Night out

A few weeks ago I was contacted about an old school reunion. Surely this was an excuse for a night out. My first night out since the world changed over two years ago. The old me would have been really excited about seeing some old friends and having a fun night out. How times change.

This potential night out sent shivers down my spine and I agonised over it.

  • Where am I going to find a child sitter. A child sitter my son is comfortable with. A child sitter with experience in autism. I couldn’t come up with one viable option. After our son was born we hardly ever went out as a couple. If we did go out for a night, it was as a family. But as the autism became more prevalent these family nights out stopped. But at least one of us could stay with our son if the other partner wanted to go out – it worked well.
  • Because the venue was over an hours drive away, even a relatively short stay at reunion would have meant an extended period of childminding.
  • How would I react having my first evening/night away from our son in over two years.
  • Would I be able to cope at the reunion. It feels such a long time since I’ve done anything socially like this.

In the end I sent my apologies. I’m sure that the correct approach would have been to go. Yes you can list a number of valid reasons why I should have gone. But was I disappointed, not in the slightest. For the night of the reunion we ordered a pizza delivery and watched the two Paddington Bear movies. It was another lovely night. This is my world until our son is ready to fly the nest. Yes it does have its downsides but it is the biggest privilege I could possibly have. I count my blessings for this opportunity.

Planet of the Apes

The weather today was wonderful. Warm and still. Countryside filled with fantastic deep colours. Even the dog was almost behaving himself. It should have been a walk to saviour.

Yet a my head was blocking the surroundings out, to busy lost in worries:

– son starting new school, have I got everything ready, I must have forgotten something from the school list, will his uniform fit, will he make friends, will he get bullied, have I got the wrong start day…..

– we haven’t had a holiday in 2 years, I must be a bad parent….

– what happens to my son if I become ill…..

– is it time to have that chat about Santa Claus…..

– am I leaving it too long in getting round to spreading my partners ashes…

– are we spending too much money….. am I working enough hours……

– the lawnmowers broken, can we afford to buy a new one this month….

– did I turn the oven off …. did I lock the front door……

And on and on and on it went. Virtually the whole beautiful walk blocked out by my worries. Then the realisation that I had not spoken to my son in over an hour. Luckily he seemed really happy, walking the dog.

“Are you ok, son?”

“Fine dad”

“What are you thinking about

“What might have happened if the Planet of the Apes was based on a different animal. Currently trying to work out if Planet of the Pugs would make more money than Planet of the Budgies”

……………………………………….

So hopefully I’ve learnt my lesson. Try to live the moment rather than worry about things. There is probably a time and a place for these worries, but it’s not on a beautiful walk.

I missed out on todays Planet of the Apes debate but I’m certainly not planning on missing out on next weeks now booked debate about alternatives to Pirates of the Caribbean.

Progress

The hustle and bustle of school summer holidays is something which does not sit well with my son. Aspergers and crowds is often not a good mix. Added to this was the fact that since his mum died, the sight of happy families would often greatly upset him. Reminders of what he had lost.

But now we have some progress. Now when he sees families it often reminds him of some wonderful memories. Memories he loves to share. Good times which make him happy.

Today was almost a perfect setup for him during a walk with the mad dog. Occasionally we came across families playing in the park. Today these encounters prompted memories of holidays we shared together with his mum. All precious and warming memories. No tears just smiles.

But today it often felt like we had the park to ourselves, no hustle and bustle, just the sound of birds. Today no anxious looks over his shoulder at the swirling crowds around him. A boy at ease with his surroundings.

Days like today feel like progress days. Often it seems like you get good days and bad weeks. Dark periods seem to go on forever. But when you do get a good day it reinforces the importance of trying to keep moving forward.

Uplifting rain

Yesterday was a strange day. Started very warm, dry and still. Finished very wet, cold and stormy.

It was also one of those moods swing days. It started really well with my son in great form. Then one Family movie later it had suddenly swung to tears and dark hearts. Movies which clearly advertise bereavement in the description can be planned for or better still avoided. It’s the ones which suddenly drop these on you without warning which cause the trouble. From a happy family on a trip of a lifetime to suddenly a young family trying to cope with the sudden death of the mum. I can’t remember seeing that bit in the synopsis. It really hit me, lord knows what it did to my young boy. It makes you feel like a completely incompetent parent … why didn’t we opt for the Scooby Doo movie.

But yesterday we had an unlikely saviour, the rain. After two months of completely dry weather the heavens opened. Stood outside in the rain, being almost blown off our feet in the wind. It just felt great. Seeing my son getting drenched to the skin and loving it. Today I just love the uplifting rain.

One foot in front of the other

The school holidays have now kicked in. Amazingly the usual UK rain deluge has not accompanied the kids being off. Never thought I would say this but I can’t remember what rain feels like. It’s been over two months since our last bit of rain.

You get so used to something, you take it for granted and then when it stops you quickly start to forget it. It’s been over two years since my partner died and I’ve got a growing list of things which fall into this category:

– forgotten what it’s like to go out for a meal

– forgotten what it’s like to hold hands

– forgotten what it’s like to have an argument

– forgotten what it’s like to share a bottle of wine with someone

– forgotten what it’s like to plan a holiday together

– forgotten what it’s like to have a tug of war over the duvet

I could go on but you get the point. Well another thing on the list was I had forgotten what it was like to do our local walk which circles our village. We would walk this most Sundays.

Well today I crossed that one from the list today….well sort of. The walk used to take us 40 minutes, well today it took over 2 hours as I managed to get lost.

Vampires

It’s been a bit of a struggle over the last few months. We needed to try and break out of a world which seemed to be increasingly like Groundhog Day. It was my son’s idea, let’s go and see a rock concert. A few minutes later two tickets for the Hollywood Vampires were purchased.

This was my son’s first concert and he loved it. It was the first time that I had seen him laugh and really enjoy himself in ages.

He was just mesmerised by Alice Cooper.

He has always adored Johnny Depp and seeing him just made it that bit more special. It was also interesting that the concert paid homage to a number of rock stars who have died over the years. My son found it reassuring that you can look back and celebrate those special ones who have left us all too soon.

I must admit, it did me the world of good to. It’s the first time I have felt truly alive since my partner died. She would have loved it to, she always fancied Johnny Depp. I could never understand why she thought Johnny was so much more cooler than me.

On the drive back my son quickly fell asleep and I was desperate for a drink or a sweet. I quietly tried to fumble around the car for anything. After a few minutes I found something which felt like a small marshmallow. Strange I couldn’t remember ever buying marshmallows, but it’s a sweet. For about 10 seconds I chewed on this marshmallow, but it had no taste and just felt odd. Then that sinking feeling, that’s no marshmallow, that’s one of my son’s ear plugs which I had forced him to use for the concert.

What was that I was saying about me being as cool as Johnny…….

One small rose

The last present I gave to my partner was a Yorkshire Rose. In the turmoil of that fateful year, I cannot recall if she managed to see it flower before she left us. Well for the second year I’ve successfully not managed to kill it – very unusual for my not so green fingers. The difference this year is that the rose flowered on my partners birthday. Strange how one small flower can bring light on such a bleak day.

Backwards or forwards

The last garden Daffodil of the season has decided to bloom about a month after all the others started dying off.

And a dog trying to sneak into the picture

Somethings you just can’t control. Can’t control when the flowers bloom and you certainly can’t control pets..

The last couple of years has shown that I have little control over my moods. Even less control over that part of my brain which determines the memories or thoughts which will be flashed in front of my eyes. No control but definitely a pattern exists.

When I’m in a positive mood I often drift back to memories from the past, the places and times I spent with my partner. I feel so blessed that I was given the chance to experience these precious, happy times.

However when I slip into darker moods, the same process doesn’t seem to work. Rather than looking back at happy memories, my mind constantly tries to force me into the future. Trying to show me the many places or events I won’t get to share with my partner. I find this so crushing.

Today images of New Zealand and Canada, those long planned trips which we can never share. Last week it was images of not being able to grow old together.

Hopefully tomorrow it’s a return to happy memories.

Winter is over..

Spring has finally arrived here.

A few weeks ago I overheard someone say “I think we are all ready for some sun now, it will cheer everybody up”.

Well the warm sun has arrived and yet I don’t feel particularly cheered up. I have been stuck in a ‘down spell’ for weeks now. Not the complete desolation I suffered after my partner died, just feeling low all the time, not sleeping well, often feeling sad, struggling to smile. The stuff which helped lift my spirits previously just don’t seem to be working currently.

Deep down I realise this particular down spell will eventually pass. Maybe tomorrow, maybe in a weeks time, maybe it will take ….

The strange thing is that a few days ago, a friend told me that I seemed happy and over my grieving. How could he be so wrong. Well the simple answer is that I’m not happier, certainly not ‘over’ my grief. However I have obviously become much better at hiding my feelings, hiding the real me, pretending not to be depressed.

More Hair Disasters

In the long line of parenting skills I’m sadly lacking, hairdressing is near the top. This week witnessed another hair disaster. My son spoke the dreaded words a few days ago. “Can you help me sort out a fancy dress costume…..”. All went surprisingly well until it came to the hair.

A change of hair colour was required.

A can of temporary hair dye was purchased, and carefully applied. Bingo it’s the right colour, job done.

Unfortunately I missed the small print on the can, in particular the lines “apply sparingly” and “apply in short bursts, with only a few seconds application required to successfully dye hair”.

Maybe using the whole can up in one application was a bit overkill…

Well a few days later, multiple hair washes have failed to remove the temporary hair colour from my son. The hair spray also does a really good job of permanently changing the colour of pillows and bed sheets.

I’m betting that the temporary hair colour will outlast the first garden flowers of the year.