Cryogenics v Books

I was reading a little bit of a Carl Sagan’s Book to our son. Our son asked me to reread a couple of quotes.

We are like butterflies who flutter for day and think it is forever”

“Books permit us to voyage through time, to tap the wisdom of our ancestors”

We then had a long chat about life, death and living forever. Cryogenics came up.

It got me thinking maybe books are a better bet than cryogenics. If you are talented enough to become a book author then your words can live forever. Books are so much cheaper. Books are not as frigidly cold and far more illuminating. I think Carl would vote for books.

Thank you for reading this

Gracias

Merci

Grazie

Kop Khun

Multumesc

Dankie

Danke

shukranu

Dhanyabad

Di olch

Tack

Hvala

спасибо

teşekkür ederim

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감사합니다

arigatô

Today

DEEP BREATHS – MOVE ON

Grief is a double edged sword. Yesterday felt like repeated thrusts to the heart. Focusing on what has been lost. That ‘why did it happen to me’ feeling. Everything reminded me of the loss. That video. Sad songs. Radio advertising – anything from where to go for your romantic Christmas meal to the perfect present for your loved one. Her favourite painting. Her favourite cat. That empty bed.

The walk, the wet walk did help a bit. It did help me get focused and ready for our son.

Today I’ve experienced the other side of the grief sword. The positive side. Now the focus is on how privileged I am. Even someone like me was able to experience 16 golden years. Romance. So many happy memories. A beautiful, perfect son. Grief is really everlasting love. That is something which can’t be lost.

Moments

Everyday I find a quiet part of the house or garden and just sit and think. I think about the loved ones who are no longer with us. Just 10 minutes of reflection, but it is so important to me. Just trying to remember some of the key moments we shared. Trying to reconnect. They may not be here physically anymore but in my mind they are still here, still part of my life. Today I remembered a trip to Lauterbrunnen. Holding hands with my partner drinking in the alpine air and watching in awe at the spectacular Staubbach Falls

The reflections are uplifting but are tinged with sadness.

Such a happy memory but oh so brief. Little did we know how few opportunities we would get to visit this wonderful alpine setting together. Sometimes life is hard and painful but I am thankful that I have these memories. Thankful that I had that brief moment in time and also thankful that now, a 1000 miles away Lautterbrunnen is there. The falls are still crashing down given other couples the same opportunity to create their own brief moment in time. So today on this day, this somber day I am sad but oh so thankful.

Night out

A few weeks ago I was contacted about an old school reunion. Surely this was an excuse for a night out. My first night out since the world changed over two years ago. The old me would have been really excited about seeing some old friends and having a fun night out. How times change.

This potential night out sent shivers down my spine and I agonised over it.

  • Where am I going to find a child sitter. A child sitter my son is comfortable with. A child sitter with experience in autism. I couldn’t come up with one viable option. After our son was born we hardly ever went out as a couple. If we did go out for a night, it was as a family. But as the autism became more prevalent these family nights out stopped. But at least one of us could stay with our son if the other partner wanted to go out – it worked well.
  • Because the venue was over an hours drive away, even a relatively short stay at reunion would have meant an extended period of childminding.
  • How would I react having my first evening/night away from our son in over two years.
  • Would I be able to cope at the reunion. It feels such a long time since I’ve done anything socially like this.

In the end I sent my apologies. I’m sure that the correct approach would have been to go. Yes you can list a number of valid reasons why I should have gone. But was I disappointed, not in the slightest. For the night of the reunion we ordered a pizza delivery and watched the two Paddington Bear movies. It was another lovely night. This is my world until our son is ready to fly the nest. Yes it does have its downsides but it is the biggest privilege I could possibly have. I count my blessings for this opportunity.

Man up man down

I’ve wittered on about a number of subjects but not yet about books. Well let’s change that.

Over the years I’ve lived with depression. I’ve never had suicidal thoughts however after my partner died I did go to some dark places. I can fully understand the path those dark places can lead you down. Crucially for me there is our son – I have to be there for him over the next few years.

In the U.K. depression has been a bit of a taboo subject. You weren’t supposed to talk about it. You were expected to suffer in silence and just get on with it. Even suicide was reported as if it was some form of crime. A few years back I remember telling a friend that I was depressed, his response was “stop being a wimp and pull yourself together”. Thankfully things are starting to change. It’s now becoming socially ok to talk about depression.

Paul McGregor is one of the leading mental health campaigners in the U.K. He has now released a book based around his fight with depression and the impact his dads suicide had upon him. I found the book really thought provoking with many elements of the book striking a chord with me. Although it was an emotionally difficult read, I found the book completely inspirational.

Words of Wisdom

You’re only given a spark of madness. You mustn’t lose it” – Robin Williams

For all autistic people it mustn’t any longer be about what we can’t do, it’s got to be about what we can do” – Chris Packham

You’re an interesting species. An interesting mix. You’re capable of such beautiful dreams, and such horrible nightmares. You feel so lost, so cut off, so alone, only you’re not. See, in all our searching, the only thing we’ve found that makes the emptiness bearable, is each other” – Carl Sagan

“When we meet real tragedy in life, we can react in two ways – either by losing hope and falling into self-destructive habits, or by using the challenge to find our inner strength” – Dalai Lama

“It takes a village to raise a child. It takes a child with autism to raise the consciousness of the village” – Elaine Hall

It’s so much darker when a light goes out than it would have been if it had never shone” – John Steinbeck

Grief is like the ocean; it comes on waves ebbing and flowing. Sometimes the water is calm, and sometimes it is overwhelming. All we can do is learn to swim“- Vicki Harrison

You are allowed to feel messed up and inside out. It doesn’t mean you’re defective – it just means you’re human.” – David Mitchell

We’re out of our comfort zones with depression. I certainly was and whenever I have bad days now I speak to someone to get it off my chest. I have no shame telling that and that’s why I’m here today” – Ricky Hatton

Once you choose hope, anything is possible.Christopher Reeve

I didn’t succeed despite my dyslexia, but because of it. It wasn’t my deficit, but my advantage. Although there are neurological trade-offs that require that I work creatively/smarter in reading, writing and speaking. I would never wish to be any other way than my awesome self” – Scott Sonnon (World Champion in Martial Arts)

There is a time to live, a time to die, a time to laugh, and at no time are the three of them very far apart” – Spike Milligan

Life is too short to do the things you don’t love doing” – Bruce Dickinson

“When you change the way you look at things, the things you look at change” – Wayne Dyer

A dog is the only thing on earth that loves you more than he loves himself.” – Josh Billings

Cats are smarter than dogs. You can’t get eight cats to pull a sled through snow” – Jeff Valdez

The inner machinations of my mind are an enigma” – Patrick from Spongebob

“Bums to big” – Our son on why the Dodo couldn’t fly. Probably explains why I can’t fly as well.

Progress

The hustle and bustle of school summer holidays is something which does not sit well with my son. Aspergers and crowds is often not a good mix. Added to this was the fact that since his mum died, the sight of happy families would often greatly upset him. Reminders of what he had lost.

But now we have some progress. Now when he sees families it often reminds him of some wonderful memories. Memories he loves to share. Good times which make him happy.

Today was almost a perfect setup for him during a walk with the mad dog. Occasionally we came across families playing in the park. Today these encounters prompted memories of holidays we shared together with his mum. All precious and warming memories. No tears just smiles.

But today it often felt like we had the park to ourselves, no hustle and bustle, just the sound of birds. Today no anxious looks over his shoulder at the swirling crowds around him. A boy at ease with his surroundings.

Days like today feel like progress days. Often it seems like you get good days and bad weeks. Dark periods seem to go on forever. But when you do get a good day it reinforces the importance of trying to keep moving forward.

Uplifting rain

Yesterday was a strange day. Started very warm, dry and still. Finished very wet, cold and stormy.

It was also one of those moods swing days. It started really well with my son in great form. Then one Family movie later it had suddenly swung to tears and dark hearts. Movies which clearly advertise bereavement in the description can be planned for or better still avoided. It’s the ones which suddenly drop these on you without warning which cause the trouble. From a happy family on a trip of a lifetime to suddenly a young family trying to cope with the sudden death of the mum. I can’t remember seeing that bit in the synopsis. It really hit me, lord knows what it did to my young boy. It makes you feel like a completely incompetent parent … why didn’t we opt for the Scooby Doo movie.

But yesterday we had an unlikely saviour, the rain. After two months of completely dry weather the heavens opened. Stood outside in the rain, being almost blown off our feet in the wind. It just felt great. Seeing my son getting drenched to the skin and loving it. Today I just love the uplifting rain.

One foot in front of the other

The school holidays have now kicked in. Amazingly the usual UK rain deluge has not accompanied the kids being off. Never thought I would say this but I can’t remember what rain feels like. It’s been over two months since our last bit of rain.

You get so used to something, you take it for granted and then when it stops you quickly start to forget it. It’s been over two years since my partner died and I’ve got a growing list of things which fall into this category:

– forgotten what it’s like to go out for a meal

– forgotten what it’s like to hold hands

– forgotten what it’s like to have an argument

– forgotten what it’s like to share a bottle of wine with someone

– forgotten what it’s like to plan a holiday together

– forgotten what it’s like to have a tug of war over the duvet

I could go on but you get the point. Well another thing on the list was I had forgotten what it was like to do our local walk which circles our village. We would walk this most Sundays.

Well today I crossed that one from the list today….well sort of. The walk used to take us 40 minutes, well today it took over 2 hours as I managed to get lost.

Vampires

It’s been a bit of a struggle over the last few months. We needed to try and break out of a world which seemed to be increasingly like Groundhog Day. It was my son’s idea, let’s go and see a rock concert. A few minutes later two tickets for the Hollywood Vampires were purchased.

This was my son’s first concert and he loved it. It was the first time that I had seen him laugh and really enjoy himself in ages.

He was just mesmerised by Alice Cooper.

He has always adored Johnny Depp and seeing him just made it that bit more special. It was also interesting that the concert paid homage to a number of rock stars who have died over the years. My son found it reassuring that you can look back and celebrate those special ones who have left us all too soon.

I must admit, it did me the world of good to. It’s the first time I have felt truly alive since my partner died. She would have loved it to, she always fancied Johnny Depp. I could never understand why she thought Johnny was so much more cooler than me.

On the drive back my son quickly fell asleep and I was desperate for a drink or a sweet. I quietly tried to fumble around the car for anything. After a few minutes I found something which felt like a small marshmallow. Strange I couldn’t remember ever buying marshmallows, but it’s a sweet. For about 10 seconds I chewed on this marshmallow, but it had no taste and just felt odd. Then that sinking feeling, that’s no marshmallow, that’s one of my son’s ear plugs which I had forced him to use for the concert.

What was that I was saying about me being as cool as Johnny…….