Posted on by bereavedandbeingasingleparent · 69 Comments

Let’s spell out Monday

An entire weekend without seeing any evidence of other humans. No post. No phone calls. No dog walkers. Villagers hidden away in warm dry houses. On the walks not even one passing car or stray rambler. Helps when many of the roads are closed with overrunning roadworks or floods. Great fun in the pouring rain trying to play tennis on the pavement. Very cramped in an area probably not big enough for table tennis.

Sadly the relaxing weekend goes to quickly and dreaded school looms. A temporary change in school bus routes means more strange faces and much larger buses are running. No guarantee when the bus turns up. An absolute nightmare for a kid with Autism. If only that was the only thing.

Another heated discussion with school and the authorities. Both reassuring us that measures have been put in place which ensure compliance with government requirements and allows all kids a fair chance of performing well. Yeh right. Keep the Government happy – Sod the kids in effect…. Clearly certain parties need to lookup the definitions of all and fair. So this weekend our son’s homework basically is all about writing out three times all his spelling mistakes and unclear handwriting attempts. That’s going to expand his mind and boost his confidence!!

Then to cap it off he has to revise for an English Test. The test is an old school Spelling one. Learn 20 words.

Language

Presented

Sherlock

Through

Evidence

It’s the same spelling test for all in the class. No extra time or help for any child. Again maybe it just me and my cabin fever. If it is please just delete this post. But how is this fair. On what planet is this supposed to have any positive impact on any child with dyslexia and autism. Designed to fail AGAIN. For all the required words our son can give definitions for and provide alternative examples of how to use the word correctly in spoken English. But this is not important apparently. Not what school and the government wants. The focus is on getting all kids to just spell by learning parrot fashion a list of predefined words. If you can’t do this then you are low attainment. A failure. A faulty item.

Education is filled with really good, dedicated and caring teachers. Yet they are increasingly told how to teach and to focus on a narrowing range of objectives. Objectives not about the interests of the child. It’s all about Satisfying the Government. The agenda is that money should go to fund tax cuts for the rich rather than on unimportant things like school budgets. To make sure this happens Schools need to follow the tried and tested factory model. Increasingly large production runs which help drive down costs. Eliminate natural variations and reduce choice. Children just seen in terms of inputs and outputs. Push them through the system. Those who don’t fit are labelled a problem and discarded as surplus to requirements.

I will tell you where the staggering stupidity and the real problem lies. It’s in those leaders pushing this dogmatic crap and equally on those who choose to vote for them. Shame on you.

So we move on into another uncertain week filled with too much anxiety for someone so young. Let’s hope a few Muppet and Spider-Man movies can briefly lift the mood. Even a bit of no space tennis might help. But surely the countless thousands of children who suffer deserve so much more than this. The really do.

Posted on by bereavedandbeingasingleparent · 138 Comments

I am not a widow

Bereavement is one of the most intense and horrible experiences a person will ever go through. It’s sharp prickles and thorns grab hold of you. It scars you. So how can you ever forget it’s happened.

I had stopped off at the local store for food for tonight. Son is easy – just look for any food that starts with an S and ends with ausages…. Then fill the plate with tomatoes, carrots and bell peppers. I will look longingly at the cakes then eventually go for soup. Oh look they have some giant jacket potatoes I can get them for my partner. Where’s the cheese to go with them. No prizes for spotting the deliberate mistake.

It wasn’t until I was focusing on finding a mild cheddar that the brain finally kicked into gear. Oh bugger. For a few glorious seconds I was not bereaved. Not a widow. Then that sinking feeling. That awful feeling in my tummy. Completely disoriented trying to process two completely different places which are three years apart within a few seconds. Maybe this is what Time Travel will feel like.

Not a widow.

According to the UK Government I’m actually not a widow. Officially you can only be a widow if you are married in a manner recognised by our beloved rulers. We were a couple for 20 years. Now approaching 23 years…. The plan was always to get married but we had plenty of time to sort that out. Then we became a family. Then Aspergers entered our life’s. Again marriage was put on the back burner as we had something far more important to focus on. Then time ran out.

So since we were not married I’m not supposed to call myself a widow. The Government is not stupid. It’s a money thing. Death benefits are aimed at easing some of the initial financial pressures which will hit when a partner dies. These benefits need to be restricted so we have a very selective definition. If you are not defined as being officially married then it’s zero help for you. Your not a widow. It’s not the denial of benefits which annoys me it’s that somehow that unmarried bereavement is officially seen as less important. Not an issue. I remember talking to a man whose male partner had died. For years they were unable to get married because of the law. That has now changed. The irony was that it was done by a Conservative PM who needed help from the opposition as many of his own party voted against the change. Five of the current Government voted against same sex marriage. This wonderful couple never got married after the law changed in 2013. The man said

“All I wanted to do was call myself a widow and get on with grieving. But according to the Government I am not a widow.“

We agreed an appropriate response. Bugger off. We don’t care what others may think because in our eyes we are widows.

So I may briefly forget that all this bad stuff has happened. But sadly it has. So yesterday, today, tomorrow and going forward I AM A WIDOW. Interestingly my spell checker is desperate to change widow to window. So to keep it happy I AM A WINDOW. Now that opens up a whole new philosophical blog and probably makes a great Prog Rock Album Title. On that thought it’s time to draw the blinds down and go to bed.

I know that I will miss her tonight.

Posted on by bereavedandbeingasingleparent · 91 Comments

When diplomacy fails.

A largely stress free week for our son. It’s strange how these always coincide with times away from school. How can we have got education so badly wrong for so many kids. So many great teachers yet so many unhappy and unfulfilled children.

Our son likes lists. It reflects how is mind works. They are honest, raw and unfiltered.

Dad I have a top ten list of what I am looking forward to and not looking forward to with this school term

  • Being treated like I’m not allowed to understand stuff. I’m low attainment so I am supposed to act like it. Kids who get lower marks than me, who don’t answer as many questions are in classes above me.
  • Having to put my hand up for help. I have an invisible disability which school doesn’t want to see. So I don’t get any help. No help at all.
  • Never getting a chance to shine.
  • Having to do tests which are made to make me fail.
  • Completely pointless homework. It’s just testing your handwriting.
  • Too much noise. Too many people.
  • Being in a class with so many kids who don’t want to be there so they are naughty. Because I’m in the bottom class I’m supposed to be naughty.
  • Having to wear a uniform which is so uncomfortable and feels awful.
  • It’s never fun. Just rules and avoiding being given negatives.
  • At least it’s not an 8, 9 or 10 week school term.

So in a few hours it starts again. I will repeatedly bang my head on an unmoving brick wall as school and the local council won’t shift. They make me sound like that annoying parent who just will not see the clear logic of the situation. How dare I question the system.

All I can do is keep being there for our son. But maybe there is something else. Let’s really be that annoying pushy parent. Clearly working WITH school and the authorities doesn’t work. What has it produced. A kid stuck in bottom class getting absolutely no extra help at all.

Autism – nothing

Dyspraxia – nothing

Even the little bit of help he received with Dyslexia has been removed

Diplomacy has failed. Working with the authorities has failed. Maybe it’s time to fight them.

Posted on by bereavedandbeingasingleparent · 89 Comments

The Golden Ticket

It’s amazing what you come across on a daily basis. You get good discoveries that just make you go ‘wow’. The ones you can look at for ages and get a sense of wonder.

Then you get other discoveries which make you go ‘wow’ for entirely different reasons.

Today I came across a headline in one of our so called better newspaper – The Times.

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“Pupils lose out as £400m schools funding diverted to special needs

Children have been losing out because millions of pounds earmarked for their education has been siphoned off to pay for special needs education, an investigation by The Times has found.

A surge in pupils categorised as having special needs has led schools to lay off staff, increase class sizes and cut back on subjects as councils raid mainstream education budgets to fund support for them.

One headteacher said that the funding reforms introduced in 2014 created a new education, health and care plans that were seen by some parents as golden tickets”

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Don’t try to read the article as you have to pay Murdock for the pleasure. No free news here. Where do we start with this article from the Rupert Murdock stable.

  • Am I missing the point here but surely SEND (Special Educational Needs and Disability) kids are pupils as well. My son is a pupil surely. Not according to this newspaper. Clearly The Times would like to scrap inclusion and go back to the good old days where too many kids where denied the opportunity of mainstream education. The Times journalists have an underlying principle to most of its commentaries. Well if I don’t need that support so why should we be paying for it.
  • This article is likely to cause some parents to start resenting and blaming SEND kids for school problems. It’s pouring fuel on the fire of resentment and bullying. Basically what this article is saying is the those SEND kids are robbing Normal kids. It is deeply irresponsible and distasteful journalism.
  • The article doesn’t mention the 1500 SEND kids who are unable to find a mainstream school that will accept them. But it according to this journalist – that doesn’t matter as they are not pupils.
  • Blaming SEND kids for the £400m short fall in school budgets is lamentable. Clearly according to The Times this countries crisis in class sizes and falling teacher numbers is purely down to SEN kids. Let’s not mention that school budgets have been severely squeezed as a directly consequence of Government funding cuts. Let’s not mention that this Government introduced a new assessment system but refused to fund that change, That’s the very Government this newspaper supports whole heartedly.
  • This country has had a crisis in SEND school funding for years. It is chronically underfunded, it has always been chronically underfunded. Recently it has been subject to further Government cuts. No mention of that then.
  • A surge in pupils categorised as having special needs. It makes it sound as if suddenly parents are inventing SEND symptoms. This country has an estimated 350000 kids with a learning disability. Most experts say this is a fraction of the actual number. So many kids go through education without having a learning disability diagnosed. For too many years we have failed to address this educational crisis. This is going to get worse as a direct consequence of Government Policy as the criteria for SEND diagnosis is becoming stricter – purely to save money and not based on any health grounds. This is at the same time that funding cuts are resulting in longer wait times for an actual diagnosis to take place.
  • Finally ‘a golden ticket’. Really. In our case it’s the reverse of the article. The funding which has been awarded to our son for his learning disabilities is being used to part fund Teaching Assistant support for the whole school. The article also fails to reference that most SEND parents are already paying for additional care and educational support. This so called Golden Ticket only covers a fraction of the true cost of support.

Once again journalism gives us an insight into the deep rooted problems we have in society. The media reflects the current views of our so called Governments. It shows how far we have to go. How difficult this fight is going to be. I will leave the last word to my old Dad. He would call The Times ‘excellent toilet paper’. Thats all its good for.

Posted on by bereavedandbeingasingleparent · 60 Comments

Not Great anymore

Donald Trumps Wall appears to have started in Yorkshire. Here it’s probably to separate the privileged few from the many.

In my country professions like Teaching, Policing, Nursing, Clinical Specialties once we’re highly respected. This respect was reflected in pay and pensions. Unfortunately times have changed. Or should I say Government Priorities have changed. The argument was that low taxes was the new king. Low taxes on the rich and the money generators started to dictate thinking. The Government started to pick fights with various professions. A deliberate attempt was made to erode public confidence in areas like teaching, health and policing. Then the money generators messed up and we had the financial crisis. Suddenly austerity was needed. But again it was austerity for the many while protecting the few. So the Many and the Public Sector took the hit.

Government introduced competition into all areas. Suddenly contracts were awarded on best value for money. Best value rapidly became defined as the cheapest. As a result the workload on services increased. Quality levels dropped. Providers repeatedly changed. Unfortunately on top of this the pay and pensions of hard working professionals were also squeezed.

When people find their wages and pensions squeezed three things can happen

  • They buckle down for less money but their standard of living is eroded,
  • They become disillusioned,
  • They leave the job.

The Government trots out the argument about the cosy public sector life. The country will be better when everyone works in the good old private sector. Let’s not forget that our Prime Minister said of his own position

‘My Cabinet Ministers salary of £141,000 is not enough for me to live on’

When he said those wise words he was living in his rent free £20M Ministerial Mansion…. one rule for the few and a completely different rule for the rest of us.

A kid with Autism needs above all stability. Continuity in care. Trust is a commodity which takes along time to develop. But those key qualities have been destroyed by Government Policy. This year every single Teacher and Teaching Assistant changed for our Son. We have had to start again trying to build up the so important knowledge base of his particular educational needs. His Paediatric Care Provider has changed and we wait for his new clinicians. Wait is the buzz word. Appointments have gone from 4 times a year to twice a year to once a year. Not sure what the definition for a Year is. We recently received a letter saying that due to the change of provider the next appointment will be significantly delayed. He has had the same Physio for 4 years. But she quit her role. Then the next Physio left after one session. Another Physio then left before the first session. Currently we are waiting another a Physio to be appointed. He had access to a brilliant Clinical Psychologist but she retired and was never replaced. He started work with a Speech Expert but after 2 months she left the profession and the service was cut. He started a programme to work on his optical muscles but the service was cancelled with responsibility passed over to Education. Education refuses to provide that programme. I could go on…

So while our PM moans about his falling living standards the many are picking up the pieces. That’s modern Britain. It’s not Great Britain anymore. It’s certainly not great if you are not one of the Few. And it’s certainly not Great if you are a kid with Autism.

Posted on by bereavedandbeingasingleparent · 61 Comments

Imagination

It doesn’t have to be big to have a bucket full of atmosphere.

This is Skelton Tower on the North Yorkshire Moors.

It’s almost 200 years old and is a former hunting lodge.

If you time your arrival at the Tower correctly then you can enjoy the passing Steam Train coming down the North Yorkshire Moors railway. Unfortunately this walking muppet has never managed that. Still you still get views of the haunting Newtondale.

The Tower is also a fantastic dreams portal. As long as no other walkers are in sight our son can spend hours here. Lost in another world. Talking animals and mythical creatures. Playing about with time and the laws of science. I must admit I often dream of rebuilding the tower and living here 200 years ago.

It’s really good to dream and stretch your imagination. I wonder how many inventions and leaps in understanding have come from doing this. That’s why it’s so frustrating that as soon as kids get past the age of 11 dreaming is often frowned upon. At school the kids have a predetermined and restrictive curriculum to get through (set by the Government – god help us). Hardly anytime is scheduled for creative thinking. Even in subjects like art the approach seems to be learn about this artist then reproduce one of the artists most famous pieces. More marks for getting close to it. Only occasionally are kids allowed to free draw. When our son tries to reproduce something then it’s a disaster. He just can’t do it. But allow him to draw from his imagination and suddenly he’s away.

Kids are not encouraged to explore logic and push the boundaries of thought. In science son has been told on a number of occasions to just accept the facts. Once he asked why science was seemingly so sure of its laws when we can only see less than 1% of the universe. He got the above response.

In maths the class had some questions to work out. Son found a quick way to get to the answer. It worked for every question but was told he was doing it wrong as it wasn’t the approach set out in the textbook.

In our area we are so lucky in terms of history. On our doorstep we can touch the Neolithic. The Stone Age. The Bronze Age. Roman History. Viking History. Medieval Times. The industrial Revolution. Victorian Times. World Wars. So much history to live and breathe. Yet do the schools make use of this. Not really. In his 5 years at Primary School he went to two historical sites. Currently at his present school he has spent one hour at a local archeological dig. What a waste. Won’t the kids learn more about history if they can actually live it. Apparently not – the only source of learning is from predetermined textbooks.

Imagination is the key to so much. It should be one of the key facets of modern education. When I was a kid the brilliant Carl Sagan ignited my passion for astronomy and thinking. I will leave you with his take on imagination.

Imagination will often carry us to worlds that never were. But without it we go nowhere. CARL SAGAN

Posted on by bereavedandbeingasingleparent · 57 Comments

Is Phonics the wrong path

Our much beloved School Minister (and first holder of our Boris Numpty Award), Nick Gibb declared “the debate is over”. He was referring to his decision which meant the all kids in English schools would have to learn reading by phonics. Kids are taught to break words up into parts and then learn individual sound parts. Previously kids were taught with a mix of phonics and the old approach of memorising the whole world.

Interestingly our School Minister who is an expert in all things education has no practical experience of teaching. He is an accountant. Which makes me equally qualified to set school policy….

Yes phonics does work for some kids but not for others. For example many kids with dyslexia or kids on the spectrum struggle to decode words and then struggle to produce the right sounds for each individual part. I’ve tried phonics and I struggle with it. It’s a disaster with son. We could be trying to use phonics for the next 100 years and it will still not help our son to read.

We all must have done this. Set out for a nice walk. In the case of the photos across the stunning North Yorkshire Moors. Then you come to a crossroads. Paths going in all directions. You look vaguely at the map. Try to look like a professional. Fold up the map carefully. Then go Eeny, meeny, miny, moe and randomly guess the right path. In my case it is usually unerringly wrong. After several miles you get that sinking feeling – wrong path.

Actually wrong path is not the best description. It will be the right path for many. It will take them to their desired location. But for some (like me) we could go down this path for years and it will never ever get us to our desired location. So what I need to do is get off this path and find a path which works for me. That is the sensible thing to do. As a I am not that sensible I won’t retrace my steps back to the crossroads. I will try to break trail in a different direction in the hope that I will find the path for me.

Now according to our Schools Minister all kids should go down the same reading path. Unfortunately doing that will guarantee that some kids never do arrive at their destination. Endlessly walking down this path, getting lost, getting disillusioned. That’s what happened to us. We blindly went down the phonics path and basically got no where.

But then we stopped and said stuff you Nick Gibb. And we broke a new trail.

  • We started learning some of the most common words the traditional way. Son would memorise the whole word.
  • We started playing around with various learning to read games on the internet.
  • Using trial and error son would try to use app’s like YouTube, Google Search or games like FIFA by himself.
  • Son would watch TV shows with the subtitles on. Movies like the Avengers were perfect. He knew them virtually off by heart. So he could focus on the subtitles and start to make links.
  • He would relentlessly work on his coordination. He would read a grid of letters while clapping his hands. He would bounce a ball while trying to learn and read words.
  • We would jointly read books. Normally Mr Men books. They were just the right length and fun. He would join in when he wanted to. I would never correct a mistake. He would process that himself.

The new trail has started to work. We haven’t reached our son’s destination but it feels like we are heading in the right direction at last. Enough for son to call himself now – a reader.

So I hope our Schools Minister finds his own path. Preferably takes him a million miles away from this countries classrooms. Then we can get back to trusting parents, teachers and kids to pick the education path which best suits them.

Posted on by bereavedandbeingasingleparent · 60 Comments

Worth it

The rain clouds finally moved on and the sun shined briefly today.

If you open your eyes it’s amazing what gifts this beautiful world of ours will bestow on you.

The news in many countries is usually grim these days. In the U.K. we find our country run by the most extreme and dangerous government this country has seen in centuries. Your either completely agree with them or you are branded a traitor. An enemy of the people. We have become a country were a PM is hailed by his supporters like a conquering roman emperor after he was found guilty of breaking the law by our highest court in the land. A country where the PM is openly stoking the fires of intolerance and hatred. Where intimidation is commonplace. Brexit has broken the country. Was it really worth it.

So parents have to bring up their children in this toxic environment. A world made toxic by the adults. As a generation we have monumentally failed. We continue to find new ways of making things worse. Our leaders play a daily game of who can be the biggest cheating lying dork. Who can bring down their democracy first. Who can burn the planet fastest.

But hope has not been vanquished. The decent law abiding amongst us greatly outnumber the deluded. The next generation have not been blinded by the madness and greed. The educational system may try to clip their wings but it’s the job of parents to keep those dreams burning bright. The young like Greta are the future. The planet is still staggeringly beautiful. Just a short walk can yield such wonders.

So tomorrow Johnson will continue to try and push our country nearer the precipice. But take a quick walk and look at what is around you. Take a good look at the faces of the young. See their dreams. That’s the important stuff. That’s what should be guiding our direction. Not the poisonous Brexit agenda – whether we should leave or remain. Regardless of what happens we are going to have to get the country working again. Bringing the artificial divisions together again. A time to marginalise the extremists, build bridges (not walls) and reclaim our wonderful planet again. The kids deserve that.

Posted on by bereavedandbeingasingleparent · 37 Comments

Magic Tree

And still it rains.

My phone is old but at least it’s just about waterproof.

Unlike my old battered raincoat which is anything but waterproof.

Our helpful government likes to point out to the great unwashed – there is no magic money tree. Well there is but it’s only available to the few. So like many households the number of items which are beyond their useful life is growing each day. Yet as we don’t have access to a money tree we just have to make do. Our list is not unusual.

  • Washing Machine – can’t select a cycle you get what the machine gives you. Plus it has a door which doesn’t shut properly so it needs to be kicked until it locks.
    Oven – has two settings no heat or nuclear fusion.
    Car – needs 4 new tyres which at least will triple the value of the car.
    Back Door – has so many leaks it’s been renamed WikiLeaks.
    Hairdryer – only blows cold.
    Shower – produces about as much water as the smallest water pistol.
    Dvd Player – only plays discs if they have been properly cleaned by Mary Poppins. Every disk seems to go into mad picture breakdown on the merest speck of dust.
    Boiler – was installed prior to the introduction of video recorders and home computers.
    Light switches -No lights in one room so it’s a great place to play hide and seek.
    Microwave Oven – has more rust than my first ever car (mk1 Ford Escort).
    Conservatory Door – doesn’t shut anymore unless you are called The Hulk.
    Laptop – in a permanent state of update and has as much processing power as a stick of rhubarb.
    Camera – has never been the same since it was accidentally dropped into a pan of boiling bake beans. Now everyone ends up looking like Donald Trump.
    Chimney – to narrow to safely light a fire. What were the builders thinking of. How the fiddle sticks did Santa get down that.
    Tumble Dryer – as much drying effect as one of my sneezes.
    Curtains – all shredded by cats.
    Furniture – all shredded by cats.
    House – all shredded by the cats.
    Freezer – the 3 plastic draws have disintegrated so all the food is just wedged in. When you open the door it’s an explosion of food items.
    Dish Washer – is no more, it is an ex dishwasher.

Every week the list of disrepair gets longer. But you just get on with it. Make the best of things. See the funny side to it. And above all remember that as bad as you think things are THERE are so many people out there with no home and no possessions. Which is appalling when you think of the wealth the few control. Just think what good that magic tree could do in the right hands.

Posted on by bereavedandbeingasingleparent · 65 Comments

Choices

Life is full of choices.

This morning it was pouring down but the forecast was for sun. What to wear on the run. I opted for full rain gear. 10 minutes into the run it’s blazing sunshine. Ended up more drenched than I would have been if I had started in just a T-shirt in the rain.

The Government could have saved Thomas Cook from going under. They decided not to. Apparently they were worried about not getting the £200m back. So 22000 people world wide have lost their jobs. Countless thousands are stranded. Holidays, honeymoons, once in a life time adventures have been ruined. Lots of hard up people are losing money on the bookings they have made.

Last night in the rain storm water came in through the back door. Do I find money to replace the old back door or find the money to replace the misfiring washing machine.

A few years back the Government didn’t win enough seats in the election. It had a choice to make. It decided to find over £1billion to bribe another party to back it so they could keep their jobs in government. Wonder when we will get that money back.

A few months ago I was faced with a decision. Keep son in school or homeschool. I opted for keeping him in school on the grounds that I couldn’t afford to home school (single working parent) and hope school will improve the support to our son. Few weeks into the term of any school support has in fact stopped. Probably a bad call.

The Government had a choice to make on Brexit. It’s decided to go for a no deal crash out. An approach which will make many in the cabinet and it’s friends significant money from hedge-fund investments. It’s also will have to spend over £6billion on Brexit planning. I wonder when we will see that money back.

So in life we all have choices to make. The big difference is that the vast majority of us may get decisions wrong but they will have been taken with the best of intentions. That doesn’t apply to Government. Ultimately they are looking after themselves….