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The third sequel

The third sequel already. The Trilogy done in one day. Eat your heart out Peter Jackson.

So this is the third instalment in the ‘what has changed over the 6 months of pandemic isolation’ saga. This time it’s what has changed for me. I guess this one is called The Return of the Kermit the Frog King. So what has changed then for me.

  • With Hawklads increasingly pronounced Social and Health related anxieties the last six months have seen a ramping up of the parenting pressures. Fewer breaks, more challenges and yes less support. In the UK small amount of support that has survived the Conservative Funding Cutbacks largely stops when kids hit the teenage years.
  • Have become a home educator. A school facilitator. A Classroom Supplies specialist. Much smirking…. After 6 months I’m still winging it.
  • I’m sleeping less. Much less. Just can’t seem to reset the insomnia cycle.
  • Certainly more isolated in terms of actually meeting people outside our little bubble. In 6 months I’ve seen family members twice, one work colleague (and good friend) maybe three times, neighbours a handful of times, the local shop workers maybe a couple of times a month, the dentist once, one visit from the boilerman, a few health workers and doctors. That’s about it. Oh actually forgot one person. The Postman, the only person I see regularly. I count his fairly frequent waves as my most regular physical contact. Luckily I have lovely online friends.
  • With not meeting too many people I’ve started noticing human life more. I notice dog walkers in the fields, cyclists, passing cars, voices from the street, even planes in the sky. A reminder that a bigger world still exists out there.
  • My conversation skills have never come easy to me. I have to work on and practice them. That’s just not happened for months. Even on most phone calls I can feel myself becoming increasingly wooden.
  • My largely unseen dress sense is becoming increasingly avant-garde.
  • I have lost 6lbs but you wouldn’t notice it. Having to resort to consuming far too much Soya (Soy) which isn’t great for my tummy. No I’m not pregnant.
  • I’ve stopped running and walking and road cycling. Must admit it’s not doing my old contact sport injuries any good. Bits are starting to seize up. So I’m trying to find my inner Yoga. Or as I call it Controlled Falling Over.
  • Work has dried up. This was supposed to be a really busy year. Lots of new jobs and major events. In practice that all was cancelled. Remains cancelled. Some plans have been put in place but really I’m not going to get much work until 2021.
  • I’m more able to fill my day without leaving our little household world. No need to visit shops daily, coffee shops, cinema, visit family or friends. I’m not saying it’s a good thing, but it comes easier to me now.
  • I do tend to overthink things now. Can have days when I do sober too much time internalising stuff. With me that’s not necessarily a good thing. It’s such a short stroll to self doubt and negativity.

Yes things have changed for me. They will continue to change as our personal lockdown is not going to end anytime soon. Potentially months more, maybe much longer. With us being an Aspergers Family that was kind of in place before the pandemic. Maybe many of these changes were already happening before the March lockdown. They have just become more pronounced. Maybe these are longer term changes. Maybe it’s much more than a three episode trilogy. Maybe it’s a permanent feature.

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Where did that go

Where did that go? Where did the summer holidays go. For so many families, where did that lockdown go? That’s 7 weeks of summer and exactly 6 months of lockdown.

We leave the summer holidays like we found them. Grey.

Many leave the lockdown as we found it. Well actually that’s sadly not strictly true here in the UK. The daily rise in pandemic and the rate of spread (R number) is actually higher now than when it forced us all into lockdown. I guess the confusion is the same. Some times it’s safe to meet in groups then at other times it’s considered most unsafe. Sometimes masks are required, sometimes they are not. Get tested but please don’t get tested. It’s safe to meet work colleagues but most unsafe to meet friends and family. There are those in high risk groups but you don’t need to worry about that. You must observe 2m social distancing but it’s ok if you don’t especially in pubs and at Horse Racing events. Don’t worry about the details it will be fine.

But for some families and households, the lockdown is most certainly not over. The Government seems to be demonising those in that position. We are being unpatriotic. Not doing our civic duty. Letting others down. As a result support is being pulled, threats made, blamed for the problems of the country and fines starting to be issued. I can assure the so called Government that it’s not out of choice. We are dealing with the reality of life. And that life is messy, complicated, unpredictable and frustrating. We have to deal with the details.

That part of life has not changed during the summer holidays and lockdown.

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Forgotten

Isn’t the human mind strange. Somethings you just can never forget. Hopefully mostly the really nice, beautiful and precious things. They are always on your mind and then other stuff just seems to instantly disappears. Not just stuff like ‘where I put my car keys’, ‘what did I put on my shopping list when it’s been left at home’ and ‘what on Earth was I thinking about when I decided to support Newcastle United’. Could be precious memories, important details and posts. I wrote a post in June and yes I forgot all about it. Poor thing just sat gathering dust in the draft folder. Well yesterday I remembered it.

Unfortunately some of the post is out of date now but at least one bit is still relevant. So here goes then. A few months late and heavily edited but I give you a forgotten post.

*********

So we have a few weeks left of homeschooling. Maybe more. Son’s anxieties are starting to mount. The government is committed to reopening the country at breakneck speed – have we really got the pandemic sufficiently under control. No sign of a vaccine. Just feels like the infection numbers will be back on the rise very soon. So maybe homeschooling will still be the option after the summer break.

As a family we have learned so much from the enforced school at home project. Most of these I have already mentioned. But one very large and ignored elephant is sat in the room. ZOOM.

All children are different. Unique. Surely the key to education is to look at each child and see what works for them. Unfortunately the UK approach is fast moving towards the production line education model. Labelled Victorian Values. One set curriculum, one set teaching method, try to minimise input costs, force all kids through the same hole and then try to carefully control the outputs. Variations are seen as very bad.

So when a teaching approach is adopted then it is forced on all pupils – even if it doesn’t suit them.

In terms of our son it’s clear that he functions best at homeschooling when he is given research to do, watch videos, complete online questions. He works in short bursts. Maybe 20 minutes max of concentration then a quick walk about or something to reset, then he goes again. The initial home at school approach allowed for this. So it worked. But that’s starting to change now. Lessons are increasingly going ZOOM. Online video conferencing classes. 80 minute lessons. Teacher and pupils sitting in front of a video camera. The teacher can see what every pupil is doing. The other pupils can sometimes see but always hear what their classmates are doing. Senior teachers are reviewing each class to check for inappropriate behaviour and lack of effort.

Now this approach will work for some pupils. But not all. Our son hates being filmed. He hates to see his image on a screen, he hates to hear his own voice coming out of the speakers. He cringes at the thought of other people being able to see him. Sitting still for 80 minutes is a significant challenge for him. In a class setting he won’t ask questions, won’t put his hand up. Will just freeze and be filled with anxieties. Basically ZOOM teaching is currently just about the worst teaching approach for him. It just won’t work. But that’s the set teaching method for some classes now. He just has to do it. His marks are lower in those classes. How can this be effective, modern teaching…..

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Line them up

Well the nurse counsellor did arrive. At the height of the storm. Due to working restrictions she was not allowed in the house. So it was plan b. Move my car next to the counsellor’s car. Windows down and you have a mobile meeting facility. The session went well. The counsellor seems really good. It’s a start. Start of a long road. But a start it is.

He will now get appointments every two weeks now. Let’s hope progress can be made. The counsellor is also going to write to the school to confirm that he is under health care at present and is not medically cleared to return. Hawklad has come to the conclusion that he just can’t go back to school at present. Even with professional help now, this could take many months before school might become a possibility for him. Until he can feel be reasonably comfortable being around people and ok to touch surfaces then school is but a pipe dream. Will he ever go back – just don’t know.

The Deputy Chief Medical Officer yesterday said that schools were perfectly safe. Apparently children are more at risk from road accidents than from catching the virus. I can’t think of many more insensitive ways of making a point – that’s going to really hurt those families who have lost loved ones on the road. I’m also not entirely reassured by her words. I remember a few other of her words over the last few months

  • The Government response to the pandemic has been exemplary……
  • The UK pandemic approach had been very successful……
  • Large Public Gatherings and Sporting events are perfectly safe, no need to stop attending them. That was at a time Europe had banned those and a few days later we did the same. She even encouraged people to attend the countries largest horse racing event just a couple of days before the country went into lockdown – the infection spread from that event has been scary.
  • People should be more adult when they discussed PPE shortages. It wasn’t such a big issue for healthcare and care workers…..
  • The UK didn’t need to test, test, test for the virus as we were a First World Country.

We all want to get schools open. But it has to be done correctly. Just grouping kids into giant year group bubbles then squeezing them back into cramped classrooms with at least 30 other people isn’t good enough. Asking kids to wear masks on buses, sometimes in corridors and not in classrooms is just a mess. Not exploiting online education to ease some of the space issues is a massive mistake. Only offering testing after the virus has been encountered just repeats the mistakes we have repeatedly made as a country. We’ve had months to get this school return right.

I really feel for those parents and children who are returning to schools. For some it is a easy decision and the return can’t come quick enough. For others it is not easy. For those with underlying health conditions it is a calculated risk. For us that decision has probably been kicked into touch for a while longer.

Don’t you just love 2020.

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School

The rain had cleared for a few moments. But some things are still unclear.

Hawklad is still to decide if he will go back to school on the 14th September. With all his anxieties any return will be so very tough for him. Maybe too tough. But ultimately it’s his call. I’ve let school know about the issues but they don’t seem to be proposing any accommodations for him. But I guess there are a few weeks to go.

The other thing I have raised is what happens if he is not able to return. Still registered with school but unable to attend classes. How would he keep up with the course work. Unfortunately the really good school online education system will be switched off. Switched off to encourage parents to send kids into school. The initial dialogue with the authorities seem to be – well if he doesn’t go back then tough – that’s your call. Your responsibility to arrange education until he returns to the classroom. Thats the approach being set by the government. Online school tuition will only be switched back on if the school is forced to close again.

So many things to think about. But one clear message from the Government. Send your kid into school or you won’t be getting any help from the system. In fact schools will be expected to fine parents for keeping kids off. Could be a stormy few months.

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5 things about death.

That kind of weather day. Moody, cloudy, wet, windy, cool. Five things completely associated with a Yorkshire Summer’s Day.

A few days back I did a post about five unexpected things to do with the pandemic. Well let’s do another one.

Five unexpected things I encountered during bereavement. Could do a huge list but let’s just try to pick out the five main ones.

    Just how much paperwork, leg work and phone calls you need to make in the weeks leading up to the funeral. Speaking to the hospice and hospital. Letting friends and families know. Registering the death. Trying to sort out joint bank accounts. Solicitors. Informing government agencies. Cancelling cards, subscriptions, memberships. Returning work assets. Selling a car. Pension authorities. Tax authorities. Changing things like house deeds. Changing insurance cover. Booking a funeral. Arranging the service. Inviting guests…… And on and on. This is all at a time when you are at your lowest ebb.
    Just how quickly the phone calls and visits dry up. Within weeks your suddenly alone. No more checks to see if you are ok. You’ve stopped but the world has kept turning. That’s when the mental health issues can really kick in.
    One person down and just how empty the house feels. Deathly quiet. Too many empty spaces. A very empty bed and sofa.
    Just how many times your mind plays tricks on you. Going shopping and you still buy stuff for the person you have lost. When you make meals you automatically make one for your partner. You drive back home and see your partners car in the drive – the first thought is too often – wow she’s home early today.
    Just how long the the legal side of the death can drag on. In my case the Will took well over a year to be finally signed off by the tax authorities. One bank account took two years to be finally transferred into my name. The telephone and TV accounts are still in joint names – given up trying.

I guess the message is that it’s going to take you to the depths of despair. It’s also going to be a bureaucratic nightmare. You just need to prepare yourself for the long hall. But there is stuff that helps. An empty, deathly quiet house is easily fixed by a mad puppy. If you know someone who is going through loss then why not phone them or even just send a card, especially if it’s a few months down the line – they probably really need the thought. Accept any help when it’s offered – you don’t need to do this alone. Take your time doing this – you don’t get a medal for completing as soon as possible. You need to spend time focusing on yourself, you really do.

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Castles

There’s an old expression here which says

‘An Englishman’s home is his castle’.

It was actually enshrined in common lawn 1628 and basically means ‘a persons home is their refuge’. Over the years it has often been cited by the right wing as justification for the principle ‘I can do whatever I like in my own castle, that includes stuff like smacking kids, shutting down public rights of way, hunting animals, mistreating people and using whatever weapons I like to defend it’.

I’m against all those activities but the law does have its advantages. I can take on the right wing interpretation and use it to say – STUFF YOU BORIS – inside my castle your stupidity, oversized ego and corrupt government can’t touch me – I’m just going to ignore ‘YA GREAT BIG PUDDING’.

In my castle I also can get away with wearing lime green compression socks and pink shirts. It’s my right…. Nowt the law can do about it.

And the other thing about a ‘home is a castle’ is that some castles are bigger than others. Much bigger…. Some are even big enough to be used as Harry Potters school in the movies.

But there is another positive element to the castle home idea. Because of circumstances many people need those castle walls. The feeling of safety which comes from pulling up the drawbridge and being inside your own space. That certainly applies to my Hawklad with his Aspergers.

So here’s to everyone’s very own castles, whatever size and shape they may be.

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Tomatoes

It’s taken long enough but at last some tomatoes. For some reason they are about a month later this year. Blame it on 2020. But at least it’s a start.

This morning I had two firsts. To start with, I managed to do a weights move for the first time ever. Instead of using two hands to pick up the laden weights bar and push it over my head, I did it one handed. It’s not clever and a little reckless, but it’s certainly cool when you do it. Never been able to do that before.

Then I finally managed to correctly transition some yoga moves. Normally when the video instructor says carefully transition – that involves me falling on my face, crashing into a wall and swearing lots. Today I was almost ballerina like. A ballerina with hairy legs…

It gives you a lift when you finally achieve something. We all need that from time to time.

I was going through Hawklads school notes today. He’s made great progress, certainly in the time he’s been school working from home. But what concerned me was the lack of progress I was making with the school authorities. It’s been 18 months since I made any headway with them. Just seem to be stuck. Can’t get any more support for him. Can’t get the school to try new teaching approaches with him. Can’t get the regional education authorities to send in a dyslexia expert. Can’t get the authorities to show a little flexibility with his education funding. Basically it’s the set teaching programme, with any additional financial support he’s been awarded just been used to fund general teaching support budgets for all the kids. The so called special funding basically buys a kid with additional educational needs a place at a school. The Government is quick to point the finger at families getting additional schooling funds

– we are taking money off other kids,

– it’s the gravy train,

– waste of tax payers money,

– it’s wasted funding.

Yet what the Government never seems to mention is that the families never see that money. We can’t control it. It is basically recycled into general school budgets. So the kids who need it actually don’t get any direct benefit from it. Sometimes the fundings only purpose seems to be to just shift the blame for school failings away from the authorities and on to a minority of families.

So yes some education progress is needed. Either that or for Hawklad to elect to be educated from home. But progress would be nice.

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1000 odd days

This is a photo from 3 years ago. I stumbled across it while looking for some old climbing ones. Another typical Yorkshire August day – all four seasons in one day. It got me thinking – what’s the same and what’s changed in those 1000 odd days. See that’s what a professional accountancy qualification can do for you – I’m good at those complicated adding up calculations.

THINGS WHICH ARE THE SAME

  • Getting no dyslexia support from school,
  • Getting no Aspergers support or accommodations from school,
  • Still bereaved,
  • Still a single parent,
  • Still a metal head at heart,
  • Hawklad is still a lovely character,
  • No holidays, no Switzerland,
  • Pets causing chaos,
  • My football team is still useless,
  • Still see myself as European,
  • Brexit is still a shambles and a monumental exercise of self destruction,
  • Vegetarianism,
  • Can’t cook,
  • Still exercising,
  • Still 5ft 10 and a half (don’t forget the half – it takes me beyond average height),
  • Still not climbing,
  • Still can’t work out the TV remote control,
  • The garden is still a mess,
  • Still don’t like U2,
  • Still haven’t seen Avatar without falling asleep,
  • Haven’t seen my brother even though we live only 50 miles apart,
  • The garden gate still needs fixing,
  • The washing machine is still possessed,
  • Still having bought myself that ginormous telescope,
  • The blog is still going,
  • Still writing about the same stuff,
  • Still waiting for official recognition of my stellar poetry skills,
  • Still haven’t won the lottery,
  • Still losing my car keys.

THINGS THAT HAVE CHANGED FOR THE WORSE

  • As Hawklad has reached the teenage stage many of the health support packages have been removed,
  • The waiting list to see The Paediatrician is now approaching 2 years,
  • A pesky pandemic,
  • Hawklads anxiety levels,
  • Hawklads isolation from the world and other kids his age,
  • Due to circumstances had to stop running,
  • Boris,
  • Trumps antics,
  • Might be a metal head but the days of skin tight jeans have gone,
  • Lost a couple of much loved pets,
  • Don’t really see my sisters anymore,
  • School’s view of Hawklad – definitely revising his perceived ability levels downwards,
  • The number of times I have to shout or pull my hair out at school is rising,
  • I’m physically meeting less people,
  • The list of things on the ‘need sorting out when funds are available‘ is growing.

THINGS THAT HAVE CHANGED FOR THE BETTER

  • Hawklad understands himself and his Aspergers much better now,
  • Hawklad is overcoming his dyslexia,
  • I understand now that it’s just as ok to Laugh as it is to Cry, YES it’s ok to live,
  • Friendship
  • Close Friendships,
  • Faith,
  • Love,
  • Happiness,
  • One step closer to home schooling (hopefully),
  • My dress sense – I finally chucked out some of my pink climbing shirts.

You might be thinking that looking at the relative number of entries on these lists that the last 1000 odd days have been generally bad. But look at some of those things on the last list. It’s not about quantity it’s about quality. Yep looking at that last list, over the last 1000 odd days we have challenges but some really good stuff has still happened. That’s why there is always hope.

Posted on by bereavedandbeingasingleparent · 82 Comments

World leader

Patience. Apple Crumble will eventually be on the menu. Just need to wait.

So today the news is filled here with stories of thousands of kids getting exam grades downgraded because of a statistical algorithm. The UK Government backing the decision as the don’t want ‘kids being over promoted beyond their abilities’. The irony – coming from a Government filled with the most incompetent, over promoted, out of their depth numpties this country has ever seen. Our kids deserve better than this.

“Dad how unfair is that. That year group is not allowed to sit exams. So they have to go on schoolwork and what the teacher grades the kid at. Then they randomly drop the grades because they don’t think they deserve it. It’s just not right.”

It’s not fair. Especially as they are not doing the adjustment to kids going to Private Schools.

“Dad is there anything Boris and his team has actually not messed up. Pandemic, brexit, exams, sending warships after immigrants in rubber dinghies, food, trains, environment, schools, hospitals. I might even blame them for the weather.”

I can blame them for my team not winning a domestic trophy since 1955.

“No that’s just cos Newcastle United are rubbish.”

Ok but I can blame them for the state of the garden and the tomato plants.

“No Dad that’s down to you.”

Fair point but surely Hawklad, I can blame Boris for my burnt baking.

“No that’s the muppet baker.”

This is not going well…. I blame Boris for allowing a Sith Lord to be in charge of the country.

“That’s Cummings is it not. He does look like an evil villain. It’s scary that he tells the PM what to do. I will give you that one.”

It is scary. But not as scary as the thought of Boris being PM.

“Even you would make a better leader. Now that’s a thought. You could be this countries first ever tea total, vegetarian, single parent, Newcastle United supporting, useless cook, world class muppet ever to be our PM.”

That would be an honour.

“Even better your place in history would be guaranteed. The worlds first world leader called Gary….”

The world needs a hero, it needs a Gary…..