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Christmas Diaries 1

It’s been a grey moody day. It never once looked like clearing. At least it didn’t rain for a change.

The zero based hours contract gave me me three hours work today. For the next couple of weeks any work demands will be minimal. Not great for the bank account but it allows me to now focus on our son. So with a couple of days before the school breaks up – Christmas is about to start in earnest. So an early warning. You may get a few Christmas Parent Diary entries coming your way. Hopefully most will focus on the happy side of life. It almost certainly will feature a few cooking disasters. In fact let’s sort the first diary entry out right now.

So after the work dried up it and the grey run was completed it was time for a bit of baking. Time to make a stunning gluten free stollen cake. A few chaotic shopping trips had stocked up the larder with all the ingredients. This time it’s going to be baking heaven. Hang on a minute where’s the marzipan. As I love the stuff I bought 4 slabs worth. But where are they. Absolutely no sign. Don’t you just hate it when that happens. No problem I will just pop to the local store. Don’t stock it but they did have infeasible amounts of glazed cherries. So off to the supermarket. How can a supermarket run out of marzipan. How can the only other store reasonably close by also have none in stock. I gave up so let’s just make a Christmas cake. Three hours later I’m looking at a baking abomination. Crispy on the outside, undercooked on the inside and a ginormous sinkhole at its centre. The birds will eat well tomorrow.

So ends the first Christmas diary entry. But let’s do the diary preface now.

Christmas can be lovely and fun but wow can it hurt. It’s one of those times which naturally draws you to what you have lost. I was reading a blog which talked about this in such a haunting way.

All aboard! The holiday struggle-bus is pulling into the station, and I’ve got a ticket to ride.

That bus hit me yesterday. I was simply wrapping our sons presents up. Instantly I’m taken back a few years. Christmas music on. A couple of glasses of wine. My partner a ninja master at unwinding the cellotape and securing the edges of the wrapping paper. Unbelievably I was an expert at finding the best way to wrap the presents up. The perfect production line. So effective and so loving.

Now I sit on the floor with a tea and whatever is on the radio. To be honest I’m not listening. The presents are still being wrapped well but the cellotape has won the battle royal. It’s wrapped around my fingers, on my clothes, stuck to furniture and yet refusing to go anywhere near the wrapping paper. Love and happiness replaced with frustration and sadness. It’s never going to be like it was. That love is not going to be replaced. Those shared dreams are binned. It’s a truly sickening feeling.

It’s so easy to forget that this can be such a tough time for so many you are bereaved. For so many in pain. For so many without anything. For so many who are lonely. My heart goes out to you. You have a soulmate here.

Yes over the next few weeks this blog might get a bit silly. I really hope it does because it shows that I’m doing my only important job. Trying to make Christmas as fun as possible for our son. But underlying it will be someone still grieving what has been lost. My hope is that some of that Christmas magic which hopefully is enveloping our son will rub off on me. Showing that you can grieve but it’s still possible to have fun. If it works for me I really prey it’s rubs off on you as well.

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Just like that Tree

A couple of photos of a favourite tree of mine. And Captain Chaos – saves an extra special cock of the leg for this one.

It’s sits on the edge of a forest. It’s in a field all by itself. Is it part of the forest or does that 50 yards of separation make it a loner – in its own forest of 1 tree. I guess it once was part of the main forest but over years the trees around it have died or been felled.

There’s a photograph from our sons old nursery which comes to mind. I can’t share it as it has other kids on it and I don’t think it’s right to show it without their agreement. It was taken when our son had just turned four. He was a kid which every other kid wanted to play with. Up to that stage no real indication of Aspergers. In fact I really didn’t know what Aspergers was. The photo has all the nursery kids and nursery staff stood in a group. The Nursery Team photo. All huddled together except one small boy. Our son was stood by himself about 2 yards in front of everyone. Giving the camera a real Paddington Stare. They tried to get him into the group but he just kept saying ‘NO I’m fine here’. Unusual for him as he was normally the one hiding at the back with a hood over his head as soon as a camera was produced.

Was he part of the group or was he becoming a loner.

Maybe he thought he was the leader. Maybe he thought it was his moment to shine. Maybe he just took a dislike to the photographer. We will never know.

A note was shoved through our letter box yesterday. The Village Committee are holding a village Christmas party at the little Village Hall. Children can come so WE could go. But I’m not sure I feel part of the village these days. The friends we had have all left now or passed away. The few I still know are elderly Residents and they will either be off to spend time with family over Christmas or are not interested in socialising anymore. So if we did go WE wouldn’t know anyone there. Part of me is saying WE should go as it’s a chance to meet new people. But WE won’t in the end. Son is adamant that he would rather do a spelling test than go to that party. A large part of me shares his view. Stood in a cold village hall with people who either have no idea who I am or with people who I share nothing in common with. They live in a different world. A world of dinner parties, bridge Clubs, Conservative Party Socials and going pheasant shooting at the weekend. You see the problem is that although I am living within yards of these good people – I am not really part of them. I once was but those close to me have either left or died. Slowly isolating me from the village. Just like that TREE. Hopefully the dog doesn’t cock his leg on me.

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Northern Lights Express

General Elections in the middle of December are unlikely to be conducive to establishing that festive feeling. So we arrive at Friday the 13th are still no thoughts of Santa. So action was needed. Time for a train journey

A train journey with a difference. The Northern Lights Express on the North Yorkshire Moors Railway.

The North Yorkshire Moors Railway is an historic 18 mile line that runs across some of the most beautiful countryside in Britain. It’s a not for profit charity with its daily operations carried out by volunteers. It has a fleet of historic steam and diesel locomotives. It is special to our son as his Grandad helped establish the Trust which eventually reopened the line in 1973.

So on this night. The entire outside of the train was decked in lighting. Inside decorations and mulled wine. Son tried to convince the nice volunteer to let him try the wine. But she resolutely stuck to her guns

“Sorry your just a few years to young. Maybe your Dads old enough to buy one”

His reply made me crawl under the table.

Look at his thinning hair on top. That’s tells you he’s way past 18.

The fairy tale story was told and we board the train.

Look out the window at the magical looking forests while listening to Christmas music. The announcer lets everyone know that the Driver has spotted some magical creatures ahead. The carriage goes over a bump in the track and Son instantly informs the carriage that ‘the trains just hit one the magic creatures’.

Then the creatures appear in the forest.

On the return journey it’s a Christmas Quiz and a Sing Song. That’s the first time this year I’ve tried to sing a bit of Wham. The first part of the journey pulled by a B1 Class Steam Engine built in 1947.

The engine pulling the return trip is called Sybilla and is 54 years old.

The election is forgotten for a while and yes it feels a lot like Christmas now.

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People of Blyth

It’s Friday the 13th. It feels like a real horror story in Britain today. A new dawn of terror.

People of Blyth I really hope your decision to vote Conservative works out for you. I really hope Boris Johnson follows through on his promises. He gets Brexit done then finds money to cut taxes and spend more on public services like our health service. Although a Bart Simpson quote comes to mind.

“You just bought another load of crap from the world’s fattest fertilizer salesman.”

To be fair to Blyth I could have picked a number of Northern English Towns and Cities. That includes my childhood home town – Redcar. Or as Johnson has now called it Bluecar. I hope people remember that Redcar is named after an area of poorly drained land. Kjar (Car) is old Viking word for marsh. Maybe Conservative Blue and poor drainage are a suitable combo.. My old Dad always said he would never ever vote Conservative. He must be turning in his grave at a Conservative MP of Redcar.

So we wake up to Boris Johnson as the Prime Minister. I was careful there not to say our or my PM. He certainly is not my PM. He needs to earn that. If he proves himself capable and trustworthy then I will start to call him MY PM. His remit is to get Brexit done. As far as many are concerned that is the a Brexit debate finished. We are now leaving. Leaving hopefully with the best negotiated terms and relationships possible. Although many of his backers want to have the process fail so they can just crash out of the EU without any constraints. I genuinely think it’s the wrong call but we have lost the argument and IT IS WHAT IT IS. We need to move on.

I’m not going to rant at the majority of people who voted Conservative. Your opinions and values are just as valid and heartfelt as mine. I do shake my head at some of the reasons a worryingly large number of people decided to vote on. Ones I have personally heard include

  • I’m not voting Liberal as the leader is a woman,
  • I’m voting for Boris because he is funny,
  • I’m voting for Labour as Gary Neville (ex Footballer) said he was,
  • I’m not voting Labour as they backed the Terrorist who attacked a London Bridge (a fake news story)
  • I’m voting Conservative as they will teach Europe a lesson because they are to blame for our problems.

Simply staggering….

Our political system is broken – probably beyond repair. Increasingly money buys you power. We have political leaders who openly lie and spread unfounded rumours. We have effectively a state sponsored public broadcaster while the other news outlets are in the hands of a few Conservative supporting billionaires. Media groups who openly flout electoral law and favour the incumbent government. Where opposition parties are scrutinised and vilified while at they same time reporters act as a mouth piece for government propaganda. It’s not even subtle anymore. A BBC News reporter days before the election told viewers that Boris Johnson ‘so deserves’ the victory he is hoping to get.

We have potential Russian meddling in our elections. A crucial report on this was buried by the Government a month before the vote. But let’s be fair to Russia it’s not as if the UK or the US have not also interfered in the the affairs of other nation states as well. If we do it why can’t they.

We have a fragmented opposition where the two main players have lost the plot and would much rather fight each other than actually focus on trying to be a credible government in waiting.

We have a ridiculously out of date electoral system that makes it virtually impossible for parties like the Greens to make any headway. Yet it gives huge majorities to a part that gets less than 50% of the vote.

We have a United Kingdom which is literally falling part. As much as Johnson has denied it his Brexit Plan will split Northern Island off from the rest of Britain with a dedicated border control. Scotland now votes in an entirely different direction than England. Scotland voted against Brexit. Scotland votes SNP. How can calls for independence be denied any longer. It’s probably appealing to Boris as he would get rid of a large and vociferous opposition grouping. Locking in a Conservative Government for a generation.

And then we get back to the good people of Blyth and Redcar. A political system which has for years ignored them and failed them. Now we have a hardcore of disillusioned voters who have little faith in their politicians and leaders. No wonder they see Brexit as a way of bringing change.

So we batten down the hatches. Focus on what is truly important – family and friends. Do whatever we can to protect them while doing our bit for the environment. Completely block out the tainted media groups like the BBC which simply cannot be trusted anymore. Find our own news sources. And we move on hoping that things don’t go as badly wrong as I fear. I really fear for minority groups, those who are sick, those who are on benefits, those who are out of work and I am petrified about what will now happen to our environment and wildlife. So ends the rant and now I get back to being a crap dad trying to cope with whatever life chucks at me. Fingers crossed I don’t need to mention Boris again.

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Pink

Colour hanging grimly on in Yorkshire. This is an oasis surrounded by unremitting greyness.

Truly dreadful weather day. The wind has been blowing horizontal rain at the back door all day. Currently on the third towel trying to keep the utility room dry. It’s a bit of a losing battle. Let’s hope it’s the only losing battle today. I went to vote straight after the morning’s school run. Let’s leave it as that. Tomorrow will either be a hopeful post or a monumental rant of a post. You have been warned.

I’m writing this as son sits on the sofa watching a documentary on his tablet about Auschwitz. Yesterday he watched a few videos on the plight of the Palestinians. Puts everything into perspective. The fact that the youth of today watch this gives me hope for the future. Let’s hope we leave the next generation with a habitable planet so that they can mould a far better world.

With work for the day completed I set off for a run. Better described as a splash. Wow it was wet. After a few miles my poor hands were frozen so I foolishly put them in my waterproofs pockets for a warm. Rather than finding a haven of warmness they found a hidden pool of cold rain water. Lovely. I’m pleased that I opted for shorts. Not sure I fancied my leggings shrinking. My mind goes back to a mountain marathon during my university days. A six hour night drive to the Highlands of Scotland ready for the 9am race start. Everything was going so well until we arrived and changed for the race. I had forgotten my shorts. 30 minutes to the start time and the nearest sports shop was 20 miles away. The strange looks I was was getting as I walked around the runners saying ‘have you got a spare pair of shorts’. Looking like I would have to sit out the race when my race partner came to the rescue. ‘I can wear my shorts and you can try to use my leggings’. The problem was my partner was called Suzanne and she was somewhat more petite than me. To much laughter on her part I squeezed into the tight leggings. I was the only male competitor running in bright pink. It was also the only competitor that completed the race in with tears. Must admit the constrictor leggings did wonders for my dodgy hamstrings. But since then tight leggings have gone nowhere near my nether regions.

With my wet run completed it was a quick change and off on the school run. As a I arrived a very sodden Son trudged across the car park still in his sports gear. You could see him shaking with cold and the water dripping off his clothes. With the car heating full on he tried to get changed into his dry school uniform.

*****

“You’re drenched why didn’t you get changed out of your wet kit”

I didn’t want to risk it. We only get 5 minutes to change. If we are not out in that time you get a negative from the teacher.

“Have any kids been given negatives”

Virtually every week at least one kid gets a negative. It’s unfair especially as it’s the last lesson of the day.

*****

And another telephone call will be made to school. Five minutes. When I played football it would take me at least 10 minutes to get changed. It took five minutes just to prize my constrictor pink leggings off my butt all those years ago. Five minutes sounds tight before you factor in Aspergers and Dyspraxia. Getting changed does not come easy to him. School have been told this on several occasions by me and in writing by the Paediatrician. So much for the school making positive adjustments to make his school life comfortable and enriching.

It’s the frustration felt by far too many children and their parents. Everything has to be fought for. It’s a battle to get a diagnosis in the first place then the real fight starts. Trying to get any positive adjustments and help. As much as the media try to paint a different story … we are not looking for special treatment … we just want our kids (all kids) to get a fair chance in life. Is that too much to ask for.

*** late addition *** it WILL be a monumental rant….

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How many H’s

It’s been raining. It’s been windy. It’s been awful.

It’s been one of those famous Yorkshire weather days. The type of day you think it’s wise to deploy the life rafts then you realise anything not bolted down is being propelled to continental Europe on the jet stream. Absolutely chucking it down. The rain is almost horizontal as the wind is whistling in. The thermometer is saying it’s not that cold but any skin exposed to the elements is turned blue within seconds. My Dad would call it a two jumper and waterproof socks day. The type of day he would have got the ark out and filled it with the important stuff – his prize Rhubard.

As a child I could never spell Rhubard. In Yorkshire that normally is punishable with excommunication. It’s much worse. I’m probably the only Yorkshire citizen who does not like Rhubard. Good job nobody reads this as saying that is equivalent to witchcraft here.

Who thought it was a good idea to put the H in that Yorkshire delicacy. If it’s bad for me try explaining that to someone with dyslexia.

Dad I’ve got this weeks spellings which I’ve got to learn for Fridays test. Are you sure there are no negatives for getting less than 10 out of 15.

“No the Head of Year has stopped those negatives. Why are they difficult.”

Dad your asking someone who is dyslexic…

“Sorry. Are they ridiculously hard this time”

About as hard as explaining why light bends round massive objects.

********

I thought I understood Spacetime Curvature and General Relativity until son picked my reasoning apart the other day. So those spellings must be super hard. Having now seen them they are beyond General Relativity difficulty. Actually they are on a difficulty level as trying to get a Tax Returns from a certain Donald Trump.

Anecdote

Memorable

Audience

Alliteration

Persuade

Rhetorical

Who put the H in rhetorical. Looking at our sons confused look clearly he doesn’t understand the sneaky H as well. Apparently the spellings will get increasingly harder over the coming months. Can’t wait for June. At this rate son will be trying to spell words like

Apatosaurus

Diplodocus

Xiongguanlong

Epidexipteryx

Allaeochelys

Carcharodontosaurus

Huehuecanauhtlus

Who put the 3 H’s in that Dinosaur.

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Change

That’s either a years supply of fire wood or one monumental nature hotel. I strongly suspect it’s not for nature. It’s strange how things can change. One week a pile of wood is home to nature the next its ashes in a fireplace.

Immediately after my partner died I suddenly started to experience significant isolation. Largely cut adrift from society. Your life becomes intertwined with that of your partner and your own sphere of social contacts gradually drops accordingly. Rupture that partnership and you rupture your social life. On most days my only opportunity to socialise was at the school gates. The daily school run became a source of much comfort. I could talk to other parents and son would interact with the other kids. Being a small school really helped him.

Fast forward a couple of years and the school run experience has completely changed. Bigger school. No gate anymore. The parents who do turn up stay in the car and wait for their son or daughter to find them. No one gets out of the car. Very isolating.

Then you see the kids leave school. Mainly groups of kids. Twos, threes or more. Occasionally you see one walking by themselves. Son always walks by himself. Suddenly it feels a very very dispiriting experience. It wasn’t supposed to be like this.

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Time for punishment

After weeks of rain the clouds finally parted and reassuringly the sky is still blue. The sky is blue and the ground is still muddy.

Since it’s a day with a name that ends with DAY – it must be a day for another school moan. Don’t worry it will be the Christmas holidays soon and you will get a break from the rants – hopefully.

Next week our dyslexic son has to sit TWO spelling tests. One for English and one for DRAMA. That’s DRAMA. So to develop any Performing Arts talents he has to learn to spell words like

Melodrama, Exaggeration, Facial Expressions, Placards, Stock Character….

I guess when he wins his first Oscar in his acceptance speech he can thank these Spellings…..

Then we have the English Spelling Test. The weekly spelling test. This week he has 15 words to learn. Including such beauties as

Advertisement, Similarity, Persuade, Exaggeration, Testimonial, Alliteration….

All the class (regardless of individual spelling ability, regardless of dyslexia) have to spell the same words. The expectation is that you will get 100%. All it takes is a bit of effort. Hang on we need to raise the stakes just a bit higher. Anyone not getting at least 10 out of 15 exactly right will get a Negative. Four Negatives get you detention and much shame. It also rules you out of the end of year trip to the Fun Park/Zoo.

For F*#@ Sake.

This new penalty rule was introduced minutes before today’s test. One unfortunate student received his punishment. Our son managed 11 so survived. As he says he had to guess the ending of most words and was largely lucky today. But he’s a nervous wreck. Having seen this weeks words he’s convinced he has no chance. How can this be part of modern teaching. Oh I forgot our Government wants to return to Victorian values. Well they can all bugger off back to Victorian Times and leave us in peace.

On a side not I see our Prime Minister is avoiding being asked difficult questions so he has started sending his Dad to do some of his interviews. I’m not making this up. Well today a member of the public phoned in and basically said Johnson was like Pinocchio. His Dad then said mockingly “the British Public couldn’t even spell Pinocchio if they tried”. Well let’s try – Pinocchio.***** up yours you posh snob.

So what do we do. We have the weekend to think about it. I’ve offered son the day off if school insist on him sitting the test. At the moment he is saying that he will have to sit the test. He doesn’t want to be picked out as different. But that’s the problem with the current approach to handling dyslexia in the classroom. It’s the same as with Aspergers and the classroom. The approach is so fundamentally wrong.

Assume the child is low attainment.

Resist providing proactive support

Deliver one standard teaching programme for all kids – no variations

Put the onus on the child to put a hand up and ask for help – in front of all the other kids

Child doesn’t put the hand up so assume everything is fine

Watch child struggle in tests and class work

Confirm assessment that child is low attainment

One final thought. It’s ok to penalise the kids but what about those leading us. Our School Minister – Remember him he’s the lovely chap who thought kids having time off for bereavement was like “an extended holiday” – was asked a grammar question he was expecting school kids to get right. Guess what the numpty got it wrong. So maybe he should get a negative and be barred with running our schools. That is one punishment I can agree to.

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More rain

And still it rains. And rains. And rains.

And still it rains at school.

French Homework is to complete a crossword. A French Crossword. Marks will be deducted for incorrect spellings.

Dad I can’t even do a crossword in English never mind French. I can remember the sounds but I can’t spell the words. The Teacher knows this but just says I have to try harder.

And we have more…

Drama Homework is to complete an acting related Word Search Game. Really. Very early on his previous school it was identified that he could just not do Word Searches Tables. The Psychologist who looked into this established that for some reason he was not able to visualise letters and collections of letters if they were printed diagonally or backwards. On top of this his dyslexia just made identifying words difficult. As this was stressful for him it was strongly recommended that his education did not use word based games. Fast forward a couple of years and his current school now requires him to do word searches as it’s the set task for the class.

I can see the point of a French Crossword for some kids but how is a dyslexic kid expected to complete this. Has our school system become so inflexible that we can’t just vary the teaching programme a little for each individual child need. Clearly not. The Government is committed to this Factory/Production line model of education. That’s for State Schools. Private Schools have more scope to flex the teaching programme. Unfortunately many can’t afford to go Private. But that won’t bother Boris and his buddies. As long as the chauffeur driven car turns up and the expensive wine keeps coming.

Ok I can see the point of a crossword for French for some BUT… What is the pigging point of a word search for Drama. I guess it’s all part of the Government’s drive to make every kid spell correctly the defined key words. Spelling is given a higher profile that actually understanding what the word means. Maybe I’m wrong. Maybe the best way to develop the next Orlando Bloom, Keira Knightley, Anthony Hopkins, Robin Williams, Whoopi Goldberg and Tom Cruise is to focus on spelling. Oh hang on a minute these have dyslexia as well. So no I don’t see the point.

We just set too many of our kids up to fail. They see other kids repeatedly praised for great spelling or neat handwriting while at the same time they are just told to try harder. How demoralising is that. A phrase you hear often is that kids with learning difficulties have to try super hard just to keep the perceived learning gap from widening. DAMM RIGHT THEY DO. Too many kids are forced through the same stereotyped classroom hoop. Never given a chance to demonstrate their unique skill sets as these are not in the areas deemed valuable by the Government.

Too many kids have been failed by our society. It’s not as if our society is particularly successful or sustainable on the back of this. This has to stop. When it does stop and we start allowing all our kids to grow – just take a few minutes to think how good this world will become. That is a hope worth fighting for. That is a hope worth voting for.

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Another day

Another day in Yorkshire and another day of rain.

Another day of rain and another very muddy dog.

Another very muddy dog and another very messy house.

Another very messy house and another need to clean.

Another need to clean and another news bulletin on the radio.

Another news bulletin and another interview with a government spokesperson.

Another interview from a government spokesperson and another bunch of lies.

Another bunch of lies and another radio turned off.

Another radio turned off and a another realisation that the clock is ticking..

Another realisation that the clock is ticking and another urgent search for the right colour school football sock.

Another search for a football sock and another school bag not meeting school requirements.

Another school bag not meeting requirements and another day in school.

Another day in school and another day without support.

Another day without support and another set of exams.

Another set of exams and another setup to fail.

Another setup to fail and another shed load of young anxiety.

Another shed load of young anxiety and another failure of school to support.

Another failure of school to support and another mother lode of parent stress.

Another mother lode of parent stress and another phone call to school.

Another phone call to school and another wall punched.

Another wall punched and another ice pack applied.

Another ice pack applied and another attempt to soothe the school anxiety.

Another attempt to soothe the school anxiety and another set of school homework to be done.

Another set of school homework and another list of misspellings to write out three times.

Another set of misspellings to write out and another wave of young anxiety.

Another wave of young anxiety and another search for something that will help.

Another search for something that might work and another frustrated parent.

Another frustrated parent and another attempt to bring some smiles.

Another attempt to bring some smiles and another viewing of The Guardians of the Galaxy.

Another viewing of Guardians of the Galaxy and another bedtime.

Another bedtime and another living room to myself.

Another living room to myself and another forlorn wish to turn back time.

Another forlorn wish to turn back time and another realisation that ‘it is what it is’.

Another realisation that ‘it is what it is’ and another day gone.

Another day tomorrow……