Posted on by bereavedandbeingasingleparent · 79 Comments

To be or not to be

A beautiful delicate flower. Unfortunately it has decided to grow directly on the mad dogs preferred route to his watering zone. Given the unruly speed the four legged wrecking ball hurtles down this path it’s not the ideal environment for delicate beauty. Will it survive. Will it be crushed to a pulp. Who knows.

The new school year is looming. Will we start. Will we home educate. With all the emotions swirling around the house currently it’s not the easiest time to focus on crucial matters. But it’s decision time.

As our health service points out – The school system is failing our son. No additional support is provided in terms of his Aspergers. In terms of Dyslexia it’s the bare minimum. The assumption is that he can’t read, never will read and he will be shown how to use a reading pen for the final exams. Set low exam expectations and anything achieved is a bonus. Let’s be clear that’s not all the teachers. Some do see the potential. Unfortunately his biggest supporter has left this summer. It will be illuminating to see if the school move him up to higher sets this year. His effort, his behaviour, his results clearly highlight the correct answer. A number of teachers have also recommended that course of action. But kids with dyslexia are often just bottom classed.

Yet the evidence suggest that the school system is wrong. The Doctors continually state that it is far too early to give up on the reading. The work they do demonstrate much promise. A kid who has been written off now can read the subtitles which appear on movies. He can read text messages. Today he read a 2 line subtitle and only got one word wrong – minority. He’s achieved that progress without school help.

He needs a tailored approach to development. But to be fair the schools hands are tied by government policy and cutbacks. Tailored education does not happen unless you can afford to go private. Private like the entire Government has enjoyed. Home Education currently allows the parent to tailor the approach. You can develop an approach that best suits the individual. Unfortunately the government is keen to stop this as well.

The major obstacle to home education is having one parent. It’s trying to home educate and trying to bring in sufficient income at the same time. I just can’t make the numbers stack up. I just can’t find enough hours in the day (& night).

The bottom line is that I currently just can’t home educate and balance the books. Home education is the right option but it’s also currently an impractical one. So much frustration. If we still had two parents then it would be doable. It just feels like our son is being penalised again for something outside his control. That makes me angry. Very angry. What’s the line – you wouldn’t like me when I’m angry. Hopefully I don’t turn green. That anger fuels the desire to find a way. Our son deserves that. He deserves at the very least a parent who tries.

So in two weeks our son will return to school. Hopefully to a much improved education. But if it continues to fail then we will just have to find a way.

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The phone

A couple of miles from our village a large TV event has been taking place. Something like 20000 people have been attending. But we haven’t seen a soul. The dog walk felt like we had the land to ourselves. Isolation.

This summer is probably going to be my most isolated ever (so far). Outside our gang I would be amazed if I have spoken more than 30 words to the outside world. Probably had more conversations with the plants (weeds) in our garden. It really is starting to show. Even something as simple as buying a couple of entry tickets leaves me a gibbering wreck.

Not had a single conversation with anyone in the village in months, Suspect the village are celebrating that. Even the postman has gone into stealth mode. Absolutely no sign of the neighbours.

A few years back I remember a clinician telling us that we should probably get used to the idea of becoming isolated. Get used to your own company. She had seen a lot of parents in our position get cut off from friends and the outside world. That seemed fine as I had my soul partner with me. Didn’t realise how applicable own company would become.

This afternoon I checked if our phone was still working. It’s not rung once during the entire school holidays. In fact my mobile has only had two brief work calls. As the months go on my isolation from the world gathers pace. I’m not sure if that scares me or delights me. It’s got to the stage that I’m not sure if anyone would notice if I replaced the phone with a large bust of Boris Johnson. Probably not.

I would hope that the Boris bust would become a favourite cock a leg spot for the dog. Suppose I would need to move it outside. Wonder if Boris would tell the migrating birds to bugger off back to their own country. Sorry should really give Boris his full name

Alexander Boris de Pfeffel Johnson.

Ironically Boris wasn’t born in this country. Given his position on immigration maybe he should send himself back to America. Anyway I bet his phone rings more times than mine. A man who currently wants the UK to be isolated Internationally probably doesn’t understand what isolation really means.

Maybe I should offer my services. I could be the Governments expert on isolation. I did think about being the Government expert on talking gibberish but they have already got that position well and truly covered.

Posted on by bereavedandbeingasingleparent · 93 Comments

Hadrians Wall

This is the final instalment of our unscripted and unplanned day trip. So far we have ventured to Kielder Forest and Kielder Water. So where next. After a series of left and right turns we are driving along a road when.

Dad stop. That most be Hadrians Wall. Ok it could be a farm wall. But it looks Roman to me.

It was the famous Roman Wall and ten minutes later we were trying to find a parking place at a Roman Fort.

Dad this is really busy. Too busy.

Luckily after buying tickets (while son hid in the car) I was able to find an alternate way onto the site avoiding the crowds. Hopefully the sheep in the neighbouring field didn’t mind us trespassing too much. It would have been such a shame for our son to miss this piece of ancient history.

Housesteads Roman Fort was built around 124AD to help defend Hadrians Wall. The wall was 73 miles long and stretched across Northern England from the Tyne to Solway Firth. It marked the northern boundary of the Roman Empire.

When it was constructed the wall was up to 20ft tall.

Housesteads is the most complete Roman fort in Britain. It stands on a stunning Northumberland escarpment. Can’t think of a more stunning location for a history lesson.

I wonder what the Romans would have made of me. Aspergers wasn’t even a word back then.

Before I could say anything he smiled and said.

Maybe they would have just said he’s on whatever Nero is on.

Back to the Fort tour. Son had obviously banked a considerable amount of information about this Fort from somewhere. No need for a guidebook.

As son was lost in a dream I wandered around the Fort silently with him. Trying to imagine what the site would have been like almost 2000 years ago. Good job the Romans installed steam underfloor heating. Would need it in summer never mind winter. Then another thought. All those years later and we are still trying to build walls. Put up barriers to try and protect our way of life. Have we learned nothing in all those years. Actually our PM is increasingly Nero like. A few other countries have their very own modern day Nero’s.

George RR Martin has revealed that Hadrians Wall provided the inspiration for Game of Thrones. The imagery of the book and it’s Wall are strong and echo that of a Hadrians Wall all those years ago. Romans stood on a huge wall marking the very edge of their civilisation. That view to the unconquerable northern lands must have been truly frightening.

Dad it’s funny when you think about it. The Romans would probably now be standing in the opposite direction, looking South and thinking the same frightening thing. A strange, scary land.

Yes England seems to have gone completely barking mad. Looking into England is a very scary prospect.

And with that we head back home. The road trip has been a great success. Especially as I only thought we would be having a random visit to somewhere local in Yorkshire.

Dad I’ve decided we need to have more road trips to make sure I visit the 12 new places. One needs to be to Scotland. Sorry Dad that might mean we are setting off before we go to bed.

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Kielder Water

The last post left the unscripted day trip deep in Kielder Forest.

Right Dad it’s time to have a closer look at one of Northern Europe’s largest man made Lakes. Rutland is larger but Kielder holds more water. Don’t worry I’m not expecting you to go swimming. The water will be too cold.

That’s a good job as a I can’t swim and I don’t fancy a bout of frostbite. I later checked those facts. Apparently Kielder holds 44 billion gallons of water. That’s an awful lot of trips to the toilet. It tends to be full at all times. It has a number of natural springs feeding it plus let’s not forget the weather.

With the autumnal like wind whipping across the lake and the breaking waves – it did feel like a seaside walk.

I’m guessing it is just under York Minster deep. That’s about 235ft. I’m going to say about 70 metres as Boris Johnson will hate that. He hates everything from Europe or that is what he wants people to think. Some people will fall for that.

Ok can’t miss a bit of of annoying our Buffoon of a Leader – so Kielder holds 200 billion litres.

Wouldn’t it be great if Kielder had its very own Loch Ness Monster. Ok it’s a manmade lake built in 1982. But the monster could have migrated here. What do you think Dad.

How about a Megalodon.

No legs or wings so it’s not migrating in a hurry. I’m seeing either a Spinosaurus or a very large otter.

Unfortunately I didn’t have the opportunity to explore the monster otter concept as suddenly a large military plane swept low over us and across the lake. My ancient mobile didn’t do it justice.

Dad what time is it. Have we got time for one more place. We are on a roll now.

It’s 3pm let’s see what we can find. So back at the car. Is it Left or Right.

East.

Final part of the road trip takes us back in time.

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Kielder Forest

Finally we got a break in the weather. Yes it is feeling very autumnal but it is so much better than the rubbish we have had over the last few weeks. So we seized the opportunity for a trip. Son is trying to visit 12 new places this year. That is such a big commitment for him. Especially as these are completely unplanned and unscripted visits. To avoid undue anxiety or even a meltdown we usually micro manage and completely script every trip.

So we sat in the car at 6.30am with a healthy packup. Crisps, Coke, Cakes, Waffles, Chocolate, Coffee, IronBrew Lollies.

Ok Dad where are we going

Absolutely no idea son. Looking at the road outside our house. Left or Right?

West

Ok clever clogs, left it is then. We did this for 2 hours until we found ourselves North of Newcastle. Beautiful and very remote Northumberland.

Looking at a Road Sign. It’s decision time. Is it Scotland. Is it a bit of Potter at Alnwick Castle or is it Kielder.

The Potter Castle will just be too busy. Scotland needs to be a longer trip. I’ve always fancied a bit of Kielder. Have we got time to do the Forest and the Lake.

We have as long as the Troll doesn’t eat us on the bridge.

An hour later we were walking through Kielder Forest. It is the largest man made woodland in England with 75% of its 250 square miles covered by Forest. It’s a wonderful place. It is definitely Conifer, Spruce and Pine heaven. It’s also one of those places where the car parks are full yet you never see another human. Feels like you have the place to yourself. Which is brilliant for our son.

Son also had time to launch into a tirade at our so called government. He was not happy that they had turned down an application to reintroduce Lynx into this area. Let’s hope the second application is successful. Not had these creatures in the UK for over 1300 years.

The small minded, money driven losers. They sit in their mansions, driving the earth killing sports cars. Behaving like modern day Feudal Lords. I bet if they do reintroduce them they would find a way of hunting them for sport. Well I think we should let the animals hunt Boris and his Sheriffs of Nottingham’s. That would help the planet. Dad last year they told kids to stop protesting and get back to learning. Well why doesn’t the Government get back to running the country.

I would have said the same but with many more bad words included. Good job one of us has good manners.

Going to split this post up into three parts. It’s a proper lads road trip. The second will feature Kielder Water and a bit of aviation. The third part will go very Roman with a bit of Game of Thrones feel.

Posted on by bereavedandbeingasingleparent · 68 Comments

Brief

For just a few minutes the clouds parted and summer made a brief appearance. Back to rain now. It was nice while it lasted.

I woke up this morning and like most mornings – half asleep. Few minutes later I’m peddling away on the exercise bike. Starting to feel more awake now. 28kph – come on lazy pants bit quicker.

Dad your squeaking.

And with that his bedroom door shuts. (Most unusual) I most be squeaky. So my morning mini Tour De France is interrupted. Why is it that when you need something from the toolbox it somehow develops cloaking technology. The oil was in the box. Search abandoned and cooking oil is smeared over the noisy bike. I wonder if this is common practice in professional cycling circles.

So we start the cycling again.

Dad can you hear the strange noises outside.

The resulting investigation seems to indicate the side gate banging in the wind. Quickly fixed with a brick. It’s tough for our son. So easily unsettled.

Can you move the bike into my room.

Tell you what why don’t you bring your blanket and try to sleep on the sofa next to the bike. The dog will happily join you. Few minutes later he is settled in with his four legged hot water bottle. So I try to start cycling again.

For a few brief moments I get into the zone. Good speed. Then the mind starts to wander. The biggest problem with indoor cycling. It was an August Sunday three years ago at about this time when the phone rang. It was the Doctor saying sorry but the last treatment option had failed and it was now time to move partner into end of life care. Shiver down the spine. Feel completely sick. Tears starting. Then anger. Why. Tell me why.

Anger fuelled peddling. Speed is now becoming breakneck.

Dad your squeaking again.

And with that it’s time to get off the bike. Squeaking wins the day. Come on son let’s have an unhealthy breakfast.

Can I have waffles.

You can have anything you want son. So like the sunshine. Today’s exercise was brief and my healthy eating regime is broken. Too brief to make a difference.

Posted on by bereavedandbeingasingleparent · 94 Comments

Me Me Me

Blue skies have been a rarity over the last couple of weeks. Strangely this photo is a few weeks old. Can’t remember the last time I had to water the tomato plants. If anything it’s more about trying to stop them drowning in the rain water. The mad dog is currently sat looking out through the back door. Yet when I open it for him he just continues to sit and seems to shrug – if you think I’m going out in that you have another thing coming. Other areas of the county have seen bridges swept away and a Dam almost breached. Wasn’t it only a few weeks ago I was talking about Yorkshire and temperatures in the 90s. Strange old summer.

We have largely been cut off from the outside world this holiday. The occasional and extremely brief trip to the shop but son has stayed in the car. Trip to a castle but at a time (and with the poor weather) that it would be largely empty. We are thinking about a trip to another castle, a zoo and hill walk – but these will be scheduled at the quietest times possible. This is how our son likes it.

But it does have a downside. Next month son will return to school. Small site with over 800 kids and adults. Its just not a natural environment for someone with Aspergers. It doesn’t help that within a few days of school opening it’s the anniversary of his mums death. It not easy for anyone but no kid should have to go through that.

Soon we will need to start the process of getting him as ready as possible for that dreaded return. We will have a few visits to the school. A word with the caretaker will allow a walk round the empty corridors. But that just won’t prepare him for so much noise, so many faces. So we are going to have to visit a few busy places. A couple of trips to a Supermarket. Maybe a visit to a popular museum – York’s Train Museum. It’s a balancing act trying to acclimatise yet not trying to unnecessarily spook him.

The other part to this is ME. It’s about trying to get ME used to people again. It really doesn’t come naturally to ME. Just look at that it’s all ME ME ME with me. I blame it on the rain.

Current mood – Dampish….

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Castle Time

Why is it that when you take the car in to a garage the words you never never hear are

Don’t Worry it’s nothing

It’s a cheap fix

It’s sorted and there is no charge

So today the car misbehaved. Took it into the garage and within minutes was told it needs a new ……. and it’s going to cost £XXX

One of the benefits of a spectacularly unreliable and expensive to maintain car is that they seem to have allocated it its own dedicated service team. We can look at it straight away. It will be ready in a couple of hours.

So we had a couple of hours to pass and luckily we were in walking distance of a castle. A fine ruin of a castle.

Pickering Castle was originally built around 1070. It is reasonably well preserved as it missed out on the carnage which was the War of the Roses and the English Civil War. I hoped that this unplanned visit would count against our sons target of 12 new places to visit. Sadly he pointed out the exact date and time of his school visit here 4 years ago.

I always think castles look better in black and white. Brings out their hidden Hammer Horror character.

It was a fun couple of hours as son explained in great detail the history of the castle. It’s linkages to wider English History and the various different structural improvements which have occurred over the years. I added important stuff like cool places for ghosts to hide.

Unfortunately the hours flew by and all too soon it was time to return to the garage. Luckily they still take cheques. That buys a couple of days to keep the bank manager happy. Son helpfully pointed out that a few hundred years ago I could just have raised taxes to pay for it – probably a Poll Tax. That assumes my role would have been Lord and not Peasant. In my all to likely Peasant role I had better start shovelling that muck quicker.

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Coordination

Beauty in the sky masked evil intentions. Twenty seconds later a successful bombing run covered my car bonnet. Not so beautiful. The one hand giveth; the other hand taketh away.

Basically I have knackered my body up. Medical advice was to rest the right side for a couple of months. No running. If you play football in the garden – don’t use your right foot to kick. That’s a bit of a problem. During my sporting career the left leg has been a bit of a spectator. It is used for standing on and just getting in the way. Nothing else. So since a toddler I have been completely right footed.

So this garden football season was approached with trepidation. The first attempts confirmed the fears. Absolutely useless. Even the frequent cow audience clearly most unimpressed with my attempted kicks.

But a couple of months later and….

With one hand giveth.

The left leg is like a magicians wand. Better than the right foot ever was. Complete ball control, pinpoint passes, power, curling shots into the top corner of our small net. It just shows that with practice what you can achieve.

But with the other hand taketh.

Now the right side is a little less painful I’ve started using it again and just maybe I could be a natural two footed footballer. Guess what. The right foot is now completely useless. Can’t use it. All my hard work has basically switched me from being completely right footed to completely left footed.

Maybe my brain can only cope with one usable leg.

Son struggles to tie shoe laces. He also can’t use a knife and fork at the same time. He just can’t coordinate two limbs simultaneously. It’s a bit like riding a bike. Son can peddle but not at the same time as steering or braking. If he turns a corner he can’t peddle. He did manage to learn to swim but it doesn’t come naturally. It’s either using his legs or using his arms – not both at the same time.

He has been diagnosed with Dyspraxia which often goes hand in hand with Autism. The bottom line is coordination does not come naturally. We have been doing some exercises to work on this. Jumping on a trampoline and catching at the same time has been our single most fun exercise. We have seen some improvements for example he has developed good catching skills. But things like shoe laces are probably going to be life long issues. We realise this. The main reason we do coordination exercises is to help with his Dyslexia, other improvements are bonuses.

Maybe you just have to accept and work with how your body is setup uniquely for you. Make the best of it. We all can’t be brilliantly coordinated like birds. To fly, aim and poo at the same time. That’s beyond me.

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That’s how it is

Just seems such a waste. Such a beautiful flower and yet it’s in our garden so it only has an audience of two. But that’s how it is.

He is so caring. When his class had the last day in the old school one of the girls cried her eyes out. The only one to go across to her and ask if she was alright was our son. Yet because he is on the spectrum he must be unfeeling and cold…..

He brain is far more powerful than his Old Pops yet somehow I went university and he is seen as being low attainment.

He has a love for scientific enquiry yet that counts for nothing as he can’t accurately hand draw a plant cell structure or spell correctly common science words.

He can create awesome self contained worlds with detailed mythologies, politics and cultures. Yet because he can’t construct a grammatically correct postcard he is written off.

He can forensically debate historical details yet because people assume that he will never read a textbook he is not encouraged to foster that subject love.

The education system has written off his reading as something which won’t develop yet he can read and send texts without help. He is told to just get used to using a reading pen yet today while watching the Justice League he read the sub titles almost perfectly.

He is not part of the in-group of kids who live and breathe football. Yet he can talk for hours about football stats. Relive the sports greatest moments. Can talk for hours about the minutiae of Team setups and tactics.

He can be so relaxed, so astute and so naturally funny. Yet only I see this. It does seem such a waste. But that’s how it is.