Posted on by bereavedandbeingasingleparent · 57 Comments

Leaning

One of the first things you notice living in the hills is that you don’t get many poles that are straight up. There is always a bit of a lean to them. Nowt wrong with that. It feels like I’ve had a bit of a lean for years.

There is a really apt song line that Roger Waters wrote a few years back.

You lean to the left but you vote to the right.

This morning I read a work email exchange. One guy was saying that he had voted for Brexit because it seemed cool but hadn’t voted for higher food prices and more expensive import taxes. He certainly hadn’t voted for the nightmare it had become to own his time share in Spain.

Ok…..

Maybe its just me. 😳

But I guess we all do a bit of that lean to the left but vote to the right thing.

I’m not immune to that. As a kid I fell in love with football. What an exciting game it could be if I picked a great team. I then picked Newcastle United to support. If I liked football so much why did I pick that bunch of numpties.

Then there was a time when I was a fully paid up member of CND. Proud owner of the ban the bomb T-shirt. I picked what look like a really interesting University option. All went well until I found out where my option was based. The National Atomic Weapons Research Facility…… I’m not making that up. How on earth did I get through the vetting.

But it goes much wider. I wanted desperately to be a parent but not sure I would have initially voted to be a single parent. Definitely not this way.

So I guess there are times when things are out of our control. Life happens. But there are times when it is down to our decisions, our actions. If that happens you just have to own the consequences….

Posted on by bereavedandbeingasingleparent · 50 Comments

Eat chocolate

I received a lovely present today in the post. The government support package for Hawklad will expire soon. So I need to reapply. Helpfully they have sent the 50 page application form to complete. I can’t submit the old paperwork and need to have more recent assessments and evidence. That’s a nightmare at the best of times but during a pandemic!!!!!!!

Only thing for it….. A bar of dark chocolate, a decaf coffee and listen to some angry music. Today’s choice, the latest from Roger Waters. That’s one seriously cheesed off artist recording those songs. That fits as that’s the music I would make today. Normal people are forced to jump through hoop after hoop for their kids yet friends of the Government are awarded multi million pound contracts without any due process. Roger Waters would certainly get the irony.

Well I then made a start. Book an appointment for a new assessment from a Paediatrician. On the waiting list. That’s currently a one year wait and growing. It’s a start…. Where’s the next chocolate bar.

But here’s the really scary thing. Our Son is fortunate as he has had some support. We somehow battled through the intentionally difficult minefield to get that. So many are either unsuccessful or are just missed. That’s the children, adult support is almost none existent. Discarded by our society that has its priorities so badly skewed. What’s the answer. Certainly to keep fighting. Most definitely to eat chocolate.