Posted on by bereavedandbeingasingleparent · 72 Comments

2020 the year music stopped

2020 has been some year. Is it really only August. Time seems to have so slowed down. Many things have just stopped. Live Music most definitely.

Looking back to the start of the year it all seemed a bit different. We were looking forward to a fantastic concert year. I had worked my socks off and secured a whole list of discounted tickets. It was on paper a great year of gigs and some top bands.

*********

The Who

Whitesnake

Foreigner

Europe

Aerosmith

Wayward Sons

Ozzy

Saxon

Deep Purple

Blue Oyster Cult

Hollywood Vampires

Killing Joke

**********

On paper that’s how it will remain for this year. All cancelled some pushed into 2021. So yes something potentially to look forward to. BUT…….

Has the concert zone closed for us. It was always a delicate balance for Hawklad. His enjoyment of the music, the spectacle, a chance to see the bands he loves to listen to. Balanced against his social anxieties. His fears of strangers and crowds. The positives just outweighing the negatives. As a result he could get himself to concerts. Yes it would need his hoody pulled up until the lights went out. But he was ok doing that as he felt that rock crowds were easy going and accepting of all kinds of looks. This was confirmed on our first concert trip. Dad wore the most embarrassing T-shirt he could find. Hawklad was reassured to see that I didn’t get one single strange look and was never asked to leave.

But now it’s a different world. Hawklad definitely sees it differently. Heightened fears and anxieties. The ‘is it ok to attend concerts’ calculation he would perform has got a different answer now. The negatives outweigh the positives. I know the medical advice is that this new world view could become a semi permanent switch in his Aspergers. A dynamic which won’t automatically switch off when the pandemic finally goes. It may take years. May never switch back. We just don’t know.

So maybe that’s it for our concerts. If so then it’s kinda fitting that three of the last bands he got to see just happened to be his favourites. Alter Bridge, Kiss and Alice Cooper.

So let’s enjoy the memories. It might be the year Live Music stopped for us but it doesn’t mean that music has stopped. Most certainly not.

Posted on by bereavedandbeingasingleparent · 85 Comments

Line them up

Well the nurse counsellor did arrive. At the height of the storm. Due to working restrictions she was not allowed in the house. So it was plan b. Move my car next to the counsellor’s car. Windows down and you have a mobile meeting facility. The session went well. The counsellor seems really good. It’s a start. Start of a long road. But a start it is.

He will now get appointments every two weeks now. Let’s hope progress can be made. The counsellor is also going to write to the school to confirm that he is under health care at present and is not medically cleared to return. Hawklad has come to the conclusion that he just can’t go back to school at present. Even with professional help now, this could take many months before school might become a possibility for him. Until he can feel be reasonably comfortable being around people and ok to touch surfaces then school is but a pipe dream. Will he ever go back – just don’t know.

The Deputy Chief Medical Officer yesterday said that schools were perfectly safe. Apparently children are more at risk from road accidents than from catching the virus. I can’t think of many more insensitive ways of making a point – that’s going to really hurt those families who have lost loved ones on the road. I’m also not entirely reassured by her words. I remember a few other of her words over the last few months

  • The Government response to the pandemic has been exemplary……
  • The UK pandemic approach had been very successful……
  • Large Public Gatherings and Sporting events are perfectly safe, no need to stop attending them. That was at a time Europe had banned those and a few days later we did the same. She even encouraged people to attend the countries largest horse racing event just a couple of days before the country went into lockdown – the infection spread from that event has been scary.
  • People should be more adult when they discussed PPE shortages. It wasn’t such a big issue for healthcare and care workers…..
  • The UK didn’t need to test, test, test for the virus as we were a First World Country.

We all want to get schools open. But it has to be done correctly. Just grouping kids into giant year group bubbles then squeezing them back into cramped classrooms with at least 30 other people isn’t good enough. Asking kids to wear masks on buses, sometimes in corridors and not in classrooms is just a mess. Not exploiting online education to ease some of the space issues is a massive mistake. Only offering testing after the virus has been encountered just repeats the mistakes we have repeatedly made as a country. We’ve had months to get this school return right.

I really feel for those parents and children who are returning to schools. For some it is a easy decision and the return can’t come quick enough. For others it is not easy. For those with underlying health conditions it is a calculated risk. For us that decision has probably been kicked into touch for a while longer.

Don’t you just love 2020.

Posted on by bereavedandbeingasingleparent · 67 Comments

Perfect timing

A brief respite between storms. It’s summer you know.

As the rain from the storm kicks in the tumble dryer decides to go on strike. Perfectly timed as I have a load of bedding and clothes to dry – perfect timing. Suppose I could just go outside and throw them in the air and see what the jet stream will do to them. Central Europe – If you see some line green cycle shorts flying through the air, can I have them back please….

Then a few moments later I went outside to put the plastic garden chairs in a safe place – only to see one of the chairs flying tumbling over the fence and heading into the farmer’s field. Perfect timing. At least I know why we will be one chair down. Again Central Europe can you look out for a slightly dog chewed item of furniture heading at some rate in your general direction.

Don’t you love perfect timing.

The nurse counsellor garden appointment to see Hawklad has been rebooked for this week. To start the process of examining his anxieties which are effecting his life and preventing him from going into the wider world. The last visit was a perfect summers days but the nurse had to cancel at the last minute due to illness.

Well that’s the plan.

Looking at the weather forecast the garden appointment is scheduled to happen during Storm Francis. Expecting torrential rain and 70mph winds. Lovely garden weather – especially as we are perched on a hill with hardly any protection from the elements. The nurse is also not allowed to come into the house due to a current working restrictions. So I’ve got no idea what will happen.

Perfect timing.

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School

The rain had cleared for a few moments. But some things are still unclear.

Hawklad is still to decide if he will go back to school on the 14th September. With all his anxieties any return will be so very tough for him. Maybe too tough. But ultimately it’s his call. I’ve let school know about the issues but they don’t seem to be proposing any accommodations for him. But I guess there are a few weeks to go.

The other thing I have raised is what happens if he is not able to return. Still registered with school but unable to attend classes. How would he keep up with the course work. Unfortunately the really good school online education system will be switched off. Switched off to encourage parents to send kids into school. The initial dialogue with the authorities seem to be – well if he doesn’t go back then tough – that’s your call. Your responsibility to arrange education until he returns to the classroom. Thats the approach being set by the government. Online school tuition will only be switched back on if the school is forced to close again.

So many things to think about. But one clear message from the Government. Send your kid into school or you won’t be getting any help from the system. In fact schools will be expected to fine parents for keeping kids off. Could be a stormy few months.

Posted on by bereavedandbeingasingleparent · 83 Comments

Summer

I do like summer, especially a Yorkshire summer. Those deep blue skies. Wall to wall sunshine. Baking temperatures. Never lets us down.

“Dad it’s like being in The Mediterranean”

Not sure how we survive the heat. Can’t believe our house doesn’t have air conditioning. Surely that would be more useful than damp proofing.

“Have I ever been sunbathing Dad.”

A long time ago.

“I can’t remember doing it.”

You did Hawklad. It was a couple of years ago. A rare hot day. You said that you wanted to try sunbathing.

“Oh I remember. We put a couple of towels down on the lawn”

That’s right. We brought the iPad out and found some beach noises to play.

“Yes it was just seagulls and whales”

We then took some sand out from the sandpit and put it round the towels.

“I went and found some of my old seashells and scattered them over the sand. Then we built a small sandcastle”

You brought out a few seaside animal toys like sharks. We put our shorts on.

“The shades went on and we went toplessssssss”

That’s right Hawklad. You then laid down on the towel and then before I had a chance to get down on my towel you shouted. I’M BORED WITH THIS NOW CAN WE GO AND WATCH A MOVIE. That was it. You sunbathed for about 5 seconds.

“That long. Dad maybe you should get out there now. Top up your suntan.”

***********

The question is did Dad brave the summer weather and go topless?

Posted on by bereavedandbeingasingleparent · 83 Comments

Seems like a lifetime

I accidentally stumbled across a social media post from a parent from Hawklads school. It contained a photo of a trip to the beach whichsome of the families had made last week. Clearly having great fun. It will do the kids so much good to start living again.

I was so happy for the kids and happy for the parents. They are really nice people. They deserve fun.

But the post brought a touch of sadness. Wouldn’t it have been lovely if Hawklad had been there. To be with kids his age. Enjoying himself. Enjoying being a teenager.

Actually it would have been good for me as well. The last time we went to the beach with other families was 2015. I’ve kind of forgotten what the feeling must be like. You get use to the isolated life style. It becomes all consuming. It becomes who you are. Back in 2015 I remember turning up. Watching Hawklad play with the other kids. The parents had a barbecue. We played games and sand cricket. Built sandcastles. We talked, laughed. We hugged.

But that was then. It’s 2020 now. Different world. It was a different world even before a pandemic. The last time I actually hugged someone was at my partners funeral. That’s virtually 4 years ago. It’s 5 years since we went to a meet-up with other families.

It seems like a lifetime ago.

Posted on by bereavedandbeingasingleparent · 63 Comments

Blue rain

Funny old day. Stormy weather in the distance but blue skies overhead. Yet it’s cold and unbelievably it’s raining. Rain falling from these skies.

“Dad it even rains here when it’s blue skies.”

It’s called Sods Law or Murphy’s Law.

“No it’s not it’s called a weather anomaly.”

Yes that as well. Hawklad do you remember the days when you would have just replied – YES DAD.

“That lasted until I was about 18 months.”

Yes it did. Well at least you will remember when all you wanted to do was talk about Peppa Pig, In The Night Garden, Thomas the Tank Engine and Dinosaur Train.

“No Dad if you remember I would talk history, monsters, animals, birds of prey and the facts about real dinosaurs. It was you who would talk about those kiddy programmes. I still catch you watching them.”

They are educational. I get all my scientific expertise from Iggle Piggle.

“So what you get out of watching Peppa Pig then Dad.”

My parenting skills come from Daddy Pig and my fashion sense comes from George.

“These days it’s more Peppa than George. How else can you explain that T-shirt.”

It’s very fashionable.

“Yes on a 4 year old.”

It can be a hand me down to you. It would fit you these days.

“No thank you.”

Tell you what, tonight when I change your bedding I could dig out your old Peppa Pig bed sheets. That would be nice for you.

“Why don’t you put that bedding on your bed first then. If it’s that good you use it then Dad.”

I did last week.

“Tell me you didn’t”

I did. My bedding got stuck in the possessed washing machine and so I had to find an alternative. It was either Peppa Pig or your Pokemon sheets.

“Tell me you didn’t use Pokémon.”

No it was Peppa, George and Daddy Pig.

“Tell you what Dad how about tonight you go with Peppa and Friends again and I will go Pokémon.”

It’s a deal.

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Didn’t have the heart to tell him that I changed my bedding yesterday. This time to a Teletubbies one I had found in the cupboard. Best to have some secrets.

Posted on by bereavedandbeingasingleparent · 83 Comments

Tomatoes

It’s taken long enough but at last some tomatoes. For some reason they are about a month later this year. Blame it on 2020. But at least it’s a start.

This morning I had two firsts. To start with, I managed to do a weights move for the first time ever. Instead of using two hands to pick up the laden weights bar and push it over my head, I did it one handed. It’s not clever and a little reckless, but it’s certainly cool when you do it. Never been able to do that before.

Then I finally managed to correctly transition some yoga moves. Normally when the video instructor says carefully transition – that involves me falling on my face, crashing into a wall and swearing lots. Today I was almost ballerina like. A ballerina with hairy legs…

It gives you a lift when you finally achieve something. We all need that from time to time.

I was going through Hawklads school notes today. He’s made great progress, certainly in the time he’s been school working from home. But what concerned me was the lack of progress I was making with the school authorities. It’s been 18 months since I made any headway with them. Just seem to be stuck. Can’t get any more support for him. Can’t get the school to try new teaching approaches with him. Can’t get the regional education authorities to send in a dyslexia expert. Can’t get the authorities to show a little flexibility with his education funding. Basically it’s the set teaching programme, with any additional financial support he’s been awarded just been used to fund general teaching support budgets for all the kids. The so called special funding basically buys a kid with additional educational needs a place at a school. The Government is quick to point the finger at families getting additional schooling funds

– we are taking money off other kids,

– it’s the gravy train,

– waste of tax payers money,

– it’s wasted funding.

Yet what the Government never seems to mention is that the families never see that money. We can’t control it. It is basically recycled into general school budgets. So the kids who need it actually don’t get any direct benefit from it. Sometimes the fundings only purpose seems to be to just shift the blame for school failings away from the authorities and on to a minority of families.

So yes some education progress is needed. Either that or for Hawklad to elect to be educated from home. But progress would be nice.

Posted on by bereavedandbeingasingleparent · 77 Comments

Gemini

The old rose bush is going strong. Maybe a little frayed round the edges.

We had been watching the Will Smith movie, Gemini Man. Trying not to give the story away, basically you get a bit of the younger self getting to see the 50 year old version of yourself.

Hawklad was giving me a Paddington Bear stare.

“Dad will I end up looking like you.”

Absolutely. The spitting image.

“Really. What a nightmare.”

Its ok Hawklad, only joking. No you probably won’t. Apart from my eyelashes you are tending to look more like your mum.

“What with the boobs.”

NOoooo. Your winding me up now. Excluding the female stuff, your face and hair is much more like your mums.

“I do hope I have mums hair rather than yours!”

Stop it. I’m not sure about your body shape coming from me as well. Your going to be way taller and slimmer than anything from my side. Your definitely more elf than average size Gimli.

“But the Orc runs strong in you Dad.”

That would explain my hairy legs and lack of dress sense.

“Explains your cooking as well..”

True. But you are taking after your mums side of the family on body. I’m sure your male ancestors were frequently well over 6ft and slim.

“So basically I might just end up just having your eyelashes.”

Yes Hawklad.

“That’s a relief. This movie was becoming a bit of a horror show every time I looked at you…..”

*******

A cheeky smile fell across Hawklads face as he once again had successfully roasted his Dad.

Posted on by bereavedandbeingasingleparent · 80 Comments

1000 odd days

This is a photo from 3 years ago. I stumbled across it while looking for some old climbing ones. Another typical Yorkshire August day – all four seasons in one day. It got me thinking – what’s the same and what’s changed in those 1000 odd days. See that’s what a professional accountancy qualification can do for you – I’m good at those complicated adding up calculations.

THINGS WHICH ARE THE SAME

  • Getting no dyslexia support from school,
  • Getting no Aspergers support or accommodations from school,
  • Still bereaved,
  • Still a single parent,
  • Still a metal head at heart,
  • Hawklad is still a lovely character,
  • No holidays, no Switzerland,
  • Pets causing chaos,
  • My football team is still useless,
  • Still see myself as European,
  • Brexit is still a shambles and a monumental exercise of self destruction,
  • Vegetarianism,
  • Can’t cook,
  • Still exercising,
  • Still 5ft 10 and a half (don’t forget the half – it takes me beyond average height),
  • Still not climbing,
  • Still can’t work out the TV remote control,
  • The garden is still a mess,
  • Still don’t like U2,
  • Still haven’t seen Avatar without falling asleep,
  • Haven’t seen my brother even though we live only 50 miles apart,
  • The garden gate still needs fixing,
  • The washing machine is still possessed,
  • Still having bought myself that ginormous telescope,
  • The blog is still going,
  • Still writing about the same stuff,
  • Still waiting for official recognition of my stellar poetry skills,
  • Still haven’t won the lottery,
  • Still losing my car keys.

THINGS THAT HAVE CHANGED FOR THE WORSE

  • As Hawklad has reached the teenage stage many of the health support packages have been removed,
  • The waiting list to see The Paediatrician is now approaching 2 years,
  • A pesky pandemic,
  • Hawklads anxiety levels,
  • Hawklads isolation from the world and other kids his age,
  • Due to circumstances had to stop running,
  • Boris,
  • Trumps antics,
  • Might be a metal head but the days of skin tight jeans have gone,
  • Lost a couple of much loved pets,
  • Don’t really see my sisters anymore,
  • School’s view of Hawklad – definitely revising his perceived ability levels downwards,
  • The number of times I have to shout or pull my hair out at school is rising,
  • I’m physically meeting less people,
  • The list of things on the ‘need sorting out when funds are available‘ is growing.

THINGS THAT HAVE CHANGED FOR THE BETTER

  • Hawklad understands himself and his Aspergers much better now,
  • Hawklad is overcoming his dyslexia,
  • I understand now that it’s just as ok to Laugh as it is to Cry, YES it’s ok to live,
  • Friendship
  • Close Friendships,
  • Faith,
  • Love,
  • Happiness,
  • One step closer to home schooling (hopefully),
  • My dress sense – I finally chucked out some of my pink climbing shirts.

You might be thinking that looking at the relative number of entries on these lists that the last 1000 odd days have been generally bad. But look at some of those things on the last list. It’s not about quantity it’s about quality. Yep looking at that last list, over the last 1000 odd days we have challenges but some really good stuff has still happened. That’s why there is always hope.