Posted on by bereavedandbeingasingleparent · 48 Comments

Get me.

I’ve just listened to the lead BBC Political Editor basically say that British voters are not interested in questions about the PM honesty. They don’t care if he is corrupt or not. To them it’s just tittle tattle. What they care about is that how he is delivering Brexit for them, how he is keeping them safe from Covid and how he is one of them.

Excuse the words ….. what utter #########. Clearly the Political Editor doesn’t speak for me….

That’s the thing in life. Something I’ve noticed as the years have passed. I haven’t found many who I feel get me. Who understand me. Who can speak for me. Even those who should be closest to me. Family, partner, many friends. Do they really get me. Why don’t they see how I see things. Do they really understand me. They might but is that more what they want to see or feel. Probably not. That’s just human nature. I’m probably exactly the same with most other people. It will be the same for all of us. If your lucky you might find at least one person who does get you. And to set the record straight that is most certainly not The Prime Minister or the BBC Political Editor……

Posted on by bereavedandbeingasingleparent · 45 Comments

Autism

It was such a grey day today. Couldn’t find anything to photograph so let’s see what happened a year ago. So back 2020 and guess what was back!!!! After a few really bad storms our lake made a brief appearance.

One of the questions I’ve been asked the most by other parents and a few teachers (but interestingly never by family and friends) is

‘Does Aspergers get better with age?’Even occasionally the question becomes ‘will he grow out of it….”

For every polite question I have trotted out the same answer

The condition will not change but the personality traits may well fluctuate over time. Some traits may become less noticeable while others may become more pronounced.

There is research in this area but I will leave others to discuss that. I will stick to my well trodden line of each child and adult is unique. With Hawklad it is very much on par with my standard answer. Some of the traits have become less apparent as he has got older. Some of his old repetitive behaviours like hand flapping are hardly seen these days. Where’s as some traits like fixation on objects and constant motion have stayed largely the same.

But there are also existing traits which are becoming far more pronounced. Verbal stimming (repetition of words and sounds) has dramatically increased with him. Phobias and social anxieties have increased but how I’m just not sure how much of that is down to the pandemic.

Aspergers is very much who Hawklad is. It’s his personality. It is him. Sadly there is still too often a fundamental misunderstanding of what being on the spectrum actually means. Not enough understanding of what it is to be Autistic. We have such a long way to go as a society.

Posted on by bereavedandbeingasingleparent · 63 Comments

Do you understand

It’s a dark old day here. This is midday…..

Sometimes it’s hard to tell from a photo but just past those buildings the land drops down quite steeply. Dropping about 150ft to sea level. Then it’s flat for miles. Sometimes it’s not easy to see these big details.

A few weeks back I was talking to my sister on the phone. I remember she said that I sounded ‘Happy’ and ‘was clearly doing well’. That’s odd as that day I was struggling. Feeling really low, down and so unhappy. Definitely not how my sister had seen me. That’s the thing about relationships. Often the people who should know you the best are the ones who actually get you the least. You can care and still not understand. You can care and still not really listen. You can care and still not see the reality.

Please don’t think I’m picking on my sister. We really care for each other but we don’t understand each other. I can think of so many in my life that applies to. Maybe it’s just me. Not prepared to share. Too quick to hide behind my smiling mask. But maybe we don’t often find people who truly understand us. Tuned into our thinking. Can see our pain and anxieties. Maybe that’s a rare gift. One we need to continue to search for.