Posted on by bereavedandbeingasingleparent · 38 Comments

Dark clouds

Midday dog walk, under the rain clouds, YES it felt that dark .

Almost daily headlines about how Special Education is in crisis in the UK. Councils can’t afford to keep up with rising demand, parents are struggling to access the support their children really need and schools are being pulled in a million directions with limited resources. The tragic result is that way too many children are being let down by the education and health systems.

But is it the real pressing thought for everyone. Is it the real issue for the Mainstream Media, the Politicians, the Service Managers and the Government.

I’m not hearing much in the debate about how we can better help the children who need the support. What I’m hearing is….

We are spending way too much on Special Education….

Special Education is diverting too many resources away from Mainstream Education…..

Pushy Parents playing the system…..

We can’t justify the rise in demand for Special Education, something is going wrong, there can’t be that number of real children needing real help…..

Why should Hard Working People have to pick up the rising bill…..

There is growing noise from Government that change is coming, but who will this change be for.

Currently there is a huge obstacle course ultra marathon which needs to be fought out for months and often years before a child is granted an Education Health Care Plan (EHCP). This is a legally binding document that is supposed to ensure that a child gets the necessary support they need. The EHCPs aren’t perfect, a child can still miss out on support, but they can help. It’s a baseline to work from. Hawklad was granted one after 2 years of fighting the system, he was backed by his Doctors and Primary School. After getting the legally binding document, some support started to arrive and it really helped BUT then …

  • If services are cut completely then the support they provide is just not available. Hawklad was identified as needing help with his speech and started work with a Speech & Language Professional. Real progress was made, then the Service was cut in a wave of budget cuts.
  • Some services are stretched, with real underfunding leading to long waiting lists. Hawklad was due to work with an Educational Psychologist. In our area there were 2 Professionals covering a huge geographic area and over 300 schools. After a two year wait he received an initial 30 minute assessment then was due for further work, he was never seen again, never made it to the top of the waiting list. Some services navigate the long waiting lists by just increasing the need threshold levels. Hawklad needed help with his fine motor skills and handwriting but revised thresholds resulted in him being removed from the waiting list. Even now, he really struggles to write,
  • At Secondary School things changed, the school approach changed. In a small school he received dedicated teaching time, the move to a much larger school removed that dedicated time. The funding he was granted was given to the School and added to the general teaching support budget. Each class of up to 30 pupils had a Teaching Assistant there to support the Teacher. That support hardly ever filtered its way to Hawklad. The teaching approach was if ‘a student doesn’t put a hand up to ask for help then the assumption is the student is fine, no assistance needed’. Hawklad never put a hand up even when he couldn’t read stuff, he didn’t want to shout out in front of other children that he couldn’t read… Like many children with special educational needs, in the larger schools, they become lost, assigned to the Bottom Set.
  • At the age of 18 most support services end. It doesn’t mean the need has gone, it just means there isn’t an equivalent adult service to provide support. At 18 it’s basically ‘you are on your own now……’. Hawklad now has no support and we both can see the negative impact that is happening.

These issues are not unique to Hawklad, many are facing the same or way worse. But my fears are that the current policy change drive has nothing to do with these educational issues, improving support for future pupils. It feels more like a balancing the spreadsheet bottom line exercise. How can we cut the Special Needs Budget, how can we restrict the number of children receiving support. Maybe the Government is looking at get rid of EHCPs and the legally binding stuff, then it’s game on to make proper, real cuts.

I hope I’m wrong but it is starting to feel like even more dark clouds are rolling in for many great kids in our schooling system.

Posted on by bereavedandbeingasingleparent · 37 Comments

Damp memory

A wet old evening on the Yorkshire coast.

It’s odd how our memory works. I can see my Mum vividly but almost entirely from her later years. As she described it, the ‘grey haired Little Nan, don’t you ever dare call me Grandma, that makes me sound old…’ period. I have a memory glimpses of her when she was younger, but not as many and definitely a bit faded now. Dad died in a different century, so his memories are all way more faded now.

But something struck me, I have so very few memories of both my parents together, almost entirely they live in different memory sets. I really can hardly see them together. One joint memory I can recall is from this Pier, by the sea, on a bench like one of those. On a family day trip in equally grim weather as in the photo. One of those trips that is described as being good for the constitution rather than actually being fun. I can see them eating fish and chips together, off increasingly wet newspaper, not talking to each other, not even looking at each other. Maybe one parent was ignored when they suggested the weather might not be conducive to a pleasant seaside visit….. It’s not a particularly loving memory.

Just really odd, I can remember that damp coastal moment yet I can’t recall any memories of them together from say Christmas mornings, happy times, adventures, daily family life. It’s as if they inhabited different places, different parts of my childhood. Old photos don’t help, all the family photos are taken by one of the parents, so they aren’t together there as well. It’s the same with Hawklad’s family photos, just one parent ever seen at any one time as the other is behind the camera. There are a couple where we tried to use the timer but invariably you have a blur, or a back of the head shot of the sprinting camera operative. Hawklad has a few from Nursery of the 3 of us together, taken when the school photographer came in but wow they look like mug shots.

Maybe we were just like my parents. We just never thought about having joint photos, never thought that in the future someone might be wanting to see us together, living shared family lives.

Posted on by bereavedandbeingasingleparent · 39 Comments

The elephant in the room

There is a lot of political and media focus on certain carefully framed questions at present in the UK…

  • Why are so many parents keeping their children from attending classroom education?
  • Why are there so many autistic children now compared to in the past?
  • Why are schools having to divert so many resources away from core teaching and into special needs support?
  • Why is there such rising demand for Child and Young Person Mental Health Services?
  • Why are so many young people unable to work and pay taxes?
  • Why are we spending so much on disability and carer benefit support? Why is it so easy to claim……

I will say it again, these are CAREFULLY FRAMED. All designed to support a narrative about the pressure this puts on businesses and hard working taxpayers. It’s like the framed questions and narrative which is being pushed about how immigration is causing unemployment, the lack of affordable housing, the breakdown in communities and public services. As a result many in our society now find themselves very much labelled as problems, a burden on others….

I find myself increasingly feeling at odds with the direction of travel the country is heading in. I guess I’m not the only one increasingly feeling like our voices are being drowned out.

Deep sigh….

In all this, in all the political, press, tv and social media coverage I’m not hearing three issues ever being discussed. I guess because they don’t fit in with the CAREFULLY FRAMED NARRATIVE. The large elephants in the room.

Just how difficult, stressful the process is, just how many hoops you have to jump through to try and claim any sort of financial help, disability and carer support. And when you get that support it is at best mo more than the bare minimum, it is NOT a life of luxury.

Child and Young Persons Mental Health Services are stretched to breaking point. It’s a service that has been cut back and underfunded for years. Huge delays in accessing services, services spread way too thin. Again it’s also a nightmare trying to get a young person registered for these stretched services. In our case it took two and half years. A process designed to discourage use. Far too many miss out on the help and support they badly need.

In the UK, as soon as a young person hits 18 they are signed off the support service. There is no equivalent adult service. With Hawklad his Care Lead wanted to hand him onto another service to continue the support after he reached the age threshold, but there was no service to hand him on to. So he was signed off. Support ended. To the number crunchers and spreadsheet decision makers, he is now classed as FIXED as he has been signed off from support. How many young people, how many families suddenly find themselves with no support, no help, no one to turn to. How many don’t even get the support when they were younger. The question shouldn’t be why are so many young people unable to work, why are so many listed as …… it should be why are we LETTING so many young people and adults DOWN.

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18

That’s a proper sign post, although I’m not sure how feasible it is to walk to Canada or The US from this part of the world.

Most of the support had already started to be pulled from Hawklad when he approached his teen years, that’s how it goes in the UK. Now at 17 the inevitable letter arrived. At 18 he will be signed off from the last service still providing support to him and his care will be handed over to Adult mental health care. In other words, the day he hits 18 any support he may need will need to come in the form of self help, or from family, friends, internet, leaflets and a few overstretched voluntary groups. NOT from health professionals.

As a Paediatrician cautioned me when Hawklad first started receiving support

Some support and help could be required for life. The level of support required may diminish over time, sometimes no support is required but often the level of support can grow as people try to forge their own adult life. But when someone reaches 18, we stop asking as a society, in fact we stop providing the support almost completely. Child Mental Health will inevitably hand over virtually every child under its care to an adult service that doesn’t exist in the UK. After that if someone picks up the courage to go to see a doctor, in most cases that doctor will have little real understanding of areas such as autism and will probably just want to put a plaster over any problems in the form of Anti Depressants.

As adulthood fast approaches for Hawklad, I keep increasingly focusing on the immediate future, the next stages. Trying to develop that independence yet worrying about where he can turn to if he ever needs support. It’s a sobering thought sometimes.

Posted on by bereavedandbeingasingleparent · 54 Comments

Birds at dawn

Another early start. This time a seriously early one. A perfect insomniac storm. 3am. Hawklad has woken and can’t sleep. I have not been to bed yet and sleep feels a million miles away.

Hawklad wonders if we can see the dawn brake. On the coast.

So a few moments later and after I had sampled the meanest of espressos, we are driving. Driving past badgers, foxes and owls. Before 4am we arrive at RSPB Bempton Cliffs. It’s still pitch black and we have the site to ourselves. It’s such an eerie feeling walking in the complete absence of light and sound. Even to early for the thousands of seabirds perched precariously on the cliffs. No wind and even the sea was strangely becalmed.

In perfect time to watch dawn brake. No thoughts of an Albatross who was apparently out at sea. Who needs one bird when you get to watch all this unfold.

The dark was a challenge to my iPhone camera but it gave it a go.

By 7am a few people had started to arrive, mainly here to take up prime spots and wait. Hoping on catching sight of one particular bird. They had no idea what they had just missed. The deafening sound of seabirds hides the peace that existed just 2 hours ago.

We were back in the car and driving a few minutes later. The site had lost its appeal to Hawklad. Even a handful of strangers proving too much for him. But he had got to see a spectacular show first hand. Just the two of us so without his anxieties. He slept during the ride home.

Yes it was a ridiculously early start. Yes I went more than 24 hours without sleep. But it was worth it for those couple of hours when Hawklad felt that he had the world to himself. I suspect it won’t be the last time we do this. Yes there will be time for trips out to build those social bridges but those come with anxieties. We all need these times and places of sanctuary. Hawklad does. Yes even a worn down parent needs them.

Posted on by bereavedandbeingasingleparent · 50 Comments

Nothing

It’s nearly 1pm. I need to pinch myself. Is it really a school day. School at home day. So far absolutely nothing from school this week. No lesson material, no assigned work, no idea what the class is doing. Nothing. That’s three blank lessons so far.

It’s been that quiet we even checked to make sure we hadn’t got the dates wrong and school is on holiday. But no, it’s a full school day.

“What shall I do Dad then….”

Well as we have no idea what his class was doing. No idea even what subjects the class was looking at. It’s a blank sheet of paper. A good chance for Hawklad to set the agenda. Take control of what he learns. So I said what any self respecting Dad would say.

Well Son you can go and wash my car……

“No Dad. What school work shall I do.”

What one subject do you most want to learn about.

“History, definitely history. Second World War.”

Ok spend the morning indulging yourself in the that. And when you finish. You can get off your backside, go outside and clean my car 😂😂😂

***********

And that’s what he did. He studied the Nuremberg War Trials. He so far hasn’t got round to cleaning my car. But here’s the problem. He’s taller than me so I can’t really put my foot down anymore. I might just have to do that job myself.

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Road

Yes it’s another one of those massive, multi lane Yorkshire motorways.

We are a couple of weeks into the start of trying to help Hawklad build bridges back towards the wider world again. It started with us taking the mad dog for a walk at night. Nighttime as it would be quiet with no other people out and about. Small steps in breaking out of walls that surround our little house and garden. The isolation which started 15 months ago.

We quickly realised that actually it’s always pretty quiet here, not just at night. So we started going for the walk a little earlier. Now nearer 7pm. Guess what. We still hardly see another soul. Currently that’s perfect for Hawklad. Very rarely we see a farmer or another dog walker. When that happens Hawklad immediately turns on his heels and heads quickly home in the opposite direction.

The other thing is that Hawklad doesn’t like to walk on the path. Just doesn’t feel comfortable doing that. So we walk on the road. Our massive and very busy road….

Well you can see just how big our road is. Just how busy it really is can be gauged on one fact. We have been walking every night straight down the middle of the road. Not once have we encountered a vehicle. The road is ours….

That’s such a cool feel. Such a cool feel for both of us. I can concentrate fully on talking and in the quiet bits, on dreaming.

Posted on by bereavedandbeingasingleparent · 48 Comments

Childhood

Do you remember when school holidays meant time off for our kids….

Hawklad and I received emails from school this morning. The emails set out the times of the upcoming year exams. Straight after the half term week holiday. The emails listed all the areas which each pupil are expected to cover in revision. The revision also includes mandatory online tasks that won’t be marked but will be monitored by teachers. All tasks are expected to be completed. The email stressed that they are expecting pupils to undertake significant work levels over the week off…..

To be fair to school they are only following Government guidelines and instructions. The Government has repeatedly spoken of its desire to increase the length of the school day and reduce the number of school holidays. It believes children have too much time off. They have it too easy…..

Parents will have differing views on this. I think you might be able to guess my take on this. I think it’s all BS…… Making pupils work harder and longer is just a smokescreen for covering up the failings of our current school system. Too many trumped up experts getting jobs as politicians, thinking they know best. It shouldn’t be about the quantity of teaching, it should be about the QUALITY of the education.

Ban politicians from education. Let teachers teach… Let Headmaster run the school. Involve the pupils and parents fully. Reverse the trend to test at every level just to populate government performance league tables. We are even testing 5 year olds for pity sake. If the politicians want to do something useful then they should concentrate on finding the resources to help specialists deal with the growing mental health crisis amongst our children.

And above all. Let children enjoy their childhood.

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Leaning

A beautiful little leaning tree we pass on the dog walk… A favourite watering hole of a mad four legged one. No wonder it leans. It leans but it still has a purpose.

I was looking at an email sent from school setting out the upcoming year end exams. Day after day of exams. Often two a day. But what is the purpose. Whose purpose do they represent. Are they really Hawklad’s purpose. Apart from History, Geography, English and Maths, would he freely choose the other subjects. Would he put himself through these exams. Even with his favourite subjects, would he not focus on other areas rather than the predetermined ones set for him by the Government.

A Government Minister was waffling on about how our children should be focusing on this subject and that subject. They were doing too much of this and not enough of that…. Has he bothered to ask what the children want. He’s thinking about the purpose specified by the economy, not the purpose which necessarily the children would pick for themselves.

Ok I get the point of learning the basics but why should some out of touch numpty in London determine which subjects my child is taught. Determine which areas are looked at. Which textbooks are read. Set the teaching method. Determines how much religious education is taught. What art is studied. Basically setting everything…..

So whose purpose is this. Is it really Hawklad’s.

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Can’t ignore it

Somethings you can ignore and other things you simply can’t. You can can’t ignore how you are feeling but it’s very easy to ignore how someone else is feeling. You can ignore the ‘do not enter sign’ but you can’t ignore the large, foaming at the mouth guard dogs stood behind the sign. You can ignore a bit of rain but you can’t ignore a thunder storm. Well it’s not easy to anyway….

Last night was a massive, noisy storm which went on much of the night. No chance for sleep until the storm blew itself out, sadly well after dawn.

Hawklad received two emails from the same teacher this week. Both saying effectively the same thing. The teacher couldn’t open the work files Hawklad had submitted this week. In addition the teacher moaned about where he had saved the files.

Ok….

Well here’s the issues which kinda made me reply in a slightly tetchy manner to this teacher. First of all these are the first communications Hawklad has had with this teacher in over a year. Secondly he is saving the files in the same way he does for all the other subjects. Thirdly Hawklad has been diligently saving all the work and homework for this teacher for over a year in exactly the same way, in exactly the same format and in exactly the same location – all in line with school instructions. Fourthly Hawklad has never had any feedback, marks or comments about any piece of work submitted to this teacher since a certain pandemic appeared. The only thing approaching feedback was a couple of random assessment numbers appearing on the quarterly school report. Numbers which unlike other subjects have never changed.

Call me cynical but I don’t think the teacher has looked at any of Hawklads work until this week. Ok class work may not always be marked but surely homework should be marked. Marked and feedback provided.

But I guess you can ignore some things.