Posted on by bereavedandbeingasingleparent · 66 Comments

Worn out

It’s a cold, bleak start to the day. Kind of feels like a black and white photo is the way to go.

I was thinking about how a break would be most welcome. Especially today.

We all need a break every so often. Either a change. Or a time to relax. Or a chance to really let the hair down. A chance to experience new lands. Or just a time to breathe.

Don’t get me wrong. I know that I am so fortunate with my life. Far too many have so little and are in such dark place. But today I’m feeling just a little worn out. Tired. Thinking back to my last break back in 2015. A lots happened since then. Some good but some really bad. Since 2016 it’s been single Aspergers parenting, fighting the system for our son and trying to eke out an income to pay the bills. Feels like it’s been non stop. A few concerts with Hawklad and taking him to see the occasional sport event. A few walks and up to this year, trail runs. So yes things to be thankful for. But…

But today I just feel worn out. In need of a break. Even just a night away from the house. A different bed. It’s been over 5 years since I’ve done that. But deep down I know that’s not happening any time soon. Asperger parenting is something that you can just can’t drop. Certainly not for a few more years. Maybe longer. So it’s about finding other ways to feel less worn out. Exploiting the options that are open to me and also being thankful for what I have. There are such beautiful things in my life.

We can do this.

Posted on by bereavedandbeingasingleparent · 50 Comments

Plague Island

So that’s the shopping done for the week. We are now officially closed for Christmas. Time to get behind our fence and shut the world out for 7 days. Or longer if we are plunged into a Tier 4 lockdown (more of the country will go that way on Boxing Day apparently).

So it’s Christmas Eve on Plague Island. It’s not entirely sure if its a virus related Plague or a Plague of self absorbed, imbecilic, on the take, cretins apparently running this country.

We have enough food and drink to last us weeks. We have enough options to cobble together a couple of special holiday meals for two. Certainly not Plan A or B food options, but the C menu will be just fine. Actually with my Thanos like cooking skills at the click of the fingers any food taste can be suddenly turned to dust. So it really doesn’t matter in the end.

A few days of being an island cut adrift from the world has started to take its toll. Hardly any fresh fruit or veg in the store. The stuff which is still there is getting snapped up instantly. No chocolate ice cream. I will say that again. No chocolate ice cream. Oh the humanity….

But in the scheme of things. We are so fortunate. Too many are not so lucky.

So we are lucky to be on the right side of our fence. Hawklad is definitely not on Santa’s naughty list. Me – I’m not so sure. Yes the weather is horrible but actually if you close your eyes, the sun will still shine.

Yes it’s alright in this side of the fence, living on Plague Island.

Posted on by bereavedandbeingasingleparent · 65 Comments

Cinema

It’s that time of year. A definite feel to the movies we have watched. Can you see the theme.

Scrooged

Home Alone 1, 2, 3, 5

The Grinch

A Christmas Carol

Muppets Christmas Carol

The Santa Clause 1,2,3

Elf

National Lampoons Christmas Vacation

The Polar Express.

For me I just can’t quite catch the connection. Sure there must be one if I look hard enough.

One of the things that feels amiss this most odd year (that doesn’t work as 2020 is even) is the cinema experience. Before Hawklad we would always have a Christmas trip to the pictures (as my mum would have said). A meal before hand and then a movie. Such a lovely experience. So many wonderful memories.

Taking my mum to see The Horse Whisperer on Boxing Day. She hadn’t been to the pictures in 40 years. She was most puzzled not to watch the Pathe News segment before the movie. She refused to get up at the end and waited until the credits played through. Apparently she was waiting for the National Anthem to be played…

Trips with my partner to see huge blockbusters on Christmas Eve like the Lord of the Rings Movies. Then coming out in time to sing carols in the city centre.

Even after the world changed Hawklad and I kept the tradition going. A changed Aspergers tradition. We would take in the first, early morning screenings of movies like Jumanji and the Rise of Skywalker. Popcorn at 8am works on so many levels. Then we would go and get him his favourite takeout. All before midday.

But this year it’s no cinema. Any trip is just so out of reach for Hawklad and his anxieties. The world has changed. Even the prospect of Wonder Woman and Black Widow epics won’t overcome those fears. Maybe the trips to the Pictures have stopped for good. We will just have to see what the future holds but life goes on. It’s time to recreate that Christmas tradition at home. So we will pick a movie. A good movie. Set the dvd off at 8am. Microwaved popcorn in plentiful supply. The Christmas Cinema tradition continues.

Posted on by bereavedandbeingasingleparent · 30 Comments

Fence

Which side of the fence is best?

I had a call with Hawklads new health specialist. She will (pesky pandemic dependent) come out to see him for the first time in January. Continuity is so important for someone on the spectrum. It takes time to earn trust and confidence. Those bridges when they come down are slow to be rebuilt. Having had a wonderful health lead for three years we are now in a spell of meet one, quickly see one disappear. Fingers crossed this time.

It’s clear what the medical opinion still is. Any meaningful progress is extremely unlikely until this virus is well under control. When it’s clear that the vaccine which has been administered works effectively and does protect. Only then can any progress be realistically contemplated. Prepare to bunker down for 2021. 2022 might be the first gateway to a more open life for our little family. I also have to accept the risk that progress does not happen for Hawklad. Bridges are not built. This is the new world.

I remain clear. It’s Hawklads life. He makes the call. I will support which ever route he goes down.

So will he return to school in January? Most likely NO. Will he make it back before the end of the school year in July. Probably NO. Will he start the new school year in September. Definitely no guarantee.

It feels like we are in one side of a fence. The side that feels limited but safe. The other side of the fence opens up the world, broadens his horizons but…….

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Say that again

Say that again…..

I so need to have a notebook which I carry around in my pocket at all times. Every time something is mentioned that has the slightest chance of becoming important then I could write it down. A permanent record to prompt my sieve like memory and stop those say that again moments.

Had a few too many of those over the last few days.

“Dad did you get the glazed cherries for our Christmas Eve treat?”

Say that again!!!!

“Dad did you buy the Home Alone 4 dvd for our Christmas Day movie?”

Say that again!!!!

“Dad did you phone school before they broke up to tell them that the Teams password isn’t working?”

Say that again!!!!

“Dad did you remember to make a donation to the school charity appeal last Thursday?”

Say that again!!!!

“Dad did you phone up XXXXXXX mum to get hold of their address so we can send them a card?”

Say that again!!!!

“Dad you haven’t forgotten that we are having Salmon to eat on Christmas Eve?”

Say that again!!!!

“Have we got the sausage rolls, French sticks, onion rings, pineapple rings, Doritos and mango chutney in for our Christmas Eve buffet?”

Say that again!!!!

“Dad did you remember that you said that you would send a copy of the family tree to Auntie Xxxx”

Say that again!!!!

“Dad did you remember to take the bread out of the oven. It’s been in there for most of the day and it’s looking a bit burnt.

Say that again!!!!

“Mr Xxxxxxxxx did you remember to submit form 5a. It needs to be received by the end of this month or the service will stop.

Say that again!!!!

“Ok you will need to give your dog these nasal sprays at least once a day. Will your dog sit still to let you do that.”

Say that again!!!!

Posted on by bereavedandbeingasingleparent · 58 Comments

Something needs to change

I was talking to a colleague about the lack of work currently. The company will probably survive but it’s going to be many months before things start to slowly pick up. Is it just me but currently I‘m not missing it. Yes the bank balance is only going in one direction but as for work – not really in the mood for it.

Anyway this chap has a son on the spectrum. He’s a lovely, really bright boy. A couple of years older than Hawklad. It’s a depressingly familiar school story. Hardly any support. It’s all down to him to put his hand up in class and ask for help. Nothing proactive. The teaching is not suiting him. He’s going backwards. His potential grades are falling and it’s not ringing any alarm bells. It’s because he is Special Needs. The bar is set low so that there is no need to work on potential. Anything is seen as a bonus. What a waste.

Too many wonderful kids get let down like this. How can we have got education so badly wrong here. Something needs to change.

Posted on by bereavedandbeingasingleparent · 56 Comments

Curve ball

Definite curve ball from school today.

I have wrote about the problems Hawklad has been having with French classes at school. The way the subject is taught just don’t suit him. Dyslexia complicates the learning process. Being at home adds to the difficulties.

I have been trying to get the school to modify the teaching approach in this one subject. Even switch the language to one which better suits him and one he is more interested in. Basically met with a brick wall. Then today’s curve ball.

The school doesn’t feel that he will be able to pass exams in this subject due to his learning issues. So they are now recommending that he drops the subject completely. Undertake no language learning at all. He would use the French class time to work on his other subjects.

So rather than try other learning routes they just want to ditch the subject. I’m kind of speechless. Will let Hawklad decide what happens next. BUT my initial take is that

…..Sadly it reflects the lack of flexibility in the UK teaching system. It also reflects the general approach schools take with those pupils who have learning disabilities.

Posted on by bereavedandbeingasingleparent · 38 Comments

Start again

Another Monday and the start of another school at home week. I make that Week 38. That’s a lot of weeks. Funny thing is that it doesn’t feel like 38 weeks. Somedays it feels like only a couple of months. Other days it seems like years.

In all probability during the early part of 2021 it will be a full year of schooling at home. That wasn’t really in the plan.

It has really all felt a bit hit and miss. Some good bits and some not so good bits. Lots of frustrations. But equally lots of laughs. Some subjects where the teaching is working. Others where after 38 weeks it is still a complete waste of time. But that’s thing. With having to stick to the school curriculum we don’t have much scope to change things. We are dependent on the school making changes. But they have to stick to the national curriculum.

But over those 38 weeks we have settled into a rhythm. Parent and Son. No need to set the alarm as we just naturally wake up at the right time. No real pressure if Hawklad starts a few minutes early or late. No need to think about breaks or food. They kind of just happen. We know which lessons will work and which won’t. If we don’t have an item for a lesson we now know how to wing it. We are not surprised by the lack of feedback. Hawklad doesn’t panic now if a teacher forgets about him. I get on with stuff until I’m needed to help out. The school week just happens now.

True homeschooling did feel daunting now it feels very doable. Tough but something we can cope with. But Week 38 also marks a dangerous time. That’s a lot of weeks of emailing and phoning school. Trying to make improvements to the teaching. Make it more tailored to Hawklad. Am I starting to take my eye off the ball. Not pushing the school as much. Maybe week 38 is time to refocus and start again. Or maybe it’s just going to be another one of those weeks. If I was a betting man I would put my money on the latter. It just feels that way.

Posted on by bereavedandbeingasingleparent · 69 Comments

Fibonacci

We had a bit of a perfect storm during the morning. AND for a change it wasn’t the Yorkshire micro climate to blame.

MATHS

In particular number sequences. A whole 90 minutes dedicated to the little beauties. Geometric, Arithmetic, Square, Cube, Triangular, Fibonacci. I always remember thinking Fibonacci sounded like a really cool wrestler. The Maths Tutor didn’t find that thought very amusing.

For those who quite rightly have forgotten mathematics from school and college, the Fibonacci sequence is where the next number is the summation of the preceding two numbers. One of those things you are taught and will probably never need it. Fibonacci has only ever cropped up twice since school. Annoyingly not in the school exam. I remember giving one unfortunate External Consultant a bit of a frosty reception when he tried to convince me that I should be using Fibonacci to better manage agile teams at work. I think the poor chap learnt some new Yorkshire words and was then ushered out to annoy someone else.

The second time Fibonacci entered my world again was today. This morning we discovered that our son struggles with number sequences. He just can’t see the patterns. It wasn’t helped by the frequent use of decimal points to make the patterns even more pesky. Much frustration. Son couldn’t see the patterns at all and his dad could see the patterns BUT I struggled to describe them in words. Clearly one of those things I can do with out thinking but I’m not entirely convinced how I do it. Bit like trying to programme the washing machine.

But here’s the thing. I convinced son that it didn’t really matter. If sequences do come up in the exam then they won’t count for many marks. He can still have a stab at them and if all else fails, guess and move on to stuff that he will be able to do. And after his exam unless he meets many keen External Consultants, he is unlikely to need number sequences again. He’s better off learning stuff he wants to learn and stuff that he will use.

Let’s leave Fibonacci as a wrestling star.