Flight

Such a rare site these days. A plane…. According to the flight app it’s on the way to Houston. I wonder how many are on the flight? With so many unseen enemies I don’t imagine it’s a particularly pleasant experience.

I was never the greatest of flyers. I was always one of those who kept one beady eye on fellow passengers for unusual behaviour and the other on the structural integrity of the plane. Luckily I never had too many bad experiences.

  • A landing at Geneva which was a tad extreme. I heard one flight attendant say – that’s the co pilot, he drives his car just as bad….
  • An argument with English Border Security why they were body searching our 3 year old toddler who was holding a cuddly dinosaur and his 73 year old granny, yet waving through adults my age. I wonder if that got me onto the security watch list….
  • A last second aborted landing at Leeds Bradford. Sudden pull up with feet to go. Then 10 minutes circling at an extremely low height with no pilot update. Finally the pilot announced that the power had gone out at the airport during the landing.
  • A year later circling Leeds Bradford airport for far too long waiting for the wind to drop. The pilot didn’t help the mood by announcing that the plane was low on fuel so they could only circle one more time before they he would have to find another airport that was open.

But then you balance that out with great memories

  • That first glimpse of The Alps through the plane window.
  • On a flight to Amsterdam telling son a story about a talking mole who would sneeze so hard he would blow clothes off washing lines. People and other talking animals would stand in front of the mole hoping for a sneeze and a free journey. A mole whose best friends are an overweight tea drinking cheetah and a crocodile who was scared of everything. When I finished I heard the toddler behind us laughing her head off. Her parents asked if I would tell another one for her. Ended up doing stories until we landed.
  • Our toddler son telling the the flight attendant on a Lufthansa flight that the in flight cakes were the best thing he had ever had. Just before we left the plane, the flight attendant returned with a huge box of the cakes. Kept him going for months.
  • As we boarded a Swissair flight the pilot clearly took a shining to our son. Seconds later son was sat in the pilots seat with her pilot hat on. He was shown how to fly the plane. That’s an awful lot of things to look at.
  • Swissair was always so much fun. Just before you landed they would dish out free goodies for you to take with you. Free chocolate, free small wine bottles, free sweets and a free soft toy for the kids. Sadly they went bankruptI wonder why….

Back to that one flight in the air heading to Houston. It got me thinking about when I would fly again. The question rapidly changed into if I would ever fly again… Aspergers and modern flying are not natural partners. Too many people squeezed into confined spaces. In your face security. Never ending queues. Unpredictable timings designed around the planes rather than the individual. The sensory overload and lack of personal space or quiet areas. Maybe the answer is never.

If and when travel resumes for the world…. if and when travel resumes for us then we have options. Train journey is still not subject to many of the burdens that go with flying. Car travel can be so much fun …..just need a car that could make it out of Yorkshire. And yes air travel may still be an option.

Or maybe I can find a talking mole who has a talent for massive sneezing. Maybe mole sneeze induced travel is the eco friendly option for the future.

The Big Screen

Sometimes sitting in the garden feels like the biggest ever BIG SCREEN.

Dad I’ve really got use to our home based movie nights. I was thinking that I’m not sure I ever want to go to the cinema again. Too many people. Too much stress.”

Going to the cinema has always been a bit of a lottery with our Son. We need to carefully manage the process. Arrive before the queues start to form. Carefully select a movie time which will be quiet. Sit on the very front row as this is likely to be empty and you won’t get anyone in front of you. Then keep you fingers crossed that no one sits close to us. Wait till everyone else has left before we depart. So many stress points for both our son and parents. We’ve had to leave movies within minutes (or even before they have started). Slowly the number of movies he would endure the cinema stress would reduce rapidly. Before the virus took hold it was down to just Marvel movies. So no I am not surprised that he’s backing away from cinemas. Sadly I think he won’t be the only one.

It’s not helped that our cinema options are limited. The only cinema he would go to in the end was a large muliplex in the city. It ran early morning showings which where usually empty. Unfortunately they have redesigned the cinema. Bigger, armchair like seats have been installed. Bigger seats means less seats. Less seats means fewer chances to find space. Which means the screenings feel so much busier. For someone with Aspergers that is a major issue. So are the cinema trips over? Well if they are then I have so many memories from them

  • Taking mum to see the Horse Whisperer. She hadn’t been to a cinema in many many decades. She was a little taken aback (and very relieved) that PATHE News wasn’t shown before the movie and she was amazed that people didn’t wait for the credits to finish – as a child she had to wait for the national anthem.
  • Taking son to see one of the Smurf movies and realising we were the only people watching it. Having your very own giant big screen is such a cool feeling.
  • My first date with my partner was to see The Phantom Menace. Unbelievably our relationship survived that experience.
  • Going to our local cinema in the nearest market town. It always looked such a small cinema from the outside. Unbelievably it was actually way smaller. We watched Black Panther with a couple of his old school friends and it felt like we took up half the seats. A screen probably smaller than most peoples TV and with just a handful of rickety old seats. That was the main screen, lord knows how small the second screen is.
  • I was brought up in a seaside town where the cinema was on the beach. During a high tide the gents toilets would flood.

Photo from Trip Adviser

  • Went to see the Blues Brothers at that cinema and someone let off a stink bomb. Only the very hardy got to see the end of that one. Luckily a head cold and a blocked up nose gave me a distinct advantage.
  • Went to see BMX Bandits there as well. It was absolutely heaving. Unbelievably two kids sneaked in bikes and started riding them around during the film. A week later a famous Oscar winning movie was on and no one turned up. Summed up the town really.
  • My first trip to a cinema was to see Digby The Biggest Dog in the World. Yes I am that old.
  • Before I met my partner I remember going to see JFK with a long time girlfriend. Foolishly it was the midnight screening. I fell asleep after the first few minutes and woke as the credits started to role. Strangely I was able to fill in the missing 3 hour gap and actually felt that I had not missed anything.
  • My partners mum wanted to go to the cinema as she hadn’t been in years. She was a devout Quaker so we looked at various religious film options which the local specialist cinema would offer. One film looked very promising. It was a 2 hour documentary about monks living on a remote site. The monks had taken a vow of silence so the movie only featured background sounds, no talking and no music. After seeing the various options her mum opted for the cartoon, Chicken Run and loved it.
  • I took son to see Captain Marvel. Unfortunately his muppet Dad took him into screen 3 rather than screen 2. As soon as the movie started it was clear that the movie running here was Dumbo. Unfortunately Dumbo in 3D. We didn’t have any 3D glasses so we had to rather embarrassingly trudge out.

So just maybe our cinema days are over for the foreseeable future. That’s kinda sad but if that makes our Son happier then that’s fantastic. There is something reassuringly nice about watching a movie premiere wearing your old comfy jogging pants with a big bowl of popcorn on your lap. Also in full control of the movie options, so we can decide to switch films at any stage. So here’s to the days of the home based cinematic experience. Time to create some new memories.

Friendships

Pesky school played that trick on me again. Son is all set up for the next school at home lesson. THEN at the start of the lesson the teacher asks for work to be done which requires a plasticine model to be made. As we don’t have a fully functioning stationary and supplies cupboard, an urgent search of draws and boxes took place. Eventually a large ball of old Blu Tack was found. That will just have to do.

But in one of the boxes we searched was another find. A much more rewarding discovery. A laminated photo of our Son from his time at nursery. It was used as a name badge for his coat peg. I had completely forgotten about this. Suddenly all the memories start to flood back.

How things have changed….

Looking back at nursery he had about 10 really close friends. Friends he would spend so much time with. Over time families moved, kids went to separate schools and friendships faded. Currently only one of the nursery gang go to his school but they are in different sets. Even that friendship has grown apart. They will still wave and smile if they bump into each other but that is it.

It’s the same for the parents. Each one of those nursery friendships yielded a parenting bond. Family meet ups, barbecues, day trips out and close adult friendships. Those are now gone as well. Even with the one nursery girl still at his school, we have grown apart. Not spoken to the parents in two years. Just a few years back I would go cycling with the Dad and went running each week with the mum. Now it’s down to the occasional wave as we pass each other on a car journey.

Now looking at this old photo I am reminded of old friendships. Friendships which have been lost just like that photo was in an old box. It’s a reminder that the world moves on. Things change. Sometimes change goes against your well thought out plans and sadly sometimes change is not always for the better.

But then you look at that cheeky face in the photo and it’s impossible to be too downhearted for long.

Nettles

You know your garden is badly overgrown when you manage to fill a wheelie wheelie big Wheelie Bin full of weeds in less than 15 minutes. I guess that’s one of the advantages of council refuse collections only happening every two weeks. After only a few minutes weeding you might as well stop for 2 weeks.

I have to say the weeds didn’t go without a fight again. Nothing like trying to pull out angry nettles. They are the Sith Lords of the garden kingdom. Today I was prepared. Thickest gloves I could find, long sleeve top and combat trousers. I still have a lot to learn in the ways of the dark side. One particular large nettle was refusing to come out of the ground. With one final effort the nettle exploded out of the Yorkshire soil. Unfortunately far too much upward force had been applied and the delightful stinging plant whacked me in the face and neck. Shall we just say it’s smarting a tad….

I wasn’t weeding out of choice. The house had become very much off limits. Son had to voice record a presentation for school. He was suitably unimpressed. So to try and not put him off, I went outside to garden. I’m not sure how it finally sounded and I’ve promised him not to listen to it. But the barbed mutterings from inside the house did make me smile.

How am I supposed to perform under theses conditions….

Typical I do a good one and I forget to start recoding the stupid thing….

I bet Johnny Depp would struggle with this script….

And breathe….

Argh, why does this microphone make me sound like a Sith from Star Wars….

Oh for the love of …. I’m sounding like a chipmunk now….

Oh god I’m starting to sound like my Dad….

Sadly he is starting to sound like his Dad. My habit of shouting at pieces of technology has clearly rubbed off on him. I just wish these nettle stings would rub off me now. I definitely have a face perfect for radio tonight.

Ticked Off

Meet one of our gardens true characters. This is Rico. Yes named after the truly mad penguin from Madagascar and The Penguins of Madagascar. Rico is a bit of a show off. Our world is better for characters like Rico and wow does it need it at present.

It’s been another day of Monty Python Government here. First we had the Scientific Officer confirm that the vast majority of first and second infections in the UK came from air travellers returning from Italy, France and Spain. We then had a senior Government Minister arguing that no possible reason exists to justify introducing screening at UK airports. Ok…. Yesterday we had the Government talking up the plan to reopen many schools in three weeks as it was safe to do so. Today we have Scotland’s Government arguing that the science is clear that it’s far too early to consider opening schools. And then we get the Foreign Secretary arguing that only partial opening of schools is safe. Ok…

We have a Health Minister who is gloating as we apparently reached his target of carrying out 100000 virus tests per day on the 30th April. We will ignore the fact that most other countries are carrying out more tests. We only reached his target because he included 50000 test packs which had been rather conveniently posted out to people on that very day. That’s like me sending out 50000 letters asking for a date and then counting all of them as actual dates. After the deadline we have slipped well below the 100k testing target again but that apparently doesn’t matter now as the target has now been ticked off. I tell you what – I am with many millions of Britain’s who are getting seriously ticked off with a certain Health Minister.

AND while we are on the subject of seriously ticked off. Why can’t I bake. After all the years of practice and yet it is still clearly beyond me. Today I foolishly decided to try my hand at a French Baguette. A gluten and dairy free one. It went into the oven looking like something which wouldn’t be out of place in Parisian Boulangerie. It came out like something Baron Frankenstein had created and then immediately binned. It was basically the same shape as a cow pat. It was also as easy to cut as reinforced steel. I can’t even give that to Rico and pals. Thankfully one person is this house has talent. After he stopped laughing Son said

You know what I can use that for. I will paint it and I can use it as a model.”

So my baguette was transformed into a remote island with snow covered mountain ranges, fast flowing rivers and deep lakes.

I bet if Gordon Ramsey had created this, it would have been called a ****** masterpiece and deserving of international recognition. That seriously ticks me off.

Speaking

I have always hated speaking. It’s fine if I am amongst friends and people I trust. But put me in front of strangers then it becomes a completely different ballgame. I have to find ways to get through it. Ways to avoid tripping over words. Trying to stop the stammering returning. Public speaking becomes a mechanical task which needs a process. I significantly cut down my vocabulary range. I never use a planned written speech (I just can’t find any rhythm when I’m speaking from prepared text – I even struggle to read a book aloud). I plan and memorise the first two lines that I will say. I work out exactly how I am going to greet someone. I never make direct eye contact, rather I tend to look at eyebrows or foreheads. Even then it’s a bit of a lottery. I’ve delivered a perfect conference speech to 500 yet completely collapsed in front of just 2 people. I guess the secret is to try forget about the inevitable mistakes or just smile at them.

I remember speaking to the medic who mentioned the word Aspergers first in connection with our Son. She was an autism expert – one of only two we have ever met, which is kinda scary. Anyway I remember her saying something like

I suspected that he was on the spectrum almost immediately. It was the way he walked into the room. They way he struggled to sit and make eye contact. He confirmed my diagnosis as soon as I heard him SPEAK.

Son was very like me in that he started to talk pretty late as a toddler. As soon as he did start talking then his vocabulary rapidly expanded. At nursery he was absolutely flying with his speech. But then at about the age of 5 he started to struggle with a number of factors

  • His speech suddenly become extremely monotone,
  • He would either speak far too quietly or far too loudly,
  • He struggled to pronounce many sounds correctly,
  • He would always get the use of plurals wrong,
  • He was definitely using language which was well beyond his age.

The final one was not a problem but it did lead to some amusing incidents. In his first year at school the class was about to start a series of lessons trying to teach the kids about animals eventually after a number of weeks leading to touching on evolution. Within a couple of minutes of the first lesson our boy put his hand up and then proceeded to explain evolutionary theory to the class. The lovely teacher said she had to later go and look up some of the terminology he had used.

But as the months went on his speech issues became more pronounced. Eventually his Aspergers Expert managed to arrange speech therapy for him. Slowly the therapy started to work. Certainly his pronunciation and his control of his voice levels improved. Unfortunately after 6 months the speech service was cut by the Government to save money. It’s never restarted. The therapist gave us a number of exercises to practice but did leave us with a message

Constant practice will help manage any speech issue but they won’t solve them in your son’s case. They will be underlying for the rest of his life. They may become more pronounced as he gets older. He needs to develop his own way of coping with that.

That’s where we are today. He still can’t get his head around plurals. He is still struggling to pronounce certain sounds. No help is available for him. But rather than trying to cope with the issues, it’s more about him developing his own unique communication style. One which suits his personality. That approach I’m pleased to say is working. The other key thing is to stress that we all struggle with speaking at some stage. It’s nothing to be ashamed about. It’s who we are. It what makes us unique.

Son always likes to hear one of my most embarrassing speech incidents. I have a niece who when she was very young would not say big or large, rather she would have to say really really REALLY big. That was pronounced wheelie wheelie WHEELIE big. Anyway many years ago I was delivering the organisation’s annual report to The Council. Representative of the Government was there as was the local press. Talking about the financial position I meant to say

In terms of of our Operational Budget and our Tax Revenues we have a significant underspend.

Unfortunately that was delivered by this prize muppet as

In terms of of our Operational Budget and our Tax Revenues we have a wheelie wheelie wheelie WHEELIE big underspend.

Not sure that key message was delivered with quite the gravitas I was hoping for. Still at least we can laugh about that now….

Judging yourself through your grief

I am so thrilled that Katie and Evee have been so kind enough to write another post for me. I know from all the comments that the last one they penned was so loved. Please checkout their blog (The Grief Reality), it’s such a wonderful source of love, human spirit and hope. You might also come across another post from me there today as well.

I know how tough this post would have been to write for them. I have been feeling similar emotions about my Partner as well. They set these out so beautifully.

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Mum was always so protective of her daughters. If we came home from school crying about being bullied, she’d be straight on the phone to the headteacher even if we begged her to just forget it. She said her fierce protection was something we’d only understand when we became mothers ourselves – perhaps that is true. 

 

However, as time went on and we understood our mum’s growing fragility, we too stepped into a more protective role, that perhaps only children in our position would understand – we don’t know for sure. Eventually, simple things such as birthday parties became hazardous as they opened the risk of Mum becoming neutropenic with her compromised immune system. 

 

We miss our mum every single day and there is so much we have not been able to share with her over the last 18 months. Yet, with the current world events that are unravelling, quietly, we have both admitted to thinking “Thank goodness Mummy isn’t here to see this”. For the pair of us, this thought hasimmediately been silenced by shock, guilt and self-judgement: “I can’t believe I just thought that”. And it took a while for both of us to open up to one another to talk about this guilt. We were afraid to voice this utterly shocking feeling; about someone you physically ache to see again.

 

The fact that we can miss someone so much, but not want them to be here to bear witness to all the wrong in the world, is an unexplainable feeling. When we were early on in our grief, we thought it unthinkable when a counsellor told us we will one day consider that our mum is ‘safe’.

 

Well, we guess we are finally there. Mum cannot be touched or hurt anymore; and she is more protected than we could ever make her. We thank goodness that our mum is safe now and she does not need to worry about delayed chemotherapy treatment due to Corona Virus, or what we’d do if she needs to go into hospital. 

 

It is a conflicting emotion for us as this fear no longer lingersabove us. Yet, we still cry for the families who are living through it. 

 

Underneath everything, we know, no matter how far we come, all we will ever want is a cuddle from our mum, to be told this will all pass, and we will be okay. Isn’t that all anyone ever wants?

 

Go gently, 

 

Katie & Evee

Look what’s cropped up

Some call it a weed. Some call it a flower. I’m definitely in the flower camp. It’s amazing where these things crop up in the garden every year.

Now we have had several weeks of schools version of homeschooling, I guess it’s time to look at the parent side of the process. What have I learnt during these weeks. The first thing to say is that it’s NOT been impossible. That was my fear when I always thought about homeschooling. I’m going to mess this up. I just won’t be able to cope. Well I’m still here. Son is still here. No huge disasters. Son doesn’t hate me. School haven’t demanded my sacking as a parent. So yes I kinda must have coped with this homeschooling lark.

Another thing I’ve learned is this IS NOT TRUE HOMESCHOOLING. This is schools version of teaching when the classrooms are locked up. Some lessons might come close to true homeschooling but others are just the same classroom lessons delivered in your living room. The Government and the Schools set the agenda, decide on what areas are covered and how they are delivered. The children and parents largely do what they are told. The point about true homeschooling is the freedom that it offers. You can tailor the education to suit the child. This version of homeschooling feels more like forcing the child to fit the needs of the system.

So what have I learned as a kinda homeschooling parent then

  • I know diddly squat about Art, Music, Religious Education and Drama.
  • I can look like the worlds most intelligent parent when I hide my iPhone in my shirt pocket and find a way of discreetly typing in questions to google.
  • Homeschooling is far more tiring for the parent than the child.
  • My spelling is worse than my dyslexic son.
  • For homeschooling to work really well you have to engage the child. Focus on the things that make him or her tick. What seems to work for me probably doesn’t work for our son.
  • I need my own school stationary cupboard. The amount of time I waste hunting in draws for things like pens, paper, paints and art materials.
  • Science hasn’t half changed since I got my A-Levels in Physics and Chemistry. Was Quantum even a word back then?
  • I might have a master degree in computing but that counts for nothing when you are trying to get the iPad to talk to the school computer.
  • Things like housework and working for money are really not going to happen during the homeschool day. For the parent homeschooling is as time consuming as it is for the child.
  • I’m so lucky just having one child to homeschool.
  • Me trying to explain French pronunciation is a complete waste of time. Maybe investing in something like Rosetta Stone is the way forward. But that’s a key point. Some of the homeschooling will be beyond me. I will need to invest in online support, book tuition time and additional help so as to make this work.
  • Getting son to just read a textbook is not the best approach. If homeschooling is going to truly work it will mean doing things like taking son out to historical sites and geographic locations. The parent needs to fully commit to this.
  • As the home school day has to replicate the normal school timetable I have learnt to be fairly strict on the time Son spends on each lesson. Trying to avoid overruns. Once these start they just accumulate and that just drags the day out for Son and ME.
  • Homeschooling increases the urge for things like strong coffee and biscuits.
  • I don’t care how many weeks I do this – I still can’t remember the school timetable.
  • Broadband failure just as work is being submitted is seriously stressful.
  • I’m very good (as are the PE teachers) at reminding the kids to warm up before the do exercise. I of course forget to warm myself up. Although I like to think of myself as fairly fit, I also tend to forget that I am basically an old fart…. So without warming up and then trying to do something like a forward role is basically asking for trouble.
  • How much paper does schooling use ….. far too much.
  • Homeschooling is tiring. But it doesn’t help with nighttime sleep. Too many school things to think about.
  • If I pick up the courage I can make things like homemade play-doh without the need to panic buy off Amazon.
  • As the homeschooling week unfolds my dress sense deteriorates. By Friday I look like a badly chewed dog rag doll. Don’t even start me on my hair.
  • Just go with the flow. If Son wants to learn outside, or walking about or stood on his head or whatever … work with that. I need to keep telling myself that what works for me will probably not work for him.
  • Over the years I’ve often had sleepless nights wondering what mystical substance has the chemical formula C12H22O11. Now I realise it’s Sucrose.
  • I’ve also found out how difficult it is to try and type chemical formula properly. Surely in 2020 we must have found easier ways of typing numbers which are littler than letters. AND Don’t start me on trying to do French and typing things like acute accents and circumflex’s. The process extends writing an answer from seconds into months. On these I have been no help to our Son.

So basically I have survived this form of homeschooling so far. Yes it’s not always easy. Yes I’ve resorted to pulling my hair out in some lessons. Occasionally I have sworn. It’s demonstrated that homeschooling and work don’t really go together. But actually I have also smiled quite a bit. Sometimes even had fun. That’s just for schools version of this. How good could we make proper homeschooling.

The need for travel

Last night we were watching the new Sonic the Hedgehog movie. Yes we really do like to stretch our cultural boundaries. A couple of times during the movie I found myself thinking – wish I could visit that location. I’ve been doing that quite often recently. Can’t really blame the pesky virus completely for that. I was having those thoughts before the lockdown. Our Son’s world is naturally contracting. So mine is as well. The last time we spent more than one night away from our home was back in 2015. Sporadic day trips and the daily run partially helped fill my mind with some connection to the wider world.

So after Son had gone to bed I went in search of photos. Photos which would remind me of trips and holidays. Soon I was back in Northumberland with my partner. A week in a gypsy cottage.

Walking alongside Hadrians Wall and in the footsteps of Roman soldiers, almost 2000 years ago. Touching and drinking in ancient history.

Enjoying the open spaces. Hardly meeting another soul. Feeling that cold northern wind and walking on the soft moorland. Feeling no limits and letting the map decide the route.

Places like Northumberland have a unique atmosphere. A bleakness. An almost somber beauty.

And then a reminder of why I am so thankful for life.

Leave it

When we first moved into our home, my sister bought us two plants as house warming presents. 18 years later they are still going strong. The red one doesn’t flower for long but it’s just springing into life.

It’s quite amazing that after 18 years both plants are still going strong. I don’t have a great track record with plants. I remember my partner for a joke buying me a plant which was described as – the worlds most resilient….will survive anywhere. Clearly they missed off the words – apart from one house in Yorkshire. It was dead within months. But these two have survived. They arrived, I bunged them in large plant pots and left them. Since then they have occasionally been watered and that’s it.

Sometimes the secret is clearly to leave things to sort themselves out. Not always, but definitely occasionally.

I was listening to a politician last night talk about how schools should immediately reopen. According to him schools didn’t need to worry about things like hygiene or social distancing. Kids have been going to cramped classes for generations. Yes kids can catch our current nemesis but its an acceptable risk. Apparently teachers are paid to teach so they should ignore any concerns about things like social distancing and PPE. The economy is paramount. In one notable concession apparently government officials and assessors should avoid schools because of the risk of catching the virus. When asked about kids and parents fears the response was – tough, the economy is more important and if they refuse to attend then they should be forced to. It’s up to the government and the PM if a child attends school.

Really. I will see you in court then.

Schools do need to reopen when it is safe for kids, parents (guardians) and staff. Now is the time to make school a better place to learn and work in. Surely the days of treating schools like archaic education factories must be finally over. Yes schools have been this bad for years and years. That doesn’t make it right. We burned witches for years and years – does that make that practice right…..

And as for the idea that school visits by inspectors are too risky yet it’s ok for the kids and teachers…..

Let’s start making positive changes to schools and then we can start a process of gradually reopening schools. Fully involve teachers, pupils and parents in the process. That way we can build confidence in the system. Some families will be able to go back quickly. Others (like our son) will take longer. Some bloke in London telling people what to do would be just so wrong. My Son will only go back when HE IS ready.