Eyes wide open

It’s amazing what you find when you open your eyes.

Another application for additional support. This one was a long shot. Additional funding to provide some specialist support in school for our son. Turned down.

Same line. He already has funding (the maximum available with an Education Health Care Plan) which allows him to take up his place in school. The funding goes into the general support budget which funds the school wide teaching assistant system. Plus he’s doing so well without support.

The fight goes on.

Then speaking with his Doctor. Son is now starting to become too old for many of the health programmes focusing on autism.

The fight goes on.

It feels like the agencies have signed up to support our son while he is in school or college up to the age of 25. The agencies provide virtually no support now. They will continue to provide virtually no support up to the age of 25. Then they can officially provide no support after that….

Ultimately the agencies are just following Government policy and funding decisions. The current government sees austerity and cutbacks as essential for health and education. Yet they are happy to provide funding for tax breaks for the better off and bungs to Northern Ireland Unionists to keep themselves in power.

Nothing is going to change any time soon.

So the fight goes on. But one day the government will change and hopefully we will get one which governs with eyes wide open.

Spelling….

Some roads are straight and easy to navigate. Other roads are not….

A few years ago the U.K. Government changed the way children were taught and tested. To ensure that ‘children are better equipped for jobs a greater emphasis should be placed on spelling, grammar and punctuation’. As a result marks are now specifically set aside for these factor in exams. Labelled SPaG marking. It was argued that the previous inclusive educational approach was wrong.

The Government approach is to focus on a limited number of correctly spelt words. Let’s produce kids who can spell one word perfectly rather than have kids who can use an extended comprehension.

Where does this leave kids with dyslexia.?

Teaching Groups, Charities, Dyslexia Associations, Parenting Associations and Health Bodies objected. But what do they know….

Dyslexic Kids can apply for extra time in exams. They can apply for a scribe. They can apply to use a reading pen. They can apply to use a keyboard rather than pen. BUT.

They have to demonstrate a level of independence to gain access to the spelling, the grammar or the punctuation marks. If they can’t then the marks are not available to them.

Looking at our son’s case it probably means that when he takes his final exams if he opts for reasonable levels of assistance (as required under Equality Legislation) he will at best be able to access only 33% of the total SPaG marks available.

In my eyes this is wrong. But this is modern U.K. education policy.

Sadly it doesn’t stop there.

The Government decided to change the course content for Computing. Computing underpins everything now. The range of potential computing skills are endless. So many of our kids have passions and untapped skills here. The opportunities are boundless. Let kids tap into this. NO. The Government decided that the course should now focus on coding and structured programming.

Not often can I talk about a subject with anything other than guesswork, but computing I can get to amateur level. This is way beyond the dogmatic ideological buffoonery that underpins Government thinking. Why in God’s name have they picked the most uninspiring and regimented area to focus on. The approach seems to be let’s push out kids who can code rather than develop kids who can utilise the potential computers offer. Yes let kids have a basic grasp of coding then allow those who want to take it further the option to do so. I remember training in 3 programming languages – all becoming obsolete within 5 years.

AND yet again the Government – The Government which is on our side – have penalised kids with dyslexia. Coding and programming is built around specific commands and symbol patterns. Dyslexics struggle with this. So our son is stuck in a weekly computing lesson which focuses on programming. He flounders as he can’t spell the commands. His confidence gets battered. His struggles with spelling are cruelly exposed. His love for computing is fading. The school knows this but cannot change because it’s the set teaching method. Madness.

Sadly I could go on about other subjects and more Government interference. But the point has been made.

Education is so vital that it should not be left in the hands of our self absorbed and incompetent politicians. How about the politicians just focusing on screwing up Brexit and leaving education to the teachers, the parents, the area experts, the kids. In today’s language that probably gets me labelled as a dangerous socialist. A Traitor. Frankly I don’t care. What I care about is the kids going through our educational system. Clearly that’s something our leaders clearly can’t comprehend.

The new Brexit team

It’s been a very good year for Daffodils. Flowers lift the heart. So while I set off my Stone Age Laptop to undertake a work task I headed into the garden to plant flower seeds. I have a horticultural tradition now. In September I visit the local garden shop and see what out of date seeds they are selling off cheap. One hour later 8 random and very cheap flower seed packs have been planted.

I returned inside to find the Laptop still apparently busy doing stuff so let’s put the TV on for a few moments. Just in time for the weather forecast.

“During the weekend the warm settled weather will be replaced with an extremely cold frontal pattern. Snow cannot be ruled out. Severe frosts are likely. Gardeners should take note of this Arctic Blast. Maybe delay planting for a couple of weeks”

You couldn’t tell me this an hour ago. Marvellous.

Then the news comes on. Brexit is still a monumental pile of pants – Deep Joy. Everyday I sound more and more like Stadler and Waldorf from the Muppets (sorry).

Anyway is it just me or does our Prime Minister look increasingly like Skeletor from the Master of the Universe cartoon. Sorry Skeletor you were never this self obsessed or so grossly incompetent.

We had a little game the other night. Come up with a list of cartoon characters who would do a better job of Brexit than the current shower of ineptitude – I cleaned this up as I did use two naughty words initially….

So our Cartoon Brexit Replacement Team is:

  • Prime Minister May becomes PM Lisa Simpson
  • Chancellor Hammond becomes Mr Krabby (Spongebob)
  • U.K. Europe Negotiator Robbins becomes Selma (The Simpson’s)
  • Foreign Secretary Hunt becomes Inspector Gadget
  • Brexit Secretary Barclay becomes Patrick (Spongebob)
  • Person responsible for negotiating trade deals – Liam Fox becomes Bill Cipher (Gravity Falls)
  • Minister for screwing up the Environment Michael Gove becomes Sid (Ice Age)
  • Brexit Buffoon Boris Johnson becomes Elmer Fudd
  • Brexit Twit Rees-Mogg becomes Yosemite Sam
  • Minister in charge of screwing things up Chris ‘Calamity’ Grayling becomes Goofy

I’m sure you would agree our cartoon team is significantly better equipped for the job. Now having sorted out Brexit it’s time to try and remember where I planted those seeds.

Trees

What a stunning tree.

We took Captain Chaos for a walk this morning. Still trying to process yesterday’s school review meeting. Maybe it’s because I am tired but I just can’t get my head fully round it’s implications. It’s times like this when being a single parent sucks… No one to talk things through with. No voice of reason. So the ideas and words just keep swirling around.

I turned up carrying my 300 pages of notes (sorry Trees…). When I opened the paper pile a must do House DIY list dropped out. Sadly nothing can be ticked off the list from the last meeting. Where does all the time go.

The meeting lasted two hours. So many discussions. So many disagreements. So much frustration.

I suspect the best way to summarise is to see a never ending circle.

I ask for something. School confirm it’s not happened. Health Service says the need is real and should be met. School says they don’t have the resources to do this. School asks the Council for funds. Council says it’s not an education issue, it’s a health issue. Health Service says they don’t have the money and it’s an education issue. And on and on. If we give money to health to provide additional support then that has to come from the school and they then can’t even meet his minimum care standards. So Son has real unmet needs – everyone agrees on that but no one is prepared to provide the funds. Everybody at the meeting clearly cared about our son. Let’s be honest Health and Education have been hammered by our current Government. You can only cut things so far before things start falling apart.

Let’s quote our Prime Minister again

“I’m on your side….”

Just sod off. You are not on OUR SIDE. You are just looking after yourself. You don’t give a damm about kids like our son. Get back to looking at your, your husband and your friends off shore investments….

So the bottom line is Health are going to write to the Council and request additional funding. Council are going to write to the Health Managers and ask for additional funds. While our PM sits in Chequers and tries to find more desperate ways of staying in power. Go on May why don’t you bribe the DUP with billions of pounds of public funds again – while lecturing the rest of us that ‘money doesn’t grow on trees’. Madness.

More positively school are going to try some minor adjustments to see if that helps our son. They are also going to formally request exceptional one-off funding to pay for an in-depth dyslexia assessment. The funding probably won’t come but at least school now recognise the impact dyslexia is having on our son’s educational performance.

So hopefully at the next meeting we will have seen some progress and at the very least confirming that

  • Son has started getting some more tailored support,
  • I have started doing some of the DIY projects which are badly needed,
  • I will have gone paperless so more beautiful trees will be saved AND
  • our incompetent and distinctly unpleasant PM is consigned to historical ignominy…..

Embrace the stain….

Picking up from this mornings post. Spiez is just a perfect place. The building at the front of the picture is the hotel we would stay at. The mountain dominating at the back is the Niederhorn. Before our son was born I was practicing for a mountain race. As part of the training I managed to run up this beautiful mountain. I remember lying at the top ignoring the stunning view – just thinking do I run back down or call for a helicopter evacuation…

I recount this story as it came to me again this afternoon. Setting a goal, achieving it then rather than basking in the success you immediately worry about the next step or challenge.

This feels a bit like fighting the system for our son. So many peaks to climb. You climb one but you then immediately have to face a new climb. It can be soul destroying.

We have potentially found a specialist who will assess our son’s dyslexia. But now I need to find the money to pay for it (the leaking washing machine will have to survive another year before it’s replaced). AND I somehow need to find a way of getting the education system to adopt the recommendations of the assessment. I was speaking to another parent who has been trying unsuccessfully for two years to get her school to adopt the same specialists recommendations. Why do we make it so difficult for our kids…

You then see the news which is dominated by talk of Brexit. Our so called Prime Minister is trying to bribe another party with up to a billion pounds of further funding if they will vote for her shambles of a plan. And yet they can’t find the money to adequately fund our schools or mental health support services. She takes great delight in telling the rest of us that money doesn’t grow on a tree. Clearly our Leader values her own career and legacy higher than the kids of our country…… Sadly she is not the only world leader like that.

Then my mind drifts back to that mountain. The Niederhorn. I didn’t ‘get into the chopper’ in an Austrian accent but decided to run down. It was an interesting decent. As some breathless pillock had collapsed at the top into a fresh pile of some unknown and clearly legendary bird droppings. Running while trying to prevent passerby’s getting a good view of the your oddly coloured rear is just embarrassing. Rather than embracing the stain I just tried to run as quickly as possible while keeping my bum always pointing away from people. I can hear my dad saying ‘son as quick as you run you won’t increase the separation between your shorts and that stain’. Maybe that’s a really good analogy for state of our governments overall strategy……

Slice of life and a cake

I bravely ventured out to a store in one of local villages It’s not what you would call very big…

“Do you sell any floor cleaner?”

“No not been asked for that in ages. I thinks we sold the last one to Janice when she bought the Grandfather Clock from a vicarage three years ago. She wanted the room to look nice for when it arrived.”

“Ok” – it’s always a bit of an out of body experience in the shop. No idea who Janice is!

Would you like to try our new cake it’s a Lavender Sponge”

“It looks lovely but no thanks. I’m on a gluten free diet.”

“Oh that’s nice. Those clever scientists come up with some great inventions these days. Did you know that Bill has switched to contacts.”

“No I didn’t” – no idea who Bill is!

“So can I give you a bit of our Lavender cake?”

“No thanks I’m on a Gluten Free diet and I can’t have wheat.”

“That’s nice. Mary has become a vegetarian and she lives next to the farm. I wonder how that works?

“Oh” – Who the bloody hell is Mary!!!

“Did you see our Prime Ministers face yesterday. I voted for her at the last election. She seemed like such a nice person who would get things done. Last night she looked like she was chewing a wasp. She is a mean spirited, selfish idiot. If she had any decency she would have resigned by now.”

“I certainly didn’t vote for May but I completely agree with you. She is a complete embarrassment.”

“Did you vote to leave?”

“No I voted to stay. I asked my son what he wanted and I let him decide for us. It effects his future the most.”

“I voted for Brexit. It’s not that I wanted to leave Europe I just wanted to make a protest. Didn’t think that we would win”

Deep deep sigh – bite bottom lip before I say something.

“I can wrap the slice of cake up for you, freshly made this morning. That must be the same diet as that really famous Male Tennis Player is on, he was on the tv last week, oh what’s his name”

“Novak Djokovic I got the idea from an article I read a few months back.”

“No that’s not him”

“Andy Murray”

“No”

“Roger Federer”

“No”

“Rafael Nadal

“No, oh it will come to me.

“Do you sell anything like cleaning wipes?”

“No but we do have a special offer on. You get a free bag of bird seed when you buy the local paper”

Bizarrely I came out of the shop with some bird seed, a paper, piece of Lavender cake and a sensation which is probably similar to a frontal lobotomy.

Ashes

This is another photo from Whitby. For some reason the WP app for the IPad refused to accept it yesterday. Maybe it’s my not new iPad but the app is becoming almost unusable. Anyway today the photo seems to work and it will get its moment.

My partners ashes are still in the house. We have a sort of make shift shrine in a room overlooking the garden. Now she has been joined by 3 energetic gerbils. She would like that. At some stage we will start to scatter the ashes but not yet. It just hasn’t felt like the right time (for both of us). My mums ashes have been scattered in a cemetery (with the help of a squirrel – see earlier post…)

I asked our Son about if he was ready to start the process.

“Not yet Dad. Dad do ashes go off”

Don’t think so. They urn doesn’t have a use by date on (don’t think badly of me, but I did check). But an urgent google check confirmed no safety time pressures. But it did reveal some additional factors to consider.

  • The Vatican has issued guidance that Catholic remains should be buried in cemeteries rather than scattered or kept at home. However this clearly doesn’t apply to Quakers.
  • Ashes containing bones don’t decompose so they shouldn’t be scattered around plants.
  • UK Law is fairly easy going when it comes to scattering ashes. Nothing specifically exists to prevent scattering. You only need to secure the landowners permission.
  • In Germany cremated MUST be buried in a cemetery. Switzerland are quite relaxed as long as it’s not for profit. France does open up a few scattering options.
  • In the U.K. it is legal to scatter ashes in water or the sea. The only restriction being that you need to get the permission of the water stretches owner. In the US you need to scatter ashes at least 3 nautical miles out (and inform the EPA)
  • Currently you can take ashes out of the U.K.. The Tunnel and Eurostar are the most relaxed. However Brexit may change all this.
  • In the U.K. it is ok to bury a pet in your garden if you own the property, it has domestic use and (if I’m reading the legal stuff correctly) the pets have not been declared as Hazardous Waste.

So for the for the time being I suspect my partner won’t be going too far. So I can give her the daily updates about our son. As my partner was so very organised I strongly suspect that if roles had been reversed then I would have been out of the door within months not years.

I hope this all doesn’t sound a bit too matter of fact or flippant. This post could so easily have been extremely dark. I vividly remember driving my partners ashes back from the crematorium. It’s burnt into my sole. I was fine until I got back into the car. I put the urn on the front seat and quietly said “time to go home my love”. Suddenly the Dam broke. I completed collapsed into a deluge of tears and despair. Didn’t stop for hours. My lowest ever point.

Deep down I am worried. I am not sure the brittle foundations that my new self is built on are strong enough to cope with another one of those final car journeys to scatter the ashes.

Helpful Brexit

An advert on the radio caught my attention this morning

A very helpful sounding person speaking for the Government asked “If you had started thinking about Brexit yet” and helpfully suggested that “it may be worthwhile if people and businesses started to plan for it.”

Thank you very much.

Just a couple of teeny weeny points

  • It might be a tad late to remind people that as we are potentially only just over 20 days away from it,
  • Pot calling Kettle. Why don’t you shove that up your collective governmental backsides. Why don’t YOU start doing your job (rather than look after your own self interests) and actually make some decisions that allow people to know exactly what is going on.

I am putting forward our 3 gerbils as the new team to get us out of this Brexit mess.

Back to school

Warning this post contains bad language and monumentally pompous stupidity.

In 2018 the Switzerland Glaciers lost 2.5% of their volume. It’s expected that they will have disappeared by 2090 – at the latest.

On Friday thousands of pupils walked out of UK School’s to protest about our Governments inaction on climate change. Good to see the positive response it got from our Leaders.

“It is important to emphasise that disruption increases teachers’ workloads and wastes lesson time that teachers have carefully prepared for,” a spokesperson for the Prime Minister said. “That time is crucial for young people, precisely so that they can develop into the top scientists, engineers and advocates we need to help tackle this problem.”

Our countries so called Education Secretary “let me be clear, missing class won’t do a thing to help the environment; all they will do is create extra work for teachers.”

The Conservative Leader of the House of Commons “It’s called truancy, not a strike“.

Well if you got your head out of your arses and took meaningful action then the kids wouldn’t need to walk out. If you didn’t pander to the fossil fuel companies, actively promote the disastrous fracking industry and cut renewable energy investment…. then you might be taken seriously. What trust do you expect the next generation to have in you when they see the monumental f*****g screwup you are making of Brexit. The entire political system has abjectly failed its primary roles of protecting the world and securing the futures of the upcoming generations.

This has to stop. The kids get it. Unfortunately our dim witted, self serving leaders don’t. It’s time for the next generation to take over and time for our politicians to go back to school. Maybe then they would see what a gigantic mess they have made of the education system as well.

Countries gone mad

“Dad if we won the lottery could we buy a deserted island and live there?

It’s kinda sad that an 11 year old thinks that way. But I fully understand why and YES I would jump at the chance. I remember a time when I loved my country. Those days have sadly gone. Like many folk from Yorkshire we would happily declare independence. York becoming a capital city sounds cool. The national dish could be the Yorkshire Pudding. Our national sports would be cricket and being grumpy. The national animal would be the Ferret. Instead of having a nuclear deterrent we could threaten people with our rhubarb sticks.

You might think this is daft but trust me this is off the scale sensibility compared to the stupidity of modern Britain. Nothing sums up the state of the union better than just one single news story. Given all the potentially catastrophic events circulating around us (and there are many) – the attention of the media and a good proportion of the population has been on …… the horror of a bakery introducing a vegan sausage roll across its 900 stores. The likes of Piers Morgan (one of the not funny loonies and self pronounced TV Star) went into meltdown saying things like “Nobody was waiting for a vegan bloody sausage you PC ravaged clowns”. The news story is everywhere, you just can’t get away from it. I use the term news story very loosely.

I waited with anticipation for our son to return. He would cheer me up, bring much needed sensibility to my world. Unfortunately not this time.

“Dad the school want me to either write left handed or type left handed until my right hand gets better, that includes trying to do exams with my weak hand. I told them that I struggle to coordinate my left hand and that’s the reason I can’t tie knots. Told them that the Doctor was trying to help me with it but the teacher said I just had to do it”

“Dad did you complain about the behaviour in our bottom class”

Yes….

Well they did something”

Please let it be something positive

They moved a really well behaved girl up a set because she was struggling with the behaviour in our class and they moved a really naughty boy in to replace her. It was a lot worse today”

Only thing left is to go and buy a lottery ticket. That remote island is calling. Anybody fancy joining us.