabulary.

Je vous souhaite une bonne journee.

Posted on by bereavedandbeingasingleparent · 76 Comments

Two quotes

“I AM DIFFERENT NOT LESS” – Dr Temple Grandin

Another week we dust ourselves down and go again. Although the route is still shrouded in mist and we face countless dead ends – we must keep going. If not for me but for our son.

A session with a new health professional. Always a good sign when she does not ask me what I want, she asks our son. The health professional is going to contact school to see what work they have undertaken to help with our son’s handwriting. Assuming school has done nothing and has no plans to do so (which we believe is the position) then the health service will start a programme to help with his writing. This will be the first time in three years work that son will have had specific help with his writing. Let’s see what progress can be made, what writing aids help. If progress cannot be made then that might be the time we start to move away from pen and paper to keyboard and voice recognition.

So we start down another path.

These are the specific areas son asked for help with

  • Handwriting
  • Shoelaces and Ties
  • Holding objects like handles which require two hands.

Interestingly he sees Aspergers as who he is – his personality. Aspergers is not a label just him. However he now sees himself as not dyslexic.

The fact that I can now read some of the words and can mostly guess the rest means I’m not dyslexic. Now I’m just not very good at reading.

I think this recent view of dyslexia is down to school. Firstly school sees anyone with dyslexia as low attainment. Son hates being branded as below average. As a result Son sees dyslexia as an unwelcome label. Secondly the label dyslexic brings him no additional help from school. Whats the point of referring to yourself as dyslexic if it brings no support benefits and only results in being automatically branded below other kids in the class.

The bottom line is the school system has failed him. It has failed too many kids. That’s one of the reasons you read so many cases of great individuals who have decided to hide their dyslexia. Kenny Logan is a Scotland Rugby legend playing 70 times for his country. He choose to keep his dyslexia secret. From his team mates. Even from his wife. Only at the age of 34 did he finally seek help. On what planet can this be allowed to happen. So much wasted talent and opportunities. So much stress and suffering. This is nothing short of a disgrace.

I started with a quote and I will finish with one. One from our son

When someone has a disability your not allowed to discriminate against them. If your in a wheelchair you shouldn’t have to put your hand up for help. So why is it that when someone has an invisible disability you can be ignored and that you have to say ‘Please will you help me’ and when they ignore you it’s not discrimination.

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Earthquakes and The Scottish Play

Finally succumbed to the New Year ‘Sort myself out’ bug. So the Gluten, Soya, Caffeine, Dairy, Meat Free diet is back in force. Whats the old phrase – in for a Penny in for a Pound. So on top of that it is a fasting type regime as well. 10pm to 4pm no food. Allowed to eat in just 6 hours everyday. If I was sticking to the 8:16 diet then I could start eating at 2pm but as Son is not back from school until 4 then might as well wait. It’s funny the effect it has on me. Even a simple bowl of green salad takes on an out of body experience at 4pm. Almond Milk becomes pure nectar.

Anybody who experiences the pleasure of IBS will probably understand the length you will go to try and sort your innards out. You realise it’s unlikely ever to be that magic fix. You happily settle for work around that settles things down for a few months. As you get older more items are added to the banned list. Or at best the once a year I’ve got to have my fix and will take the consequences list. It never seems to be the boring or least favourite foods does it. This Christmas shockingly Marzipan has been added to the naughty list. Absolutely heartbreaking. It’s bizarre as Almond Milk is currently fine with my body and yet Marzipan…… So if you ever see me in the street looking like Mr Creosote then you know I’ve just succumbed to Marzipan with a large coffee.

Anyway the diet switch has been surprisingly easy this weekend. As soon as we have got up Son has wanted to play football in our mud patch and then take the dog for a walk. It’s helped pass the empty feeling hours. Frustratingly the football was set all day in a misty and rainy backdrop. Only as we started to pack up did the clouds finally part and we got to see the last embers of the setting sun. It will be a brief interlude as another Atlantic Storm is flying towards us. The Trampoline is hopefully well and truly sandbagged down.

So now we prepare for school. Last week was best described as a holding pattern. It didn’t get worse but certainly didn’t move forward. Currently we are trying to revise for a Science Test. For whatever reason Son suddenly gets areas of knowledge that he just can’t visualise. Being dyslexic visualisation is his memory method. I’ve previously talked about his struggles with decimal points and shapes. We can now add Waves to the list of struggles. Poor kid just can’t get his head round them.

Dad not sure I‘m going to do very well on this one. Can’t even spell Electromagnetic or Longitudinal. So even if I do fluke the right answer I still won’t be able to write it down correctly. Maybe as I’ve been practising for a Shakespeare spelling test I should just put down random bard words. At least they will be sort of spelt right.

That did make me smile. Imagine the look on the Science Teachers face when the response to the question. Which of the two types of wave produced by an earthquake is the first to arrive at a location. And will it be the P or S wave? Is as following

Macbeth and Stratford upon Avon.

Posted on by bereavedandbeingasingleparent · 62 Comments

It’s such a hard life

Time for some random words.

Subservient Tudor Expect Discipline Chaperone Accused Suspicious Breadwinner Complicated Stereotypical Shakespeare Elizabethan

A few beauties from this weeks school spelling test. Is this really a level playing field for kids with dyslexia. I remember joking that in a few months he will have to learn the spellings of dinosaurs. Dinosaurs like Micropachycephalosaurus. Well the way these spellings are going I’m not ruling it out now.

A bit of a test day today for me. Trying to work from home completing jobs usual done at the work base. Reassuringly it went well. So well that I managed to complete about an hour ahead of schedule. With an empty work list I managed to go for a run. A chilly and very windy run. It was also quite a ‘hurty’ one. I was convinced that my knee and foot were playing up. At the end the real reason became apparent. Thankfully not my body. The shoe soles had worn completely through. Might as well have just run in my socks. Captain Chaos was in raptures. Two old trainers and a pair of running socks to chew and bury. After a frantic hour of digging and re-digging the poor chap was tired out. He needed a few quiet moments with his teddy.

It’s such a hard life….

Maybe I don’t need to replace my running shoes. If and when homeschooling kicks off my opportunities to go out running will be severely curtailed. May need to think about looking out for a second hand treadmill. When Son caught me looking at eBay he added to the shopping list. So on top of a treadmill apparently we need a second hand cinema sized TV, a slush puppy machine and a chef. Maybe we could find a chef who specialises in funny coloured iced drinks. With that thought swirling in my head it was time to take The Cap for his walk. Luckily I do have an old pair of trainers which still have some tread. But strangely I couldn’t find them in the shoe rack. Oh hang on. Worryingly I found the sole-less running shoes next to the dog basket. So exactly which shoes did he bury then. Bugger. Yes in a hole in the garden are my one usable pair of trainers.

It’s such a hard life….

Posted on by bereavedandbeingasingleparent · 36 Comments

Green and pleasant land.

Welcome to Britain. A green and pleasant land.

A country where this man has just won a massive majority. A man who continues to cover up his repeated cockups which has led to a British Citizen bring help in Iran since 2016. Now his focus is on trade deals and turning the country into a trumped up lap dog. Sadly the poor British Citizen can’t offer a trade deal so she is stuffed.

Where this man from our Government claims that he has more common sense than those who died in the Grenfell Tower Disaster. He has made millions from his hedge fund company on the back of Brexit.

Where this man has been our Schools Minister since 2014. The man responsible for the current state of our schools. The man responsible for the introduction of testing for 4 year old kids. And the man who said kids taking time of for bereavement was like an extended holiday.

And a country where this man has just been awarded a knighthood. A man who introduced sweeping and brutal benefit reforms which has led to unprecedented levels of misery and is probably responsible for the deaths of hundreds who lost benefits.

Britain a green and pleasant land.

*** the photos of these lovely human beings are from The Guardian, Inside Croydon, Yorkshire Post, Change.org