Some days life needs lots of words and some days it just needs a few.
I was going to reflect on how difficult the school bus journey can be for so many kids. I will leave that for another day. I picked our son up from school the other day and he came up with this gem.
“Dad that’s some sky. It’s a sky show. That’s why life is the best thing”.
Hard to believe that 10 minutes later it was absolutely chucking it down. Maybe we have already had our summer sun for 2020.
So the week ends with two wins
We take the rare wins and continue the fight.
Unfortunately our old electric kettle gave up the fight. Yes we must live in the posh end of Yorkshire as we have electricity on tap. But the kettle has brewed its last cup. As John Cleese would say ‘it’s shuffled off its mortal coil, run down the curtain, joined the bleeding choir invisible, it’s an ex kettle’. So off I went to buy a new one. The nearest supermarket had sold out of all kettles. Clearly it’s the gift of choice this Christmas. So I ventured into the main electrical retailer for our nearest city. In the UK it’s the one that sounds like a spicy dish.
I have never seen so many kettles. You can buy virtually any colour to match your kitchen. Strangely I didn’t see the The RATHER CAT PAWED SLIGHTLY FADED MARIGOLD colour. You can get clear ones so that you can enjoy watching water boil. Ones which look like Darth Vader. Ones which play music while you wait for a hot drink. WIFI enabled ones that you can control from your living room. Voice controlled ones (bet it’s like everything else – it can recognise 300 languages yet it can’t understand the Yorkshire accent). Even a kettle that you can set the temperature of the water it produces (erm isn’t that just the boiled level – maybe it goes to nuclear temperatures – that would allow the Pot Noodle to be ready in seconds).
One problem. How much…. I am not paying the neck end of £50 to £100 for a kettle. Certainly not paying £180 for something called a Smeg…Suddenly I was pounced on by the salesman trying to sell me the latest expensive model. The look of distain on his face when I said.
Have you got the basic model in stock.
“You mean the £5 one”
That’s the one.
“It’s very basic sir”
Does it boil water
“Well yes”
Well that meets the spec then.
“Most people are upgrading their kettle options these days.”
***Why am I starting to panic. Embarrassed about not buying what everybody else is buying. Then I did a Trump and Boris. Sadly I told a fib.***
Its just for our caravan which we only use a few times a year.
***why did I just say that. I haven’t been in a caravan since well into the last century***
“Oh I understand sir, it’s perfect for that”
***and off he went to find the basic kettle safe in the knowledge that he wasn’t selling it to a cheap skate or God forbid – a poor person***
After weeks of rain the clouds finally parted and reassuringly the sky is still blue. The sky is blue and the ground is still muddy.
Since it’s a day with a name that ends with DAY – it must be a day for another school moan. Don’t worry it will be the Christmas holidays soon and you will get a break from the rants – hopefully.
Next week our dyslexic son has to sit TWO spelling tests. One for English and one for DRAMA. That’s DRAMA. So to develop any Performing Arts talents he has to learn to spell words like
Melodrama, Exaggeration, Facial Expressions, Placards, Stock Character….
I guess when he wins his first Oscar in his acceptance speech he can thank these Spellings…..
Then we have the English Spelling Test. The weekly spelling test. This week he has 15 words to learn. Including such beauties as
Advertisement, Similarity, Persuade, Exaggeration, Testimonial, Alliteration….
All the class (regardless of individual spelling ability, regardless of dyslexia) have to spell the same words. The expectation is that you will get 100%. All it takes is a bit of effort. Hang on we need to raise the stakes just a bit higher. Anyone not getting at least 10 out of 15 exactly right will get a Negative. Four Negatives get you detention and much shame. It also rules you out of the end of year trip to the Fun Park/Zoo.
For F*#@ Sake.
This new penalty rule was introduced minutes before today’s test. One unfortunate student received his punishment. Our son managed 11 so survived. As he says he had to guess the ending of most words and was largely lucky today. But he’s a nervous wreck. Having seen this weeks words he’s convinced he has no chance. How can this be part of modern teaching. Oh I forgot our Government wants to return to Victorian values. Well they can all bugger off back to Victorian Times and leave us in peace.
On a side not I see our Prime Minister is avoiding being asked difficult questions so he has started sending his Dad to do some of his interviews. I’m not making this up. Well today a member of the public phoned in and basically said Johnson was like Pinocchio. His Dad then said mockingly “the British Public couldn’t even spell Pinocchio if they tried”. Well let’s try – Pinocchio.***** up yours you posh snob.
So what do we do. We have the weekend to think about it. I’ve offered son the day off if school insist on him sitting the test. At the moment he is saying that he will have to sit the test. He doesn’t want to be picked out as different. But that’s the problem with the current approach to handling dyslexia in the classroom. It’s the same as with Aspergers and the classroom. The approach is so fundamentally wrong.
Assume the child is low attainment.
Resist providing proactive support
Deliver one standard teaching programme for all kids – no variations
Put the onus on the child to put a hand up and ask for help – in front of all the other kids
Child doesn’t put the hand up so assume everything is fine
Watch child struggle in tests and class work
Confirm assessment that child is low attainment
One final thought. It’s ok to penalise the kids but what about those leading us. Our School Minister – Remember him he’s the lovely chap who thought kids having time off for bereavement was like “an extended holiday” – was asked a grammar question he was expecting school kids to get right. Guess what the numpty got it wrong. So maybe he should get a negative and be barred with running our schools. That is one punishment I can agree to.
And still it rains. And rains. And rains.
And still it rains at school.
French Homework is to complete a crossword. A French Crossword. Marks will be deducted for incorrect spellings.
Dad I can’t even do a crossword in English never mind French. I can remember the sounds but I can’t spell the words. The Teacher knows this but just says I have to try harder.
And we have more…
Drama Homework is to complete an acting related Word Search Game. Really. Very early on his previous school it was identified that he could just not do Word Searches Tables. The Psychologist who looked into this established that for some reason he was not able to visualise letters and collections of letters if they were printed diagonally or backwards. On top of this his dyslexia just made identifying words difficult. As this was stressful for him it was strongly recommended that his education did not use word based games. Fast forward a couple of years and his current school now requires him to do word searches as it’s the set task for the class.
I can see the point of a French Crossword for some kids but how is a dyslexic kid expected to complete this. Has our school system become so inflexible that we can’t just vary the teaching programme a little for each individual child need. Clearly not. The Government is committed to this Factory/Production line model of education. That’s for State Schools. Private Schools have more scope to flex the teaching programme. Unfortunately many can’t afford to go Private. But that won’t bother Boris and his buddies. As long as the chauffeur driven car turns up and the expensive wine keeps coming.
Ok I can see the point of a crossword for French for some BUT… What is the pigging point of a word search for Drama. I guess it’s all part of the Government’s drive to make every kid spell correctly the defined key words. Spelling is given a higher profile that actually understanding what the word means. Maybe I’m wrong. Maybe the best way to develop the next Orlando Bloom, Keira Knightley, Anthony Hopkins, Robin Williams, Whoopi Goldberg and Tom Cruise is to focus on spelling. Oh hang on a minute these have dyslexia as well. So no I don’t see the point.
We just set too many of our kids up to fail. They see other kids repeatedly praised for great spelling or neat handwriting while at the same time they are just told to try harder. How demoralising is that. A phrase you hear often is that kids with learning difficulties have to try super hard just to keep the perceived learning gap from widening. DAMM RIGHT THEY DO. Too many kids are forced through the same stereotyped classroom hoop. Never given a chance to demonstrate their unique skill sets as these are not in the areas deemed valuable by the Government.
Too many kids have been failed by our society. It’s not as if our society is particularly successful or sustainable on the back of this. This has to stop. When it does stop and we start allowing all our kids to grow – just take a few minutes to think how good this world will become. That is a hope worth fighting for. That is a hope worth voting for.
I believe Marygate Landing was built in 1324. In all though years it’s seen many many things. So many passing boats. So many passing souls. And I understand as many as 4 sunny days in 785 years. Another day and another drenching.
So in the end it’s been a complete weekend lockdown. An attempt to soothe the raging anxiety which school and modern life creates in someone so young. Someone with Aspergers and Dyslexia who doesn’t in to the current factory schooling regime. A regime which will only get much worse if the current Government with its elitist dogma wins the election.
Last night we were due at a concert. One of my favourite bands. A chance to see them for the first time. But it wasn’t to be and in the grand scheme of things – it doesn’t really matter. When you experience grief. When you enter the world of parenting. When you become a single parent. It changes you. It changes your outlook on life. It changes your life opportunities.
Ten years ago I would have been really annoyed at the sudden change of plan. Frustrated at missing that concert. Not now. It is what it is. With little support you learn to appreciate even the smallest win. An hour reading. A good movie. A nice walk. A good run. Yes a night out with friends or a days climbing would be wonderful. But it’s probably not going to happen. It’s now over 4 years since either of these occurred. But you get attuned to the new life. Yes one day it would be nice but there are other more attainable wins to build your life around. The main one is blocking the system out so you get to see your son smile and be relaxed.
Yes because of circumstances you make countless plans. You try to create stability and repeatability. But in our world life happens. You might hope for the perfect day. But in reality how many perfect days come your way. Not many. So Plans change. Son was watching a video about Prussia and the famous quote from Helmuth van Moltke (Military Commander) came up
No plan survives first contact with the enemy
Today maybe this can be changed to
No parenting plan survives first contact with the outside world.
You learn to be flexible and pragmatic. A well thought out plan for a concert did not survive first contact with an Aspergers Meltdown. So we lockdown. So when the concert was due to start I asked the question “here’s the popcorn, what movie shall I put on”. Expecting something like Marvel End Game or Paddington and not expecting this response.
I fancy something a bit different. This movie has had great reviews and apparently is historically very interesting.
Oh he’s going for Apollo 13. I like that movie.
Can you see if you can find Victoria and Abdul. It’s about a friendship between Queen Victoria and an Indian Muslim Servant. It supposed to be very good and it shows how racist Victorian Society was.
Ok. Never saw that one coming. After much searching and after paying the £3 online rental we watched the movie. And it was really good. Son enjoyed it. I enjoyed it. It was a win. So the original plan failed but it worked out ok in the end. If we can keep doing that then we will be ok. If I keep remembering that actually I have a lot to be thankful for. Yes life will be a struggle but every so often wins come along. Just need to see them and grab them. Make the most of the many imperfect days. In the end it’s not worth relying on that perfect Yorkshire sunny day to arrive as you might be waiting a very long time.
It’s a real ‘Dowly/Chucking it Down’ type of Yorkshire day. Son has had a bit of a meltdown this weekend. Combination of tiredness and school. So we are on lockdown. Excluding the outside world for a couple of days. It’s unfortunate as I was hoping to go to see one of my favourite bands for the first time. Its not looking good. But it is what it is.
It’s also a deserved lockdown for a prize Numpty.
Last night I decided to look out for some Black Friday bargains. My list of required items, computer and a large hot drink next to me – off we go. After a few hours I was thoroughly disillusioned. Hardly any deals with many stores doing nothing. Well this is a waste Ot time. Apart from some cheapish school socks and a few pennies knocked off a pack of Top Trumps – nothing. Why are many of the stores having sales next Friday. Bizarre.
Hang on a minute it’s not the 29th yet.
What a muppet. Next week – watch me post that I forgot all about it.
Spending time near water can be so relaxing. Today felt like I needed to be submerged right in the middle of this river. Stood on the banks probably wouldn’t bring my BP down much below 5000. Yesterday was a kick the wall type of day. Even today my BP is probably 250 points higher than my IQ.
You plan to work from home but that’s the day BT decides to turn off the broadband. You then decide to drive to work but then find out that’s the day the Council decides to close ALL THE roads leading to it. Aargh…
You drive to the supermarket to find it was as empty as my wallet. When I say empty it had plenty of items as long as they were not on my shopping list. Shopping for someone with Aspergers often revolves round a small range of food items. If the food is not quite right then he won’t touch it. Today the only pasta, soup, pizza and sausages he likes were frustratingly missing. The upcoming weeks menu for our son has suddenly become even less varied (if that is possible).
Then we come to my menu. You try to go healthy. You try to go environmentally friendly. The key phrase is ‘you try’. In my case that is meat free, dairy free, gluten free, soya free. In a supermarket of 32 aisles my shopping area constitutes no more than one quarter of one aisle. At best it’s a very limited range of products. Today most of that small portion of an aisle was empty. When I asked the ‘shoppers champion’ (title on badge) helpfully said
“It’s becoming really popular so we run out normally in the middle of the week”
Well order more stock and why not give just a bit more of your shop to this really popular range…. While I’m at it let’s vent some more. If I am eating healthier (as the government wants me to) and I’m buying more environmentally friendly items. Why am I being penalised for it. Why are these products so bloody expensive. How can they justify charging £2.50 for a small loaf of gluten free bread. Why are all the ‘healthy and socially good’ products three times the price of the bad ones….. Aargh….
You rush back home so you are in plenty of time for an afternoon delivery only to find a note pushed through the letter box. Unfortunately you were not in when we called at 9.45am. You will need to collect the item from you local delivery depot. When is 9.45am an afternoon delivery AND how is a 25 mile trip to the LOCAL PIGGING Depot defined as local. Aargh…
You then venture into the utility room to put on a wash when your faced with a waste spillage even BP and Exxon would be proud of. Why has the big fat boy cat suddenly decided to use his litter tray sideways rather rather long ways. He’s a big fella and using the tray sideways means he now misses by over 1ft. Aargh…
Then you get a phone call from the bank. One of my cheques bounced. Why. Apparently the other bank wanted .00 adding to the total I had wrote on the cheque. It was a round number so why do I need that. Aargh…
Then we come to the main event. Already my blood is boiling.
I was getting sons Games Kit ready for the next day. Like most school things you have a prescriptive list of items. Any variations from the list gets the child an automatic negative. Only one light blue football sock could be found….
Son wasn’t sure if he brought it home or had left it at school. We ransacked the house to no avail. With every passing minute son is getting more upset and my BP has gone to Green Rage Hulk levels. Not angry at son angry with life in general. Then a great idea we have 40 minutes to get to the nearest sport shop. Some frantic driving and we get there just in time. The shop has an extensive football range. Every colour sock going EXCEPT Light blue… Normal blue would be a school negative (as it’s not the official colours). Ask the shop assistant. “Yes we have some light blue behind the counter”. At last we catch a break….
“We only have two in stock and I’m afraid they might be a bit small for him”. If it’s tight don’t worry. “Both are 5-6 Year Old size”. Bloody hell… Aargh.
So that was that. Son was sent into school with some royal blue footy socks and a note pleading our case. But the damage was done. I spent most of the night and early morning trying to calm our sons anxiety meltdown. A meltdown caused by one missing light blue sock. It sounds trivia but it isn’t. On that night it was the single worst worry one particular kid with Aspergers could have. Caused by petty school rules.
So yesterday was officially a kick the wall type of day. To the outsider it’s all mundane stuff. No internet. A few road closures. No expensive hippy food. A missed delivery. A cat missing the target. A cheque which needs amending. AND a light blue sock. But to me it was a massive pain in the bootocks….
An entire weekend without seeing any evidence of other humans. No post. No phone calls. No dog walkers. Villagers hidden away in warm dry houses. On the walks not even one passing car or stray rambler. Helps when many of the roads are closed with overrunning roadworks or floods. Great fun in the pouring rain trying to play tennis on the pavement. Very cramped in an area probably not big enough for table tennis.
Sadly the relaxing weekend goes to quickly and dreaded school looms. A temporary change in school bus routes means more strange faces and much larger buses are running. No guarantee when the bus turns up. An absolute nightmare for a kid with Autism. If only that was the only thing.
Another heated discussion with school and the authorities. Both reassuring us that measures have been put in place which ensure compliance with government requirements and allows all kids a fair chance of performing well. Yeh right. Keep the Government happy – Sod the kids in effect…. Clearly certain parties need to lookup the definitions of all and fair. So this weekend our son’s homework basically is all about writing out three times all his spelling mistakes and unclear handwriting attempts. That’s going to expand his mind and boost his confidence!!
Then to cap it off he has to revise for an English Test. The test is an old school Spelling one. Learn 20 words.
Language
Presented
Sherlock
Through
Evidence
It’s the same spelling test for all in the class. No extra time or help for any child. Again maybe it just me and my cabin fever. If it is please just delete this post. But how is this fair. On what planet is this supposed to have any positive impact on any child with dyslexia and autism. Designed to fail AGAIN. For all the required words our son can give definitions for and provide alternative examples of how to use the word correctly in spoken English. But this is not important apparently. Not what school and the government wants. The focus is on getting all kids to just spell by learning parrot fashion a list of predefined words. If you can’t do this then you are low attainment. A failure. A faulty item.
Education is filled with really good, dedicated and caring teachers. Yet they are increasingly told how to teach and to focus on a narrowing range of objectives. Objectives not about the interests of the child. It’s all about Satisfying the Government. The agenda is that money should go to fund tax cuts for the rich rather than on unimportant things like school budgets. To make sure this happens Schools need to follow the tried and tested factory model. Increasingly large production runs which help drive down costs. Eliminate natural variations and reduce choice. Children just seen in terms of inputs and outputs. Push them through the system. Those who don’t fit are labelled a problem and discarded as surplus to requirements.
I will tell you where the staggering stupidity and the real problem lies. It’s in those leaders pushing this dogmatic crap and equally on those who choose to vote for them. Shame on you.
So we move on into another uncertain week filled with too much anxiety for someone so young. Let’s hope a few Muppet and Spider-Man movies can briefly lift the mood. Even a bit of no space tennis might help. But surely the countless thousands of children who suffer deserve so much more than this. The really do.
Yorkshire weather. Good running weather. Why would I want to run in dry warm windless conditions. Well that’s what I tell myself. Maybe I’m like Count Dracula. I would turn to dust in direct sunlight. I wonder what I would do if someone offered me the chance though.
I’m mind wrestling with something at the moment. My partner was an epic traveller. She visited so many countries. It was her extravagance. From her late teens she would save up during the year for one great adventure. Family and her adventures was what she lived for. The adventures only stopped when we became a family. Her dream was that when our son became older we could have adventures together. The two places she always talked about was New Zealand (would have been her first time) and Chile. She always said that we would all love Chile.
Then life happened.
I really want to complete those journeys for her. Our Autism World may preclude that. Circumstances may preclude it. But we will see. I most admit a part of me doesn’t want to do those trips. It’s just not right that it would only be the two of us.
Sorry I digress. Back to my mind wrestling. So many adventures and so many photographs. All sat neatly and well organised in carefully stored albums. Here is the dilemma. Part of me wants to do a retrospective photo journal. Tell her travel story. Her trip to the Soviet Union (gives you an idea of the timeframe) maybe would be a great starting point. YET another part of me recoils at the idea. What if she hates that idea. What if I’m breaking some unwritten bond of trust. It’s like having two competing voices on either shoulder each shouting differing viewpoints on life.
She’s not here anymore. What’s the problem!
YOU KNOW SHE WOULD SAY NO. I CAN’T BELIEVE YOUR SERIOUSLY THINKING ABOUT THIS!
But this feeling is something I’ve grown used to over these three years. On virtually every major decision I have these doubts. ‘What do I want to do’ balanced against ‘what would she do’. I try to see the world through my eyes and at the same time through her eyes. Problem is that we were two completely different characters. We each had our own unique take on the world. We would frequently disagree on the right answer. Often we would compromise. I’m still trying to compromise now. Yet I can’t replicate her thought process. I never could and I never will. I’m probably getting her point of view completely wrong. But I still do it.
Maybe other people do this. Maybe it’s just me sinking further into cabin fever.
So am I going to publish this travel journal? I don’t know. WE still haven’t decided.
Torrential rain for the last 24 hours. But so in need of a run to clear my head. Head to the woods for a bet of shelter. Unbelievably the rain stopped to give a brief respite from the deluge.
Sadly no respite from the school madness. Not even in Drama. DRAMA!! The subject assessment tests reflect Government policy on teaching and testing. Students are required to write the Drama Term and it’s meaning. Correct spellings must be learnt.
Tableaux – a moment of frozen action on stage
Accumulation – adding another performer arch time a movement is repeated
Exaggeration – when you perform something in a heightened style
Melodrama – a sensational dramatic piece with exaggerated characters and exciting events designed to appeal to the emotions
And on and on…. I won’t bore you with the full list.
Correct spellings …..
Really …..
For goodness sake this is Drama. This is on top of negatives which are dished out if you forget to bring in a completely black T-shirt and Track Suit bottoms for the lesson. On top of negatives for not learning lines. On top of forcing kids into groups of strangers and expecting them to interact freely. On top of negatives if kids are found laughing and having fun. Forcing kids to go on stage and perform in front of large numbers of kids, support staff and teachers – even when it leads to extreme anxiety. Isn’t it supposed to be fun and enjoyable. Obviously not according to those in charge. Some kids are set up to fail. Some kids are clearly deserving of having their confidence ground into the dirt. Just feels like there is no respite from the deluge.
Dad when I get the first opportunity to drop Drama I will go into the Guinness Book of Records for the quickest ever exit from a subject.
I can’t blame him at all. But it’s such a potential waste. Sadly it’s not just Drama and it’s not just our son. How many kids are turned off subjects which they could eventually excel in because of inflexible and insensitive teaching practices. Education should be about finding the gifts, talents and special interests in every single child. Encouraging kids to reach for the stars. Unfortunately education has been skewed by politicians who just don’t understand.
It’s time to kick this generation of self centred politicians out of the education world. It’s time to let good teachers teach. Its time to let every child have a chance and above all else it’s time to let kids enjoy being kids again.
A Dad trying to cope with the loss of his Partner and becoming a single parent. 