Posted on by bereavedandbeingasingleparent · 60 Comments

Out of focus

Spring is coming.

Have you ever tried to take a simple photo of a bush. A bush in Yorkshire. That’s Yorkshire where the sun might be out but it’s blowing an absolute howler of a Gale. The perfect weather for out of focus photography.

Out of focus.

To be fair that’s been me since 2016. Better recently but still not completely focused.

So many reasons for that but one thing stands out. Let’s go back to the summer of 2016. I’ve driven my partner into hospital for a short stay so they can conduct some exploratory tests. Our son in the back seat. What did we talk about. Can’t remember. I’ve tried but can’t remember. Probably talked about visiting and picking her up again on Friday. Probably about some jobs to be done. Maybe some shopping…..

When I returned on the evening she was sleeping so we never spoke.

I returned the next day. She wasn’t feeling too good and was having tests so I didn’t see her.

Friday I turned up and was taken to a separate room by the Doctor. Her condition had worsened overnight. The test results were appalling. She had at most a few weeks. She was drifting in and out of consciousness. If she woke then she would probably not be aware of who was around her.

That was it. No more conversations. We never discussed the new reality. The grim new future. The plans we had were in tatters. No new joint plans. As a result I’ve felt out of focus. Hesitant about my intentions. Trying to think about what we might have talked about and agreed if we had one more conversation. Guessing what she would have wanted. Trying to make decisions for the both of us.

It’s only recently that I’ve started to go fully with my views. Can I ever be certain what she would have wanted. It’s hard enough to work out what I’m thinking some days. So yes still probably out of focus but now it’s just through my eyes.

Posted on by bereavedandbeingasingleparent · 81 Comments

Insignificant

It’s a big sky. Its easy to feel very small and insignificant stood under it.

There are so many times when parenting is the best gig on the planet. Then there are other times…

I was trying to convince our son that he had washed his hands enough. He had been at the soap and water for nearly five minutes. Everything I said didn’t seem to have any impact. Finally he decided that was enough. He asked if the towel was clean and had it been washed that day. I assured him that was the case. He left the bathroom and I looked at his hands. His very red and sore skin. That’s what happens when you wash as often as he does. We are using skin friendly soap. I water it down further. But his hands are still red. I encourage him to use his skin care lotion. But his hands are still sore.

These are the times I feel inadequate as a parent. Missing the support of another person. Someone to share the load. Definitely running out of things to try. Actually ran out of things to try. His health professionals try to help but they see this intrinsically linked to the pandemic. Get the pandemic under control and we can start to bring his hand washing under control – hopefully. But that doesn’t make me feel any better as a parent. Feels like I had one job and I dropped the ball on it.

So I’m stood under that big sky. Feeling insignificant. Time to breathe. Reset and go again. Yes significant but definitely not beaten yet.

Posted on by bereavedandbeingasingleparent · 67 Comments

Red

It might look like War of the Worlds has come to Yorkshire. But it’s only an illusion. A few hours later the Martians had clearly had enough of the weather and gone back home. Definitely taking the red weed with them.

That’s an important thing to remember for me. Sometimes I get caught up in the moment. Don’t think things through properly. Misread people. See a situation one way. But after a while, when I take the time to revisit again – I clearly misinterpreted things. It’s always good to have those moments of clarity. It helps me chart the right course. Avoid the rocks. Avoid the Martian heat rays…..

Posted on by bereavedandbeingasingleparent · 71 Comments

Life snapshot

The Aspergers life can be racked with anxieties and obsessive behaviours. Additionally Aspergers can frequently coexist with OCD. Add the death of a mum and both grannies. Then on top of that you add a pandemic. Something has to give with that kind of pressure building up. That’s what our son is dealing with and it is so very tough for him. What does that mean in practice. Well here is a snapshot of life and the impact it has on him.

Every ache, every sneeze, every spot, every pain is seen as a potential sign of a serious disease or the C word. Anxieties bring on indigestion and constipation. These are then seen by him as more potential warnings of serious, life threatening health conditions. The natural response was to frequently wash his hands. It was both to cleanse his hands but also an attempt to pour water on the raging anxiety wildfire. Washing to the point of red raw skin. These issues have existed for years but slowly during 2019 slow progress started to happen. The hand washing was just about brought under control. Then the pandemic hit. The progress was instantly lost. Suddenly the months of reassuring talk a out avoiding serious illnesses, the bodies capacity to fight back and the advances in medical science are basically blown out of the water. The problems started to mount up again and escalate to new heights.

  • Hand washing every few minutes. From 15 second washing now to washing for minutes at a time.
  • A reluctance to dry washed hands as towels might be a source of germs.
  • Harmful germs are seen to exist everywhere. Suddenly it’s difficult for him to touch taps, toilet handles and door knobs. Sheets of paper have to be left next to these so he can avoid touching them directly. Even pulling on a shirt may result in the potentially unclean sleeves coming into contact with his hands. Shoes have to be put on without using his hands.
  • iPads and joysticks have to be washed frequently and definitely before he touches them. It’s the same for things like pens.
  • When he strokes his pets he will immediately run to wash his hands.
  • He needs to see evidence that I wash my hands before I touch any of his items.
  • Clothes have to be frequently washed often multiple times a day.
  • Outside he is constantly looking out for flies and flying bugs. If they come too close then he will need to go inside to wash.
  • He has to have his own seat and no one is allowed to touch it. If they do then the seat has to be cleaned.
  • When he goes out the the front door then he consciously tries to avoid walking over any areas that the postman or others might have walked across. When he comes back in them his shoes will need to be completely cleaned. If he ventures through the front gate and into the outside world then on his return he will completely strip, shower and change to new clothes. Those rules apply to me as well.
  • Mouth-washing and gargling is frequently repeated during the day.
  • Any item which hits the ground (inside or out) will need to be deep cleaned.
  • Any new food items have to go into the garage and complete a quarantine period if at least three days.

This is daily life in our little home. I do my best to reassure, reason and modify behaviours. But it feels nothing more than trying to plug a leaking dam at present. One hole maybe plugged but in the meantime another two new holes have appeared. Counselling was there but government cutbacks have taken their toll on services. The pandemic has temporarily suspended specialist help. The result is massive backlogs and no access to help. These are tough times. For him and yes me as well. As a parent you feel helpless, definitely so underprepared for these challenges. But we keep going. We pick ourselves up and go again. Yes we will get there. We will. But it will take time. Realistically maybe well into 2021. In practice timescales don’t matter, we take each day as it comes, fortified by the love of friends.

Posted on by bereavedandbeingasingleparent · 56 Comments

Needs work

Another moody Yorkshire summer afternoon. Everyday it’s such a blessing to wake to this view. No wonder my partner fell in love with this house within seconds. And as ever she was on the right side of the conversation. The ‘needs work’ line was a little weak. Actually it still needs work but that view is still here. Tell me what’s more important.

Looking back my line about ‘needs work’ was more about avoiding change. Sticking with what we had. Avoiding that leap of faith. That’s been a theme of my life story so far. I always think my past climbing hobby is a perfect reflection of life. Many goals set but never attempted. It was easier to avoid them, find excuses. Too much caution climbing routes. Using fear and self doubt as an excuse to avoid those more challenging climbs. Backing away from leaps of faith. Yes I had fun but what could have been.

Now the life safety net has been removed. Single parenting and being without that person who held my hand on those big steps. Life has changed but so am I. It’s a slow process but it’s happening. Now is the time to face some of those fears which have held me back. Time to start ditching those constraints that have grounded me. Time to re-evaluate myself. Only by doing that can I be that parent our son truly deserves. Yes the one who protects him but the one who also encourages him to truly flourish. To be that person who he truly wants to be. To live his life.

Posted on by bereavedandbeingasingleparent · 55 Comments

Thinking

During the summer months two things happen. The Sun beats down from cloudless skies….. And we get constant nosey Parker’s…..

Another largely sleepless night. A combination of a touch of tooth ache and another crazy dream. Great time to get a tooth problem as my dentist is just reopening having been closed for months. Reduced capacity and a horrific waiting list – deep joy….

Yes the crazy dream woke me up but it was so funny. Strangely featuring talking cows. I was trying to garden and the cows were helpfully chipping in with gardening tips. I hadn’t realised that cows knew so much about stuff.

While waiting for the early morning rain to stop, I was pondering life. And not just about talking cows and whether it’s a woolly hat exercise routine. I was thinking about thinking. Some of my thinking is good. Other types of thinking is not so good. It’s taken me years but now I can see this. I do have a habit of overthinking. My thinking starts good. I look at a problem or an issue or a memory. The first thoughts are constructive. How to make things better. The happy stuff. The sad stuff. What to do next. How to live the moment. How to make Son happy.

Then the overthinking kicks in. The second, third, fourth thoughts are hardly ever positive. My internal voices start.

  • What a mess.
  • I caused this.
  • I got that wrong.
  • People will be shaking their heads at me.
  • I am rubbish at this.
  • Why did I do or not do that.
  • People will think less of me.
  • I have so many faults.
  • I am going to make these mistakes again.
  • It’s going to go wrong.
  • I am a loser.
  • I look weird.
  • I talk funny.
  • Poole think I’m an oddball.
  • I am such a let down.
  • Completely useless.
  • They will be laughing at me.
  • And on and on.

Suddenly a never ending downward cycle is perpetuated. I’m spending all my energy on negativity. Living in the past. Forgetting about living today.

So yes thinking is good. But I need to stop the second and third thoughts. Stop the over thinking. That’s easier said than done. It’s a life long battle for me. One thing has got me through life. Helped ease the pain when I have fallen. That is to make sure that I never take myself too seriously. I’ve learnt to poke fun at myself. Ok it might not be great for boosting the confidence. But actually it means that I can accept myself better. It’s also a way of switching off the overthinking. Plus if it makes other people occasionally smile then it’s a complete result. In life it’s often easier to poke fun at others. I’m so not keen on that. Hopefully I will only do that when I know the other person likes it or by their self centred actions – they earn the right for a bit of parody. Unfortunately these days there are a lot of deserving targets. Just got to ensure I save the best put downs for me. You see it’s good for me.