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Names on Christmas Eve

Christmas Eve has been very damp and exceptionally grey. No colour at all. So it called for some colour from a couple of weeks ago. Today this is as colourful as it gets. I can’t think of a name for this at the moment.

As I’ve got older I’ve become more used to dealing with the inevitable life curveballs. But not completely. The dreaded demon curveball still gets through.

Dad if I had been a girl what would you and mum have called me.

I couldn’t remember and that’s a great start to 24th December. My defence is that we found out very early on in the pregnancy that it was boy names only. But I still should remember that. Those fun brainstorming seasons for two unprepared newbie parents in waiting. But nothing. It felt like I had let down our son and lost another important link with my partner. It hurt. It hurt like mad. Yes you can hurt at this time of year. Sadly so many do. Sending everyone of you a hug.

To try and clear my head I went outside to do my odd outside thing. Push a wheelbarrow around the garden a few times. It’s hard work but that’s the point. In the middle of the garden was a stray Santa’s Hat – presumably courtesy of Captain Chaos. So as the effort started to do its job I donned the slightly soggy hat. Wheelbarrowing in the rain. Like to see Gene Kelly’s face if that was the song he was given all those years ago to dance to. Wheelbarrowing in the rain did its job. Mind reset. I have one job and that is to make our son happy. Make him happy this Christmas. Need to get back to my A Game.

“Son when was the last time you had whip cream direct from the canister into the mouth”

Never Dad.

“Well you are now”

So that’s what we did. Soon this was escalated to shaving foam covering my entire face. It kinda suited me. Still no George Clooney but a vast improvement. A look all the more better for the sound of laughter filling the house.

Dad do you fancy a first to hit the crossbar challenge.

Followed a few minutes later with

Dad you do know it’s first to kick the ball onto the goal crossbar not first to repeatedly kick the ball into next doors garden challenge

As I spent a quite a bit of time retrieving the football from next doors garden I got to spend a bit of time noticing how a garden should look like. Very neat and tidy with immaculate lawns. Well almost immaculate. A couple of ugly holes courtesy of an escaping Captain Chaos. That’s compared to our garden which is more akin to a ploughed farmers field courtesy of moles, son and CAPTAIN CHAOS. Maybe 2020 is the year of the NEAT GARDEN. More likely it’s the year of the NEED A NEW GARDEN. So as the ball sailed over the hedge again son shouted.

Dad what would you call me now if I was a girl.

This time the curve ball missed.

“Laa Laa Po Dora the Explorer Elsa Tinkerbell”

Really Dad. All those names.

“No son Dads fibbing.”

Good I was getting worried. It’s a joke then

“Yes”

Maybe you could call me either Daphne Blake or Velma Dinkley

“Jinkies that’s a good idea”

So a day that threatened to be scuppered on a girls name ended with laughs about a girls name. Like many folks I operate on such fine margins. With so little separating happiness and sadness. I really hope this Christmas you find happiness.

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Kings, Queens and Telly Tubbies

4am When the world hopefully sleeps.

The bedroom door bursts open.

Sorry Dad can’t wait to ask. If you had to be related to a king or queen which one would you most want it to be and which would you be most embarrassed to be associated with.

Erm top of my head probably Queen Victoria and probably not mad King George III. How about you son.

Henry V would be so cool but he only had one child and he was pious so it’s not likely. Many would say King John as one your embarrassed with as he is seen as the most useless one but he was actually not as bad as that. Henry VII probably as his claim to the throne was illegitimate. Night Dad.

I then I had a bizarre dream about being late for a meeting with the Queen. A meeting which was to happen on a train in a random rainy town. And I got lost. At least Son had not asked about my favourite Telly Tubby. Getting lost on the way to meet my favourite Telly Tubby would have been a dream too far.

So at breakfast I decided to continue the historic theme. I convinced son to have a trip to see the beautiful ruins of a local Abbey. He wasn’t convinced but finally we set off. I really should stick to my level. The Telly Tubbies. We arrived to find the site closed until March and that knowing look from son. At least we got a few lovely views from the outside.

I gave our son the option of extending our trip but he just wanted to go home. Too many people about. That’s becoming an increasingly common comment from him. As the months go by he finds it harder to deal with social contacts. He can still cope with rock concerts. It’s because he thinks they are still very inclusive. Doesn’t matter what you sound like, dress like or look like – your just accepted. No condescending looks. It helps that it’s dark and noisy so it’s unlikely anyone will talk to him. He was also ok on our recent train night but that was onboard the train. Luckily no one was sat opposite us. On the platform he struggled. We basically stood inside a coal shed until we could board. He had been ok with the cinema but now if the screen has more than handful of people in then he can’t watch the movie. We were going to see Jumanji but the screen was half full and that was the end of that. At school he’s just not happy. The crowded school bus is becoming impossible for him. You can see the change in him when he’s back home. He’s confident and happy. Outside he’s nervous and wants to hide. As soon as we leave the front door his hood goes up.

I remember a conversation with a really good Child Psychologist who worked for a time with him. She thought that his social difficulties may well become more pronounced as he became a little older. She had worked with a number of kids a bit like our son and they had all found mostly happy life’s. But isolated life’s. One or two friends and some family contacts allowed into the inner sanctum. Pets and animals definitely. But the rest of the world – preferably not.

It’s early and things may change. He will follow his own path. I will be there as long as I’m needed. But it’s his own path and he needs to find the type of world he’s most contented with. A closed abbey with a handful of walkers being too busy is potentially an indication of the direction of travel. If that path takes us inevitably into a more isolated world then so be it. And for those interested my favourite Telly Tubby was Laa Laa.

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Music at Christmas

Christmas and Music go together. For some it’s carol singing. For some it’s festive number 1 pop hits. For some it’s relaxing classical music. For others it’s LOUD rock music.

The last week has seen not one but two concerts.

The first required a trip over England highest motorway to the other side of the country. To Manchester. This was to see Sons favourite band Alter Bridge. On this night they were supported by the wonderful Shinedown.

Lots of people but thankfully son coped well but it did require the full hood for the entire night.

Dad did his normal trick of keeping the ticket costs manageable by buying discounted restricted view tickets. It’s interesting that in our restricted view section it was mainly families. All probably dealing with the same financial concerns.

Son really really enjoyed himself.

Then 2 days later we had another concert this time in our local city. We don’t often get decent bands but it nice when we do. This time it was The Darkness.

Such a good night. Very loud and they are so entertaining. Very loud and very funny. They even did a Christmas song. The band wouldn’t start the song until they could see everyone holding hands with the persons next to them. Son was ok as he had me and his uncle. Meanwhile Dad had a liberating few minutes holding an enormous bear sized hairy bikers hand.

I often talk about how tough Dyslexia is. The problems it can cause. But occasionally having a young son with dyslexia is a much needed parenting help….

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Long term project

Another grey day. Cheating a bit here. This photo was from yesterday. I never got that far today…

This morning the mist was much thicker. This time it was freezing fog. That awful stuff where all the dampness turns to ice as soon as it touches the ground. An invisible layer of sheet ice. Perfect running conditions. Not.

After two hundreds yards I had landed on my backside twice. The second including a beautiful slide into a road gutter. A third attempt ended 50 yards later as I went face first this time. Somehow I did a beautiful front somersault and landed on my feet again. Quickly looking round to see no one had witnessed my MVP sporting moment of 2019. That was it. An abandonment. A wise abandonment as I slipped over a couple of times on my short journey home.

It was so frustrating. With the Christmas School Holiday starting Friday I only had two more running opportunities left. After that the next run will be several days into 2020. But it is what it is. Hopefully a run tomorrow then I will make the best of home based exercises. At least for two weeks I won’t be running around like Bambi on ice. In my case that’s not a pleasant image. Especially as it’s from a time when Bambi has let himself go a bit….

While I was mind numbingly bored on the exercise plan b option. The exercise bike. I started thinking again about bereavement and grief. Looking back I recalled that for ages I was not able to talk about the circumstances surrounding my partners death. Every time it came up I broke down almost immediately. Now when I talk about it I’m almost very matter of fact. Almost devoid of emotion. In an hear a few cry so your over it now. Yet the other emotional triggers still set me off. Anniversaries. Special Days. A movie moment. A song line. Moments alone. Stressful times. An unexpected find.

It’s almost as if I have accepted her actual death but I haven’t accepted that she is no longer here. In reality I am so lucky. I have so many memories and her precious son – our son. I will gratefully run with them. Yes I’m going to fall. Going to fall often. But I need to pick myself up and treasure what is still left. This is a long term project.

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Christmas Diaries 1

It’s been a grey moody day. It never once looked like clearing. At least it didn’t rain for a change.

The zero based hours contract gave me me three hours work today. For the next couple of weeks any work demands will be minimal. Not great for the bank account but it allows me to now focus on our son. So with a couple of days before the school breaks up – Christmas is about to start in earnest. So an early warning. You may get a few Christmas Parent Diary entries coming your way. Hopefully most will focus on the happy side of life. It almost certainly will feature a few cooking disasters. In fact let’s sort the first diary entry out right now.

So after the work dried up it and the grey run was completed it was time for a bit of baking. Time to make a stunning gluten free stollen cake. A few chaotic shopping trips had stocked up the larder with all the ingredients. This time it’s going to be baking heaven. Hang on a minute where’s the marzipan. As I love the stuff I bought 4 slabs worth. But where are they. Absolutely no sign. Don’t you just hate it when that happens. No problem I will just pop to the local store. Don’t stock it but they did have infeasible amounts of glazed cherries. So off to the supermarket. How can a supermarket run out of marzipan. How can the only other store reasonably close by also have none in stock. I gave up so let’s just make a Christmas cake. Three hours later I’m looking at a baking abomination. Crispy on the outside, undercooked on the inside and a ginormous sinkhole at its centre. The birds will eat well tomorrow.

So ends the first Christmas diary entry. But let’s do the diary preface now.

Christmas can be lovely and fun but wow can it hurt. It’s one of those times which naturally draws you to what you have lost. I was reading a blog which talked about this in such a haunting way.

All aboard! The holiday struggle-bus is pulling into the station, and I’ve got a ticket to ride.

That bus hit me yesterday. I was simply wrapping our sons presents up. Instantly I’m taken back a few years. Christmas music on. A couple of glasses of wine. My partner a ninja master at unwinding the cellotape and securing the edges of the wrapping paper. Unbelievably I was an expert at finding the best way to wrap the presents up. The perfect production line. So effective and so loving.

Now I sit on the floor with a tea and whatever is on the radio. To be honest I’m not listening. The presents are still being wrapped well but the cellotape has won the battle royal. It’s wrapped around my fingers, on my clothes, stuck to furniture and yet refusing to go anywhere near the wrapping paper. Love and happiness replaced with frustration and sadness. It’s never going to be like it was. That love is not going to be replaced. Those shared dreams are binned. It’s a truly sickening feeling.

It’s so easy to forget that this can be such a tough time for so many you are bereaved. For so many in pain. For so many without anything. For so many who are lonely. My heart goes out to you. You have a soulmate here.

Yes over the next few weeks this blog might get a bit silly. I really hope it does because it shows that I’m doing my only important job. Trying to make Christmas as fun as possible for our son. But underlying it will be someone still grieving what has been lost. My hope is that some of that Christmas magic which hopefully is enveloping our son will rub off on me. Showing that you can grieve but it’s still possible to have fun. If it works for me I really prey it’s rubs off on you as well.

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Northern Lights Express

General Elections in the middle of December are unlikely to be conducive to establishing that festive feeling. So we arrive at Friday the 13th are still no thoughts of Santa. So action was needed. Time for a train journey

A train journey with a difference. The Northern Lights Express on the North Yorkshire Moors Railway.

The North Yorkshire Moors Railway is an historic 18 mile line that runs across some of the most beautiful countryside in Britain. It’s a not for profit charity with its daily operations carried out by volunteers. It has a fleet of historic steam and diesel locomotives. It is special to our son as his Grandad helped establish the Trust which eventually reopened the line in 1973.

So on this night. The entire outside of the train was decked in lighting. Inside decorations and mulled wine. Son tried to convince the nice volunteer to let him try the wine. But she resolutely stuck to her guns

“Sorry your just a few years to young. Maybe your Dads old enough to buy one”

His reply made me crawl under the table.

Look at his thinning hair on top. That’s tells you he’s way past 18.

The fairy tale story was told and we board the train.

Look out the window at the magical looking forests while listening to Christmas music. The announcer lets everyone know that the Driver has spotted some magical creatures ahead. The carriage goes over a bump in the track and Son instantly informs the carriage that ‘the trains just hit one the magic creatures’.

Then the creatures appear in the forest.

On the return journey it’s a Christmas Quiz and a Sing Song. That’s the first time this year I’ve tried to sing a bit of Wham. The first part of the journey pulled by a B1 Class Steam Engine built in 1947.

The engine pulling the return trip is called Sybilla and is 54 years old.

The election is forgotten for a while and yes it feels a lot like Christmas now.

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Pink

Colour hanging grimly on in Yorkshire. This is an oasis surrounded by unremitting greyness.

Truly dreadful weather day. The wind has been blowing horizontal rain at the back door all day. Currently on the third towel trying to keep the utility room dry. It’s a bit of a losing battle. Let’s hope it’s the only losing battle today. I went to vote straight after the morning’s school run. Let’s leave it as that. Tomorrow will either be a hopeful post or a monumental rant of a post. You have been warned.

I’m writing this as son sits on the sofa watching a documentary on his tablet about Auschwitz. Yesterday he watched a few videos on the plight of the Palestinians. Puts everything into perspective. The fact that the youth of today watch this gives me hope for the future. Let’s hope we leave the next generation with a habitable planet so that they can mould a far better world.

With work for the day completed I set off for a run. Better described as a splash. Wow it was wet. After a few miles my poor hands were frozen so I foolishly put them in my waterproofs pockets for a warm. Rather than finding a haven of warmness they found a hidden pool of cold rain water. Lovely. I’m pleased that I opted for shorts. Not sure I fancied my leggings shrinking. My mind goes back to a mountain marathon during my university days. A six hour night drive to the Highlands of Scotland ready for the 9am race start. Everything was going so well until we arrived and changed for the race. I had forgotten my shorts. 30 minutes to the start time and the nearest sports shop was 20 miles away. The strange looks I was was getting as I walked around the runners saying ‘have you got a spare pair of shorts’. Looking like I would have to sit out the race when my race partner came to the rescue. ‘I can wear my shorts and you can try to use my leggings’. The problem was my partner was called Suzanne and she was somewhat more petite than me. To much laughter on her part I squeezed into the tight leggings. I was the only male competitor running in bright pink. It was also the only competitor that completed the race in with tears. Must admit the constrictor leggings did wonders for my dodgy hamstrings. But since then tight leggings have gone nowhere near my nether regions.

With my wet run completed it was a quick change and off on the school run. As a I arrived a very sodden Son trudged across the car park still in his sports gear. You could see him shaking with cold and the water dripping off his clothes. With the car heating full on he tried to get changed into his dry school uniform.

*****

“You’re drenched why didn’t you get changed out of your wet kit”

I didn’t want to risk it. We only get 5 minutes to change. If we are not out in that time you get a negative from the teacher.

“Have any kids been given negatives”

Virtually every week at least one kid gets a negative. It’s unfair especially as it’s the last lesson of the day.

*****

And another telephone call will be made to school. Five minutes. When I played football it would take me at least 10 minutes to get changed. It took five minutes just to prize my constrictor pink leggings off my butt all those years ago. Five minutes sounds tight before you factor in Aspergers and Dyspraxia. Getting changed does not come easy to him. School have been told this on several occasions by me and in writing by the Paediatrician. So much for the school making positive adjustments to make his school life comfortable and enriching.

It’s the frustration felt by far too many children and their parents. Everything has to be fought for. It’s a battle to get a diagnosis in the first place then the real fight starts. Trying to get any positive adjustments and help. As much as the media try to paint a different story … we are not looking for special treatment … we just want our kids (all kids) to get a fair chance in life. Is that too much to ask for.

*** late addition *** it WILL be a monumental rant….

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Best thing

Some days life needs lots of words and some days it just needs a few.

I was going to reflect on how difficult the school bus journey can be for so many kids. I will leave that for another day. I picked our son up from school the other day and he came up with this gem.

“Dad that’s some sky. It’s a sky show. That’s why life is the best thing”.

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Cheap

Hard to believe that 10 minutes later it was absolutely chucking it down. Maybe we have already had our summer sun for 2020.

So the week ends with two wins

  • School has confirmed that punishments like negatives will only be issued for poor behaviour or standards. They will not be for poor test scores. Son will still sit the spelling test but most of the stress he was under has been removed. Yes he still does the test but now he doesn’t have to worry about being punished if he struggles.
  • The NHS has agreed to another block of physio to try and help with his fine motor skills. He now has a new named Physio. Hopefully she will last longer than the last two. One lasted a session the other didn’t even last long enough for a session.

We take the rare wins and continue the fight.

Unfortunately our old electric kettle gave up the fight. Yes we must live in the posh end of Yorkshire as we have electricity on tap. But the kettle has brewed its last cup. As John Cleese would say ‘it’s shuffled off its mortal coil, run down the curtain, joined the bleeding choir invisible, it’s an ex kettle’. So off I went to buy a new one. The nearest supermarket had sold out of all kettles. Clearly it’s the gift of choice this Christmas. So I ventured into the main electrical retailer for our nearest city. In the UK it’s the one that sounds like a spicy dish.

I have never seen so many kettles. You can buy virtually any colour to match your kitchen. Strangely I didn’t see the The RATHER CAT PAWED SLIGHTLY FADED MARIGOLD colour. You can get clear ones so that you can enjoy watching water boil. Ones which look like Darth Vader. Ones which play music while you wait for a hot drink. WIFI enabled ones that you can control from your living room. Voice controlled ones (bet it’s like everything else – it can recognise 300 languages yet it can’t understand the Yorkshire accent). Even a kettle that you can set the temperature of the water it produces (erm isn’t that just the boiled level – maybe it goes to nuclear temperatures – that would allow the Pot Noodle to be ready in seconds).

One problem. How much…. I am not paying the neck end of £50 to £100 for a kettle. Certainly not paying £180 for something called a Smeg…Suddenly I was pounced on by the salesman trying to sell me the latest expensive model. The look of distain on his face when I said.

Have you got the basic model in stock.

“You mean the £5 one”

That’s the one.

“It’s very basic sir”

Does it boil water

“Well yes”

Well that meets the spec then.

“Most people are upgrading their kettle options these days.”

***Why am I starting to panic. Embarrassed about not buying what everybody else is buying. Then I did a Trump and Boris. Sadly I told a fib.***

Its just for our caravan which we only use a few times a year.

***why did I just say that. I haven’t been in a caravan since well into the last century***

“Oh I understand sir, it’s perfect for that”

***and off he went to find the basic kettle safe in the knowledge that he wasn’t selling it to a cheap skate or God forbid – a poor person***

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More rain

And still it rains. And rains. And rains.

And still it rains at school.

French Homework is to complete a crossword. A French Crossword. Marks will be deducted for incorrect spellings.

Dad I can’t even do a crossword in English never mind French. I can remember the sounds but I can’t spell the words. The Teacher knows this but just says I have to try harder.

And we have more…

Drama Homework is to complete an acting related Word Search Game. Really. Very early on his previous school it was identified that he could just not do Word Searches Tables. The Psychologist who looked into this established that for some reason he was not able to visualise letters and collections of letters if they were printed diagonally or backwards. On top of this his dyslexia just made identifying words difficult. As this was stressful for him it was strongly recommended that his education did not use word based games. Fast forward a couple of years and his current school now requires him to do word searches as it’s the set task for the class.

I can see the point of a French Crossword for some kids but how is a dyslexic kid expected to complete this. Has our school system become so inflexible that we can’t just vary the teaching programme a little for each individual child need. Clearly not. The Government is committed to this Factory/Production line model of education. That’s for State Schools. Private Schools have more scope to flex the teaching programme. Unfortunately many can’t afford to go Private. But that won’t bother Boris and his buddies. As long as the chauffeur driven car turns up and the expensive wine keeps coming.

Ok I can see the point of a crossword for French for some BUT… What is the pigging point of a word search for Drama. I guess it’s all part of the Government’s drive to make every kid spell correctly the defined key words. Spelling is given a higher profile that actually understanding what the word means. Maybe I’m wrong. Maybe the best way to develop the next Orlando Bloom, Keira Knightley, Anthony Hopkins, Robin Williams, Whoopi Goldberg and Tom Cruise is to focus on spelling. Oh hang on a minute these have dyslexia as well. So no I don’t see the point.

We just set too many of our kids up to fail. They see other kids repeatedly praised for great spelling or neat handwriting while at the same time they are just told to try harder. How demoralising is that. A phrase you hear often is that kids with learning difficulties have to try super hard just to keep the perceived learning gap from widening. DAMM RIGHT THEY DO. Too many kids are forced through the same stereotyped classroom hoop. Never given a chance to demonstrate their unique skill sets as these are not in the areas deemed valuable by the Government.

Too many kids have been failed by our society. It’s not as if our society is particularly successful or sustainable on the back of this. This has to stop. When it does stop and we start allowing all our kids to grow – just take a few minutes to think how good this world will become. That is a hope worth fighting for. That is a hope worth voting for.